Cancer support thread 62 - here comes the sun (hopefully)

[WhatWouldLeslieKnopeDo]

Good evening

Our previous thread is here

If you've got cancer, this is the thread for you. Introduce yourself and feel free to ask any questions. We also welcome anyone who is waiting for cancer tests. We know how scary it can be. So don't be shy. We will happily hold your hand and hopefully wave goodbye when you get good news :)

Well done Freddie 😎
chase if you are under a general they will want someone with you for 24 hours good luck for Thursday.

Maggie Its normal to be very worried esp if doctor thought it was cancer too. Good luck for the tests, distraction helps a bit and hope ypu get an all clear soon. I have tests on Tues Wed though doctor said most likely is all clear which helps and i have been through so many tests which strangely also helps, you just view it as another cancer test and i think i will assume all clear unless i hear otherwise. I had a hysteroscopy and biopsy recently with a fibroid removal, was under a general so no memory of it though.

Well done freddie! ouch to the stomach blisters though

Welcome Maggie most of us have been in a similar position at some point, waiting for results. It sucks. There's not really much you can do except grin and bear it and try to distract yourself as best you can.

chase good that you've got a plan :)

Hi Maggie I'm also waiting waiting for tests as I have thickening on my uterus, although I've had radiotherapy for a separate cancer so they aren't sure if mine is radiotherapy damage or cancer.

I don't think there is a way of pushing it to the back of your mind but there's nothing else you can do at this point, you've done all you can by going to get it checked out

I know it's probably not much help but I was told that if it is cancer then it would be more than likely that I'd have an operation (possibly hysterectomy) rather than chemo

Do you have anyone you can talk to in real life? If not there's always someone on here

Thank you guys x I do have a partner I can talk to. He’s not handling it great though, he’s gone into himself a little because he’s scared. He’s a good man though and I know he’ll be there for me.
I feel like I can handle any diagnosis I get it’s the waiting and not knowing that’s getting to me.
Also I’m getting pains in my pelvic area and they’re probably nothing but I’m paranoid about every little twinge.

Maggie most people agree that the waiting and not knowing is the worst bit, even if you get bad news. It's an opportunity for your imagination to run wild! I'm glad you've got a supportive partner. Lots of people start to notice new symptoms while waiting for tests. Your mind is much more alert to the tiniest twinge. Hopefully the pains will magically disappear once you've had your tests

Hello there. Wondering if I can join you on this thread? Am waiting for tests for DSS on what they think is "almost certainly cancer" but they don't know what yet. He had a biopsy which was inconclusive so has now had a bigger op to remove a whole lymph node. So another week or two to wait. I was coping ok with the first wait, but this latest one is somehow much harder. DH was in complete denial at first, which kind of made it all less real. We had tried not to really tell the other kids until we knew what it was, but DH's ex told them, so now they are stressed and anxious too. Today has not been a good day. I'm tearful and trying not to let the kids see that.

DSS is 19 and away at uni. He seems to be coping but he's so far away. He knows he'll probably need chemo, but we don't know what it is yet. Uncertainty is horrible.

Sorry to hear about your DSS, bound to be an anxious time for everyone.

Still having a bit of a technological hiccup so dashing in very quickly to wish iVampire and Twoo good luck for tomorrow. Waving to everyone else

A tech hiccup sounds rather uncomfortable!

Yes, it is indeed my results today (afternoon). Not too worried, as bloods have been normal, but that pre-appointment tension is there.

Congratulations freddie - you’ve done brilliantly!

Good morning lovely leslie and lovely lacies. I'm not on much, but I do think of this group quite often.
I was diagnosed in June 2015 with BC, had breast conservation surgery, chemo and rads. I am currently on anastrazole( after having had tamoxifen for six monthshaving been officially made menopausal by the cancer treatment)
I have had several scares since the end of my treatment, but I'm still dancing
I'm sorry I don't come on here as much as I used to. It's been a while and I am totally occupied with my family since there are no guarantees I won't have a recurrence! I do however suffer eith lymphedema, bone acges..the allall inclusive post treatment package
I wish you all the best. May those who left us rest in peace and may those who are undergoing treatment find the siper support I did on here. Nobody understands what you're feeling like those who share the reality of cancer.
Have a lovely day ahead

Morning everyone.

Good luck this afternoon iVampire.

I'm full of TOTM hormones and didn't sleep as dh said my snoring wasn't keeping him awake so I daren't nod off. He said he got no sleep either. DD has two GCSEs today and a doctors appointment that she won't engage in so I'm feeling quite stressed full stop never mind worrying about my scan .

Morning and Happy New Week to you all x

Hoping all goes well this afternoon iVampire.

I spent most of the weekend on or in bed resting, trying to take my mind of things and give my body time to get over the Chemo I had Tuesday - that I forgot all about with the owrry of everything else! I do know, from calling the MRI dept, that I am on the urgent list - so am just waiting for a phone call. I'm having all the terrible thoughts of secondaries .. bone, lung etc and I know its silly to let my mind wander in this way.

Hoping everyone has sunshine and a positive day x

Hi, and thank you for all the good wishes.

I’ve had good news today - response is continuing strong, I won’t bore people with the technical terms, but it means that crap cannot be detected in my bone marrow.

There is one, even more detailed test yet to come, but right now the response is as good as it possibly can be. And if my bloods stay normal, I might never need another bone marrow aspiration again!

One of my liver function tests was a bit off though. Consultant is not concerned about this as a one off, so I will be having slightly more frequent blood tests between now and next appointment to see what the level does. So fingers crossed for that

Newnameformay does he have any idea what type of cancer they think it is? The waiting around not knowing is definitely the worst part

Waves to Royal 👋** glad the treatment went well. My bones are aching too, I feel like a 90 year old at times

Hope your DDs GCSEs went ok year, my sons doing his this week too. Fingers crossed for your scan

Good luck to everyone waiting for tests/results and I hope everyone's managed to make the most of the sunshine ☀️

No idea why half of that last post is in bold although I've just finished a long shift so I'll blame being tired 😁

Very good news iVampire. Fingers crossed your liver behaves itself.

I'm in that post-chemo zombie state so just feebly waving at everyone before I settle down for the night. Sleep well!

penguins good luck tomorrow

Thanks Leslie Hospital phoned and CT scanner has broken down so is now on Wed with kidney scan so just have gynae consultation tomorrow but getting there. Hope you feel less zombie like soon. Occ Health called as well and are saying they don't want to do by phone but trying to persuade them, if not I will cancel if I'm not well enough to go into London.

Glad you got good results ivampire

Sorry you are worrying McZeba Hope it's all clear on MRI.

Love to everyone else. I have the 90 year old bone ache too, not depressing at all at our ages Looking round couple of houses this weekend, DD says my taste in houses is that of a medieval peasant as I love thatched cottages.

Oh what a pain penguins! Good luck with occupational health.

Less zombie-like today thanks :)

I hope everyone has a good day and thinking of those waiting for tests or results. It's not a fun place to be!

Just saw gynae and he said biopsy from uterus was clear and has signed off. FBC latest iron was normal (with supplement I take) so says he can't do much more but says maybe hormonal issues making me feel ill in period and meds may help. He looked up the bloods urology took and said that there is "nothing very abnormal" so it looks OK re being something like cancer but will see after CT and kidney scan. I hope they find something they can treat though, obviously its great if its not cancer but I want to feel half human again.

Good news about your biopsy penguins and being signed off from one discipline at least! :) hopefully the scans will shed some light. It's such a drag for you waiting so long for a diagnosis/treatment plan.

Thanks purpleunicorns.. She said all the stuff she didn't want came up but she'll be fine. She's got another one tomorrow. By the time my youngest has done his GCSEs I'll have had six continuous years of GCSEs every year as they do them a year early them some more at the right time.

Good news iVampire..

Still no scan appointment so I am thinking the GP must have meant something else.

Year I hope you get an appointment soon, otherwise it might be worth chasing up with your GP in case the referral got lost or something!

Regina and penguins good luck with tomorrow's appointments

Sleep well lacies

Thanks Leslie Always good to be less zombie like.

Argh Occupational Health are saying I have to go into London and I feel rubbish still. I've got the 2 week wait CT scan and kidney scan tomorrow and could do without this too. I've managed to delay them a bit at least but if I am feeling really unwell I will cancel them. I want to keep my job though for the prviate health insurance but I'm getting tempted to do the sign off now. I'm off all August anyway with kids.

Good luck to all those GCSE students, not looking forward to that. One of the houses we were going to look round has already had offers on 35k above asking price so think that will be out by weekend.

Regina Good luck for tomorrow. DS has SATS today - he hates reading comprehension but came back and said it had giant pandas in it!

Thanks purpleunicorn They're thinking most likely lymphoma I now gather. But not certain - some small possibly it's not cancer at all (maybe TB) or could be some other cancer, but presumably would have to be one already spread to the lymph nodes, which can't be good. Strange to be daydreaming about how wonderful it would be to be told it is TB .

Yearofyou I have a mix of DC and DSC close in age meaning we have a long run of GCSEs and/or Alevels every year. This year is both DS and DSD doing Alevels and neither are currently on track for good grades. It's a lot of extra stress and very frustrating as a parent to watch them failing to get to grips with things. DSD is very stressed about her DB as well, poor thing.