*TAMOXIGANG* 43 *

[MaryAnnSingleton]

New thread !!

Sorry gigs she presumably answered on the basis she thought she was answering both, her defence is basically that the comments were aimed at specific people who criticised her for being positive and that it is put in context in her book. Might look next time I am in Waterstones (did have a look at Katie's goings on in Tesco last night, DH wondered why it took me 30 mins to pop out for celery )

She does go on to accuse parents who blame their toddlers for making them late for school of attention seeking so we are not alone but then knowing the school her DCs went to that was probably specific too (notorious for yummy mummy's)

Afternoon all

Ruby - bugger to still feeling poorly, it must be so frustrating, especially if it has all been caused by the recent procedure - that shouldn't have happened Hope the bowel nurse gets back to you soon with some useful suggestions, - hopefully your Uni tutors are understanding and realise what you are dealing with atm. xx

WeeBarra - welcome, but of course sorry you have to join us. I can't add to the excellent information amber has given you, but I do empathise with how you are feeling at the moment - I remember that 'hit by a brick' feeling - very good description!! The wating fro results and for a treatment plan is very hard - it does get a bit more manageable once you know what's what and you can start organizing things according to what treatment you are having. Meanwhile - I know its a massive cliche, but I found it did help if I kept as busy as possible - less time to sit and think, - and I'm sure with two little ones and a new born you are very busy anyway

Stick around for hand holding and support, and ask any questions you want - nothing is off limits on here, and between us we've had most of the various treatments and treatments combos available, so hopefully can give you info and tips for getting trough it all xx

I see JS has answered your question Shooting - am slightly about it, but will borrow her book from the library when it comes out and see if her defence is valid.
Well done to you and Gigs for posing the questions - I tried to formulate one but it just kept getting all ranty and cross, so I left it to you calmer sensible folk - I'm glad she answered though, often the people they have on the webchats ignore any awkward questions.

Love to all, I've been to yoga this morning, it turns out I can't balance on one leg while bent over and sticking the other leg out behind,and holding my arms back like wings. Damn - that's my career as a Rolls Royce mascot scuppered then.

KK re Rolls Royce mascot career! Strike that one off the list then...

Have just read the penis dunking thread, oh my, I've got tears running down my cheeks...it's hilarious. If anyone needs a giggle have a read.

Evening all, shall be heading off for bath and bed soon.

Welcome to weebarra you have already had great advice, was where you are in August, it will be ok, honest.

Special hug for poor ruby

KK - sorry your preferred career choice no longer seems within your grasp.

I am going back to work on Monday eek! Just 4 hours per day and most of it from home. Bet my bloody hair falls out over the weekend just to embarrass me.

pigeons is tat the River Crane you are talking about? I used to live near that river.

Are you pleased to go back work foofoo?

I do about 3 hours a day (occassionally a full day or 2 at month end) and find that works well for me. I work mainly from home but go into the office occassionally - mainly for lunch though . Sometimes it is a real chore to have to dial into a meeting but generally it has allowed me to stay in touch.

I read the dunking thread it was funny
Had an exciting delivery today, a slanket I had ordered from amazon looking forward to snuggling up on the sofa in it once the kids are in bed, that is a bit sad i know !

To be honest I would rather stay off but as will need more time off in the New Year for surgery thought I should do some work now to keep the £££ rolling in.

But it will be very doable, fingers crossed I am handling chemo well so no real reason not to work. Plus I won't be doing my programme manager role but some analysis and comms stuff so want be too stressful.

Actually looking forward to going in and seeing everyone. My office is a lovely building and yes, lunches will be in order.

SLANKET !!!

Foofoo I am carrying on working through chemo. I'm working mainly from home as I have a long distance commute to work (2 hours each way) in central London, but go into the office one day a week in my good weeks. I've got a temporary assistant at work who is doing the day to day work. I don't expect to get into work whilst I have radiotherapy because the appointment times will probably make it impossible/silly.
I know there are some extraordinary people out there who scarcely cut down their working hours and others who feel so grim that they can't go to work (and of course, all the teachers, health care workers who can't work for infection reasons).
6th chemo over - so have to find out at the end of the month whether I have 8 chemos or whether the 6 is sufficient (for now). 3 doses os steroids to take tonight and tomorrow - I haven't found it has kept me awake, but I don't take steroids before the chemo and that must make a big difference.

Thanks Lily, a 2 hour commute woud be hard for the fittest of people.

TBH I know I can easily do 4 hours, but have really enjoyed the time off an ace o ge some positives out of this situation.

Hope ts jst the 6 lots for you and you are now finished x

Sorry my last post was almost illegible!

I do hope it's you last tax lily then we can both be all done :)

nowt wrong with slankets malt I love mine :)

I miss work on my good days, and it was lovely to go in to school and see everyone on Monday, so I definitely plan on doing that again. However I've found since starting tax that my "good week" has shrunk to a "good few days" (whereas on FEC I had a crap week feeling/being sick but after that I was pretty much ok and not too tired.)

I read the penis dunking thread when I couldn't sleep last night, it's hilarious! I've obviously led a very sheltered life...

Not overly impressed with JS's response

Onc seem happy with my response to treatment, I don't think I get to see him again for quite a while now. Apparently I'm on the list for the MDT for tomorrow, where they will finalise what next. My BCN says she's not sure whether the surgeon will want repeat imaging or not, and that my surgery is likely to be w/c 11/11 assuming I'm all recovered from chemo by then, which I should be. My blood counts today were a bit better than the previous cycle (where I'd had an infection following my fourth cycle) so that was good. The end of chmeo and the surgery plan is good timing with DS's birthday on 9/11 and DD's on 13/12, so hopefully I should be relatively ship shape for both of them and just about fully recovered from surgery in time for Christmas. (I'm guessing they won't start my radiotherapy until the New Year.)

So it's now a case of bunkering down for a crap week starting on Saturday with the knowledge that when I start feeling better it's going to continue and there is no more poisoning just round the corner.

One part of the plan completed. Everyone says the chemo is the worst bit and it's all done! Hurrah, hurrah, hurrah!

at everyone whilst doing the happy dance.

Good news. The scan was clear. I need 6 monthly tests then yearly after a few years for the rest of my life.

It is sinking in slowly. Phew.

oh lordy,can't catch up - non-stop ind of day - am really tired ! Welcome though weebarra and sorry that you have had to join us,but we'll hold your hand- it's all very shocking and confusing at first and the waiting is horrid.
Dentist today and am going to have to cough up £475 for a post crown for poor broken tooth (the alternative was £900 and something for a bridge thingy !! ) Lunch with cousin and aunt before taking them to visit mum then swimming...have done no proper work for ages and feel a bit fretful.
Sorry to ignore everyone else but must catch up on stuff before I fall asleep xxxx

hooray for clear scan notj xxxx

That's brilliant NotJ
MAS I can't believe it's so expensive !

What good news NJ, about time you had some.

Brilliant news notJ

MAS hope you get a chance to relax soon! And hope your mum is doing well.

Waving to everyone else, am going to sleep now x

hoorah nj brilliant news

Dcs performed a rendition of "Always look on the bright side of life" at bedtime. They really cheer me up.

I have my slanket on at this very minute. It's gone cold suddenly.

Hurrah for Notj. Good news.

great news NJ.

Betsy - great timetable you have planned there - have you sorted whether you're having a bi-lateral mx yet and are you having reconstruction? Based on my recent surgery experience I think you'll be good for both those birthdays. They may start your rads (do you def need them if having mx?) in December though as 11/11 to Jan is a long time (I'm only guessing here).

That's expensive teeth MAS

I've been out tonight - which is amazing for me considering I had chemo yesterday - think I'm running on steroid power - ready for the crash tomorrow evening though. My onc was right - this weekly chemo is suiting me much better (fingers crossed it continues like this) but of course it is time consuming so would not be for everyone.

kitkat the BCN is going to raise my desire for bmx at the MDT tomorrow, so not confirmed yet. I'll have to see if they still want a psychologist to confirm I'm not barking, but I've had months to think about this so it's no knee jerk reaction. At the moment I don't plan on recon. I'm definitely getting general "blast the area" rads due to size and spread of tumours, I may also need more targetted stuff too depending on what they find when they get in there re margins and nodes.
Yay for you going out after chemo. I'm still amazed I'm okay tonight and tomorrow (we are too used to throwing up/feeling sick on FEC ).

bloody steroid insomnia grrrr

Morning Betsy, middle of the night again. Am almost tempted to get up and have a ' but its cold so may just stay in my nice warm bed.