Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Cancer support thread 62 - here comes the sun (hopefully)

986 replies

WhatWouldLeslieKnopeDo · 03/05/2018 19:14

Good evening

Our previous thread is here

If you've got cancer, this is the thread for you. Introduce yourself and feel free to ask any questions. We also welcome anyone who is waiting for cancer tests. We know how scary it can be. So don't be shy. We will happily hold your hand and hopefully wave goodbye when you get good news :)

OP posts:
Thread gallery
11
dontknowwasmadetoknow · 25/05/2018 11:13

Thank you for your kind replies,
I'm trying to hold myself together but reading your responses had made me cry.
We fly on Monday and yes we are going abroad so will cheaply out the insurance.
I think I'm checking the liump every five minutes I really should leave it alone.
I went to the doctor thinking she would not be able to feel anything abnormal so when she felt it too it was a shock.
Being able to talk here is a relief as even though I have told my husband I don't want to talk to anyone else as there is not really anything to can say at the moment.
I have read that statistically most breast lump are not anything serious but that's not really helping my anxiety.
I love holidays,probably a bit too much,so I'm hoping that I can try to enjoy it and not think about this lump too much.
I'm 49 with 8 year old twins so getting on a bit not sure if that relevant.
Thank you all for your kind words they mean a lot

dontknowwasmadetoknow · 25/05/2018 11:29

Flourella
So sorry to hear you going through the same thing.
It really sucks doesn't it
I wish you the best of luck

flourella · 25/05/2018 11:30

Yes, I highly recommend not checking the lump every five minutes! I was doing that and I made myself feel far worse and my boob started aching a little, which made me worry even more! Today I've felt it once to see if it is still there (it is, of course Sad) and now I'm determined to not go near it again. I know it's difficult, though.

GinWorksForMe · 25/05/2018 11:43

Welcome dontknow, sorry that you're here with us and going through the long hard wait. I also have a breast lump, and my appointment is later today for mammogram, ultrasound and breast surgeon consultation. I will post later tonight or tomorrow with details of exactly what happens and whether I get any results, but mentally I'm preparing myself for more waiting as I know diagnostics can take time.

I've just spent the last week trying to keep busy and am so, so grateful for this thread, and so, so in awe of the brave people on it.

Lots of love to everyone and thanks for your kind thoughts/wishes for today.

Move12345 · 25/05/2018 11:57

Ginworksforme thinking of you today, hope all the appointments go well for you

flourella · 25/05/2018 12:05

dontknow yes, it does really suck. Thanks for your good wishes and the same to you.

Move your situation sounds unusual and frustrating, having to go through so many tests. I hope your CT scan can discover the issue and that it is nothing serious.

YearOfYouRemember · 25/05/2018 12:20

dontknowwasmadetoknow - I'm sorry you're feeling so panicky. What I tell myself is I feel I'm ill I already am and if not it will be good to have been checked. I can't change the situation I am in right now. Hope that makes sense. Sounds better in my head Confused.

I'm feeling quite anxious at the moment and I think it's because dh and dd are going away next week and I'll be home alone with DS1 and DS2 and too many animals.

GinWorksForMe · 25/05/2018 12:37

dontknow and everyone, I'm not in the least bit religious but I always remember this prayer from my primary school:

God grant me the courage to change the things I can change,
The serenity to accept the things I can't change,
And the wisdom to know the difference.

Right now, we can't change that we have to wait and that there might (or might not) be something that needs treatment. So we need to accept that we can't do anything about it. Easier than it sounds but there's one sure thing - time will continue to pass.

Thinking of you all.

penguinsnpandas · 25/05/2018 12:37

Hope you have a lovely holiday Leslie and you get good weather and a nice break. We are just off to France to MILs this weekend, kids are super excited to see her dog. I am waiting to hear back if the offer I made on the house on Tuesday has been accepted, never had to wait this long. Kids have told everyone we are moving Hmm including DDs Headteacher and I am not sure they will accept.

Love to everyone. No news yet so forgotten or fine or both. Find out on 30th anyway. Very sleepy.

dontknowwasmadetoknow · 25/05/2018 13:35

Thank you all for the wise words
I have managed to pull myself together this afternoon.
I think the shock affected me badly but I am determined I'm not going to let this ruin my and my family's holiday.

So it's business as usual here now ( really not easy)
Fourella- I hope you get your appointment really soonThanks
Hope all of waiting for results get the best outcome

flourella · 25/05/2018 13:53

dontknow I'm glad you are feeling a bit better about things. As others have said, the days are going to go by and worrying is not going to bring your appointment and test results any closer. But I have quite bad health anxiety and extremely severe OCD, so I know all about obsessing over things and intrusive thoughts, and I know how tough it can be to live with a worry. It sounds as though you are doing pretty well so far.

My appointment letter arrived and I am going to the clinic a week on Monday. Not as soon as I would have liked, but it is (just!) within the two-week timeframe.

dontknowwasmadetoknow · 25/05/2018 14:11

Fourella that must seem a long time when you are worried,I really hope the time passes quickly for you.

McZeba · 25/05/2018 14:38

Hi Ladies, I chased me MRI n Mammo when I went for my pre-chemo bloods today - BCN gave me the report and my L breast and neck are clear of any suspicous!!!

To those of you waiting on apts, this will be one of the hardest times for you, I would try to find out if your hospitals offer a 'one stop' service - where u would get seen, mammogrammed and biopsied (if needed) with results given all on the same day. If not you will be waiting at least a week after - this is what happened with me and the further wait was excriciating. Unfortunatley for me I did have BC in my right breast, 3 tumours, so I had to have a mastectomy but many don't. I am on my final round of chemo, and have just been through a scare - hence my update above - I will complete 15 rounds of radiotherapy and then move on to tamoxifen. I'm 39 with one Daughter and an amazingly supportive Husband.

McZeba · 25/05/2018 14:39

Jeez my grammar and spelling is terrible today!

WhatWouldLeslieKnopeDo · 25/05/2018 15:43

Turnofthescrew are you getting your MRI results today?

McZeba that's very good news indeed :)

Hand squeezes to everyone who is waiting and worrying Flowers

OP posts:
purpleunicorns · 25/05/2018 18:37

Fantastic news McZeba and good luck with the rest of your treatment, not everyone does but if your skin gets sore when you're having radiotherapy there's a cream called moo goo that's supposed to be really good

TheTurnOfTheScrew · 25/05/2018 19:38

Blimey Leslie - you are impressive Grin! I was just nipping back for an update. The MRI indicates that the ovarian cyst is an endometrioma, supported by the fact that they have found extensive endometriosis in all sorts of other places. So they're happy to discharge me from oncology, and refer on the the endo specialists at a different hospital.

THANK YOU ALL for your support during my investigations. To offer such kindness when you've so much on your respective plates is amazing. Mumsnet sometimes gets a bit of a kicking in the press, but this thread is full of warmth, wit and wisdom, and really must be one of the best places on the internet. I wish you kind, clever women all the best Flowers Wine Flowers.

purpleunicorns · 25/05/2018 19:54

That's brilliant news Turn, I'm so so pleased for you! What a relief that must be. I hope you're going to celebrate GrinGin

WhatWouldLeslieKnopeDo · 25/05/2018 20:57

That's very good news Turn well, not endometriosis because that's not exactly a walk in the park! But a relief that it's not cancer. All the very best with whatever treatment you will be having Flowers and I'm glad that you found support here when you needed it :)

OP posts:
YearOfYouRemember · 25/05/2018 21:41

TTOTS - great news.

addlebrained · 25/05/2018 22:03

All the best TOTS Flowers

Taytotots · 25/05/2018 23:29

Hope you have lovely holidays/breaks penguins, Leslie, and don'tknow

Great it's not cancer turn FlowersGin. Good luck with the endometriosis treatment.

Great news mcZeba!

Ginworks how did your appointment go?

Had IV no 3 of poxy oxy today so feeling rubbish and a bit sorry for myself. Shaky and usual cold sensitivity. Going to curl up in bed with Downton Abbey. Son keeps following me around with a massive trug tub he has decided is my sick bucket Grindon't like to tell him I don't feel sick sick!.

GinWorksForMe · 26/05/2018 08:38

McZeba and Turn, so pleased to hear your good news.

I can make it three - my tests yesterday showed nothing to worry about.

I said I would post exactly what happened for those waiting for similar tests, so here it is.

Firstly, met with the breast surgeon consultant (40 minute wait first). She had a good look at my boobs and a really good feel. Confirmed that one is certainly larger than the other and that there are a few suspicious feeling lumps. She marked a couple of places in pen where she wanted the scan people to particularly investigate.

Secondly, sent to Xray department for mammogram. Removed top half clothing (I was given a locker with a key to put it in) and wore Xray gown. Never had a mammogram before, and it was kind of awkward and uncomfortable (it's worst if you have really small breasts, apparently) since they have to squash your breasts down as far as possible to get a good picture. They took four pictures, two on each breast, and each picture only takes a few seconds. The radiologist made no comment, just asked me to go back out to the corridor to wait for my ultrasound scan.

While waiting, the lady before me came out of her ultrasound in tears which was unsettling. I hope that she is ok.

The ultrasound was simple and painless, lie back on a bed, they smear cold gel all over your breasts and take a good look by rubbing the ultrasound thing all over them. They press it down a bit to take photos, including right up into your armpits, but it doesn't hurt a bit. I looked at the screen the whole time but couldn't make head or tail of what I saw. The Ultrasound guy was great and told me that he couldn't see anything to worry about.

Then the Xray/Ultrasound people gave me a sealed letter to take back to the consultant breast surgeon. When I got back to her rooms, she was free so I went straight in and she read the letter and told me straight away that the tests showed normal breast tissue everywhere and that she doesn't consider there to be any need for further investigations. She said that it's perfectly normal for women to develop lumps and bumps, masses of what she called hormonal/glandular tissue, and sent me away with a new leaflet on how to self-examine.

Everyone I saw was totally lovely, very reassuring, very professional, and very kind. I feel very, very relieved of course and I really hope that the others waiting on here for similar tests have the very same experience when your appointments come through.

I echo what someone else has said, if you can get to a one-stop shop, do. I asked what would have happened if I'd needed further investigation and she told me they could even have done the biopsy right there last night if needed, although there would then have been a 7-10 day wait for the biopsy results which is the same wherever/whenever you have it done.

This thread is such a wonderful place to turn to. Thank you so much to you all for your kindness and generosity in sharing stories and hand holding through difficult times. I wish you all the very best of luck as things move on for you all.

xx

WhatWouldLeslieKnopeDo · 26/05/2018 09:43

That's great news Gin Flowers what a relief. And thank you ever so much for sharing such a detailed experience. I'm sure that will be really helpful to the others who are waiting and I expect we will keep referring people back to your post!

Most people who have posted previously have also had all the tests in one go, though I don't know if it's exactly the same set up with the consultant etc. So hopefully most breast clinics operate in a similar way. It's brilliant that so many people can get results on the day.

Tayto I'm glad you're being well looked after but I hope you don't need to use the sick trug! Grin three poxy cycles down so you're nearly there Flowers

Good morning lacies. I hope everyone has a nice Saturday :) (in case new posters are wondering we sometimes call ourselves "lacies" as it caught on from one of royalmama's typos)

OP posts:
purpleunicorns · 26/05/2018 10:07

Gin that's fantastic news! I'm so glad it turned out well for you. Ah, many positive stories on here at the minute Smile

When I went to get my breast lump checked out I had everything done the same day too. It's much better than having to go backwards and forwards to the hospital for all the tests

I was wondering what "Lacies" was all about Leslie, I just assumed everyone was accidentally making the same typo Grin

I have my MRI scan at 4:00 tomorrow, I'm not feeling positive as the upper half of my stomach is all bloated and I've completely lost my appetite which is not like me at all. Although the quicker it gets checked the quicker I can start whatever treatment is next

Swipe left for the next trending thread