Tamoxigang thread 50 with summer sun, sangria and maybe even some sand

[foofooyeah]

Welcome to thread 50 .... Yes FIFTY.
Lots of us are rising 50 so rather apt!

[MarthaCostello]

OK... thread 51 here!

[MarthaCostello]

Right, I'm just typing up the first post, trying to put some welcome to new people etc. will be a few moments, bear with me :)

[MarthaCostello]

Good morning everyone. Just popping in to wave and saw foo's post, so I will quickly start a new thread and link to it :) then will pop back later and post properly

[wineoclocktimeye]

Morning everyone!
Fantastic news Marshy, hope you're having a stress free day.

Drains are a pain speedy, mine were only in for 4 days so hopefully they'll be out soon.

Hi Bigger Buns, I'll PM you my thoughts! it was funny when I took my first tamoxifen as I swallowed it and sat there waiting for something to happen!! Think I've said, but it did upset my tummy for a couple of weeks at the start which soon settled down and to be honest, the hot flushes are no worse than when I was on the chemo.

Hope you're feeling a little better becca, its so tough trying to be strong for everyone else, especially with little ones about. HUGE hugs.

I'm loving been back at work but I am totally exhausted-worse than when I was on the chemo (although not feeling sick). I was starting to worry about it till I read than extreme fatigue (which does sound better than just bloody knackered ) is very common after treatment. Still half term in a week so intend to sleep for all of it!!

I am happy to try and start a new thread but I'm rubbish at thinking up good titles so will need hep with that!

Hope everyone has a good weekend.

[ConsiderablyBiggerBuns]

Also thinking about snowflake and wondering if you are okay?

[ConsiderablyBiggerBuns]

Hello marshy, didn't get a chance to log on yesterday and woke up in the night wondering how your results had gone. Brilliant news.
becca sorry you are having such an (understandably) low spell. I think having the children and measuring your own mortality against theirs is so poignant. Do take some comfort from amber and the good advice about counselling. In the meantime keep emoting on here.
Welcome jormid hope the pain is better today.
Hi speedy, glad to hear everything went well. The drains are a pain (particularly if you have a dog who jumps up) but will be gone in a relatively short time and then you get to keep the lovely bags!
Hi to wine saw you on another (Christmas related) thread - wondering if you were thinking the same as me!
Thanks for the tamoxifen tips, I think I will wait until the current chemo flushes stop (they are subsiding ) and go for it at breakfast.
Thanks also for the neuropathy info. I could do with talking to someone about it but I seem to be in that limbo stage between chemo and rads, no appointments set up with onc and not sure if I should start engaging with my GP who has not been involved at all in my diagnosis and treatment.
Had MRI for spot on liver on Wednesday, hopefully results will be reassuring, not surprised some people struggle with MRIs, I'm not in the least claustrophobic but really didn't feel comfortable.
Sorry foo I've never started a thread before - hopefully someone else has more experience.
Hope everybody manages to have an enjoyable weekend.

[foofooyeah]

marshy so pleased it was good news.

speedy drains are a pain but hopefully won't need to be in too long.

mrs hope you had a lovely evening.

We need a new thread ... This one nearly full. I managed to do it last time but cannot for the life of me remember how. Anyone else know??

[malteserzz]

Marshy that's great so pleased for you

Becca big hug for you x

Welcome Jomid

Half term here now

[mrsrhodgilbert]

Marshy, just back from dd2 18th birthday meal and had to check in to see if you had received news. I can't tell you how pleased I am for you. What a turn around, I bet you just don't quite believe the awful week you've just had. My goodness, could emotions be more extreme? Have a fabulous weekend.

Speedy, good to hear you're back home and safely through surgery. Sleep well.

Hugs to becca, wish I could do more.

[Marshy]

The support and generosity of spirit on this thread is breathtaking and not something I have really experienced before so I guess I have the vile cancer to thank for that at least. Thank you all so much.
I honestly thought the phone call this afternoon was going to confirm the kind of cancer I had got and give an idea of the treatment regime and next steps. I still can hardly believe it and can only think that on Monday my surgeon decided to give me worst case scenario and then maybe good news rather than risk it being the other way around.
I am so.tired. Just back from fizz and food, now a bit of tv and then crash into bed. See you all tomorrow xx

[Speedypenguin]

Becca- drains for a week. I have two pretty bags .

[beccajoh]

That's made my day reading your news Marshy

Speedy how long have you got the drains in for? I carried mine about in a leopard print handbag

[Speedypenguin]

Great news marshy.

Becca- sorry you are feeling so low. Sending a big hug.

Am home but a bit sore and trying not to move by using my arms which is tricky. Have plenty of painkillers and antibiotics to take. The drains aren't as bad as I imagined but a bit of a pain. Will catch up with everyone properly tomorrow.

[elportodelgato]

Marshy, drink that fizz and have an AMAZING weekend, that is just such fabulous news!!

[Mummywheel]

Enjoy your fizz Marshy you've earned it! So pleased for you x

[Marshy]

I'm in shock!
BCN rang at 5 just as I was going to leave a message to say i was turning my phone off and would speak to them next week.
They have revised the path report and decided no microinvasions present so no further treatment! i have a follow up surgical appt next week to check my boob and that's it....... totally delighted understatement I can hardly believe it...
Off out with DH and DS to drink fizz and maybe eat something.
I will contact my regular BCN next week when she's back to have a debrief and a wtf session.....and to check that they are really sure this time.
Don't know what else to say.

[Mummywheel]

So sorry you are having an awful time Becca I can recommend councelling too. I've had three sessions now, the first I cried for the whole hour and didn't feel any benefit, the second session I cried for half an hour and the third no crying and now feel like I may have turned a corner. Have you an assigned Macmillan nurse? They are generally good to talk to for support too x

Marshy hope you've had good news from your nurse today x

Sending hugs to all!

[beccajoh]

The drugs I'm on at the moment aren't really compatible with anti-depressants unfortunately. Something to do with risk to my heart. Not totally impossible if things got really desperate but I'd need heart scans minimum of once a week...

[mrsrhodgilbert]

Oh marshy, I hope your nurse rings soon. I was in a terrible state waiting for results recently, far worse than waiting for the first diagnosis. I knew what would be coming if positive. Will you snap soon and call her?

[foofooyeah]

Oh Marshy that made me feel a but faint too. Hope you hear soon and its something positive and/or useful.

becca I would fully expect to just cry for the first session, I think most people do. I sincerely hope you find it useful.

And do heed what amber says. She always says she is not medical but her advice was the some of the most useful I received. Its fine to insist on further investigation .... in fact I believe a lot of oncologists relish a feisty patient who wants to go further with their treatment. Mine supported me once I stated exactly what I expected.

[elportodelgato]

Becca, it's great to hear that counselling is on offer for you so soon. I have had 2 sessions so far and have found it very very helpful, in the first session I just cried and ranted for an hour but that's what they are there for and it was a huge relief to get it all out in a really safe environment. I hope you'll find it useful and that you can hang on until then. Also, I know this isn't a miracle cure but the antidepressants I am on have made a real difference, I was very loath to take them at first but now I can see the sense of it.

Hold tight, we are all here for you

[Marshy]

Becca - hugs for you. It really is indescribably tough to endure this.

I am watching the minutes tick by whilst i wait for a phone call from BCN possibly with more results after MDT this morning. I feel like i might faint....

[amberlight]

Beccajoh, glad they are recommending some counselling. Talking it through is something most of us do, and it does help most people.
Your consultant will (I hope) be aware of the trial results from combining ipilimumab and nivolumab for advanced melanoma. Extraordinary results so far. Think I mentioned it before. Since these give an average of three years of 'thinking time' for even newer potions to appear, you are most definitely not certain to cop it in six years. Newer stuff is happening every year, at the moment. I would ask your consultant about getting a full report on the molecular and genetic stuff, so they can tailor the treatment even more effectively. Meantime, nibble little and often, rather than in big meals. Sending a large , which isn't a lot of consolation at the moment, I know.

[beccajoh]

telly=really!

[beccajoh]

Hi Jomid, sorry to hear you're suffering. I cycled ibuprofen and paracetamol after my surgeries, with codeine in addition if I needed it. Hope you're in less pain soon.

The cancer nurse has referred me for counselling after my appointment on Monday. Up until now I haven't felt like I've needed it but I've been really struggling the past week or so. She's also referring me to the dietician because I'm losing weight. I've lost a stone in the last three months. Eating is a real struggle. I feel well most of the time, but just have no appetite or when I do feel hungry I get full up REALLY quickly. I've been using a food/exercise tracker and most days I'm only eating 1000-1100 calories. I did manage 1600 one day but that was a huge effort and I felt telly bloated and yucky all day.