Today we got Steves brain tumour results back

[onlyjoking9329]

had a phone call from the hospital.
Steves tumour is grade 4.

i guess it will become our norm, we have a weird sense of norm in our house already it does help to be able to type it out.
it just all seems so strange life is going on around us, i hear people moaning about their DH and i want to shake them and scream stop bloody moaning.

OJ - I've nothing useful to say, can only send thoughts and willingness to help if there is anything at all I can do or help with from so far away.

Thanks there is nothing anyone can do other tahn a cure for steve.
failing that i will settle for a listening ear and carry on drinking the wine and eating the chocolate.

((((onlyjoking)))) what is the next step?What treatment is possible and what results would be expected?

He is going to hospital to have the mould made for his head for radiotherapy on the 31st, they can't do it yet as his head is still very swollen and it has to be a perfect fit.
then we have a meeting on 4th sept to plan the scans/treatment.
the aim is to buy him more time and is not a cure

Scoffs Blus chocolate and drinks the whole bottle of wine in one go

OJ, I thought as much, as I have worked in this feed many years ago...but realise that in those years a lot has hapened, so, was hoping that there is more that can be done.
This must be very difficult for you all to cope with. Esepcially as, I assume Steve is in pain,all you can do, is be there for him, and all we here can do is be there for you, if only in a virual way.
Anyway, sending you loads of virtual hugs

Message withdrawn

I don't know what to type but wanted to type something. It is all so sad. I really hope that you have support around you. Best wishes.

we don't kknow how long he has left and we didn't dare to ask, i know we have to make the most of the next three weeks cos once he starts treatment he won't feel up to doing much. so we have three weeks to fill with memories and good stuff.

{hugs}

Wish I could do more.

It's bollocks, OJ, stinking rotten unfair bollocks. it shouldn't be happening, not at all.

And wine and chocolates is the only mature and adult answer at the moment.

So have some more.

I have looked at your profile. I grew up in E Midlands and wonder if it was the same city. Do you say 'gerroffof the bus'?

i wouldn't risk going on a bus with my lot.
ey up me duck round here.

i live near nottingham, 10 miles outside

You are not really that far away...I am in Corby...so, if you just want to spend some time talking or whatever ( I am not adverse to wine, btw...or chocolate neither..)...maybe we could meet up....I kow you don't know me at all...but well, the offer is tehre, and I really would be happy to give you a shoulder to cry on, an ear to listen etc...

I too do not really know how to put my support in words to you - but wanted to send a few words to give you love and uou already know there are a lot of us thinking of you and Steve.

Oj- i'll be back in January- if only it was sooner- I would happily help out with the kids or drink wine with you. In the meantime I'll be watching for your posts and hoping that rl friends and family can help out. I can sort of understand Steve's decision not to tell his mum the full story, although it is incredibly hard for you. I think I might be tempted to try and protect my parents too if I were in his situation. Can you ring Crossroads again and tell them it's definitely time for you to ba at the top of the list. Also please contact the various organisations that people have mentioned. MacMillan used to send a super nurse to sit with dh's mum even though she wasn't in pain, so that dh's dad could just do the essentials and then spend the rest of his time with her.
Thnking of you

I am so very sorry OJ. Life is so unfair and randomly cruel.
I wish you all the strength in the world.

Hi OJ, I have just seen your thread and want to express how sorry I am for you and your family.

Life can be incredibly cruel and unfair but please have strength and faith.

We have been through cancer in my immediate family several times over the last few years and it is such a difficult thing to deal with.

Nobody has the answers, you have to put complete faith in the people looking after you which at times will seem frustrating as you cannot control anything.

You have so much support on MN and from your family and friends so I really hope it helps you in your darkest moments.

I will be thinking of you and wishing hard that everything will be fine.

Take Care of yourselves.

I don't think our paths have crossed on mn OJ, but wanted to tell you how sorry I am for what you and your family are going through. x

this morning we were woken by the postman with a lovely chocolate hamper we spent some time chatting about practicle stuff pensions, funerals and all sorts of other cheerful stuff. Steves mum is coming to vist today and steve says he is going to tell her the truth whilst i take the kids to the shops. this is not gonna be easy.

Hope it goes OK today OJ. It's going to be a tough conversation. Take care and enjoy the chocolate.

That's a hard job for Steve this morning OJ

I think you know the CancerBACUP site - they're a really useful and helpful organisation. He may find some information there to help him tell his mum.

(supportive hug and longing glance at the chocolate basket)

Don't forget to get yourself something nice at the shops.

we have lots of booklets that they gave us at the hospital, do you think i should leave them on the coffee table?