Fundraising In loving memory of our son James!

[vio]

Our son James was born on 28 Apr 2007, he sadly passed away on 11 Sep 2007, in our arms at Robin House ( Children's Hospice).
James was born with a rare genetic condition called Epidermolysis Bullosa, he had the most severe form of EB and was fatal in infancy.
James skin was as fragile as butterfly wings, his skin broke at even the slightest touch, causing painful open blisters and wounds, the blistering was not limited to his skin, but also affected his inner body linings, such as his mouth and oesophagus. James was a very brave wee boy, he was a son we have always been proud of and it has been a privilege to be his parents. In loving memory of our son James Terrence Lynch ( Jim Jim ), we are going to do the Great Scottish Walk on 11 May 2008 in Glasgow, please support us by visiting our fundraising website www.justgiving.com/jim_jim, thank you very much!

Good for you, Vio....and I'm so sorry for your loss. EB sounds awful. Will visit your website now.

He was just beautiful. I'm so sorry. Good luck with the Walk. xxx

Thank You very much Elibean, Dont worry sleepycat, it's the thought that counts! Thank you from the bottom of my heart. We would be grateful if you would share his fundraising page with your friends, work colleagues, family members, help us raise funds and awareness ! Thanks again!

Bump for you

Good luck with the walk.

He was beautiful; with the most amazing big eyes.

Thanks everyone, please help us by visting our page or send to your friends and family members. Every £ helps, you can donate as little as £2. My sincere thanks to everyone of you!

bump

Bumping for the morning mners.

Thank you so much WW!

Your website message was so moving. He was a gorgeous baby boy. You must have been so proud of him.

lots of love

Tallie xxx

Tallie, yes, we are very proud of him , and its been a privilege to be his parents

bump

Such a beautiful baby boy, vio.
Wishing you the best of luck with your walk and fundraising.

Thank you very much ladies!

Please support us ladies, with your help, we can make EB curable!

Good Luck Vio!

Bump!!!

Will send this the page to every one I know. My birthday is 13th May, so will have a party and charge for drinks and pass the money on to you. Good Luck. With Love Ann, Archie,Stan,Maisie and Tilly xxxx PS, IF it's only a fiver its heading your way xx

Thank you very much fellow MNetters

very best of luck Vio.

I was familiar with Jim Jim's story because I was (very briefly) on the pregnancy board you posted on. Your bravery is truly incredible. He is stunning. xx

Thank you allegra, people like you and many many others, you know who you are, your love and support have been a constant comfort to us. Thank you so much!

let's bump it up some more!
xx

bump

Thanks arbensmum! thanks for bumping this thread! many many thanks!