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Original poster

Tamoxigang thread 49 when Sumer is y cumen in and we get out the Pimms

988 replies

Lilymaid · 16/05/2014 18:44

New thread!

OP posts:
traviata · 28/05/2014 21:25

mom that is great news, well done.

Mummy only a few days to go!

Zombie at least things have started, the sooner they begin the sooner they will be through.

speedy hope you have a better day tomorrow.

and good wishes to everyone.

Wren48 · 28/05/2014 21:44

traviata, I know just how the small set backs can flip you from coping to not coping (I do that a lot; none of it seems small when it's happening), and I'm sorry about the PICC line and the overbooked theatre. Perhaps still worth trying to get something fitted?? They should know if it's likely to work, surely.

traviata · 28/05/2014 21:57

thanks wren. How is your half term going, is your sis still staying?

reallyreallyworried · 28/05/2014 22:35

traviata sorry to hear you had issues with the PICC line insertion.... Me too (back when I had Chemo) Apparently I had lovely veins, BUT he couldn't get the line in without the vein closing?! Anyway after being there for over an hour he gave up and said we could try again the following day. Which we did. The second time round, I drank LOTS of water before I got there, then he wrapped my arm in a towel to keep it warm! But the main thing he did was, he didn't give me the local anaesthetic until he had put the first needle into the vein! It did hurt a bit, but not massively! But the line then went in perfectly!

Don't lose heart, I would say it's definitely worth a second try. Although the line drove me insane, or at least the dressing/flushing did. I am glad I had it, as the Chemo was much easier with the line in.

Good luck I hope you get something sorted. Although don't panic if they can't as I'm sure some people on here have had Chemo through a canula and have been fine.

traviata · 28/05/2014 23:28

thanks really, I will certainly give those ideas a try. Hope you are doing ok.

IamtheZombie · 28/05/2014 23:31

traviata, there's a lot to be said for a bit of retail therapy when all else fails. Wink

It is a bugger about the holiday. Zombie is now in the same position. With the MRI having been thrown into the mix all chance of any holiday this year has evaporated. She has just over a fortnight before first Tax so is planning some day trips to see special people in her life.

Fingers, toes and everything else crossed for you that the next cycle of FEC is easier than the last one. Have an extra special ZombieHug™.

Speedypenguin · 29/05/2014 11:47

Thanks for hugs. I just can't seem to get through this one. Can't walk upstairs without getting out of puff, still feel a bit sick a week on now. Does FEC get worse each time? They are talking about giving me another one and right now I just want to sob. My arm has started aching above my PICC line (whole arm is sore from before anyway but this is a different sort of pain- when area of PICC is touched or knocked). Going in to get it flushed this afternoon but worried there is a problem and it won't work anymore. The thought of having to have it in veins again makes me want to be sick.

Gosh, what a lot of self-pity. 'Gets a grip!'

Travita- am sure they will be able to sort something. Fingers crossed.
Honey- great news
Zombie-hope your day trips are lovely
Malt- hope half term is going well
Mom-good news
Wine-glad you had a lovely meal. Take it easy.
Hello to everyone else, would like to make lots of comments but feel very fuzzy and can't remember everything.

reallyreallyworried · 29/05/2014 12:09

speedy sorry to hear you are feeling so rough. Sending you a (((((((BIG HUG))))))) hope the line flushing goes okay. But definitely mention the pain. I had a PICC line and other than the dressings annoying me, I didn't know it was there! Xx

I am feeling VERY PROUD of myself! Nobody here to share it with so thought I would share with you all! (sorry if it sounds a bit pathetic) I just went out to the supermarket, by myself, 10mins walk away, did shopping and walked back.....HEADSCARF FREE Grin So that's it now no more covering up! I still hate my lack of hair, BUT it won't be forever and clearly it bothers me more than anyone else!! I feel like I've made a huge step in moving on Smile

Speedypenguin · 29/05/2014 12:28

Thanks really. Hugs much appreciated.

Well done on going out without your headscarf. That's great and so glad you got the confidence to do it.

Wren48 · 29/05/2014 13:25

That's great, really; well done!

Speedy, more big hugs from me. The PICC line thing sounds like it needs looking at, so great that it's being checked today; I hope they can sort it easily. Mine did get blocked on the last chemo (just when I was starting to relax) but they managed to clear it. It sounds as though you are having a rough time at the moment. Actually, you sound worn out and I'm not surprised, with so much sickness dragging on. It really won't last forever, but thinking of you lots.

Speedypenguin · 29/05/2014 13:38

Thanks wren. I didn't know they might be able to unblock it. Fingers crossed if that is what is wrong. Just feel so pathetic and tearful at the moment. Will need to stop as my friend is coming in a minute to take me. Maybe it will just take a day longer to feel better. Have to perk up by sat as boys coming back then.

MyNewNormal · 29/05/2014 15:26

Big hugs Speedy, hope your PICC line gets sorted.
really well done!

My neutraphils are normal so chemo goes ahead tomorrow as planned albeit it at 20% less strength.

malteserzz · 29/05/2014 16:59

Pleased to hear it normal good luck with the chemo tomorrow

Really well done, that will be the hardest bit, every time you go out without it it will get a little easier

Hugs for you speedy, did you get the picc line sorted today ?

I didn't want to say before but I've had a lump under my arm checked out at the hospital today and thankfully it's nothing sinister. Very relieved.

Mummywheel · 29/05/2014 17:23

So pleased it's nothing sinister malt you must have been so worried.

What anti-sickness meds are you on speedy? I requested Emend (aprepitant) and I think it made a real difference.

Well done really looking forward to the day when I can do the same.

traviata I have been told many times that I have good veins however I still have one which is quite sore still after my 3rd FEC.

DS2 is going off to Normandy tomorrow with the Air Cadets for D-Day celebrations. I'm really going to miss him Sad

Speedypenguin · 29/05/2014 17:43

Good luck tomorrow normal with next chemo.

That is really good news malt.

I am ashamed to admit I got to the hospital and just sobbed, very embarrassing but they were lovely. The PICC line seems to be ok and they got blood and flushed. They said it might just be the phlebitis moving up and to try and move it as much as possible. I have tried but have spent a lot of time lying and sitting as have not felt good. Fingers crossed it eases.

Mummy- I have had emend the last two times, this time they gave me cyclyzine as well which really helped the first two days but once all the other drugs stopped I have felt really awful. The nurses said today it is probably the build up of the FEC.

Thanks for all your support. Once I get through this fog I will hopefully be of more use to others Thanks

malteserzz · 29/05/2014 19:02

Thanks both, it was such a worry you just feel helpless

Mummy I'm sure you'll miss him but what a great thing to do, you must be proud of him. Hope he's not away too long

Speedy don't be embarrassed you won't be the first they've seen cry and you won't be the last. I'm glad it seems ok and fingers crossed you feel better soon.

wineoclocktimeye · 29/05/2014 19:09

Hope you're feeling a bit better Speedy.
Good news it was nothing Malt.
Good luck tomorrow Normal.

reallyreallyworried · 29/05/2014 20:29

malt glad it turned out to be nothing to worry about. Although I am sure you've had a worrying time leading up to today. Hope you can enjoy the rest of your half term. Xx

speedy we have all had days when we cried over nothing in particular, it's nothing to be embarrassed about. You are feeling vulnerable, understandably but you WILL get through this. Be kind to yourself, and always remember this horrid period will soon be over! Keep sharing your feelings, we all totally understand xxxx

foofooyeah · 29/05/2014 20:41

Just popping in to say Hi.

Been busy with research and stuff, got appt with Onc in the morning so will update later.

Hugs for sore veins ans poorly ness.

reallyreallyworried · 29/05/2014 20:52

Good luck with your appointment foofoo I'd be interested in hearing about the research stuff that you have found! IF and when you have time to share! Also can I ask did you get round to telling your family your news? Xx

foofooyeah · 29/05/2014 23:23

Hi really I told my sisters, but haven't told my Mum yet. Spoke to a lovely lady with mets today who hasn't told her father the full outcome either. She says she will if needs to which seems a good attitude.

MomOfTwoGirls2 · 29/05/2014 23:33

foofoo I only told my dad about my diagnosis once I found out that I'd need chemo , so was going to lose my hair. Initially it was supposed to be just Rads, and I wasn't going to tell him that I had cancer at all. (My mom died of pancreatic cancer 5 years ago).

There is no law to say you need to do full disclosure...

foofooyeah · 30/05/2014 07:23

mom my Dad died of Pancreatic cancer:its vicious and horrid.
My Mum knows I have cancer but not that it's stage IV. She still thinks its curable. Will leave it like that for as long as possible.

malteserzz · 30/05/2014 07:37

Foo foo good luck today I hope the appointment with your onc is positive and that you can share your research, big hugs. I'm glad you've told your sisters can understand why you don't want to worry your mum

weebarra · 30/05/2014 11:43

Hope everyone is well!
maltz - glad your worries were put to rest
foofoo - hope your appointment goes well today
speedy - hope you are feeling better
And good to see you back really.
Surgeon yesterday to have seromas drained again but less this time which is good. Rads start on Monday, but in Glasgow (I'm in Edinburgh) so will be staying with my parents with DD and DS2, while DH and DS1 stay here. I'll be back at weekends but will miss them.