Tamoxigang thread 50 with summer sun, sangria and maybe even some sand

[foofooyeah]

Welcome to thread 50 .... Yes FIFTY.
Lots of us are rising 50 so rather apt!

Curious, when I thought it had spread to my liver I had definite pain on the right side and all down my leg which completely disappeared when I got the all clear. Someone on here very helpfully pointed out that the pain itself is real even though the cause is psychological. You are under stress and your mind and body are reacting accordingly. I have been where you are very very recently so I really feel your anxiety. Is there someone who can look after you a bit, or is there something fun you can do today to take your mind off it?

curious, it is amazing what stress can do with you & how physically it can manifest itself. I had similar symptoms while waiting for my diagnosis - in retrospect the dizziness was probably from not eating or sleeping properly. I continued with sharp pains in my chest and was convinced that it had spread to my ribs, the pain hasn't stopped even though the MRI and CT scans were clear. Again, I think it is the stress.

Like Speedy, I actually felt much better (emotionally and physically) after the confirmation that it was cancer. Not to say I didn't fall apart (And still do occasionally!!) but there is a relief in knowing WHAT it is and HOW we are going to treat it.

Afternoon ladies. Can I ask a quick question pls?

After an urgent referral, how long is the norm to wait for results from an MRI? Bloods and US results were next to no time, now they just seem to be dragging their heels with MRI. Called the consultants secretary and she says they haven't even been looked at yet.

TIA

feeling - I think it depends on your hospital. I know that at mine (NHS) there was a 2 week wait for an MRI because of people going away on holidays.

I eventually got my MRI done privately, the results were available & shared with me 2 days later.

Hope you get yours done quickly...

brite thanks for replying. Waiting is an absolute nightmare. It has been 10 days so far (NHS), despite the fact from GP - MRI with everything in between took just over 2wks. I think I'll look into private.

Think I need to try and change my name. Feeling stressed seems more apt at the moment

lol feeling

Think I might change my name too...it should be something along the lines of: Not-so-Brite-Side...

If we are talking about name changes........!
curious just to reiterate everyone else, you will find that your brain is by far the most powerful organ in this whole business, which means that all symptoms imaginary and otherwise will be very real and very painful until your brain has the chance to process later facts. The tiredness, I am sure is the stress, so take that seriously and try and find some way of distracting or relaxing - easier said than done.
feeling my CT results took weeks, I would say no news is good news but they did find some suspicious spots, so was a case of getting round to it. I am now waiting on a full MRI, haven't even got an appointment yet, despite them knowing there is stuff to investigate. I do know we have an issue with MRI availability in Plymouth, and having seen the fact that appointments need to be saved for emergencies like my mum's recent stroke, has made me a bit more understanding.
speedy looks like that could be fabulous news - fingers crossed that you are doing a full broadway dance routine when you get your results.

The MRI was done 10 days ago, I'm waiting for the results. Bloods and US showed up suspicions. It's just so frustrating that they are sitting on the results for so long without even looking at them. I even said I take it there's nothing serious seeing as they are taking there time? I was told they were unable to say as no one has looked at them so they don't know.

fitter MRI and CT scans require the radiologist to write up a report for the oncologist. So, although the raw data is there, your MRI may be awaiting interpretation. On the other hand, things often seem to go astray in hospitals, so that could be the answer.

Feeling. That's a bit if a pain. Hopefully you will get results soon.

Buns thank you. I am trying not to get too ahead but the fact that she couldn't really find anything made my day much better. Will practise broadway dance in my head!

Feeling, I'm sorry to hear you are being put through such a wait. Really hope they get their act sorted soon for you.

I seem to be having a problem getting a ct scan in the first place :-(. Am finally having a bone scan tomorrow but still no appt for a ct scan even though it will be 3 weeks soon since it was requested. Did anyone else have to wait a while? It's just making the whole thing seem so drawn out

Hi minty, like you got the bone scan through quickly, ended up waiting about 8 weeks for CT scan appointment and then had to remind them to look at the results. I think it depends which hospital you are at, as some peeps on here have had appointments and results almost immediately. I didn't 'to stress too much although it was a tick in the box I desperately wanted (and actually didn't get) I was assured that it wouldn't effect my immediate treatment plan so not a priority for the oncologist and team. That said, I share your frustration. Am now in similar boat waiting for full MRI, knowing that I have spots on lungs and liver that maybe quite innocent - or maybe not.

Results day tomorrow.... I was supposed to have them last week Tuesday but the appointment was cancelled the day before saying the results weren't in yet.
I shouldn't have anything to worry about really as I have DCIS (intermediate and high grade 10cm),no invasive found in breast tissue,but suspected micro metastases in Sentinel lymph node.Or as my 'friend' so kindly put it "cancer light" .I am recovering very well from my mastectomy (a month ago yesterday).
I was really quite alright about it for the last few days,almost managing to forget it.Little niggly voice has crept up this evening though going :"Yeah but what if......."

Good luck for tomorrow nelson we are here for you whatever the news.

Hope it goes well tomorrow Nelson will be thinking of you

Good luck for tomorrow Nelson, I really hope there are no surprises.

Also, good luck minty with your bone scan, hope it all goes smoothly and calmly, and that you get a date for your CT asap, I am thinking of you lots.

I am seeing my surgeon tomorrow as I am nearly 2 weeks post-op, hopefully she'll be happy with how I am doing. Then on Wed I go in again to get the results from the surgery - like you Nelson I will be hoping for NO nasty surprises and NO new information to come to light this week.

I went for a free Reiki session today and it was amazing - I don't really go in for holistic stuff but at the end of 30 mins I felt a) pain free for the first time since surgery; b) very relaxed; but at the same time c) very weepy. Like all of us, I have been prodded, cut, scanned, biopsied etc so much and it was hugely relieving to be touched gently and carefully for a change

Good luck with your results Nelson, and for everyone else waiting to hear.

My appointment is next Wednesday 13th. I'm sure you're right about it just being stress, I know it must seem ridiculous as I'm in a likelihood fine but I just don't know what to do with myself... My best friend today kept asking if something was wrong with me.

Thank you all . for all

Good luck today Nelson

Good luck today nelson, will be thinking of you.

curious, do you have an appointment set yet ? The waiting stage was agony. I clearly remember how everyone was all normal and I wanted to scream: 'DON'T YOU KNOW WHAT IS HAPPENING!!!'. This is the worst stage, try to remind yourself of that.

elporto, I hope your surgeon's appointment goes well. What exactly is Reiki? I am also entitled to some holistic treatments but haven't committed to any yet. I love the idea of being gently touched with the intent of healing...rather than scanning / investigating / poisoning / poking....

Question for tamoxifen users: what is the best time to take it? After my experience with Letrozole I don't want to feel about 85 again, if it can be avoided!
Last 8 Capecitabine tablets today ... At least for a while. They have worked well and I have functioned almost normally on them, so if I do have to go back on them I know I can cope.

H iLily - i take mine in the morning but when I did take them in the evening i didn't notice a difference. My SE is hot flushes and they are worst in the evening no matter what time I take it.
Congrats on finishing chemo for a while - hopefully Tamoxifen will do the business for you and you'll get minimal SEs - and can finally go on holiday .

I also take mine in the morning lily cos that's when Ive always taken my vitamins etc and so I don't forget! My oncologist said its a slow release drug so it doesn't matter when you take it (but he doesn't have personal experience!!)

I did read something in the papers recently about having light in your bedroom at night having an effect on how tamoxifen works and in the article it suggested taking it at night BUT it was in a national newspaper so could be rubbish! If amberlight is about, maybe she knows more?

Good luck today nelson.
I'm going with my little sis to see the surgeon to discuss her preventative mx. She has mental health issues so I'm going as her advocate.