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*Tamoxigang Christmas Party* - 45

979 replies

Tiny100 · 28/11/2013 10:58

Morning All!

We're nearly in December, so let's get the festivities started.

[adds mince pies to the trolley]

OP posts:
reallyreallyworried · 08/12/2013 12:22

Guessing you prob won't have time to be on here first thing tomorrow malt so just wanted to wish you luck for your node clearance. I found that surgery a breeze compared to the lumpectomy. Only downside was the drain! But even that was doable. Best advice I can offer, is start the exercises ASAP.

Will be thinking of you. Hope they put you on the top of the list! Xx

malteserzz · 08/12/2013 12:32

Thank you really that was very kind Smile I found the lumpectomy fine so was expecting this to be a lot worse, glad that might not be the case ! X

MomOfTwoGirls2 · 08/12/2013 13:05

Malt, good luck for tomorrow.

Can't believe it, I'm still stuck here.
Dr came and said I could go if bloods are. 4. Final lab results has them at. 24. I shed a few tears. SO fed up.

reallyreallyworried · 08/12/2013 13:34

mom sorry to hear that. But there's not much you can do. Just keep resting however boring that is you'll be out of there soon. Sending you a (((((((((BIG HUG)))))))))) xx

Gigondas · 08/12/2013 15:25

Oh mom -it Is so hard when you get banged up. Lots of love for you and hoping bloods go up today.

Malt good luck tomorrow .

Belated happy birthday kitkat.

Also sitting around doing embroidery -big gig gone to a party. Am also in the wiped out gang after last couple of days but hoping that pick up soon.

Watching gone with the wind as don't fancy any other films .

malteserzz · 08/12/2013 16:16

Mom sorry you can't go home yet you must be really fed up, shall we come and rescue you ?

Just packing my bag and having a wobble not so much about the op but about the results. Nothing I can do about it now though so taking the kids out for tea later

Tiny100 · 08/12/2013 19:13

KitKat Happy Belated Birthday.

Mom Sorry to hear your stuck in hospital - must be so frustrating. Do you get the jab to boost your white cells after chemo? If not, it might be worth asking for.

Malt Good Luck for tomorrow.

Have had another week of feeling crap low after chemo. I managed to not need anti-sickness meds within 3 days, but I am left knocked for 10 days. If I walk a short distance (across a room), I feel like I am going to pass out. Oncologist said that a good result would be for a person to return to work the day after chemo, so feeling like a bit of a failure. Have an MRI scan later this week to seem if the tumour is definitely shrinking. It bloody well have better, can't stand the thought of going through this for nothing.

OP posts:
Marshy · 08/12/2013 20:21

Evening all
Am on phone so apols for typos
I'm lying on my dd's bed at uni while she revises for exams next week. We are going out for the day in London tomorrow so she's working extra hard toake up for missing a day. She has also cooked me dinner and done the washing up - how times change! The heating is going full blast here so gawd help me tonight with the tamoxifen flushes!
Last time I was here was when I came to tell her that I would be having a MX, so in a much happier place today.
Malt, will be thinking about you tomorrow and keeping fingers crossed for your results. Mom, hope you are out soon.
Waving to everyone and sending good wishes xx

trice · 08/12/2013 20:55

Good luck with the op malt. Hope you are early on the list. It is horrible waiting around.

Mom, hope your blood cells start behaving.

. I went to a carol concert tonight and enjoyed a good sing. The soloists were awesome. I would love to have such a lovely voice, but I guess listening to one is the next best thing.

malteserzz · 08/12/2013 21:02

Trice glad that you enjoyed the concert and thank you

Marshy have a lovely time with dd

Tiny you are not a failure at all, don't think that. Everyone reacts to chemo differently nothing we can do about it and I don't think many people would be at work the day after. Feeling like you're going to pass out sounds a worry though have you mentioned that to them ? Hang in there

I will be depressed and gloomy from tomorrow I'm sure so I apologise in advance. Feel free to give me a virtual slap !

Figgyroll · 08/12/2013 22:54

Hello ladies, old and new. It's ages since I posted on the thread and haven't been keeping up at all since my diagnosis in early November of secondaries on my liver.

I'm having weekly Taxol, every Monday, and 18 of them in total. Tomorrow is chemo number 4. It's leaving me washed out for most of the week and of course there's no time for recovery really. S/e include the usual - sore mouth, no taste buds/horrible taste in mouth, upset tum, dizzyness and odd feeling fingers and toes. I'm also having trouble with my veins - they can't get blood out or the canula thingy in without at least 6 or 7 attempts so I'm on the list for a Hickman Line. Anyone got one? I'm dreading tomorrows attempts.

Dh shaved my head today which is a relief but for him it was very traumatic - he didn't think he'd have to do it the once (in 2011) let alone twice. Sad

I can't remember properly, but is someone else having weekly Taxol? How are you getting on with it?

Malt, good luck for node clearance tomorrow. I hope it goes well.

Mom, I was hospitalised 4 or 5 times in 2011 with low bloods and remember how awful it is to be cooped up. Are you in isolation to protect you from germs?

Tiny, you really mustn't feel a failure. There is no way I could go back to work after chemo and I think the same goes for most people. Re the feeling like passing out - get them to check your blood pressure because I had that s/e after the first chemo and, when they took my blood pressure, it was reading something like 67 over 45 which is incredibly low. They've taken me off my tablets and it seems to have gone back to normal now so it's worth mentioning it the next time.

kitkat1967 · 08/12/2013 23:13

Thanks for all the birthday wishes. Had a lovely day but of course am paying for it today.

Good luck for tomorrow malt - hope you get an early slot.

figgy - I've just finished 9 weeks of Paclitaxel. For me the first 4 or 5 weeks were no bother - mild SEs ( no peripheral neuropathy) but the last 3 were really tough. It's the lack of recovery time that is hard. I finished 10 days ago and am still wiped out ( can barely manage the stairs some days). My hands and feet are still very tingly but my taste is improving and my nose has finally stopped bleeding.
Are you doing 18 weeks without a break? My nurse was telling me of a lady here who had 18 weeks of Paclitaxel and although it was very tough she got fantastics results - and has remained all clear ( her BC had spread when diagnosed). So worth persevering.

gigs and ruby- I enjoyed the 2 series of Covert Affairs and have started Breaking Bad which is excellent - just onto Season 2.

holstenlips · 08/12/2013 23:43

Hello to all . I best introduce myself first. Im holstenlips :-) I was on this thread 2011/12 when I had vulval cancer. Im looking forward to meeting you all although wish you werent here iyswim!
Im going to get straight to it now.
I am being sent for MRI as an urgent. Due to headaches, confusion, memory loss and weakness on my left side. Petrified :-( and fed up of feeling so incapable and rubbish.
Moan over.
I have some Mars planets and a cuppa in bed with my dd (6) so im happyish x

holstenlips · 08/12/2013 23:44

Oh I also have ds(20) away at uni. And im a lone parent.

Wren48 · 09/12/2013 08:17

Hi holstenlips, so very sorry you are back here. In bed with your dd with the mars planets and the cuppa sounds like the right place to be (but I've just checked when you posted: of course you're not still there. Probably rushing around now getting dd ready for school.)

Really good luck fir the scan. When is it?

Wren48 · 09/12/2013 08:21

Two of my children now out the door to school, one petrified in advance of his first GCSES controlled assessment. Ds2 (14) is at home. Not ill, but he asked for a day off and I thought that, just once in a while and particularly as things are right now, it was ok.

foofooyeah · 09/12/2013 08:26

holstenlips welcome back, what a grim sentence, hope your fears are unfounded

tiny I was doing fabulously with chemo, but round 5 has been like a sledgehammer, your not a failure, we all react differently and that even cares during the course of chemo.

figgy lady next to me at chemo was having weekly taxol, she was doing very well but said main issue was tiredness.

everyone else big love!!

foofooyeah · 09/12/2013 08:27

When I said 'welcome back' I meant it was grim to be saying welcome back, not that you had a grim sentence.

MomOfTwoGirls2 · 09/12/2013 11:26

Just been told I can expect to be here until the end of the week, thur or Fri probably. My neutrophils seem to be stuck at. 25 ish with 3 days now. I an supposed to have chemo #4 next Monday. They said that may get delayed a week. Nothing to do but sit it out. I'm devastated though.

I'll get Nulasta next cycle to try prevent this happening again. Next cycle is my last AC cycle then it is switch to Taxol.

tiny feeling like you could pass out after very little exertion doesn't sound right. Ring your chemo nurse. Chances are they should be able to do something about it.

kitkat1967 · 09/12/2013 11:43

oh no Mum - what a pain. I think it is better know though, rather then continually thinking you will be 'out tomorrow'.

Are you doing 4 AC then 4 Tax then? Is it you that is doing the 2 weekly cycle (sorry my brain is still chemo mushy!)?

malteserzz · 09/12/2013 12:42

Mom I'm sorry :(

I'm in hospital, been here since 7 but been told that I might have to go home and come back on Wednesday as there were complications getting the wire in for the 1 st lady and now the surgeon might not be able to fit us all in today. How crap !

MomOfTwoGirls2 · 09/12/2013 13:16

Ah Malt, thats a bummer.

Shootingatpigeons · 09/12/2013 13:18

mom I had a lengthy hospital stay as a result of low white blood cells too, I actually did get an infection whilst having practically no white blood cells and was very ill for a week as it took them a while to find the right abs. And lots of delays to treatments (I had 5 AC) and reductions in dose. It really was so common on AC as to be practically normal. It is so boring though. In fact my white blood cell counts have never really recovered and still hover around 2.5, I don't know if that is the same as .24 or 10 times? But I was told 4 is the lower end of normal, but in the end they decided my normal was 2 and pressed ahead with treatments once I got there. It doesn't seem to cause me to get ill more than averagely. But the good news is that the injections used to send my counts up to 16 + and kept me out of hospital, though they went back down again when I stopped the injections.

tiny it really annoys me when doctors try to make out chemo is a breeze and make you feel in some way inadequate or culpable when you suffer side effects. We had a wonky Oncy who would shake his head as he read the lab reports as if you were a naughty schoolgirl who just got a bad school report. Angry and absolutely nothing to do with him poisoning you... We call it swooning on here and both KK and I did a lot of swooning, and really needed someone alongside at all times to catch. In the end I couldn't walk 100 yes or stand for 5 mins without going. It is a normal SE but do mention it to your team.

malt hoping that you do manage to get sorted today, what a pain.

holsten I hope the MRI is reassuring.

Wren48 · 09/12/2013 14:08

mom, I'm really really sorry to hear that you're going to be stuck in hospital for even longer. Absolute pain (just deleted something ruder). I do hope the chemo can go as planned.

And what a complete pain for you, malt. I hope that not hearing more from you means that it's all happening ..

Waiting waiting waiting for a mastectomy / reconstruction date. Just at that dangerously close to Christmas and New Year point when I can't see anything happening for weeks... And delays now mean delays to chemo. Sigh.

kitkat1967 · 09/12/2013 14:29

Malt - what a nightmare - fingers crossed they can still squeeze you in. Ask to be first on Wednesday if you don't get done today.

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