Hand hold while I wait for ambulance for daughter

[StopTheQtipWhenTheresResistance]

Currently waiting for an ambulance for my daughter. Been sent as category 3. She's not been right for a few days now, not eating, not drinking, just laying slumped on her bed. This morning she collapsed in the bathroom and went really pale.

She has a learning disability and complex mental health problems so she can't tell me what is wrong as she doesn't verbally communicate when she feels unwell.

She was in hospital a couple of weeks back due to an infection (see previous threads) so I hope it's nothing to do with that.

I'm so worried, I feel sick.

Thank you. She wasn't breathless or had any blue tinge thankfully. Her 02 levels are fine now. She's had IV fluids, antibiotics and paracetamol and she seems to have perked up a bit. She's been looking at me and smiling.

@simonell yes. She doesn’t have an intestinal blockage though? I’m not saying she didn’t need to go to hospital either! I’m saying it probably didn’t need trained medical technicians as they literally just drove her there. Another solution would be preferable for everyone including the op.

@Newstarto doesn't she how do you know ? Has the op mentioned that they have done a scan on her to check?

I don't know about sodium Pico sulfate but lactulose never worked for me. I agree it would be good to be able to see if that's working with a scan as it sounds like she can't communicate if things are getting better or not and bringing her back in for a scan doesn't sound like it would be workable.

Ask for the sandwich, I dont know about where you are but they usually had some in the fridge in the paediatric and short stay wards. It's hard to look after yourself when your kids are struggling and need so much care and honestly sometimes it just feels like people are expecting more of you when your already feel overwhelmed and its an easy thing to let slide, but you deserve consideration and self care in all of this.

@simonell why are you so angry? Op says she has a chest infection. Either way it wasn’t a life/ death situation and a different way of getting help for those that need it without employing medically trained people would be preferable no?

Good grief what an absolutely vile paramedic. I don't understand why people like that go into the job as surely being caring and empathetic is part of the job. I'm glad your daughter was ok.

By that logic all social workers would be in a constant strop because they have done an initial assessment on a family who turned out to be low risk, because somewhere out there a child is being murdered.

The police would be lying on the floor kicking their little legs because they did a welfare check on an old dear who turned out to be fine, but somewhere else someone was stabbed.

The fire brigade would be in a rage because the bomb scare they attended was a false alarm but somewhere else a bloke was stuck in a burning car.

This is what it’s like in these professions- like every other job in the world some things turn out to be Big Important Dramas, and many many other things, while rather mundane, are no less necessary.

@Newstarto just not in awe of people who can't carry out their job with compassion.
Angry that the lady was clearly in distress and worried about her daughter and basically got treated like shit. Would you feel the same way if you paid a private company hundreds of pounds a month for shit service? Or is it just all criticism of the nhs and SOME of the unsuitable people that work in it that bothers you ?
She called the NHS and they decided she needed the ambulance in the first place.

I was an Ambulance Tech Rightsraptor and yes, less qualified than a paramedic (but still qualified!) and I would never had behaved in this way! Totally unacceptable so please don’t tar every tech with the same brush! That’s as bad as being called an “ambulance driver!”

Is the thread started by a worried parent really the place to start berating her because an NHS service called an ambulance for her daughter?

1. It wasn't her fault

And

1. It's nasty and unnecessary. Start a thread about it elsewhere.

Shes very fortunate to have you fighting her corner. Lots of people with learning disability have no one, theyre left to their fate in the community. Its also frustrating that LD services aren't available out of office hours, but thats the situation we're in with our not remotely fit for purpose health 'service'.
Its disgusting that you had to wait so long for an ambulance - I dont even know you, but I feel angry on your behalf! Please ignore the snide comments on this thread, these people are a huge part of the reason we have such a poor health service; apologists.
I hope you get something to eat. And I hope your daughter feels better very soon.

@StopTheQtipWhenTheresResistance I don't want to derail your thread any further debating the mess that is the NHS.
I hope your daughter gets the treatment she deserves. Hopefully they will look in to what is causing the constipation so that you aren't put in this situation again. Hope the hospital isn't too distressing for her or you and wishing you the best of luck. You are an unsung hero 💐

Hope your daughter get better soon. You’ve done everything correctly. The earlier you come to the hospital the quicker the treatment will start and the quicker you both will be back home.

Maybe ask healthcare assistant for a toast - they usually have some.

I've had numerous health professionals tell me she needs to go into hospital and with her condition she needs full support to get there. Usually the paramedics are amazing but this lot weren't.

Im sure OP would love another solution, she has said their isnt one. Her daughter needs more support than other children in this situation and she should get it. I know children who can't leave the house without 1-1 care and those who need 2-1 care to safely access the community. Their parents would love other solutions but there aren't any because no one will fund them. OP has enough to deal with without sanctimonious posters telling her its not ok to access the only way she can get her child to hospital when her DD isi n a medically worrying condition and can't communicate about it and has learning difficulties. You have no idea what is and isn't possible in OPs life.

@simonell Would you feel the same way if you paid a private company hundreds of pounds a month for shit service? Or is it just all criticism of the nhs and SOME of the unsuitable people that work in it that bothers you ?

I’m going to have to step out at this point as this makes no sense and doesn’t follow from what I was saying. In any way.

@EliflurtleAndTheInfiniteMadness did you actually read my post? I said that it needed another solution that wasn’t currently available.

I despair of people on here - if you want to debate at least understand what you’re so angry about! It’s like arguing with kittens.

@Newstarto Good Ta Ra 🤚🏼

No their job was to help my daughter to the ambulance which they did not do.

NO-ONE KNEW WHAT THE SITUATION WAS TILL THE AMBLANCE TURNED UP!

It's not for some random on MN to second-guess medical decisions

I’m saying it probably didn’t need trained medical technicians as they literally just drove her there. Another solution would be preferable for everyone including the op.
You said she probably didn't need trained medical technicians as they literally just drove her there. You never said a solution that wasn't available. I'm glad for OPs sake if I have misinterpreted your words as a mum in her situation can do with all the support she can get and I'd like to think people wouldn't deny someone with disabilities the ability to access hospital care in a situation where they cant communicate and their physical symptoms are very concerning.

Do you mean it wasn’t needed? I’m confused @StopTheQtipWhenTheresResistance. surely they don’t train for years to help someone into the vehicle who doesn’t need it? This job should be carried out by untrained professionals no?

She has complex needs and it's glaringly obvious you have no idea what that means for her. You do not treat someone with complex needs in the same way as you would without. You have no ideas of her personality, health, or the ins and outs of her life.

The op knows what her daughter would and would not tolerate in terms of getting help. She got an ambulance after a long wait and she got admitted.

She's not some time waster trying to get a free ride, but you are treating her as such with your nonsense. This kind of shaming leads to people hesitating until it's too late. You can't do that with LD.

@EliflurtleAndTheInfiniteMadness I did indeed say a different way of getting help for those that need it without employing medically trained people would be preferable no? so I don’t understand your point

@Mummyexpat Absolutely, there are some excellent paramedics and technicians. We have had some that have gone above and beyond and even came back to the ED room before they left to see how she was doing.

Or you could just offer a worried Mum some words of support, and then piss off? Instead you opted to have a snide go at her, completely needlessly. Absolute, unmitigated arsehole behaviour 🙂