Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

*TAMOXIGANG* 43 *

993 replies

MaryAnnSingleton · 01/10/2013 08:24

New thread !!

OP posts:
reallyreallyworried · 08/10/2013 10:31

Trying to keep my moans to myself for a bit, because after reading some of the posts on here I can see I really need to give myself a good talking too/slap!!

But just wanted to say, NotJ I am very sorry to hear your news. I wish you and your children lots of love. Hope your family look after you and spoil you for a bit.

handbags and ruby good luck with your results today. Fingers firmly crossed for both of you.

kk hope things improve for you soon.

malt and foofoo hope you are both feeling better. I'm still at the pity party, but am working on it Hmm

Sending lots of love to everyone else. Xxxxx

graciesmall09 · 08/10/2013 11:16

Trying to catch up but failing miserably but sending hugs to ruby notj and kk (and anyone else who needs it). Sorry you are all having a rough time. Hope your poor mum is ok mas

Sorry being of no support, still feeling unwell and exhausted. I can't get shot of this back pain and now my bp is steadily getting worse which onc says is nothing to do with Herceptin as it would make it go down not up. I've read the bumpf which comes with it and it says definitely not to be given to someone with uncontrolled bp and yet he wants to go ahead Confused.

That's my moan over. Hope birthday girls had a super time and all the chemos are going as well as they can. Good luck for CT ruby

Shootingatpigeons · 08/10/2013 11:54

nj I am so sorry, you really are getting the whole list of top life crises all at once. I hope you can recoup and recharge your batteries in a safe and peaceful place.

gigs perhaps we should meet up on Thursday for double challenge to JS. To undermine my usual bolshieness I wonder if that was a throwaway line between "mejia" chums that she may have regretted. I have a friend who is in advertising and when with colleagues she starts posing and spouting another language, it's like when kids try to big themselves up to be in a gang Grin I think as mas has also experienced she can come over as having an illusion of superiority but often the people who do that are insecure. I am sure mas has also experienced that it is far from uncommon in Richmond Hmm She is on anti depressants for some sort of menopause rage which I can't say is a S/E I have encountered, PMT rage, yes (I've handed it down to little pigeons, karma) so maybe it was a delayed reaction, everything is clearly not as hunky dory as she claims. Anyway could be a line she regrets having thought about it......and if she still thinks we are all badge wearing attention seekers then, well we are in the gang none of us wanted to join....

Also clearly I bored you into good nights sleep...

Foofoo johnny depp where? He has filmed around here a few times so I always tailor my dog walks accordingly but so far only managed to spot the odd pirate /British soldier/mad monk, pretend horse ( it was only the top half of a horse, the rest was on wheels, presumably for someone so valuable they couldn't be insured to ride a real horse, not even a dope on a rope Hmm ) you know he turned up at a primary school in Greenwich when some child wrote to him about not eating sweets and cleaning teeth (creep) worth a try. Might be a bit of a shock when it is grown woman especially if you wear that nice hat you had on in Fbook pics Grin they film a lot around here but Robert Downey Jnr, Jude Law? Also fail, though I stalked walked past the gypsy encampment for Sherlock. Of course had any of them spotted me they would have dropped everything, raced to my side and ravished me, fact.

really This is not a contest, it is perfectly normal to feel sorry for yourself and sad, as we have said the early days are the worst. The thing about this thread is that it is a chance to offload, to people who understand, hopefully it will help in the process of accepting what has happened and move on. It can be hard to believe that will ever happen but trust us it will. Of course having moved on there is still all of life's other shit that can be waiting in the wings Sad no guarantees of happy ever after (unless you manage to bring yourself to the attention of JohnnyWink)

smee saw that Michael J Fox interview, interesting. Also the fact that when he took drugs to mask his symptoms for filming he was accused of covering up the reality but when he appeared on television and the symptoms were only too apparent he was criticised for, well wearing it like a badge....

mas smee* and anyone else in reach of London , we will definitely let you know of next jaunt.

Shootingatpigeons · 08/10/2013 12:00

And I am of course thinking of ruby and handbags and anyone else with scans and appointments coming up. I really can't retain all the posts (I am dyslexic) but as I read them my thoughts are with everyone.

gracie sorry you are having a tough time [hugs]

GoodbyeRubyTuesday · 08/10/2013 14:56

CT went alright, I will hopefully have results when I see the surgeon next week. I think this will be a yearly thing for the foreseeable future.

Went out to a cafe and had a cooked breakfast for lunch but then threw up in the park on the way home SadBlushShock I am mortified.

notJ I am so sorry. What a horrible shock! I hope you and the children will be happier in time, and glad you've got somewhere to go. Is the house local?

gracie I'm sorry you're still feeling so rough, and doesn't sound like onc is being particularly helpful! I hope they get to the bottom of it all soon.

Betsy Grin

shooting I did wonder if her comments had perhaps been taken out of context or were just throwaway comments, but would hope if that were the case she would've made an attempt to set the record straight

kitkat hope you enjoy LGFB!

Waving to everyone else x

Gigondas · 08/10/2013 15:23

Good scan fine but not so good about throwing up. At least you have an excuse, my only public vomiting include have been drink related.

KurriKurri · 08/10/2013 15:25

oh NJ - I'm so sorry, what an utterly shitty thing to happen Sad And a hideous shock for you. I'm glad you have somewhere safe to stay while things are sorted out, lots of love to you and the children xx

Things are difficult here too - I have no idea how it will all pan out in the end. It is one steps forward to steps back and several to the side here Shooting! - and I'm finding it all very stressful Sad

really - please do post your worries - that is that the thread is for, to support people through their difficult times (and talk about cake obv.) xx

Ruby - glad the CT went OK Smile

Sending love to all - trying to catch up. I was at the dentist this morning and he stuck his pointy sharp thing into my teeth and made them hurt. Apparently the bone round my teeth is receding (or something like that) and he is 'concerned but not worried' Confused - oh well I'll have to hope I don't wake up one morning having swallowed all my wobbly teeth!

waving to all.

Gigondas · 08/10/2013 15:26

Trying to think of good way to ask JS a question but the tone of the q and a is the most bum licking I have ever seen.

One question is. "Have you ever been hurt by comedy trip"

We could ask what her views on pinktober are. I loved blog mas linked to on FB.

Ledkr · 08/10/2013 16:12

Hi ladies.
I've popped in and out of here as my original dx was 20 yrs ago. I was 27 so opted for double mastectomy as likely it would come back due to early onset.
So today I got the results of my genetics and I have brca1
I'm really shocked and keep crying even though I've already had cancer and the op!!
I've now got to make a decision about my ovaries, why is that so daunting when I know I'm 46 and near to menopause anyway. My girls are little but will have to face this one day too.
I cried a lot about the bloody Injustice of it all, I know I'm lucky to have survived but my life has always had this shadow hanging over it and I'm finally angry.
Sorry for self indulgent post but I can talk to anyone else as I don't want to worry anyone.
I know I want my ovaries removed but its still a big decision.

handbagsatdawn · 08/10/2013 16:23

Sorry going to be a self absorbed post as trying and failing to keep up here. Apart from Ruby argh to vomiting.....hope you're feeling better now and you don't have a repeat episode.

Saw my consultant. Cancer has all been removed from boob, but one of the three lymph node removed had some cancer cells. Consultant is optimistic that all cancer has been removed, but to be sure I'm back in surgery next Thursday to have more lymph nodes removed. I am absolutely gutted, in spite of her reassurances that next week will be my last surgery. I have cried for the first time since being diagnosed and don't have the strength today to phone / text / email all the people that I usually tell everything to and who have been so concerned about me. I'm just curled in a ball on the sofa watching crap TV with a headache. I've also now been signed of work for 4 months as following recovery from surgery I will be straight into chemo. Just like that, boom. I am quite shocked at the thought of not having to go to work, you'd think I'd be happy about that, but I am gutted that she thinks I'll be too unwell to manage it. I will also have CT and bone scans next week; also scared of them finding something else. Did someone open the paranoia box again - Pigeons please come sit on it for me and ensure the lid stays closed.

Consultant was lovely about it all, she was very reassuring and is taking the belt and braces approach, but I can feel a phase of self-pitying wallowing coming up.

On subject of JS - she is coming to the Book Festival in my local town this weekend. I was thinking of going along in my best pink sparkly bra and maybe some tit-shaped deely boppers for good measure - anyone wanna join me?

Where do you all live come to that (roughly obviously) - I'd love to know where-ish you are. Also where i can see Johnny Depp on a beach Smile

handbagsatdawn · 08/10/2013 16:30

Ledkr I'm so sorry to hear you've had such bad news. Of course it's a shock and you're quite entitled to feel upset and angry. You've made up your mind, you're going to have the surgery and this will ensure you're going to keep living for many, many more years. Put yourself in the hands of your Drs, but cry, scream and throw things too. That's what I plan to do later xxx

Ledkr · 08/10/2013 16:37

Thanks handbags I hope that me being still here twenty years later might give you some hope. My tumour was very aggressive. A few women I know had gland involvement twenty years ago and are fine. Try to stay positive you are more likely to survive this than not! Much more likely x

Ledkr · 08/10/2013 16:38

Are you in cheltenham??

Ledkr · 08/10/2013 16:46

Are you in cheltenham??

Ledkr · 08/10/2013 16:47

Don't know why I asked you twice

KurriKurri · 08/10/2013 17:02

Ledkr - you have every right to feel angry at the injustice of it all.
And the prospect of any surgery, whatever stage of life you are at, is daunting, and being put in the position where you have to make these kinds of decisions is bloody unfair. So rant away if it helps at all Smile

Handbags - its a total bugger when they find it in the nodes too and you have to have another op. - it's like being hit all over again, so no wonder you feel tearful. I know quite a few of us on here have been through first op then lymph node clearance then chemo etc - so hopefully we can support you through it all. Try not to panic to much about the chemo - there really is a big variation in how people are affected, you won't necessarily feel dreadfully unwell, and you will almost certainly have some days in your cycle when you feel OK. xx

Oh - and I am in Norfolk Smile (small village about 8 miles from Norwich)

Ledkr · 08/10/2013 17:07

Thanks kurri has anyone on here had their ovaries removed or gone through early menopause?
I'm scared of a hairy chin, wrinkles and putting on more weight! I'm quite vain I know!

Ledkr · 08/10/2013 17:08

handbags I agree about the chemo. Not as bad as you expect I don't think! Maybe one crappy day then not too bad.

Gigondas · 08/10/2013 17:12

Ledkr-smee has had breasts removed I think due to brca but don't ovaries yet. Think she was talked our of it. Am sorry that you had this news as must have been a shock .

Handbags - sorry you had bad news but as kurri and ledkr says lots had node involvement and are still here.

On a lighter note, it's gbbo tonight.

Ledkr · 08/10/2013 17:25

What is gbbo?

Where is smee? Come to ledkr smee

smee · 08/10/2013 17:29

(((hugs))) for Handbags. What a complete sod about that node. Hmm. Still in one not all three is honestly a really good sign it's got no further. Collapsing and crying sounds sensible to me. Let us help, just talk and shout and scream. xx

Hello again Ledkr. nice to see you back, but wish it wasn't with the gene news. So sorry it was positive. I did the testing but mine came back was negative. Had already decided to have preventative mastectomy, but being negative and also post menopausal (mine kicked in early due to treatment) meant they persuaded me to keep my ovaries. I was 44 when I stopped my periods (at first chemo). 47 now and honestly not too bad. Have lots of hot flushes, but then that might be down to the Tamoxifen. I do find it harder to keep weight off, but still slim and about the same weight I was pre-cancer. Skin's okay atm, hair needs more conditioning, but that's okay too, oh and no whiskers to date. Grin Ask anything you want though x

Glad CT's done with Ruby. Wish we could magic you the results sooner than next week. Hope no more sickness xx

Tooth problems sound not nice,Kurri. Definitely not what you need at the moment. Hmm

handbagsatdawn · 08/10/2013 17:50

Thanks lovely ladies, you're right, it does feel like going back to the start. And I've healed so well, so to be re-cut is a complete bugger. Ooh and I'll get a drain, how nice.

Ledkr I'm near Guildford. Come to Guildford and throw things at JS with me at the weekend (not that I've booked tickets to hear her talk, but will be mentally hurling things at her from the safety of my sofa).

Gbbo = Great British Bake Off. Rather a healthy interest in all things baked here (quite right too). Grin

handbagsatdawn · 08/10/2013 17:52

KK have you seen any tasty pirates on the beach near you?

reallyreallyworried · 08/10/2013 18:07

Sorry to hear your news handbag but having just been through the same thing, I totally get how you are feeling. I apparently had 4 nodes removed during the first surgery. All of which contained Cancer Cells Angry

I was also told I needed a CT scan and Bone Scan, and like you felt that I was going backwards because I needed more surgery.

BUT

The surgery part of my journey is now done. I won't lie and say it was easy, it wasn't. But it wasn't as bad as I was anticipating. The drain was clearly the worse bit for me, but not because it hurt or anything. For me I hated the fact that having the drain was a reminder that I was sick?? Up to now I haven't felt ill, I have been able to carry on like nothings happened! But suddenly every time I moved I had this thing with me!

BUT it doesn't stay for long! I am in a bit of discomfort at the moment, but no worse than the first time round.

I hope what I have said helps, and doesn't make you feel worse. It really isn't that bad. Honestly! It will be over before you know it. Then like me you can tick the surgery off your list! Wink xxxx

I am glad the surgery is over. But in all honesty the surgery has been okay. It's the scans and waiting for results that scares the crap out of me Sad

I have a bone scan on Thursday and then appointment with surgeon on Monday to find out how many of the nodes they removed contained cancer cells!!

Then I wait for an appointment with the Oncologist!!

handbagsatdawn · 08/10/2013 18:10

You're right Really, waiting for results is mega-crap and scary and I hate it. Sounds like you and I may start chemo at the same time then?

Swipe left for the next trending thread