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Original poster

*Tamoxigang Christmas Party* - 45

979 replies

Tiny100 · 28/11/2013 10:58

Morning All!

We're nearly in December, so let's get the festivities started.

[adds mince pies to the trolley]

OP posts:
kitkat1967 · 06/12/2013 23:46

Thanks both. Yep, still have numb fingers but it is on and off not all the time. I only really suffered with it in the last 4 cycles so onc thought there would not be any lasting effect. I also get a lot of tingly hands and feet feelings which is annoying.
Other then that I do have more energy - just not as much as I want/need. I def underestimated the recovery time. And to cap it all I have been nasseous today so back to eating stodge!!
Still like you guys it is done and I will get better, I just need to be more patient.
Betsy are you just developing nails problems now?

malteserzz · 07/12/2013 10:05

Morning all
Lily I was thinking about you the other day and wondering how you were getting on Smile

The lack of energy is annoying isn't it, I expected to bounce back quicker. Dh keeps reminding me how much my body has been through and that it's bound to take time
Does anyone else feel more sensitive to light too ? The other night when I was at ds cubs presentation I was tired and it was a bright room and it made me feel a bit strange. As soon as I came out of the room I was fine. Could that be the lack of eyelashes ?

Out for a curry with friends tonight Smile

Kitkat hope you're having a lovely birthday Smile

reallyreallyworried · 07/12/2013 10:38

HAPPY BIRTHDAY kitkat hope you have a great day. Cake Wine Thanks xx

Hope everyone has a great weekend xx

mom I hope you are out of hospital soon. It must be hard, but I'm sure your DH will cope xxxxx

Lilymaid · 07/12/2013 10:48

I better do a quick update! I saw the Onc yesterday and he will see me again at the end of Jan when I will have been on Letrozole for 3 months. I'll have a scan just before I see him and he will then decide whether I should have radiotherapy or not. If the hormone pill has been very effective I might not need the rads.
Meanwhile DS1 has returned from t'other side of world with a spot of Delhi belly. In his first evening home he's already sorted out my techy problems with my iPhone and iPad. Next on list will be sorting out Bluetooth in my new car. Whether he can master our new induction hob and tumble drier is debatable! He is now even more sure that he doesn't want to return to work in the UK.
I'm still having problems on food - nausea, retching etc. I'm sure this is psychological and that although I've been very calm about cancer, my fears channel themselves into a problem with food. But - I still need to lose weight so I suppose that it is doing some good.

BetsyBoop · 07/12/2013 11:54

lily - fingers crossed for good scan and no rads :) I hope your nausea eases soon I like my food too much for the nausea to last here!

kitkat - Happy Birthday :) Hope you have a good day.
Re nails - my nails went a bit yellow (think smokers nails) on FEC. Then on TAX I got a horizontal ridge for each cycle I'm turning into a tree Just in the last week or so the FEC bit of my nails has started looking odd. One has lifted a bit, a few more might lift. I'm just keeping them really short so I don't catch them. The good news only the FEC bit has lifted and I reckon another month or so that will have grown out anyway. :) I also have one very black big toe nail courtesy of tax. So far no sign of it falling off but the BCN said she'll refer me to a podiatrist if I have any problems with it as she's concerned about the risk of infection seeing as I can't actualy feel my toes...

malt - I've never been good with bright light anyway, but I can't say I've noticed a difference.

really - how are you doing today?

Well I woke up this morning with EYEBROWS! Still very short, but most definitely there. :) (My eyelashes started growing a while ago) And it looks like my hair might finally be starting to get going. I think it was gigs who said hers took until 8 weeks to properly get going, thank you for saying that I really stopped me worrying.

malteserzz · 07/12/2013 12:27

Betsy great news about the eyelashes ! Hope mine grow soon I have about 4 on each side and a couple of eyelashes but that's all

I didn't lose all of my hair but it's growing but grey !

weebarra · 07/12/2013 15:49

Happy birthday kitkat & congrats on the eyelashes betsy.
Appt with Mrs Onc went well, she had a feel and was pleased the tumours were shrinking.
Currently making xmas decs with DS1 who has a tummy bug, the wee love is being great with his hand hygiene, he knows that mummy doesn't want to get sick.

Lilymaid · 07/12/2013 15:56

Betsy congrats on the return of eyebrows and lashes. My magnifying mirror has revealed the sad return of chin hair! So I need to rediscover my tweezers!

reallyreallyworried · 07/12/2013 16:23

Betsy I'm doing okay thanks. Was in bed watching tv at 9 and asleep by 9.01 I think Smile I did stir at 4.30 then dozed off again til 8.30 which is pretty good as I am on my steroid days!

Having a nice lazy day. Still in my PJ's. A friend came over and made us both lunch! That was a nice treat. We had a good chat. Now watching more Christmas movies!!

Hope you are having a nice weekend xx

Mummywheel · 07/12/2013 16:51

Any room for another one? I was diagnosed with cancer in both breasts yesterday. Shocked is an understatement :( I am booked in for surgery on Thursday to have both lumps removed, will have hormone treatment and radiotherapy and possibly chemotherapy when results are in. Looks like I have a long journey ahead. My DH has been amazing, taking everything in when I was unable to. I didn't sleep at all last night so feeling extra tearful today :(

reallyreallyworried · 07/12/2013 17:14

Welcome mummywheel sorry you find yourself here. But you have come to the right place. Always lots of support and advice on here. Just be kind to yourself. You've had a big shock. Cry if you need to cry. Shout scream whatever. But remember it really isn't the end of the world. It's a long, tough fight. But you will get through it. Xx

Wren48 · 07/12/2013 17:25

Hi mummywheel, so sorry that you find yourself here, but this is a good place to be. And I definitely agree with really that you need to kind to yourself, especially through the early shock.

It's sounds like they are moving really fast to treat you. In some ways that might add to the shock, but it's good to get treatment underway. I had to wait ages for my first operation and was completely crawling up walls by the end. The waiting (for treatment, for results and so on) is tough.

malteserzz · 07/12/2013 17:34

Mummy wheel sorry you have to join us but you are very welcome
I agree with wren though you are bring treated really quickly and that's good as the waiting is horrid. I had to wait ages.
Ask us anything, we've all been there and hopefully can help Smile

Off for a curry later with dh and friends. He had the snip this morning but is bravely carrying on Wink

Mummywheel · 07/12/2013 17:45

Thank you ladies I am sure I will have plenty to ask in the coming days/months Thanks

Marshy · 07/12/2013 18:46

Evening all, and hello to mummywheel

Just a quickie from me to say happy birthday to kitkat! Hope hospital isn't too tedious mom and that you are out soon, and good luck to malt for Monday (it is Monday isn't it?) Glad you're having a nice weekend really after a trying week.

I saw BCN yesterday and she gave me the go ahead to get my new boob wet so i had my first proper shower in aaages this morning - it was bliss!

Off to see DD at uni at the very end of the Piccadilly line tomorrow. We are going to see Les Mis on Monday night. I've never seen it, though have sung loads of the songs in various choirs, and DD is keen, so looking forward to that. Back home Tuesday morning.

Have been feeling a bit sicky the last few days and suspect it might be the tamoxifen as also being woken at least once a night feeling quite tropical! Betsy will be interested to hear how you get on with it, and anyone else also.

Waving to everyone and wishing all a good evening

amberlight · 07/12/2013 18:57

Hi all and hi Mummywheel. Sorry you're here, but glad you've found everyone.
If it helps, the modern cancer treatments for breast cancer are amazingly good. 9 out of 10 people with BC go on to live a normal long life now. The remaining 1 out of 10 gets to live with cancer for a good few years, normally - and the treatments are making most of those ruder sorts into long-term nuisances rather than disasters. So for nearly everyone, it's bracing treatment that isn't fun...but it's do-able...and a good outcome. Even if it's spread somewhere else in the body., which 1 in 10 people's may have done.
I was reading yesterday, by the way (may be of use to wider audience) that if for example it's a rare one where the cancer has gotten into the liver AND people have already had three different sorts of chemotherapy (so about 2-3 years of treatment), they can still add another 1-2 years of life on average by using the latest nuclear-medicine or freezing techniques. And then they have the new genetic medicines to use after that. So whatever the results are, you're almost certainly not going to cop it any time soon. No need to cancel that pension contribution and start writing goodbye letters.

Let us know what results you get and when, and we can definitely tell you a bit more about your best new options. I am sure your teams will too. None of us here are doctors, but a few of us know a fair bit.
Meantime, have a Brew and a sit down.

BetsyBoop · 07/12/2013 20:51

welcome to mummywheel though sorry you find yourself here. Listen the amber she is our official wise woman Grin

marshy I'm only three days in on tamoxifen but haven't noticed any SEs yet - I was still getting the occasional hot flush after chemo anyway - maybe too early for SEs to properly get going yet?

Wren48 · 07/12/2013 20:52

Thanks for that, amber. Not directed at me, I know, but I found that helpful on a gloomy old day when I've not been able to shift my thoughts to a cheerfuller state. Hooray for modern medicine (though a bit sore from modern surgery right now).

BetsyBoop · 07/12/2013 20:53

oh and lily - ditto - my one mutant/rampant chin hair was the first thing to sprout, about three weeks ago...

reallyreallyworried · 08/12/2013 08:07

Morning all

marshy glad you were able to enjoy a lovely shower yesterday. Amazing how much we appreciate the small pleasures in life!

malt hope you had a lovely evening. How was the curry?

mom how are your bloods doing? Behaving I hope. Hope you escape soon.

kitkat how was your birthday? Did you have a great day.

Hope everyone else is enjoying a nice weekend. Xxx

MomOfTwoGirls2 · 08/12/2013 10:48

My bloods are further up this morning. Magic number is .5 and I'm at .4 Nurses think Dr might let me out today, but I'm not going to get my hopes too high.

Welcome mummywheel, sorry that you find yourself here. From your username, I take it you have children? How many and how old?

Belated birthday wishes to kitkat,

Marshy I can appreciate how good that shower mist have felt. I am really looking forward to having a shower at home, with warmer water, and where it doesn't drown half the bathroom floor!

MomOfTwoGirls2 · 08/12/2013 10:56

My bloods are further up this morning. Magic number is .5 and I'm at .4 Nurses think Dr might let me out today, but I'm not going to get my hopes too high.

Welcome mummywheel, sorry that you find yourself here. From your username, I take it you have children? How many and how old?

Belated birthday wishes to kitkat,

Marshy I can appreciate how good that shower mist have felt. I am really looking forward to having a shower at home, with warmer water, and where it doesn't drown half the bathroom floor!

MomOfTwoGirls2 · 08/12/2013 10:56

Oops

foofooyeah · 08/12/2013 12:03

mum hope you get parole soon!

And hello to mummywheel

Still in my pjs here, last round of chemo still hanging about making mr lethargic but hopefully will pick up tomorrow. Have my DSD who is 14 here so nice morning watching cookery programmes and drinking tea. Also doing some very dodgy sewing.

malteserzz · 08/12/2013 12:15

Morning or afternoon rather !
Had a good night last night though they were busy so we booked for 8pm and ended up having our main course at 10 ! Lots of wine and chat though so it was fine
Feel really well today have been to sainsburys with dh, just typical I feel better just in time for my op tomorrow ( node clearance ) got to be there at 7am I'll let you know how it goes

Mom I hope you get out soon

Hope everyone has a good day