**Tamoxigang Thread 52** With virtual tea, cakes and chat for all with cancer concerns

[Lilymaid]

We were almost at our 1000 post limit for Thread 51 - hope the title is OK but wanted people to know that we aren't just about people on Tamoxifen but for all with cancer concerns!

it doesn't really hurt when I exercise or walk but is uncomfortable to lie on and aches when I sit a bit.
Speedy - same here. As I had a scan (and scanxiety) last week, I know mine isn't anything to worry about and have put it down to sitting on my fat behind all day at work and not getting up and walking around. I really need to get back to some gentle stretching exercise when I'm off work in August.
Hope your ache is just the usual type and nothing more!

Hi again, apologies for running in and asking a question without keeping up with the posts.

You might remember that my mum's cancer returned with a vengeance a few weeks back. She's now been allocated a palliative care nurse - does anyone know if this means she is in her last weeks/months of life?

IseeDP, palliative care means making sure people have the best quality of life when living with a serious condition for months or years. They act as a listening ear. And as a go-between, between the patient and the specialists. And explain things. And sort out everyday medical stuff. It doesn't mean the person is about to cop it.

Thank you Amber.

Thanks Lily. I feel better about it today.

Isee- my mum had a palliative nurse for four years

test results today should no cancer in the lymph's which is a huge relief

im to be referred now to some new trial that dna tests the tumor to see why it made base camp in my boob and if chemo is of use to mop up any stray cancer cells

the professor who did my mastectomy (Cardiff) said if 100 women have chemo its only actually useful for 4 or 5 of those 100, all sounds very odd!

HI, haven't been on for a while... this cancer malarky doesn't leave time for anything!

Hi Baubles. That's wonderful news about the lymph's .. had my SNB on Tuesday get my results tomorrow... not sure how I feel, scared to hope they're ok but also trying to prepare myself for the alternative treatment route, whatever the outcome just want to get started now...

Really interesting trial also, fab how they are looking into more options rather than just using chemo.

Glad you're feeling a bit better about things today Speedy, when those emotions hit there's nothing you can do till it passes.

to all ...

Hi,I also have been absent for a while.
I was diagnosed and successfully treated for breast cancer a year ago and got a lot of support on this thread.
I was very lucky in that it was diagnosed very early and I got away with a mastectomy but no need for rads,chemo or meds.
I had my last operation in January to put my implants in and have recovered very well thinking I could put it all behind me.
Unfortunately I had an unexpected bleed last Friday,after not having had any periods for well over a year.(I am 50yo)
Nothing spectacular,but a light,steady bleed (fresh),still ongoing.
I went to see my GP who had a look at my cervix and I have just received a letter from hospital to say that an appointment has been made with the Gynaecological Oncology Clinic.
Gp had said she wanted someone to have another look,but why would they send me to an oncology clinic?
Obviously after last years experience all sorts of alarm bells have been ringing in my head.
Does anyone have any experience with this?
Thanks for reading.

Hi Nelson, I've been through exactly the same experience recently, having a bleed,for the first time in three years following breast cancer ( I'm in mid40s). I also had a relatively easy time of breast cancer (small lump, radiotherapy, no chemo, didn't feel ill etc) and thought his bleed was making up for it.

I had some scans where they found a thickening of womb lining - not in itself dangerous but can be an indicator of something more. Following that, had two hysteroscopies, one as outpatient and one under a general.

Yesterday they told me I Haven't Got Cancer. Still can't quite believe it! I thought I was facing a hysterectomy this summer due to endometrial/womb cancer. I won't totally relax though, until I see the consultant.

Please feel free to ask anything or post any concerns. I got a lot of support here, especially from Marshy (waves to Marshy,) who,also,had the all clear. Hi to everyone else also.

Looking - great news! When I had be, they ran my statistics through an American(?) database, and considering my age, cancer type, family history etc, they said that in my situation, it would only befit 1% of people. I opted against chemo as a result ( had zoladex injections instead).

Thank you Rivercam,good to read your experience
I think once you have been diagnosed with cancer once any lump/bump/unusual behaviour of our bodies makes you think the worst.
I'm on the whole a very positive person but it has thrown me a bit.
Probably not helped by having been for my first mammogram since my mx on Wednesday and awaiting results.

Hi nelson, I'm 51, I was also diagnosed just over a year ago, small tumour dealt with by surgery, rads and now tamoxifen since last July. In about March I had a sudden heavy bleed after nothing since last summer. It was taken very seriously and I sent off for pelvic scans. Fortunately they found no sign of uterine cancer, which is what they were looking for. It seems they jump very quickly after a bc diagnosis and whilst its frightening at the time it's reassuring that they don't mess around. Hopefully they're just being super cautious. Never did get an explanation for my bleeding but have been told to shout if it ever happens again. Good luck with the mammogram results.

River, great news, I'm so pleased you have been given the all clear this time. You can maybe plan a holiday now?

It's v good that you're seeing a Gyn-Onc, Nelson. You need one to say it's NOT cancer almost as much as if it is.

I had an ovarian tumour last year which the ObGyn - no oncology qualifications - at my local hospital was v gloomy about, to the extent that the CSN told me, on the phone, 'no surgery, just chemo', just on scans. Fortunately, I was then referred to an Gyn-Onc and the first thing he said to me was, 'Well, I think it's benign and I'm going to operate in 13 days' time.'

Would have saved me a LOT of worry if I'd seen him first. Hope you have as happy a result as me.

Hi Nelson
Another bleeder here I remember you from before. I think our breast history is quite similar.
I've been investigated twice for post menopause bleeding. 1st time all clear. 2nd time a year later they removed a polyp. No cancer cells thank goodness.
It is a proper pain to be dragged back into appointments when you feel like you've escaped and got your life back. It really freaked me out. Every chance it will be fine but of course you will worry until you hear that for yourself. Keep posting and ask questions if you want. We have some experience now of abdominal scans and hysteroscopy.
Rivercam - fab news, very pleased for you!

Nelson did you say you were waiting for mammo results. Did you have both boobs removed? I had a double mx and was told no more mammos.

Thank you all for sharing your experiences.
It has taken some of the worry away
Your mind plays tricks with you doesn't it?
Gp had the briefest of looks,literally a glance and with then receiving the referral to the Gyn Onc my evil mind told me she had seen something nasty.
They do seem pretty on the ball here as I always get seen quite quick.
Marshy I only had 1 boob removed but as I'm a skinny minx (5ft1/7st and a bit) they offered to put an implant in both boobs as they probably couldn't find one small enough to match my good boob
My good boob still has to go for mammo's.
Nurse made me laugh when she exclaimed "ooooo they've made a really good match haven't they!" Which they have.
Pleased with my perky pair of B's

Just popping on to wave. Welcome to any newbies and hello to various oldies! :)

Rivercam that's great news! I've seen your various posts so it is good to finally have an answer.

Nelson I hope you get some reassurance soon

lily I was sure I'd posted after your scan results, but clearly not I shall blame my chemo brain. Brilliant that your scan was clear and that you will be able to go on holiday! I hope that your tumour markers calm down though, must be a little unsettling.

I hope everyone else is doing well :)

Eek. 993 messages. Is anyone around to start a new one?! I will otherwise as would be sad if it ran out overnight :( but feel rather presumptuous as a now-infrequent poster!

OK. Just me then. I have started a new thread here. If everyone hates it someone else can start a new one in the morning :)