Today we got Steves brain tumour results back

[onlyjoking9329]

had a phone call from the hospital.
Steves tumour is grade 4.

will be hard to see steves identical twin brother with hair when steve loses his.

hope it grows back, or bald is quite dashing you know!
thinking of you all x

Oh OJ, I am so sorry.

Love, hugs, prayers.

Oh OJ, I'm so sorry

I'm so sorry to hear your news OJ.

Brain tumour diagnosis in this country is a f*ing disgrace imho.

OJ I'm so sorry to read your news.

I'm so sorry to hear this OJ.

so sorry to hear this oj, thinking of you all.

cx

morning oj, has steve decided where you're going for lunch?

OJ xxx

Go somewhere nice- if he's up to driving then what about Derbyshire- I like the cafe at the Chatsworth shop or the Monsal Head cafe.. anywhere that does buns and proper tea will do for me!
Hope you got some sleep and that you can have a good day together.

Have a lovely day out today! It's good to see your humour coming through in your posts it will help you through this difficult time if you can find things to smile about.

Enjoy your lunch today oj. x

Sorry to ask, but are you alright for money?

OJ, Enjoy the lunch, and the quiet

... and think about making a formal complaint to the hospital. I'm not known for advocating sueing but please consider the idea, if not for the money, to scare them enough to revise the services in offer. They will put enough mechanisms in place/revise procedures to prevent such case being repeated in the future, if you do. I know is not good for Steve now, but it may save someone else's life.

It's so sad that today we have the good news about Peter but sad news about Steve.

I'll keep them both in my thoughts. It must be very hard for you onlyjoking.

So very sorry OJ

the kids have all gone out, steve is asleep and i am catching up on stuff.
we are going to caudwell mills in rowsley as it is steves fav place all food is veggie.
money is not an issue for us right now. steve is adamant that he won't claim DLA or anything else, as long as social services come up with some extra money for the kids to have their days out with their direct payment workers we will be ok.

So sorry OJ. It's so desperate isn't it. So angry they made such a massive mistake. We were told though when we were told dh had months and we were furious it had taken 5 weeks for the biopsy results to come through and then they were inconclusive, that the timing of treatment doesn't make a huge difference to the outcome. The other way to look at it is you've had all that time from Jan - Aug not knowing it was high grade. If it's true that starting the treatment earlier wouldn't make much difference to the outcome (and I'm not sure if that was a cop out), you've had those few months in semi-blissful ignorance. Not sure if that's good or not ...

I considered contacting Winston's Wish who have a helpline and can give you advice on how to prepare children for this.

Sending you love and prayers x

thing is steves remaining time is precious and they should have done the scan much sooner. you can probably tell i am argry about this, steve says you can't change what has happened.

oj, I'm at a loss for words tbh, just feel so sad for you. Praying or strenght for you all. x

we are off for lunch, i have added steves photo to my profile.

What beautiful pictures oj! x