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Ledkr · 08/10/2013 18:19

I visit pil in essex nr Guildford, if rather come out to play with you though!
smee thanks for that! My other friend was neg too even though her and two sisters have had bc!
Feeling a bit more balanced now. I've just had a thyroid op so the thought of more surgery is a bit shit!
I cuddled my little girls tiny body just now and feel racked with guilt that I may have passed it on.
I think today has triggered my anger at what life has thrown at me. It may be a good thing as I've spent twenty years with my hands over my ears saying la la la

reallyreallyworried · 08/10/2013 18:28

Quite possibly handbag does that mean we get to compare notes? And give each other a hug/slap when needed

KurriKurri · 08/10/2013 18:29

No pirates here - only seals!

ledkr - I had a hysterectomy at 38 and had one ovary removed, full menopause came when I started tamox. - I have put on weight (but I have thyroid problems and think it is much more likely caused by that than menopause, because I had very sudden weight gain)
wrinkles - I may have a few
chin hair - again the odd unwelcome chin guest has been spotted, but nothing my tweezermans can't cope with - we're not talking the full Brian Blessed!

Reading back that doesn't sound so good, but I've got lots of friends who've gone through menopause and haven't put on weight or got wrinkly and decrepit.

really and handbags - I know that other people on here have found it really helps when there are two or more of you at more or less the same stage of treatment - you can compare notes and swap tips!
But much love to you both - waiting for results is crappy and horrid xx

My teeth are fine really Smee - I don't have any pain or anything with the bone whatever-it-is, he is going to 'keep an eye on it' - no idea what he plans to do about it - maybe I should start stocking up with steradent

KurriKurri · 08/10/2013 18:34

Oh meant to ask - has one of you lovely ladies sent me a FB friend request - (initials NC) ? It wasn't a name I recognised, but I am rubbish at remembering names.

handbagsatdawn · 08/10/2013 18:37

Really I like the idea of a hug/slap

ledkr it's Guildford Surrey not Essex so miles from your PIL

kk I already get the tweezers to my chin - I will evidently get the full Brian Blessed then . Maybe I could be bald Santa this Christmas.

malteserzz · 08/10/2013 18:49

Handbags totally understand how you feel too, it's gutting when you find it's in the nodes mine was too though I'm having chemo first then full clearance

Ledkr sorry to hear your news too but I guess it is better to know so you can be proactive about it

I've been trying not to post as I was just being negative been a crap week with lots of tears however today I've managed to drag myself out to watch ds play football and I do feel better for it

amberlight · 08/10/2013 19:05

I'm back. Hugs all round, I think. Or . Whichever does the job.

kitkat1967 · 08/10/2013 19:08

evening all - looks like it has been busy on here today.

Sorry you need more surgery handbags - I actually had my SNB done seperately to my mx so was planned as 2 lots of surgery - although of course that's easier to manage as plan is agreed. I think Malt is having to go back for nodes but is having hers done after the end of chemo.

I had a nice time at LGFB - met lovely ladies, all at different stages of treatment, - and as usual realised there are many worse off then me. Mainly BC but 2 bowel cancer ladies and one lovely lady (now 29) who had cervical cancer 2 years ago then spread to vaginal cancer then spread further so had 'everything removed' (her words) and has 2 stomas - what a lot to go through so young.
Got big goodie bag - some of which I'll palm off on DD but lots of nice stuff as well. Mine you the ladies running the session were really keen to slap it all on - I managed to tone mine down a bit though

BP was really high when I had bloods taken (and at last week's chemo) so had to go to GPs - got some tablets (different to the ones I had before).

kitkat1967 · 08/10/2013 19:09

welcome back Amber - your holiday looked fantastic - I enjoyed see the photos.

malteserzz · 08/10/2013 19:49

Kitkat I'm glad you enjoyed LGFB wish there were more things like that around

AngryFeet · 08/10/2013 19:56

Hi ladies,

Thought I would post this here too to get some feedback.

www.mumsnet.com/Talk/general_health/1875914-Ok-so-I-am-crapping-myself-a-bit-here-Inflammatory-Breast-Cancer

Thanks xx

Gigondas · 08/10/2013 20:57

Angryfeet I think smee puts it well on that thread -chances are it is something else but you do need it checked out. Is there a walk in place if gp tricky? And if it helps. We are all proof that there is life with cancer and after.

Right question for JS (who apparently did say on twitter she was misquoted).

In a recent Times interview you commented on cancer survivors as attention seeking-"You suddenly get so much attention, and if you're not used to that, I bet it can sway you a little bit."

These comments caused a lot of controversy ( including on here).
I don't think anyone would think attention would make up for having cancer and particularly coping with the fear of soars or recurrence.

You have since tweeted that this was a twisted representation of what you said. Have you any comment on what you meant to say?

handbagsatdawn · 08/10/2013 21:31

Go for it Gig.

Original poster

MaryAnnSingleton · 08/10/2013 21:44

well said gig !
angryfeet it's very likely to be a skin thing rather than inflammatory bc,but certainly go to see GP or walk in clinic to be checked out.
Waving to ledkr Are you on fb ? a friend on Tamoxifen Ten group on fb had ovaries removed in her late forties,she could advise.
handbags I'm nearish you in Hampshire

OP posts:

foofooyeah · 08/10/2013 21:48

handbags I was in guildford last week for my LGFB.

Just to clarify about Johhny, he was filming 'into the woods' at Virginia water lake, my preferred walking place. I only got chatted up my fat props man, but at my advanced aged I'm not fussy!

This thread today has had me with tears in my eyes and roaring with laughter, ledkr 'I don't know why I asked you twice' made me snort.

Talking of snorting was in Costa with a friend earlier talking about her MX next week, she is having that inflating thing, sorry me terminology is appalling. Anyway she was saying it was made if pigs skin: cue much squealing and snorting from us both. Got a few surprised looks.

foofooyeah · 08/10/2013 21:49

Sorry to clarify the tears were for all of you having a rough time x

KurriKurri · 08/10/2013 21:57

Gig - that's very good - are you going to post on the webchat? - it's all very sycophantic atm!

Angryfeet - I would go to the GP asap - not because I think you should be unduly worried - there are many unsinister things it could be I think - but because you are worried and the sooner you find out what it is the better - hopefully the GP will be able to reassure you, and even if s/he does refer you to the breast clinic, as you know from your previous experience that doesn't always mean it's something serious. Good luck x

Ledkr · 08/10/2013 22:03

mas I'm not on FB no, maybe she could give you a summary. I'd like to know how horrible and life changing the menopause was?
My lovely son came to keep me company as dh is working.
He has kidney failure so kind if gets the "living under threat if illness" thing.

trice · 08/10/2013 23:06

Well Paul Foot was a very odd man. Some funny points but mainly the sort of humour that ds comes out with. Sort of ranting and repeating the same phrase over and over.. Still - nice to be out.

Sorry to hear about everyone's troubles today.

I went through menopause at 34 when I was first diagnosed. Hot flushes are horrid and my hair went a bit dull but not too bad. I was just sad that we couldn't have dc3 that we planned.

They decided to up my dose of capecitabene today. So I have fearsome heartburn and stomach cramps. I need a hot water bottle, but we only have wheat bags and the microwave is bust.

Shootingatpigeons · 09/10/2013 00:13

gigs Sounds good, was thinking on same lines. Why not post it with a few of our names, you can use mine. It might persuade mumsnet to post something not entirely sycophantic

ledkr Chemo started my menopause around the second cycle. I was 43. I had no symptoms at all at first, but now I do get hot flushes and sweats at night which are a pain, and difficulty sleeping but that really didn't start until I finished Tamoxifen. I have also been diagnosed with Osteopenia in my hips (early stages of osteoporosis). I did take Calcium supplements throughout. I am now 56 and two of my friends have also been diagnosed with Osteopenia and they didn't have early menopause /chemo, and lots of friends have the hotflushes and sleeping problems so it was probably on it's way and didn't hit that early. A few friends started menopause mid 40s anyway.

I do have one cat's whisker but we have been playing hide and seek since my 30s. I pull it out and keep an eye out and as soon as I take my eye off the follicle it sprouts an inch in a day

handbags agree that news of involved nodes can feel devastating. I had all sorts of preconceptions that once it was in your nodes it was on the march and In fact your lymph nodes are rubbish bins and it is common, lots of us here are in the node club. I had one but several of my friends had several, we are all still here.

I'm near a few popular locations, they filmed the last Pirate film at Hampton Court, and the gypsy encampment in Sherlock was in Richmond Park.

Nice weather ends tomorrow

PictureThis · 09/10/2013 04:45

I can't sleep. My brain doesn't want to switch off. I'm having a contrast dye xray today to see what is going on with this portacath as it's definitely not working, they can't get any blood out of it. I suppose it's making me a bit anxious but one thing is for sure....back to theatre for me :-(
I saw my onc on monday. He's going to make the referral to St Thomas' for my radiotherapy so I will be in London for the whole of January. He also wants to put me on Tamoxifen for 10 years as opposed to Arimidex after my oophrectomy as he says the 10 year data is there and the results are good with tamoxifen, they only have 5 year data with the other drug. I'm happy to go with that. The boob is healing, just a few small scabby cracked areas but onc is happy for me to have chemo on thursday as he seems to think the chance of having a localised reaction is minimal now. Needless to say it won't be going in via the now redundant portacath, we're back to having it peripherally until the port is fixed. Even then, I only want herceptin through it, not the chemo as I don't think my poor boob could take another extravasation, I know I couldn't again.

NotJ I am so sorry you're having such a hard time of things, have a big hug ((())).

Topsy your birthday dinner looked immense but I was very disappointed there didn't appear to be any tequila .
Amber glad you're home safe and sound, waves to KK Gigs Pigeons Malt Smee Really and Kitkat and anyone else I haven't mentioned.

Gigondas · 09/10/2013 07:24

Picture sorry you are to early. Am not surprised you are anxious after all the hassle of putting the portacath in. I will have fingers crossed it goes smoothly today.

If you are in London having rads maybe we can meet up. St Thomas is very good - my mum had her treatment there. And if you feel like being spoiled I know lots of nice nearby cafes .

PictureThis · 09/10/2013 07:33

That would be great, what a lovely idea.

Ledkr · 09/10/2013 07:37

Thanks to everyone who's replied to my whimpers.
Reading what some of you are going through makes me realise that this is nothing compared to having cancer and treatment which is hopefully the aim of all this.
Feel more balanced today, I think I was in shock as I really thought it would be negative and that I'd had my crap quota already.

malteserzz · 09/10/2013 07:57

Morning all
Picture hope you get to find out what's going on today, great idea to meet up with gigs while you're in London
Ledkr glad you're feeling a bit better about things this morning
NotJ how are things, hope you are ok x
Amber good luck with all of the holiday washing !
Gigs good retort to JS. Have seen an advert for ok magazine where KP tells all about her baby including how she knows for definite that he is her husbands lol
Waving to everyone else, good morning