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Support Thread for Anyone Affected by Cancer

158 replies

mummydoit · 10/11/2007 08:19

I know there are a few of us with DHs or other relatives suffering from cancer. Anyone want to join me in a support thread?

I'll kick off with something positive as DH is doing really well at the moment. The radiotherapy he had over the summer has eased his symptoms so he's able to swallow well and eat almost normally. Still has to avoid certain foods and has to eat slowly but at least he can eat! One of the secondary tumours on his liver had grown slightly but not enough to need treatment. He'll have another scan in December and we're hoping for no change again. If and when he does need more chemo, there's a clinical trial we're hoping he can take part in. Only one in four people are suitable, though. He's had the blood test to see if he is suitable and we're waiting for the results of that.

Sadly, my Dad isn't doing so well. He's been in hospital on and off since June, first having his stomach feeding tube fitted, then he got an infection which turned into c. difficile. He was only home for ten days after that when he started coughing up blood and ended up back in hospital. Thankfully, he's back home again and doing okay though they had to stop his chemo when he got the infection and he's still too weak for them to start it again.

We're approaching Christmas with mixed feelings. Positive regarding DH. This time last year, he was very ill and hadn't been diagnosed. He could barely eat at all and Christmas was awful. This year he's so much better and we're looking forward to a much better Christmas. However, we're sad about Dad as it looks very likely that this will be his last Christmas with us. Plus he's unable to eat or drink at all now so what sort of Christmas will he have? Or my mum who feels guilty eating in front of him and definitely won't be making a Christmas dinner for herself or buying any Christmas goodies.

For anyone who hasn't read any of my threads before, DH and Dad both have cancer of the oesophagus. Dad was diagnosed five years ago, DH in February.

OP posts:
MummyDoIt · 15/01/2008 08:25

Lena, I meant the Hickman line won't have to be inserted again as that stays in till the end of the chemo. There will still be all the flushes, the anti-sickness drugs and the one bag of chemo that has to be administered at the hospital but we hope that should take no more than four hours. We'll have a better idea next time. Sunday's visit was much easier - all they had to do was remove the bottle and flush the line and we were in and out in ten minutes. It's just a shame the hospital is so far away - 45 minute drive each way for a 10 minute job!

OP posts:
lenaschildminding · 15/01/2008 13:00

Oh, got you know! Sorry, I am blonde you know!

DD's got Bi-lateral DDH by the way. Found out last Friday. If you want to know more, it's on another post.

www.mumsnet.com/Talk/138/431463?ts=1200401896602

lenaschildminding · 15/01/2008 13:01

Typo! Got you now! (not know!)

Vev · 18/01/2008 14:22

I've had my Hickman line removed as it got infected - the removal wasn't as bad as the insertion! Hicman's serve their purpose as they're easier to use if you need blood or blood products they don't need to use your veins!

I had 4 rounds of chemo - the first round knocked me for 6 and the third round wasn't easy. I had my chemo over 4 months and have just recovered from the side effects (diarrhoea, sore mouth, tiredness and generally feeling crappy), my bloods are up to normal and I am now on maintenance therapy which should last for 2 years (chemo in tablet form), which has upset me as I thought all my chemo had ended

I'm back at work at beginning of February as I've decided I want my life to be as normal as can be and I just hope I remain well.

Kerri28 · 19/01/2008 20:01

hi vev, and thanks for letting me know about chemo. i hope you're well today, and i really admire your attitude! dad thankfully is having no side effects of chemo (yet) but is having other health problems which i've posted about on another thread, but which hopefully are not cancer related. i'm having a crap week what with dad being ill (aside from the cancer), my beloved cat (i know its just a cat but it still hurts) had to be put down due to liver failure, when he looked and acted perfectly well but had lived in vets on meds for last 2 weks, and dh having massive job worries...hard to stay positive sometimes isnt it? things can only get better though - cant they?

Vev · 21/01/2008 18:07

It's a horrible disease and I really thought it was something that would never affect me! The worst part was telling my children - who were devastated. It's frightening but I deal with it by trying to remain positive and hope there's light at the end of the tunnel!

LoopyLena · 23/01/2008 23:19

Kerri, it is hard to stay positive when everything around you feels so negative.

I'm off to hospital on Monday for a month with DD. She will be in traction for 3 weeks and then in theatre.

I thought I'd seen the last of childrens hospitals when Jack was sent home 5 years ago.

My only thoughts now are, thank God this wasn't life threatening. With her symptoms being so similar to Jacks, we were dreading them telling us she had a tumour.

I count my blessings, I was blessed to have Jack in my life for 5 precious years, blessed again with DS2, meeting DH and re-marrying, blessed again with DD and now I am blessed that DD's condition will not take her away from me.

Whatever shite life throws my way now just slides off as I smile and count those blessings. I have my angel by my side, wrapping his wings around his brother and sister.

It has taken me 5 years to think this way, I've spent along time looking on the darkside of things, It's a cold lonely place to be and I wish everyone on here didn't have to be.

In a strange way, I wish I wasn't posting this message, because that would mean there was no one affected by cancer, there would be no-one in this horrible place.

I won't be posting for a while as I'll be in hospital, so I wanted to wish everyone here all the love, luck and happiness they can possible have.

God bless you all, love, hugs and prayers,

Lena.

LoopyLena · 03/03/2008 22:58

This thread has gone very quiet...

How is everyone doing?

DD's hip surgery update is here if anyone would like to know.

Francesca, my friends little girl, continues to do well in her ALL battle, although her Liver is playing up a bit at the moment. Fingers crossed it will settle down when she finishes this round of chemo.

Thinking of you all.

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