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Eye Cancer/Retinoblastoma-if this was a picture of your daughter,what would you do?

125 replies

Whooosh · 01/10/2007 22:12

That's it really-am I being paranoid or should I get her checked?
Where and how if yes?

OP posts:
Whooosh · 02/10/2007 20:05

Keep telling myself it is nothing-tbh-"bogging" tonsils are far more of a concern....she says nonchalantly...(shitting herself)

OP posts:
chipmonkey · 02/10/2007 22:56

Whoosh, try to relax! ( This from chipmonkey who has nightmares of all sorts of eye diseases occurring in her children, occupational hazard!) Good idea about the ENT specialist. Most clinics should have an ophthalmoscope around somewhere!

macdoodle · 03/10/2007 00:51

Gp should hav chcked eyes at various health checks so really nasty should have been picked up before now ..but easy enough to ask good luck don't worry

fortyplus · 03/10/2007 00:55

Whooosh - go to an optician who has the equipment to do a digital retinal image. It'll cost you £20. Fingers crossed for you

lilacclaire · 03/10/2007 01:36

Listen woosh, everyone here would be shitting themselves, so just go and see and we are all here waiting for the anxious results babe X

Whooosh · 03/10/2007 08:09

Thank you all.

Appointment is at 11am so should be back by 12-will let you all know that I am a paranoid parent with a crappy camera flash

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Pennies · 03/10/2007 12:08

Hi there,

How did it go (tonsils and eyes?).

Whooosh · 03/10/2007 12:39

Well as reluctant as they are to remove tonsils in a two year old,her symptoms are so severe they think that is the best course of action.

Bloody great opthalmoscope in the consulting room so asked her if she would have a look......"well I could pretend,we learned how to use them in medical school but I wouldn't know what I was looking for" was the response grrrrr.

Off to Yell dot com to find opthalmologist....

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lucyellensmum · 03/10/2007 14:46

outrageous, i think you should take DD down to the gp clinic, at least they will know how to use a basic bit of kit!!

Bundle · 03/10/2007 14:49

whooosh is there any way you could get into london? you can walk into Moorfields Eye hospital A&E and be seen within an hour or so (if you get there early enough - sometimes the waits can be a couple of hours)
xxx

chipmonkey · 03/10/2007 15:55

Whoosh, am at the difficulty you are having getting this looked at. Can you ring your local optician, just explain how the photo looks and see if he/she can look at your dd?

chipmonkey · 03/10/2007 15:56

Bundle's suggestion also very good! Are you near London? Wish I were near you, I'd have looked at her today!

gogogojo · 03/10/2007 16:02

WHOOSH

My daughter has a blemish in her eye and photographs of her come out like this.

She sees an eye specialist annually but he says he has no fear that it will develop into anything sinister and that he has only seen this once before in a very elderly man. I will try to post a photo on my profile so you can compare.

Try not to worry it is probably nothing at all to be concerned about.

gogogojo · 03/10/2007 16:12

Whoosh - I have added a photo of dd to my profile for you to look at. Like I say, she has what is described as a blemish on her left retina BUT he says it is highly unlikely to turn into anything sinister.

binkleandflip · 03/10/2007 16:13

Sorry, had namechanged, they should come up now.

Ellbell · 03/10/2007 16:19

Whooosh... Good advice re Moorfields if you're in London. Friend's dh developed double-vision and did this and was seen immediately and then referred to a specialist within a few days.

Binkle... I have blemishes on both retinas. I've never met anyone else with it. I am very short-sighted and astigmatic too, but the blemishes don't cause that. It was watched very carefully when I was little, but they seem to be harmless. (PS How cute is your dd? And how like you?)

binkleandflip · 03/10/2007 16:54

Thanks Ellbell!

Yes, the white of her eye on the left is a little cloudy bit the specialist calls it her special beauty spot which of course she loves!!

Whooosh · 03/10/2007 18:06

B&F-Sorry but I luuuurve your Newfie!-DD is pretty cute too-thanks for the info.

Thanks for the tip on Moorfields-had no idea I could do that so if I get no joy in the next day or so will take dd to London for the day and off to Moorfields.

A friend today actually said (when I mentioned my fristration) "I didn't want to say anything but have you noticed that when your dd looks at something she doesn't look straight at it".....I being the bad Mother I am,obviously hadn't noticed and am now on paranoid parent alert again....

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princessmel · 03/10/2007 18:17

whoosh, in chipmonkeys post down below she said that if your dd has a squint it may show up as something in the photo. Its probably just that if your friend has noticed something like a squint. Try not to worry. The moorefields suggestion is good though.

Whooosh · 03/10/2007 18:51

Funnily enough I had her checked for a squint when she was about a year old and nothing showed up then-can anyone tell me whether squits develop over time?

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NAB3 · 03/10/2007 19:09

I have been wondering about you all day. I can't believe this hasn't been sorted out. Ring Boots. They do free eye tests for little ones.

chipmonkey · 03/10/2007 19:21

Whoosh, in small children, squints can develop over time. Some of the parents coming to our practice say that the squint has sometimes appeared overnight! Parents are usually right too! Children who are longsighted or whose two eyes are very different can be prone to them.

lily333 · 03/10/2007 19:33

Our little boy (15mths)has bilateral colobomas... (one side much worse than the other so he does have monocular vision.) In his bad eye, the flash always makes his eye look white and very odd shaped. Our DS is under great ormond street and so whilst I'm no expert, I have seen loads of eye pictures and eye problems. Your picture does look quite symmetrical in both eyes, red/white and normal BUT absolutely no GP should have a problem with checking your little girl over. With our DS he had loads of pictures with a large white irregular spot, and if you only have one photo so would guess it's a light/angle flash rather than anything serious. At the end of the day though retinoblastoma is very serious and you don't want to mess about. Definitely try the A and E at moorfields, or just keep harassing your GP!!! Hope this helps.

lily333 · 03/10/2007 19:37

oops, waffling a bit. Meant to say, the average street optician doesn't always know what to look for so if there's a specialist optician- preferably an opthalmologist-then try them first rather than the specsavers/vision express type..... Nothing against either company by the way!

chipmonkey · 03/10/2007 19:47

Lily, I would disagree with that. We all learn about retinoblastoma and it would be pretty hard to miss.

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