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Original poster

MaryAnnSingleton · 09/10/2013 08:17

ledkr as far as I now she is doing fine without ovaries- she is now living in France and having a fabulous time,so any menopause hasn't spoiled that ! I do wonder when it'll hit me -no sign of anything stopping or changing despite capecitabine. Maybe i will never get it ! arf !

OP posts:

Gigondas · 09/10/2013 08:21

I can see me caving in and buying that malt. Any thoughts on Sinitta and Simon cowell?

Seeing as we have a lot of stress/ tests and worry but also inspired by annoyance at JS, my thought of the day is which celebrities (Y) annoys you .

I have a lot but will start with gregg Wallace, James Martin and Angela rippon.

reallyreallyworried · 09/10/2013 08:25

Morning all

picture wishing all the best for your x-ray today. Hope they get it sorted.

malt good to see you have your online smile back! Hope that means your feeling better.

Last day at my parents today, tonight I travel back. Ready for a scan tomorrow I'm dreading it! Someone please tell me that the bone scan isn't as bad as it sounds! It says it takes about an hour!! I'm thinking an hour lying still and 'thinking' is currently my idea of hell! I've tried so hard to NOT think about things, and now I need to try and not think about any of it, while I'm lying there!!

I then see my surgeon on Monday. Do any of you know whether at this point it really matters how many nodes they removed contained Cancer? Currently 4 were removed and they all contained cancer cells. So now they have done a clearance, possibly none of the others will contain cells. But IF they do! Does more node involvement mean it's more likely to of spread? Will they continue to treat the same way, whatever they found?

Sorry if that doesn't make sense! Or sounds super paranoid! Just want to be prepared for what I might be told on Monday. Well as prepared as I can be!

Hope everyone has a good day. Xxxx

HerNextDoorAt21 · 09/10/2013 09:32

Morning all, I will just wave to everyone as this thread has moved on so much since I last posted only two days ago !

special mentions to notj, I hope that your break up is as painless as possible, ruby I hope everything turns out well for you, so sorry you boaked in the park :(

gigs when you say celebrities (Y) ... what does the (Y) mean ? It looks like a bum .... did you mean which celebrities' bums annoy you or just celebrities in general ? Greg Wallace ..... it annoys me the way he almost always agrees with John Torrode on Masterchef and also the way he leaves the pudding spoon in his mouth for a prolonged amount of time when tasting puddings.

The biggest annoying person in my life at the moment is Ruby off GBBO !!!!!!!! agggggggggggggghhhhhhh she is SO annoying !

glad you liked the feast I prepared for topsy, I really enjoy being creative in the kitchen and topsy just loves to eat my food .... dont think I have made anything yet that she has turned her nose up at - even if she doesnt join us to eat, she often has "meals on wheels foot" and gets some delivered to her next door ! Only the other week I took her homemade profiteroles and her DD was waiting at the door with a spoon when I knocked lol

Just waiting for Mrs Surgeon to ring to see if I NEED to have this next surgery ... I am going to be bold and at the danger of tempting fate, say that the wee hole on my boobage has closed .... she may still need to do it anyway to correct any underlying problem but thought I would speak to her in case she can give my surgery slot to someone else if I don't need it.

kitkat1967 · 09/10/2013 09:37

Gigs - can I put in Carol Vorderman, Christine Bleakley and Davina McCall. I do not watch anything presented by them on principle.

handbagsatdawn · 09/10/2013 09:45

Morning.

Am very excited that some of you appear to live fairly close to me. foofoo what is LGFB and why was it in Guildford?! I know Virginia Water quite well, used to walk around there with my folks when I was little looking at all the lovely azaleas. Is there still a totem pole there? Can I still see JD there?

Pigeons thanks for perspective on lymph nodes - just fed up about further surgery and the fact it'll stop me driving for a few days again and hamper my exercising efforts. DH works in Richmond which must be near you - he keeps telling me that the shops there are great for wandering around so now that it have all this time on my hands I should venture up.

Picture hope it goes really well for you today.

Glad you're feeling better about your decision about surgery today Ledkr - sometimes it helps to sleep on things.

Really I know what you mean about being terrified of bone scan - dreading what it might unearth. Feeling a bit fingers in ears and going lalala about it. Be brave and you can tell me all about it xxx

Gig can you please add Catherine Jenkins to your list of annoying celebs? She makes me howl whenever I see her face / listen to her wailing singing.

Tired today, didn't sleep, brain doing cartwheels.....

handbagsatdawn · 09/10/2013 09:48

Mmmmm HND homemade profiteroles.....mmmmmm

smee · 09/10/2013 09:50

Bone scan's really not too bad, worried. Didn't take an hour with me - have had two of them, and I think about 40 mins. Think of a few songs you can hum in your head maybe, or a poem to try and remember.

With nodes, I think of it as a ladder so cancer from the breast will first hit the bottom rung of nodes closest to the breast. Their job is to hold/ stop it. The cancer tries to get past them and up the ladder of nodes into the rest of the body. So even if in the bottom few, doesn't mean it's got past them. I had cancer in 4 / 22 nodes. I think others have had more. it's clearly not ideal, but definitely not the end. Three years on, am honestly good, so take heart from that. xx

Picture, St Thomas's has a great rep. I'm in London too, so maybe could venture west for coffee too. Gigs, does seem mad we've never met! I blame you for living in West London.

How's the stomach cramps, Trice? Hope they've calmed down by now.

Ruby, how are you today?? Hope not still feeling sick. x

ledkr, it's such a huge deal finding out and must have been your worst fear. I always think knowledge is power though and means you're a step ahead now, so can protect your DD's and yourself from sodding cancer. Whimpering though is most definitely acceptable.

Fingers crossed for no more op, HND.

Sorry not to post to all, but got deadlines to meet. Am I the only person who has never seen GBBO??

BetsyBoop · 09/10/2013 09:54

Really I had a bone scan in June, it's honestly ok. They inject the radioactive stuff and then you have to wait 2hrs - drinking as much water as possible as this gets clearer results. Then they make you as comfy as possible on the scanner table - they have loads of pillows so make sure you are comfy. The actual scan bit took about half an hour if I remember correctly and they do want you to lie as still as possible. The scanner thing moves down (or was it up?) your body taking the "pictures". I almost noded off a couple of times!

Getting all the tests to check for spread is very scary absolutely terrifying, I had to keep telling myself that the scans wouldn't chance/cause anything, they could only confirm what had already happened (or not). HUGE relief when they were all clear (I think less than 5% have mets at first diagnosis, so chances are you will be fine too:) )

Yes the more "stuff" in your nodes the more it increases the chance of mets, BUT that's why they do the chemo and rads to reduce that chance as much as they can and kill off any "bits" that are are already on the move. Some folks have loads of nodes affected and never get a recurrence, some have clear nodes and get mets within two years, and I don't think they really understand why that is yet. (I still don't know about my nodes as I've not had surgery yet, I had a very dodgy looking one on u/s but everyone was surprised when FNA biopsy was clear - I'm not sure they believe it as FNA isn't 100% accurate!) It's taken me a while to get my head round not worrying about the stats, no one knows what side of the "line" we are going to fall, even if the chance of recurrence is 1% it can still be sh1t if you are that 1 in a 100...

right off to catch upwith the reswt of the thread

malteserzz · 09/10/2013 09:54

I was going to say Katherine Jenkins too, also Eamon Holmes

Sinitta was on this morning yesterday Philip told her she was making things worse by constantly tweeting about it I agree with him

Gigondas · 09/10/2013 09:55

Ah the y is random phone addition. Yes to Katherine Jenkins- all my tumours have had names of annoying people, fittingly Katherine Jenkins was name of my pain In the neck tumour.

Smee should definitely meet up-it does seem daft we haven't.

Hnd I hope that fact hole healed means no surgery but I can see how you want it healed properly . Ruby is annoying but I loathe beca more.

amberlight · 09/10/2013 10:02

Reading through...and keeping fingers crossed for everyone as I do so.
Mammogram tomorrow at 9.40ish. Results next week on 15th in the eve.
on the trolley.

reallyreallyworried · 09/10/2013 10:05

Thanks smee and Betsy knew I could rely on someone to share their experiences. I'm assuming that maybe they say an hour, because they include the set up time etc in that time? 30-40 mins sounds far more doable! Thankyou

I think I seriously need to get my appointment on Monday over and done with. Hopefully then waiting and worrying about results is over for a while. I can then feel that I am moving forward in beating this.

Xxxxxx

BetsyBoop · 09/10/2013 10:07

kitkat right there with you on Davina McCall and Carole Vorderman they do my head in! Hope your chemo goes well today.

picture bugger re portacath :(

ruby hope you are feeling a bit better today. I hope the CT finds answers and the fix is easy.

HND fingers crossed no more surgery, you've definitely had your fair share already! Are you thinking of expanding your meals on wheels empire? she asks hopefully

gigs definitely post that qu to JS. She'd be better having a go at pinktober and bra free days rather than cancer badges...

trice hope the extra SEs calm down soon on your increased dose.

ledkr sorry you had crap news, but I'm with smee on the "knowledge is power" thing

to everyone I've missed.

BetsyBoop · 09/10/2013 10:08

oh yes malt Eamon Holmes, add him to my list, grrr :)

BetsyBoop · 09/10/2013 10:11

oh and celeb-wannabes - Katie Horseface Hopkins. She does. my. head. in. I shall name my boob lump in her honour

malteserzz · 09/10/2013 10:13

Oh yes Katie Hopkins and Samantha brick

BetsyBoop · 09/10/2013 10:17

yes yes yes to Samantha you make me want to smash your face with a Brick

malteserzz · 09/10/2013 10:18

It's only because you are so jealous of her beauty though

BetsyBoop · 09/10/2013 10:23

you are right, I am sooooo jealous NOT

kitkat1967 · 09/10/2013 10:42

no celebs that I disagree with yet - I suspect that we'll have a comprehensive list soon.

chemo at about midday today so trying to get some work done first but not doing very well as am tried due to not sleeping well for the last week (not up for hours in the night but have been having very disturbed nights - waking lots of times etc.). May be a SE of the new chemo - will wait and see if it continues.

Malt - would sound brighter today - I hope that means you are feeling better this week.

AngryFeet · 09/10/2013 10:48

Morning ladies. The gp noticed the area was inflammed and got a senior gp to confirm. They have put me on antibiotics and referred me to breast clinic again.

smee · 09/10/2013 11:39

Kitkat, hope chemo session goes okay later. Another one done though. xx

Angry, that's annoying but good that you've got a referral. Hopefully the antibiotics will kick it into touch as it's an infection, but stick around here if you'd like to. We totally get how scary it all is.

Lilymaid · 09/10/2013 11:42

Sixth (hopefully last, but who knows) chemo tomorrow. Only thing I might miss is the prawn and avocado salad I get at the hospital for lunch when I have chemo. If Oncologist tells me I must have two more chemos, I think I shall arrange to hibernate through November as I am feeling really tired now.
Picture sorry to hear of further problems with the portacath.

malteserzz · 09/10/2013 11:52

Kitkat your chemo cans round quickly again hope it goes ok, I do feel a bit better thanks less tired, metal mouth and mouth ulcer a lot better so can eat properly

Angry good that you've been referred we will keep you company while you wait

Lily fingers crossed for you that you won't need any more chemo

Morning Smee