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Cancer Support Thread #80 Newbies Welcome

999 replies

HumphreysCorner · 28/05/2021 14:47

Welcome everyone old and new. Feel free to post a quick update to help new and old follow.

HC x

OP posts:
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7
SewingBees · 18/08/2021 15:13

Hi everyone, lurker here, first time posting to this thread. I've realised reading through that I need to be a part of a supportive group of people who have some idea of what I'm going through. And to give support in return too.

I had a 4cm lump removed from my breast just over a month ago, along with 3 lymph nodes. The lump was larger than scans had shown, though it was removed intact and with good margins. Unfortunately a small nodule was also found in a lymph node and cancer cells in the other two. After oncotyping (at least part of me got to travel internationally this year) I've been recommended chemo and I start in a fortnight's time. Up until now I've managed to stay fairly cheerful and positive but finding the worry about chemo to be taking over. Hat's off (no bad pun intended) to those who are going through it or have been through it.

I'm on holiday this week and was hoping to forget about it all and have a lovely time with my husband and 5 year old, but actually having more time to think hasn't been good for me. I went to a specialist wig shop yesterday and the lady was absolutely lovely, but she did keep telling me how wonderfully thick my hair is which wasn't entirely helpful given I expect to be bald a month or two from now.

I think the worst thing is that at every appointment/results discussion things have turned out to be worse than first thought. At the beginning I was told it was very unlikely I'd need chemo.

On the positive side though my surgery was relatively minor and I recovered well and quickly.

I'm very rarely all 'me me me' - this post is definitely unusually self absorbed, which I guess just reflects how tough this stuff is and how much it affects you. Love to all.

SewingBees · 18/08/2021 16:15

@ordinarylife I am still reading through the whole thread and I got to your bit about crackerjack boxes and the final disastrous cabbage and it proper made me laugh. I'd forgotten all about it (also a child of the 70s). Thank you.

MrsPnut · 18/08/2021 18:06

@SewingBees Welcome to the thread no one wants to join. I'm halfway through my second lot of chemo and it is doable. Everyone has different side effects and whilst I have lost a lot of my hair, I haven't lost it all and what I do have is still growing. I have chosen not to wear a wig and just rock my very short hair instead. It proves useful to get you to the front of queues and get squeezed in to restaurants that are booked up.

I move to docetaxol next week and I am quite apprehensive of that and the possible side effects.

SewingBees · 18/08/2021 19:59

@MrsPnut I'm scheduled for 6 rounds of chemo, the first three are EC and the last three docetaxel. It is the docetaxel I'm worried about most as the side effects seem to be worse, plus there's the cumulative impact. I think I just need to get started so I know what I'm dealing with - I'm no good with uncertainty. I hope your switch to docetaxel isn't as bad as you think.

KitBot · 18/08/2021 21:04

@SewingBees really sorry you find yourself here but pull up a chair and let it all out.
This waiting bit before treatment is the pits. It just goes round and round in your head. Try to keep busy. Tidying, gardening, re decorating your whole entire house. Whatever keeps you occupied.
Once you start chemo you get in to the swing of it quickly. You'll get to know which will be your good days and which days are sofa days. My biggest tip is that nausea is easier to prevent than treat so ask your oncology team for the good anti emetics. Any side effects or concerns get straight on the phone to your team. I've never felt as well looked after in my life as I did when I was in active treatment.
Be lucky x

thereisonlyoneofme · 19/08/2021 11:13

I started my PARP treatment yesterday, and Im waiting for the side effects to kick in, dont know how long it will take. I may be lucky and not get any as I found chemo doable. Kept awake last night worrying about it all and had to resort to a sleeping pill in the end, another drug !I wish I could wipe my mind of the last 2 years and all thoughts other than happy skipping through the flowery meadows be banished.
(Off to skip through the weedy front garden)

HumphreysCorner · 19/08/2021 14:11

Hi all

Finally got away in our caravan which is lovely 😊

@MrsPnut that looks so sore, big hug for you.

Just want to say hello to newbies and sorry you find yourselves here. 💐

Hello to everyone else and hoping treatment/operations/recovery is going well.

I have 5 sessions of radiotherapy starting 31st August then I'm back to Weight Watchers and work. My hair is growing. I have a lovely quiff 😭 and it seems to be white/grey and not dark blonde. Hoping it will change.

Have a lot to catch up with so love to all and laters.

HC x

OP posts:
ChocolateandCheese · 20/08/2021 02:12

Sorry for the radio silence but it’s been a tough few weeks/ months. I’ve been guilty of reading and running but have been thinking of you and praying for a relative stress free and pain free time.

I’m going to check out of mumsnet for the time being as need to focus on my family. Been told I now have months left (6 months with treatment and 6 weeks without) The cancer has spread too far for treatment and we’re facing just palliative care / quality of life help now. I hope that my death will be dignified and peaceful without too much pain for my families sake.
I’m not going to see my kids graduate, settle down or have children themselves. The hardest conversation I’ll ever will have will be with my children tomorrow/ this evening.
I just only hope that one person who has worrying concerns about their health gets it checked out or someone sorts out wills/ life insurance does so. So some good comes of what we’ve been through.
Please take care of yourselves, hug and kiss your nearest and dearest.
Thank you for all your support and I hope you all find a cure. Pull up the big girl pants and enjoy making memories with your nearest and dearest.
With much love x

MrsPnut · 20/08/2021 09:31

@ChocolateandCheese Take care of yourself and do whatever you need. I’m sorry that your prognosis is not good and you are right to spend every minute with your family.

colourchangingcup · 20/08/2021 09:50

@ChocolateandCheese I'm so sorry for news

Acinonyx2 · 20/08/2021 15:32

@ChocolateandCheese very sorry to read your update and hoping you have as much quality time with your family as possible.

Runningwithoutstopping · 20/08/2021 16:18

@Chocolateandcheese so sorry to read your update ,sending all my love x

HauntedDishcloth · 20/08/2021 17:07

@ChocolateandCheese It's very saddening and sobering to read your latest message. I hope you can spend your time feeling loved by those around you and loving them back in return.

KitBot · 20/08/2021 19:23

@ChocolateandCheese such a brave post. I wish you only love and peace in the time to come

quinin · 20/08/2021 20:11

Peace and love to you @ChocolateandCheese sending much love and strength to you and your family. Thanks

FizzyOrange · 20/08/2021 21:12

@ChocolateandCheese sending love and prayers to you and all your family xxx

HumphreysCorner · 21/08/2021 16:19

@ChocolateandCheese I'm so very sorry to hear your diagnosis. Sending virtual strength and love 💕

HC x

OP posts:
balkanscot · 21/08/2021 22:07

@ChocolateandCheese there are simply no words for shit like this. Surround yourself with your family until the end. May you find peace & acceptance, even though it sounds so glib… Fucking cancer! Angry

I too have gone a bit AWOL here. Active treatment has finished (all clear) but I am continuing with my visits to Maggie’s. Still have a lot of mental processing to do. I still freeze seeing my follow up letters of appointment. Thinking of all of you here - I am here on a regular basis, lurking & reading. Flowers

MrsPnut · 23/08/2021 06:34

Docetaxol number one for me this morning, I started steroids yesterday and have been doing a very hungry caterpillar since. This morning dose was taken with a salted caramel tea cake.
Positive thoughts please that they find a strong vein and I am not covered in bruises during the process.

Hope everyone had a good weekend, we went to a Pug Cafe yesterday with the dogs, it was chaos but they really enjoyed it.

KitBot · 23/08/2021 06:37

@MrsPnut sending you vascular access vibes, hope everything goes smoothly

MrsPnut · 23/08/2021 20:08

@KitBot It worked, Julie spent ages choosing which vein to go for but it worked first time and didn’t hurt at all. 1 down, 3 to go.

KitBot · 23/08/2021 21:12

@MrsPnut hopefully this is a sign for things to come. How's your chest?

MrsPnut · 23/08/2021 21:14

Chest is still swollen and sore. It has improved slightly but I can only tell because of the weekly photos we are taking.

Seeing my oncologist in 2 weeks to make sure the docetaxol isn’t making my chest worse.

KitBot · 23/08/2021 21:19

I know it's of no practical help but I'm rooting for you

HauntedDishcloth · 23/08/2021 22:00

I was hoping to catch some vascular access vibes for my first Kadcyla infusion today. It took three attempts to get cannulated, which was usually the case with my previous chemo. Just hoping nausea/sickness is kept at bay.

@Acinonyx2 and other BC people - are you taking Tamoxifen/Anastrozole?

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