Cancer support thread 91 - don’t borrow tomorrow’s worries

[LemonDrizzle10]

New thread

Thanks

All ok, in bed now

The chemo was ok, the immuno was hard
And it gives you a startling prickly bottom 🤣

There was an elderly gentleman next to me called Alan
Alan is a flirt

He just asked me if I knew the difference between a sausage roll and sex

I said I didn’t know

He then invited me on a picnic…

🤣🤣🤣

@Tilllly thats hilarious! Now be careful while on the steroids as it’s easy to go on a midnight spending spree and be surprised when a load of parcels are delivered.

😂😂😂 Too true. I bought my daughter's Christmas presents at about 3am today. Told my husband this morning and he thinks I made good choices, thank goodness.

Did you mean MP? He'll only do something if it gets his picture in the paper but I guess it might be worth a punt.

@SewingBees
Yes, MP
sorry typo

You might be surprised. I've not got an especially high opinion of politicians but generally they are fast at getting Trusts to account for issues. It's a statutory requirement and I've seen it in action 3 or 4 times now.

It's just an email, you've nothing to lose

Really?
I'm likely to go shopping on steroids?
THATS not in the side effects!!! Can you find it written down somewhere for me, then I'll go buy that puppy and DH won't be able to go mad with me 🤣

Not me but my Dad. 3 different cancers— oesophagus, bladder and kidney (kidney now removed), they’re not linked. Now with covid, pneumonia, COPD, high calcium levels and the latest is acute kidney injury. Chemo has stopped as too poorly at the moment. He has been in hospital for a week.

Please tell me all this can be overcome. If they can treat the pneumonia and get him well again, there is hope they can continue to treat the cancer right?

@Tilllly Sorry about the prickly bottom. Maybe I could lend you my woolly bloomers! 🤣

I don't know @firsttimemum2010
He sounds like his body is fighting a lot, but they've got a lot to fight back with and they won't give up
Keep us updated, we're all here for you

Sorry to hear about your DF @firsttimemum2010 - this thread is for cancer patients ourselves - there is one for families and friends somewhere I think though I'm not sure where, Top might know as the knower of everything! Otherwise you could try in the new cancer topic under health.

@firsttimemum2010 sorry to hear about your dad. As @SierraSapphire says, this thread is for those of us who are actually experiencing cancer ourselves.

There is an excellent support thread for relatives who are supporting family members On the Life Limiting Illnesses board called The Storm

There is also a new Cancer board where you might also get some answers.

Ok thank you, I’ll take a look.

Delighted to report that I have an appointment with the spinal oncology surgeon tomorrow. Hurrah for medical secretaries getting stuff done. It's going to bloody hurt to get there, but he needs to see how disabled I am.

Glad that things are moving forward @SewingBees Fingers crossed tomorrow is helpful.

Where is @lucysmam ? She's not normally this quiet. Hope all is Ok?

Thinking of you @SewingBees hope you get a good outcome.

Shitty weather here and the house is cold. Much layering going on but I will probably light the fire soon. 10 degrees in the hall.

Too cold for me to go downstairs today. Had my Oxaliplatin on Tuesday and even the wooden bannisters are too cold to touch without gloves! Sadly I am being forced to stay in bed with books and Netflix whilst DH runs up and down the stairs pretending he doesn't mind!

I have my four hour appointment at the breast clinic does it always say breast surgeon on the letter? It’s a pain considering it’s been on every scan I’ve had for the past year and my oncologist didn’t want to refer me as I’d recently had a mammogram. Well that recently is a year ago now.

And tbh it was said I’d had so much chemo it couldn’t have doubled in size in six months but my calculations are just that Jan, April, July it stays the same but come October it’s doubled and June was the last chemo so how long does it take to leave the body? I don’t know I just have a bad feeling about it as I was having very bad rib pain in bed. I suppose it could be my mind. Will they give me an inclination tomorrow?

I've just heard back from the lovely Knotty & Pistey and they will be making a woolly hug for Mowly/Fay's daughter. They have asked for ideas for squares I have given some ideas but if anyone else has any please add/PM. I have done cats, newspaper, US, heart to show love for daughter possibly with first names/initials together, English beach. I'm not a knitter so don't know what's possible but they seem very talented and could probably adjust things. Daughter is 5. Said will start in next week or so. Think they ask people to knit squares and donations for wool.

Each Good luck tomorrow. My very first one shop one had a breast surgeon there first thing, it was symptoms based but think it might be standard for a 2 week wait referral. It was obvious he knew within a minute and nurse said don't worry we will make a plan for you then realised they were not saying yet so added I mean if its needed. He did a physically feel then next was mammo, then ultrasound with biopsies then saw the doctors and asked them if was cancer and they said yes. I asked how sure and they said it is cancer, they never know 100% until biopsy but 99.9999%. So yes if you ask they do say. Hope its clear.

I'm good @TwigTheWonderKid , thank you. Just got a million things to do & quite tired after picking up the last of my full hours this week so by the time I sit down I cba with much.

I will catch up eventually!

Hmm, how do you represent gallows humour, resilience and rage in a knitted square? She was amazing.

@EachandEveryone as @Silkiefloof said they do tell you if you ask.

@tam23 thanks I will probably be asking for advice in January. I've started the Tamoxifen today, really hoping I can cope with it.

@SewingBees glad you've got your appointment.

Thanks Sewing She sent me 3 PMs on the day she died and one of them started Jaysus christ which I thought was very Mowly like and sums up the humour and the rage (it was about the present I sent her daughter being left outside by delivery company). Its difficult though as her daughter is only 5 and also I don't want to shock any knitters though I mentioned it to Knotty & Pistey but with the warnings in. Its a long time since my kids were 5, I think they would just have laughed but tricky with someone else's. Another MNetter has kindly PMd me more ideas so have passed those on allotment, doughnuts, big coat, playgroup to add to ones I had before.

Hi everyone, I’ve not been on here for a few months. Sorry to see new faces, and old faces return. Even sorrier to have lost Mowly. She really was a star and I was so sad when I heard over on the stage 4 thread.

For those who don’t know me, I was diagnosed stage 3a low grade ovarian cancer in May 2022 age 36. Finished frontline chemo November 22 and went onto anastrozole. My marker levels have risen throughout chemo and continue to climb. A PET in September showed activity in lymph nodes in my chest and clavicle 😣

I had a biopsy done a few weeks ago and may get results tomorrow in my oncology call. I am BRICKING it. Raging against how unfair it is that I possibly only had 9 months clear, unable to reconcile myself to being stage 4 in the likely event it comes back as cancer. How do you see a future in that case?! I don’t know. Fuck cancer. I’m trying to live as much as I can (4th holiday in a year coming up!) but I’m so frightened of the future and what it holds right now.