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*TAMOXIGANG* 43 *

993 replies

MaryAnnSingleton · 01/10/2013 08:24

New thread !!

OP posts:
BetsyBoop · 10/10/2013 06:00

X-post, morning jchoc :)

foofooyeah · 10/10/2013 06:02

Budge up on the paranoia box, will join you for a Brew but can't go downstairs as friend is asleep on sofa. Shame as it fees like a small feathered dragon has been sleeping in my mouth.

Gigondas · 10/10/2013 06:19

Brew Needed here - woke up with sure arm at. 1.30 ( definitely need to be careful as hurts more if use it and I carried bag with it yesterday) then mini gig woke up. To cut a long story short she didn't go back to sleep except for about half an hour when I climbed into her bed and got stuck

Kitkat - I finished private practice and onto series 6 of greys so we are overlapping.

kitkat1967 · 10/10/2013 06:53

Good lord - loads of us up today. Gig you've had a long morning/night.
Sods law - I went to sleep half an hour before getting up time so hanging now. Nothing on today though (except cake baking - will aim to save some for the trolley) so will be heading back to bed once kids packed off to school.

Good luck to everyone with appointments today.

kitkat1967 · 10/10/2013 07:15

Kids gone - back in bed for a lazy morning - yippee.

Shootingatpigeons · 10/10/2013 08:05

gigs you should have called, it wouldn't have made any difference if I had had a toddler practising for all nighters in Oceana (perhaps mention it has been closed down?) . So did Mr gigs not respond to you yelling "stuck" because he had heard that one before Wink (little gigs has developed big pigeons trick of shouting that she is stuck to get you running to her side at night) I hope you are going back to bed, I certainly am, didn't get off until 5 am which really isn't good enough. Just waiting on the paranoia box for DH to wake up and come on heron patrol.

Heron patrol is all bloody Thames Waters fault. There was a sewage spill into the small river nearby, again, last Thursday night. Heron visited last Friday morning Angry at 8am. I don't begrudge the poor thing the one 3 inch goldfish it has managed to snaffle since Thames Water had killed every fish in it's river. Basically all the pipe work that serves Heathrow is antiquated and keeps breaking and rather than have the loos overflow and expose that they don't invest in making it fit for purpose it all gets diverted into the river. They maybe get fined the odd million but that is cheap to avoid the investment, or the bad publicity, grrrrrr. Thankfully I don't often walk goondog along there because the incidence of pit bulls is high and he ends up with shaky legs walking between my legs after encountering more than one...... Can't walk in the parks at the moment either as the stags are rutting and we both have shaky legs after encounter with more than one, and on the Thames the high tides might get you! dangerous around here.

gigs Betsy kitkat hope we all get some more sleep!

foofoo hope you have a good walk. Is arguing with DP a pastime or is he (another) arse?

Wonder if they will ask JS our questions. smee don't worry the advance questions are for those who can't be there for the live bit. I don't think I could stomach it if I had to sit there watching all the fan chat (not that I don't enjoy her comedy)

Lots of hugs and thinking of Amber going for her mammo and kj for her results, and everyone else with an extra dose of paranoia to deal with today.

malteserzz · 10/10/2013 08:07

Morning all you were all up early !
Got the new bridget jones book on my kindle so will be reading that today, would go back to bed like Kitkat but not sure what time the cleaners are coming
Still bit itchy I have been using new bubble bath Betsy so maybe it's that, I will get some piriton later

BetsyBoop · 10/10/2013 08:17

Bet it's the bubble bath malt :) (my skin is crap so I'm very wary of new things as that's my usual reaction!)

Good luck for Amber's mammo

Nj I will have my bum on the chemo chair, but I'll put my feet up on the paranoia box, thinking of you xx

BetsyBoop · 10/10/2013 08:19

Oh and pigeons, my nephew is one of the PMs on the new sewage works which will hopefully stop that happening. Not sure when it's finished though I know it's years...

smee · 10/10/2013 08:29

Somehow missed Lily's chemo today too and results for NotJ. What with Picture and Amber's mammo it is a busy day. Will be thinking of you all xx

weebarra · 10/10/2013 08:48

Hi all, I'm new here, have seen this thread on active convos and think it's the place I have to be right now Sad.
Went to our local breast clinic yesterday - referred by midwife at breast feeding clinic. GP had diagnosed an abscess which hadn't cleared with two courses of antibiotics.
Turns out it's likely to be breast cancer. Suspicious areas in both breasts and lymph nodes - has nine biopsies done yesterday, back next week for results.
I'm 36, have two DSs of 3 and 6 and a 7 week old DD. I'm a very pragmatic person, but I feel like I've been hit by a brick. So far, results and staging (?) next Thurs, then meeting the team on Tues to plan. It's as though everyone is talking a foreign language and I've got a rubbish phrase book!

reallyreallyworried · 10/10/2013 08:57

Morning all

Good luck to everyone having treatment/results today.

I just opened my post that came while I was away. One of them was a letter from the surgeon I saw when I went in for results after my first surgery. A copy of what they send to the GP!

Is it just me, or have any of you read that letter afterwards and then thought I don't rememeber being told any of that! In that detail??

I was told the breast was clear, but they had found cancer cells in the nodes they removed. I didn't ask any more questions, but would of listened to anything else she had to share!! Then was told that they now do a CT scan and Bone scan just as a precautionary measure!

So now I read this letter, and it says the size and grade of tumour. Grade has gone from 1 to 2! That 4/4 nodes were positive. One of which had isolated tumour cells only! Which I assume means the other 3 contained more than just isolated tumour cells!

With that tiny bit of extra information, I now have a list of questions that I want to ask! I feel lost again! Sad

I know I am probably overreacting. I was already stressing about today's bone scan, this hasn't helped! I know I should of asked more questions at the time! But having not been through this before! I wasn't sure what to ask!

Anyway moan over, for the day! Sorry to start the day moaning.

Xxxxx

reallyreallyworried · 10/10/2013 09:01

Sorry weebarra x posts with you.

Welcome, but sorry you are here. You will get lots of support and advice on here! I know I have.

You are in the hardest place right now! The not knowing. I'm still in the beginning stages of all this.

Sending you a hug xx

PictureThis · 10/10/2013 09:05

Oh Weebarra, I know exactly how you'r feeling. It's all very frightening and your mind is doing overtime, but once you get your results and you know what you're facing it gets easier. I was diagnosed with BC in April, funnily enough when I was bf my 8/12 son. I am now almost at the end of chemo after having had succesful surgery to remove the offending boob and nodes. You're in the right place for hand holding and support, everyone is great on here and have quelled many a panicky moment for me. Sorry you've found yourself here but welcome, and congratulations on your brand new DD.

malteserzz · 10/10/2013 09:07

Weebarra sorry to hear your news but you are very welcome here, ask us anything and we will hold your hand while you wait Smile congratulations on your DD she will keep you busy and make you smile this week I'm sure

Really I think we've all found that things seem much worse written down in black and white it just seems so clinical

Right I have a date with bridget !

PictureThis · 10/10/2013 09:08

Really ring your BCN this morning, talk to her about this letter and ask her to explain it all to you. I always feel better after I have spoken to mine.

Lilymaid · 10/10/2013 10:28

Sitting in chemo bay awaiting results of bloods. Looking forward to my prawn and avocado for lunch! Thinking of all having treatment scans etc today! Welcome Weebarra to the club none of us planned to join.

GoodbyeRubyTuesday · 10/10/2013 11:30

Welcome to weebarra but sorry you've had to join us. Most people have found the waiting for results and information the hardest part. It will probably seem a bit more manageable once you know for certain and you have a treatment plan in place.

really definitely ask BCN to talk you through the letter if you'd find that helpful, and she may be able to answer some of your new questions too.

Sitting on the paranoia box for everyone who needs it, and hope everyone having chemo is getting on well.

kitkat Shock did that amount to an overdose or did they just not mean for you to take them for so many days or something? If it was a safe dose then at least you'll know how much you need to avoid problems if you encounter any this time round!

gigs what a long night! mini has a lot of stamina! Will she nap during the day or just be grumpy because she is so tired?

shooting grrrrrrrr at Thames Water and their sewage dumping. It's all so stupid. The idea that they would rather commit an offence and pay the fine than fix their system is ridiculous. Clearly the penalties are not severe enough Angry but :( about your fish.

I am stuck in bed. I am meant to be at a seminar about my dissertation. I feel so sick that I can barely move, and still having tummy problems. It has been two weeks now. I can only assume they infected me during my procedure Hmm but results of my tests won't be available until Monday. I have sent a rather frustrated email to my bowel nurse, maybe she can hurry the results along or suggest something useful to help. I'm wondering if perhaps university was a bad idea, but then again I couldn't just sit around doing nothing for another year! Some days I'm really ill and can't leave the flat and other days I manage quite well.

Anyway waving to everyone, I hope you're having a good day x

BetsyBoop · 10/10/2013 11:55

welcome weebarra but sorry you are here. This waiting bit is honestly the worst bit, we will hold your hand and feed you cakes from the trolley :)

Ruby :( - I hope you get some answers soon.

Fantastic news amber :) :) :) :) :)

really - ditto re contacting your BCN to talk you through it

wow gigs - mini has no "off" switch does she? Shock Grin I hope you manage a catch up nanna nap later.

Off for my last (have I mentioned it's my LAST?!) chemo after lunch. :)

PictureThis · 10/10/2013 12:03

For Amber BrewCakeGrin and a massive (())

malteserzz · 10/10/2013 12:20

Lily and Betsy hope the chemo goes smoothly :)

Ruby I'm sorry you're still feeling poorly I really hope you get some answers and they can sort it out for you soon x

I've had a good morning, my friend is having her 50th do on Saturday night and I wasn't going to go but another friend is driving and not staying late so I'm going to go with her. So had to go and buy a dress this morning because obviously I've got nothing to wear Grin

amberlight · 10/10/2013 12:25

Yay for today, though being told that I get the results straight away was really scary Shock. Mrs Radiology Doctor says they are fine, so that is another six months out of the way. Next one in April for oncology checkup and feel.

Betsy, last chemo? Fab! Be prepared to be extra tired and stroppy through the next couple of weeks. I was.

Lily, good luck in there with the bloods and prawns...

Really, good luck with scan. Grade 2 is still a fairly slow and clueless sort of cancer, so wouldn't worry. It tends to potter about in nodes, but responds well to most treatment. Grade 1 is sometimes harder to treat, because it's SO slow that it ignores chemicals designed to kill it. Just doesn't grow fast enough or get thirsty enough to be bothered to drink much poison from the chemo. Odd but true. So Grade 2 ones are thirstier and drink up more of the poison and die, see. It's all technical stuff for the teams, so they know which potions or treatments to give.

Weebarra, sorry you are joining us but big welcome from me. Bracing news, isn't it, but this is one place where you are amongst a load of mums who have been there/are going through it right now with you.

If this helps, 9 out of 10 cancers are treatable. Most people are more likely to be killed by a falling piano than from their breast cancer these days, because the treatments have gotten so good. But treatment isn't fun, and neither is the worry.

Phrase book for cancer: 'Stage' means how big the lump is and where it is. 1 is little and in the boob. 2 is bigger but that's not really a problem. 3 is boob and in the lymph nodes etc and needs a bit more of a rolled-up-sleeves approach from the teams, but is still a good outcome in the end for nearly everyone. 4 is escaped and mooching about elsewhere in the body, looking for trouble, and needs plenty of thought and treatments to keep it under control long term. That's not a very scientific explanation but it's near enough.

'Grade' means how fast the cancer cells drink stuff and grow. Grade 1 is slow. Grade 2 is medium. Grade 3 is fast. BUT see above ....the higher grade ones can be easier to whack with potions. So that's really technical info for the team and not relevant to you.

Even if you have a rudely behaved sort that has sneaked out into lymph nodes and elsewhere, there are still good treatments that zap it. Many of the lovely mums and members here are living long term with cancer and still enjoying life, having holidays, seeing their mates and all whilst taking long term chemo pills etc. It's often becoming a bit like having diabetes - really annoying but not necessarily a killer any more. Not everyone is lucky, of course. But be of reasonably good cheer at the moment. Have a Brew.

GoodbyeRubyTuesday · 10/10/2013 12:28

Just looked in on the JS webchat - she's answered shooting but so far ignored gigs...

GrinWineBrewCakeFlowers for amber from me too, what a relief, although still such a stressful experience I'm sure.

malt brilliant that you can go to the party, I hope you find something lovely to wear :)

betsy wooooohoooooo for last chemo! I hope all goes smoothly :)

Lunchtime for me. Luckily made lots of dinner last night so can just go grab a bowl of cheesy pasta and sneak back into bed!

kitkat1967 · 10/10/2013 12:50

Ruby - sorry you had a bad night. It must be so frustrating for you when it impacts your Uni course when a few months ago you had thought you would be able to manage well by now. Hopefully you will get some answers soon and I do hope your Tutor is understanding.

Re my pills - I was supposed to take 1/3 of the total number of pills (so I just took them for 3 times as long) but also was supposed to take one lot then start the other lot a couple of days later but I started everything from day 1. I hasten to add that I did as instructed by the nurse and the info on the box. Anyway am on the correct does now and feeling fine.

Shootingatpigeons · 10/10/2013 12:56

weebarra as usual Amber has covered it all but just to say that when I went through all this 12 years ago another mum in the same school was diagnosed at the same time as me and she too was diagnosed with a lump whilst Breastfeeding her two month old, she was 33. It is common, half of those diagnosed under 40 or 45 (sorry terrible memory for numbers), something to do with your body being focused on cell multiplication. Through her we also met another mum who was Breastfeeding her baby. They are both still here and their DCs are unbelievably now 12 years old. Good thing is that you have been referred, often GPs are just not aware it can happen. gigs was diagnosed with another Cancer when little gigs was a day old so I am sure she will be along soon.

If they are talking a foreign language, you should have been allocated a breast Cancer Nurse who you can talk to and who will always be able to explain everything. Do ring her, it is her job. But we will be happy to explain as well. It is all bewildering and you are in shock at first, they are so used to women coming through their doors I think they sometimes forget that it is so life shattering especially at a time that is supposed to be so happy and for you and your baby

really I and all my friends were grade 3 for everything, then they did a grade for speed of growing and for how differentiated they were from normal. We are all still here and well. Seeing it in black and white is always difficult even now for me so many years after. Good news that only a few stray cells in fourth nodes in fourth cell.

Ruby Angry that you are still going through this. I agree keep chasing everyone. Also don't be afraid to chase up what you have missed at uni. I am sure the tutor will be only too happy to give you a private session on dissertations. And we could also start a diss gang to keep you supported as you start on it. Big pigeons just had first meeting with her supervisor and I can mine the brains of my supervisors who I really should be contacting and getting going again on mine Grin I am procrastinating until shit weather and DH drive me back to it!

Latter soon, DH has a new hobby, he sets off to do something then rings sometime between 4 and 7 to complain that there are other cars on the road, lots of them, Shock and they are in his way! often on the road that used to detain me two nights a week for an hour at 6pm between the swimming pool and my own, delaying for reasons unfathomable to him, his dinner!

Yeah amber both for results and not an overwhelming experience.