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Cancer Support Thread #71 - here to help if you’re dealing with cancer in any shape or form, come in and say hello.

982 replies

Brassica · 13/06/2019 20:05

Hi again everyone and welcome to the 71st new thread for cancer support.

All those who are currently being treated, have been treated in the past, have worries and concerns and/or are having tests are very welcome to pull up a chair and chat, vent, rant, pour hearts out, share milestones and anything else! We are a very friendly and all-too experienced bunch on here and there are no questions too small or silly to ask.

Our previous thread is here .

Anyone with any type of cancer (female or male) is welcome. And we will hold your hand if you're waiting to find out whether or not you have cancer at all.

If you've got a loved one with cancer then your best place for support is probably on the Life-Limiting Illness board.

Please can I invite current members to reintroduce yourselves below for latest situations and stories so far.

OP posts:
Thread gallery
7
iVampire · 20/08/2019 23:40

and AimlesslyPurposeful

Too many new holes in the lace

Feeling rather bleak here

iVampire · 20/08/2019 23:44

Glitterball Glitterball Glitterball Glitterball

SnowsInWater · 21/08/2019 00:18

Such sad news. I haven't been able to bring myself to post here recently as I knew we were going to hear this soon. I hope all the wonderful women we have lost recently have the greatest MN meetup ever 💐

Bloodybridget · 21/08/2019 06:53

We will miss TQ so much. I'm sad she didn't make it to the hospice, but it seems she had wonderful care in her last days.

Dulcedelecherocks · 21/08/2019 07:55

I don't even know what to say. I've struggled to come back to mn since losing Leslie and purple because it just didn't feel the same, and now TQ.
We met at Leslie's funeral and she was just so lovely and caring, and so positive. She told me she knew she would die soon and I told her not to be silly.
Another one of our lacies has joined the heaven party. The hole is now just too big to contemplate.
I am lost for words. Rest in peace TQ. So much love for you and your family.

Toofaroutallmylife · 21/08/2019 08:23

I’ve missed you Dulce - hope you’re doing OK.

I was pretty down last night- it’s hard to explain to someone IRL what a loss it feels. Although I never met TQ (or the other lovely lacies we’ve lost since I joined in December), the fact we shared some of our deepest thoughts and fears on here make them very real.

Mrstraveller · 21/08/2019 12:38

I think I’ve said this before but TQ was the first person to respond to me when I posted, still too scared to post about my actual diagnosis as at the time it all seemed to be bad news. She had so much wisdom and common sense. As did Leslie and Purple who we have also lost. I knew them online only but I feel their loss every day. So sad for TQ’s family and friends.

Tahitiitsamagicalplace · 21/08/2019 13:25

Oh lovely TQ. This is so sad.

ellenanora5 · 21/08/2019 17:42

How very sad, condolences to all her family and friends, you are in my thoughts

Flowers
Minxmumma · 21/08/2019 18:48

So very sad, sleep well lovely x

gib1973 · 21/08/2019 20:14

Really saddened to hear about TQ

WTF99 · 21/08/2019 20:52

Just hopping on the thread to wish skap good luck with the op tomorrow...hope it goes well and that you're soon feeling better.....well you will be feeling better straight away with the lump gone for good!

Re my innards issues....I had my oncologist appt today and it turns out that the 1st dose of perjeta is a double whammy 'loading' dose so hopefully I won't get so much in the way of side effects next time. Just sayin in case anyone else finds themselves in the same boat....that info would have been comforting for me to know when i was captive in the bathroom over the last 10 days.

Hugs for everyone.

meercat23 · 21/08/2019 21:22

WTF. You would have thought someone might have mentioned that but good news that it may have been a one off

Skap. Best wishes for tomorrow

A couple of good days for me. Went to the hairdresser yesterday for the first time since March. She was amazed at the condition of my hair and although it has thinned it was less than she was expecting (thank you hated cold cap) and she can see new growth which is looking like silver corkscrew curls.

Today lunch with our lovely oldest GS. So lovely to be with.

Skap · 21/08/2019 21:52

Thank you WTF and MEER, how kind of you to remember . Early night and early start tomorrow.
Hopefully that means you shouldn't have the hideous runs next time WTF.
Silver corkscrew curls sound fabulous.

SnowsInWater · 21/08/2019 22:50

Best of luck Skap. In the grand scheme of cancer treatment my experience has been that the surgery bit is ok.

Glad your dire rear is finally under control WTF - some warning would have been nice!

I have hair envy Meercat. I currently look like a tennis ball - I have a few mm of white fluff on my head as it grows back. God k owns what I will end up with.

DH and I are off to the Hunter Valley wine tasting (yes, I know I shouldn't) this morning for a couple of days before five weeks of radiotherapy starts on Monday. The good news for me is that treatment will only be once a day rather then the twice they were talking about so that's a relief. It's hard to stay positive some days surrounded by sad news. Hugs to all xx

Trumpton · 22/08/2019 02:00

Thinking of you @Skap.

Good vibes for later today .

ellenanora5 · 22/08/2019 04:00

Skap, best wishes, think your surgery is the same as mine, I'm five weeks post op now, be kind to yourself and take any help that is offered, use the painkillers as needed and rest whenever you can.

Saw the nurse today and she said under my arm is fine and still healing that's why its so uncomfortable, but there is no fluid there, its just swelling now, but while she was looking my boob started leaking again so more steri strips and a dressing, I'm now wearing everything inside out because clothes are driving me mad.

WTF pity they couldn't have warned you before hand, a stinging bum is bloody awful.

How are you doing Trumpton.

meercat you sound in good form, glad to read you had a nice lunch with GS.

I'm so glad I posted on this thread a few weeks ago, you are all amazing, thanks for the support x

WTF99 · 22/08/2019 09:06

snows Hunter Valley wine tasting sounds fabulous! Have a great time.

We're off to the Snowdonia coast for a couple of nights tomorrow and I can't wait to be in the car and waving bye bye to everything cancer related for a little while.....except I'll be wearing my wig and have Imodium stuffed in my handbag but y'know...
Treatment 5 of 7 next Tuesday....

Meer sounds like you had a lovely couple of days and it must be so good to know your hair is returning. Its great to have you there, out the other side and giving some perspective to those of us on the chemo conveyor belt. There were times in the last couple of weeks when i lost sight of the fact that this is all temporary and does have an end. I just felt like an ill person! News like yours is so helpful.
I really miss going to the hairdressers. I used to treat myself to a blow dry most weeks so it was quite a big part if my week. My hairdresser came to see me a couole of days ago and we washed my wig Grin Not quite the same as a visit to the hsirdressers but it was lovely to see him. He's young enough to be my son and a real sweetie.
Ellen glad to hear things are improving for you albeit slowly.
Hope you're feeling more comfortable trumpton
Brassica Bridget how are you doing?

SnowsInWater · 22/08/2019 10:13

Oh, enjoy Snowdonia WTF. Do you wear your wig a lot? I bought one before I even shaved my head but have never been bothered to wear it.

Bloodybridget · 22/08/2019 10:37

Skap hope surgery goes well today. WTF wouldn't it be great if the dire rear was a one-off! Have a great time in Wales. meercat silver curls are beautiful, my DP's hair is like that. Ellen hope the leaks dry up soon!

I am ok thanks, just had bloods done again so hope chemo can go ahead tomorrow. Feeling emotional about TQ, as we all are I'm sure

Brassica · 22/08/2019 11:24

Hi all

I only saw the news about our lovely TQ last night. She and Purpleunicorns were stalwarts of the thread when I joined in April and it is very sad and sobering that both are gone, along with Lesley and Aimlessly who unfortunately I didn’t overlap with. I particularly remember the sinking in my stomach when I read TQ’s update that her foggy brain was down to mets and from there her decline seemed so quick. She was very strong to hold out as long as she did though, after that first spell in hospital. God knows the quality of life must have been bad by then. She will be missed.

I have fingers crossed for Bridget that chemo goes ahead tomorrow, for Skap that surgery is successful and recovery quick, for Ellen that the blasted wound is going to heal quickly now and for WTF that the runs are now a thing of the past. It really does seem negligent that they didn’t tell you to expect that!

Enjoy your winery trip, Snows - personally I wasn’t told drinking would do any harm so it sounds like a lovely way to decompress before the next phase of treatment! Will you be buying a stash?

On the subject of wigs and hair, I have now got no fewer than four wigs. Most recently I have bought a shortish bobbed wig and I t’s my favourite I think. One thing about wig buying is that the model photos look so awful, they seem to make them look as mumsy as possible so it’s a bit of a leap of faith buying! I am absolutely egg-like without a wig and have about 7 eyelashes left, I do feel the need to have some hair on when I go out. I am pretty vain. For this reason I’m impatient for my hair to start growing back now and I will restrain myself on buying any more wigs now. I like the sound of your curls *

Had chemo #12 on Tuesday, four more to go. The sun is shining again and I am on my swing seat in the garden ready to crack on and finish my book. Feeling much better than a week or two ago when I was grumbling.

Have a good day all, and enjoy Snowdonia WTF.

OP posts:
Brassica · 22/08/2019 11:26

I like the sound of your curls Meercat*!

OP posts:
Diaryofalways87 · 23/08/2019 07:51

Had my last scan yesterday and the tumour has not changed :( stupidly started reading things on Google last night and couldn't sleep. Why did I do that? So stupid! Now I'm convinced I won't see my 40's. Effective treatment for Triple Negative Breast Cancer feels hopeless right now :(

So sad to read about TQ. Another amazing woman taken too soon to this horrible disease.

Sorry, that was a very me me me post. I just don't feel like I can talk to anyone IRL. I hope everyone else is doing ok.

WTF99 · 23/08/2019 08:47

I'm at the drop in blood clinic....which is mobbed of course as it's bank holiday....and as soon as it's done I'm on my way! Can't flippin wait! There's some people here chatting loudly who are irritating me....don't they know you're supposed to sit in silence?! Grin

're wigs....I've got 2....one that is a dead match for my own hair (blond bob) and another which is slightly darker and more tousled.
I wear them quite a lot and always if I'm 'out out'. In the house or going to the shops or somewhere I tend to wear this soft beanie type thing, and then a smaller one in bed so as not to frighten my fella in the night with my plucked chicken look!

It's nearly my turn now....have a good day everyone

Cancer Support Thread #71 - here to help if you’re dealing with cancer in any shape or form, come in and say hello.
WTF99 · 23/08/2019 08:51

So sorry diary ....I.misses your post whenni sent mine.
That's worrying and disappointing for you. Have you had a chance to talk to your oncologist about it? Googling is the worst thing but we all do it....I know i have and have ended up scaring myself silly....don't do it.
Hugs for you sweetie xx