Labyrinthitis

[Starrrz]

So 6th oct i went in for an endo op, week later got hit down by the flu! Went back
to work for a week then the sunday i woke up with loud tinnutis, dizzyness (veritgo) being sick and headaches.
dr said its due to having the flu!
the veritgo eased but im still dizzy, and feeling very sick!
how long will this go on for? Im soooo fed up 😩😩 have a little one to look after is very hard with this.
started antibiotics also incase its an inner ear infection.
any tips or advice i would really appriciate it x

@snickersandmarsandbounty Was you being sick or feeling sick the whole time? X

I have had it several times although not since 2014. The first time was the worst and I ended up on a drip because I was so sick I couldn't keep water down. I was left with hearing loss and now wear hearing aids. I had anti biotics one time but really the only thing is to lie down (for days if necessary) and ride it out. Stemetil helps the sickness.

@sunflowerdaisyrose oo bless him :( its awful!! Cant believe how much it knocks you off your feet! Im glad your husband was ok after and manged to get back to work.
i have this week off and may take next week off also. I want to be fully well before going back! X

@JellyfishandShells thankyou for your reply!
so what triggered that for you both times?
ill get my partner to try it too! It may help then!

im worried as i spoke to an audiologist and she said it sounded like Ménière disease. Xx

I got dissolvable tablets for the sickness but it took 3 weeks for the dizziness to clear

@snickersandmarsandbounty ok thankyou :) i guess in time it should get better xx

Was she tested for BPPV? The eyes make me think it's likely

https://www.nhs.uk/conditions/vertigo/

Yes - all signs pointed to labyrinthitis. We had an ENT opinion on site that day as the nystagmus was particularly distressing DD (one of her friends has it congenitally and very severely so she was worried she was developing it like her🙈) and the GP hadn’t really seen it before. He confirmed the diagnosis and said that the eyes pointed more to that than BPPV.

Hi Starrrz, yes the GP referred me to ENT at the hospital who had a specialist audiologist run balance clinic who assessed me, completed the Epley Manoeuvre and gave me rehabilitation exercises.

Op you have my sympathy, I have labyrinthitis at the moment. It's vile. Been nearly a week and still feeling dizzy. Although the vertigo and nausea has passed. Feeling thoroughly fed up.

@susiedaisy1912 it really is isnt it! I hope your ok!! Did it effect your ears at all? I feel sickish sometimes but its eased alot.
when do you go back to work if youve been off? Xx

@susiedaisy1912 what caused yours? X

I've had a heavy head cold that has affected my ears. Gp said this is what would have triggered it. But I'm also going through the menopause and apparently it can become more common as you age. Never had it before.

@sunflowerdaisyrose oo i see! I had the flu just over 2 weeks ago. And before that i had my endo op! I wondered if my hormones had anything to do with it!! X

Had it after flu - did some staying very still, then got bored of that and did a home version of Epley.

Still felt like cars were still moving after they had stopped for months. And I still can’t go on water slides or boats on choppy water without puking.

big sympathy to you, it’s crap!

Had it fir 12 months before being diagnosed. Was advised to do Cawthorne-Cooksey exercises and within 3 days, I felt better. I now do it if I feel it coming on again. Sorry can't do proper link but this is it.

www.wsh.nhs.uk/CMS-Documents/Patient-leaflets/ENT/6332-1-Cawthorne-Cooksey-Exercises.pdf

I had what was called bouts of labyrinthitis sporadically over the course of five years. I felt like my ears were permanently blocked, like when you land on an aeroplane and need to yawn.
It was only when I went to the GP with what I thought was hearing loss that she referred me to ENT.
I was eventually diagnosed with Menieres disease. I take a betahistine dihydrochloride tablet 3 times a day which mostly keeps the vertigo at bay. If I get overly tired or stressed, drink alcohol, it can trigger an attack.
When I have an attack, I have to just lie down in a dark room and sleep it off. Always vomit at least every hour for 5 or 6 hours.
I have tinnitus and severe sensorineural hearing loss in one ear and wear a hearing aid now.
I still don't know what caused it. The doctors seem to think it was a virus.

@Makegoodchoices it really is crap!! Im sorry you were suffering with it also.
how long did it take till you felt better/went back to work? I had the flu then 2 weeks later it came on x

@Oohmontydon thankyou!! Im so glad they helped you! How long did you take to recover to go back to work? X

@DoveOfPiss thankyou for your reply!
Thats intresting! I also have tinnutis, had it since u had a virus. My ears never feel bloacked only now! My hearing us very good. Even though they are blocked i can hear things better than anyone in my house. I did wonder if i also had meiniers disease.
My body has been so run down, with alot of stress, then op then the flu!
im sorry you had to go through that for 5 years must of been hard. How are you day to day?
with MN when an attck happen how long does it take to get over? Xx

I can't really remember but it felt very quick after what seemed like 12 months of hell.

Oh you poor thing, I've had this multiple times and the only thing that really helped me was prochlorperazine which I was given a big prescription of - its the same active ingredient that is in Sturgeon travel sickness pills which are available over the counter so could be worth a try and see if it helps. Get well soon!

@Nandosplease aww how awful youve had it a few times!!!
does a virus bRing it on for you also?
how long do you start to feel better?
um due back monday and will be 2 weeks off work. Not sure what i should do.
did those tablets just help with the sicknes? X

I had it basket for four months when the DD's were little. At one point I could barely stand up. Now every time I get a cold or virus I get an ear infection. I've currently got one and absolutely awful tinnitus which I've had since I had covid but is worse this week than I've ever known it. Im terrified it won't go away again as it's dreadful.

@piscofrisco oo no!! Thats awful!! Are you on antibiotics atm?
my tinnitus started from a virus always gets worse when im ill then settles again after a while. Did it stay constantly for 4 months or started to ease?
the first few days i couldnt stand. Now im up and doing dishes etc but dizzy. And sicky on and off. X