Cancer Support Thread 92 - Christmas Happy Hour at the Patience Inn 7pm tonight 🎄

[LemonDrizzle10]

Old thread nearly full!

Hi, thank you. I have started prepping it does help , I do that to self soothe on a normal week - once I know results from mri shall
be organising child support with military precision 🤣
back to work today as well just had a day off to process and tell family really . So work will keep my mind of it. It's the nights that I haven't figured out fully, to be fair I slept 6 hours to night and prob would have slept longer if the car hadn't thrown up and got
me out of bed to clean it up, now awake and thinking again - other cat is laying on me ( she has been extra cuddly think she senses my distress) so pinned to the bed also .

@765g
I wander into the happy place cafe (in the wide awake club) when I can't sleep
We have a bit of frivolous nonsense in there

I have 3 cats and they're all a lot more snuggly than they were, I'd expect it from a dog but was surprised by cats

I know what you mean - being organised helps me a lot and it's frustrating to have last minute appts and changes, and be rearranging things

I thought I'd skip the ondansetron last night and see if it's passed. It's not... 🤮 am a twit

Oh bless you, i hope the sickness eases up soon . And you managed a bit of sleep .
wide awake club sounds fun will check that out - probably tonight based on the last few nights lol 😜

There are goats there

@Tilllly you never told me there were goats! When I've popped over you lot are always talking about food and then I have to get up and get a snack so I gave up. How did I miss the goats?!

They're evil, we're probably hiding

Temp is 38.1
Head chest and stomach hurting

We have a new process to ring one central acute oncology number
Rang it - no one free, leave a message and they'll ring back

That was 30m ago!

Still waiting

Completely understand why people just rock up at the ED...

2hrs and the ring back was they're sending an ambulance

I don't think I need an ambulance, it's probably a chest infection again

Argh what a bloody palava

@Tilllly hope you’re ok!

Oh no @Tilllly . Hope you aren't still waiting for ambulance and that you're now in a nice private room in A&E with antibiotics pumping through your veins.

The lengths some people go to to get attention! @Tilllly you need to get back home and prepare for your fluffy bundle to arrive not waste time in hospital eating crap white bread sandwiches. Sending love and wishing you plentiful white cells to fight whatever this is.
I’ve just been reading the words of John Bunyan’s hymn. It seems apt to wish that you Be a Good Pilgrim! Xx

@Tilllly hope your ok, and all the bloods are ok and they can kick you out on some domestos antibiotics

@tilly hope you are dosed up
and in the comfort of your home again soon!

@TopOfTheCliff sheesh, just when you think you have one area of focus under marginal control, something else comes out of the woodwork as a surprise! You seem to get a lot of surprises too. Hopefully the wake planning and funeral all go off without too much trouble and FIL is well enough through this time. Your poor DH.

I've been moved on to heavier opiates now to deal with leg and hip pain (got a pain doctor even) as they wait for thr extensive muscle inflammation to subside. I also managed some 'impressive' lung inflammation along with a bad scan so thats me moving on to fulvestrant shots now. I'm ok with that, everolimus/exemestane was a wicked combo and I lost at least ten pounds on it, though god forbid anyone have a working scale.

@Tilllly i hope you got some relief from somewhere! Nothing worse than middle of the night issues.

Im still in hospital
I'm in an isolation room and the staff have gone full ET with the PPE so I reckon I've got small pox 😁

I’m on IV antibiotics for an infection but we don’t know where it is

There’s a clot somewhere too so am having those tummy injections and waiting for another scan

Chest and stomach pains, which come and go - they’re still checking for spread to the bone, hopefully not the case but can’t yet rule it out

Trying to get the pain under control, which is a steady 4 or 5 mostly at worst, then randomly skyrockets, even morphine isn't helping

Aw @Tilllly you must be so blooming fed up! Nothings ever simple is it! Thinking of you 🍇

@Tilllly Hoping you get the bottom of it all today, and the pain under control x

I've just booked all the accommodation for our Easter trip to Scotland. Slightly daunted when I write it all down: a night at friend's in Edinburgh, 3 nights in Applecross (hoping to travel via the ferry from Mallaig to Skye if we have time), 3 nights in Kinlochbervie, 3 nights in Tummel Valley, two nights back at friend's in Edinburgh, then 3 nights in Glasgow with my mum to celebrate her 80th and revisit her childhood homes and memories. I'm exhausted just thinking about it!

Hi everyone, it’s been a while since I posted but I’m now 5 months into neoadjuvant chemo for bc and am really struggling with sleep so wondered if anyone has any advice? I’m on weekly paclitaxol after which I have to take steroids for 2 days to wean off the intravenous dose otherwise I get bad headaches so I know theses days I’ll be kept awake. But I still find it hard for the rest of the week with a combination of night sweats and I don’t know what else? I’ve got 4 chemo sessions left so the end is in sight but it feels like forever today.

@Tilllly sorry to hear you’re in hospital, sounds rough (not the hospital), hope you’re feeling better soon.

@TopOfTheCliff sorry to hear about your MIL, what a terrible time for you all.

@SewingBees trip sounds great but yes also tiring, hopefully the scenery will help to keep it restful.

Hi to everyone else xx

I’m not at all clear what’s going on

Doctor has been in like a whirlwind and immediately said I could go home

But then given me a different AB - amoxicillin - by IV but said I’ve no infection

Said my Vitamin D was probably low causing the pain, and to take more morphine

Said there’s no clot and the DDIMER was normal so no need for a CT scan

And I didn’t understand the rest

Nurse is hopefully going to figure it out because I’m confused and it's not what the other doctors said

@Tilllly it’s possible to have a false negative on clot tests, I’ve had many. Had pulmonary embolisms at the time. Hope you feel better soon.

@SewingBees the sun is out up here this morning, everything does seem better when it is. Biting cold wind mind. When is your trip?

pre op here today, DH is like a cat on a hot tin roof this morning, he’s been the steady one up until now.

I just wish they wouldn't contradict each other

And there has to be some explanation for this pain and the high temperature

Other than Vit D deficiency 🤨

You ok @PissOffCancer?

Why has DH suddenly got anxious?

@PissOffCancer Trip is at Easter. Are you in Scotland? I'm Northumberland so we often get a slightly milder version of the Scottish weather. Sunny and cold here too today.

@Tilllly I found the hospital doctors very contradictory when I was in for my spine operation. I had problems with my sciatic nerve after the op. Doctors rounds at 8am - oh that's a shame, move on to the next patient. Surgeon's assistant at 8.15am - it's probably reacting to the work we did on the tumour surrounding the nerve in the operation, nothing we can do, keep taking morphine. Surgeon at 8.30am - there's stuff we can do to fix that, don't let it get you down, we'll give it a couple of days and if it's still bad we'll look at doing a spinal block.

And don't get me started on the radiology registrar turning down the inpatient CT scan and wanting me discharged to go through the outpatient system, in which case I wouldn't have known for a month if the cancer had spead anywhere else than to my spine, effectively holding up all treatment. I created absolute hell about that and basically refused to leave the bed until I had the scan. Took two days but I got there in the end.

Ok, moan finished. My good news (aside from having a holiday to look forward to) is that I walked my daughter to school today for the first time in 3 months. Had to have a nap when I got home but still ...

Oh my @SewingBees
🚶‍♀️ 🚶‍♀️🚶‍♀️🚶‍♀️🚶‍♀️🚶‍♀️🚶‍♀️🚶‍♀️🚶‍♀️

Check you out!

That is seriously wonderful news 😁🥳