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Tamoxigang - 41 and counting

994 replies

KurriKurri · 20/08/2013 09:55

Morning all, new thread, croissants on trolley, and I'll put a brew on.

OP posts:
amberlight · 31/08/2013 12:23

MAS, grr re the queasiness.
Ruby, the constant waking is just mad; is there nothing the docs can suggest to solve that one?
I was reading a decent article about bile related bowel difficulties where they had only just worked out that giving some bile-reducing medication stopped constant running-about-to-loos, but I know little to nothing more than that. Just keeping my fingers crossed that there is something more blinking useful for you.

I feel rough. But I'm at home and there's tea, so can't complain really.
FineLad goes back to Uni for a while tomorrow to his new dwelling with his five other sports-mad mates. That'll be a household to contend with!

notJenkins · 31/08/2013 17:09

Eeew at watching amber

Sorry you are not sleeping ruby hope it changes soon.

I am either hungover or suffering side effects of change of meds already. Probably both. I am not looking forward to the next few weeks but have saved GBBO to watch on I player. My other guilty pleasure is the real Housewives so have that to catch up on too.

Looking for ward to a relaxed birthday tomorrow. We are going out for breakfast, quiet day then dinner out with family and dc going to grandparents for a sleepover so we can head out to the pub and have a lie in the next day.

Seeing a very promising looking house on Monday so fingers crossed.

BetsyBoop · 31/08/2013 19:46

ruby hope you manage a better sleep tonight

kitkat sounds like you are doing well, are you escaping today, or will it be tomorrow?

MAS - have you tried acupressure bands (seabands) for the nausea? - I know sometimes only meds will help, but I did find the bands helped a bit with morning sickness when I didn't want to do drugs.

notj hope you have a good birthday with no med change effects.

Malt sounds like DH is having fun in his new car (it will take his mind off the snip! Grin)

amber hope you are feeling better soon.

well still no nausea here at all, which is fabulous :) Have been a bit achy, but ibruprofen has sorted that, so far T has been much better than FEC, so fingers crossed it continues :)

MaryAnnSingleton · 31/08/2013 21:46

excellent that you aren't nauseous betsy - haven't tried the acupressure things, am sure the domperidone is probably enough, though am reluctant to take any more drugs than I have to- swallowing 18 tablets a day is quite enough.

EcoRI · 31/08/2013 21:49

Hello all,
I posted a couple of weeks ago with a lump that was worrying me. Then I disappeared. Apologies, it's been a pretty crap couple of weeks.
I came home from hospital today after a bilat mx. The lump turned out to be a tumour, grade 2, 0.8cm. Nodes clear according to u/s and surgeon also said the sentinel node looked fine and that tumour was encapsulated but we've got to wait for the biopsy.
Fuck, the surgery knocked me for six.. I feel like one hundred tonnes of bricks have fallen on me and me life. Hopeful that its all over. Hope you are all ok. Flowers

Gigondas · 31/08/2013 22:10

Didn't want to read and run exori. It's good they got it out and no node involvement . But the shock, effects of surgery and waiting on biopsy to decide on treatment is bound to be and.

ton of bricks is a really good way to put it as I felt physically as well as emotionally winded. Please ask, vent or share here if feel need or just lurk . Hope you have nice peaceful night.

Nice day in sun here- now watching trash tv . The we thru the keyhole is childishly silly -didnt think would lije as no Keith lemon fan usually.

Gigondas · 31/08/2013 22:10

Awful not and!

malteserzz · 31/08/2013 22:16

Eco sorry to hear your news, sounds like it was a small lump though which is good. Be kind to yourself and give yourself time and rest to get over the surgery

Gigs also watching through the keyhole here and enjoying it in a cheesy mindless tv way. Liked x factor too, though wondered what sharon was drinking ! Googled her as thought she had had cancer, she had colon cancer 10 years ago and has also had preventative mx.

amberlight · 31/08/2013 22:17

Ecori, yikes, you've had a heck of a time. Wine for you, I think.
Fingers crossed for results...any idea when you will know what's what on biopsy?

EcoRI · 01/09/2013 05:33

Thank you all.
I'm ok, luckily I have a lot of support. But I just had to wake my mother up because I woke in a position I couldn't manoeuvre myself out of Hmm. Am now attempting to sleep at a 90' angle which is going to be interesting..
Dunno when I get my biopsy results but my surgeon is away till the last week of the month. Whatever the news is, I think I'd like to hear them from him.
Had no idea that the surgery would be so hard, I thought waking up after the GA was the tough bit!! Hmm I have tissue expanders in which suck and it takes me hours to get in and out of bed!
But on the plus side, DH is going to help me take my first shower in days. Can't wait!

jchocchip · 01/09/2013 05:40

Hi everyone hope you are all asleep. Have windows open and very noisy owls talking to each other! Hi ecori sounds like you have had a hard time. Sounds good about nodes and encapsulation. Do you have family history? My initial thought was mastectomy but I had lumpectomy in the end.
Waves to grey, nice to see you. I'm waiting for my 2 year check. Had mammo a couple of weeks ago and had a bit of a wobble, guess that never goes away.
Have been busy so only on fb yesterday! Went out for a quick drink Friday lunchtime which ended up with 3 pubs, curry at aagrah and then they brewery, oops. Didn't drink much but was supposed to pack friday night... Made birtday cake and drove to mums and had a good evening with her.
Driving again today and dh's birthday but I'm not ready for that yet! Hope his mum has done him a cake

jchocchip · 01/09/2013 05:41

Xpost ecori. Enjoy your shower :)

kitkat1967 · 01/09/2013 06:30

Morning all - had another good night here - should be out today but may be taking the drain with me.
Ecori - I had a MX with tissue expander done on Friday - am feeling well but a bit stiff.
Hope you don't mind me asking but did you choose to have a bilateral MX?

Gigondas · 01/09/2013 06:36

Morning all-happy birthday for jchoc dh. Seems like a few folk have checks and results coming up ( grey, amber, jchoc, ecori) so will get my bum on paranoia box.

Some loon was up using a chain saw at 5.45 this morning - seriously just why at that time? So awake now as are kids but bit bleary eyed.

Enjoy your shower ecori- first one is a treat post surgery. I also found the effects of ga took few days to go. It makes me weak so the not Being able to move thing sounds familiar but it does go. Also I feel very down and weepy. But doing the op is good as massive step .

Will you be ok waiting for results ( think typically its about 1-2 weeks for results)? Have you met your oncologist? Just asking as results of biopsy/ your case will usually be discussed by team so can agree on best treatments and you get benefit of all the specialists ( surgeon, oncologist etc) putting their opinion in.

Gigondas · 01/09/2013 06:38

Morning kitkat-hope drain is out and you get busted today.

Big sigh as big gig remembered that she has friends birthday party
Later (should be great fun as its a Bollywood theme so kids dress up and learn a dance). So already going on about when it is, what to wear and party isn't til2...,.. More Brew I think.

BetsyBoop · 01/09/2013 06:58

ecori sounds like you are having a tough ol time, hope the shower helped make you feel slightly more normal again . Good they caught it early though and sounds like surgeon is expectungclear nodes, so all good :). I'm planning on a bmx in early nov (doing chemo first) so I might be tapping you for top tips!

Yeah for kitkat escaping today :)

Chain saw at that time gigs ? Shock antisocial git! Hope big gigs enjoys her party, bollywood sounds fun.

No nausea still, hurrah, but very achy arms and legs this morning, so time to break into stronger psin killers the onc gave me I think. Anything is better than feeling sick all the time though:)

malteserzz · 01/09/2013 08:50

Morning all
Wish I could sleep better, was awake from 2-3 last night, I get to sleep ok but then wake up it's so frustrating, j feel for you Ruby I hope you get that sorted so you can sleep better soon

Betsy the aches don't sound very nice is it painful ?

Not much planned herd today, ds has a football match but dh taking him. Need to pack for his pgl trip too

Gigondas · 01/09/2013 09:25

I loved pgl as a kid so hope ds has great time.

Broken sleep is a nightmare . O slept ok but just don't go to sleep til quite late . This isn't ideal but does seen to mean when I sleep I am tired enough to sleep thru.

malteserzz · 01/09/2013 09:43

I'm sure he will but bet he won't wash or clean his teeth all week Grin
We have no contact all week so will be strange

Glad you slept ok gigs I might try going to bed later. Bollywood party sounds fun

My hair has stopped falling out now, do you think they'll still let me use the cold cap on Thursday, it is really thin but I'd like to hold on to the little bit ive got

Lilymaid · 01/09/2013 09:53

Good morning - some of you are up really really early, so it must be lunch time for you!
Finally managed to speak to DS1 to tell him about the cancer this morning (he is 9.5k miles away and 9 time zones apart). I've told him not to Google too much. (As I've said before, DS2 has chronic myeloid leukaemia, diagnosed less than 2 years ago, DS1 has contracted malaria whilst abroad and we used to be such a healthy family!) Anyway, he seemed to cope with the news OK especially as I pointed out a family member of a similar age to me who has just been through treatment and is back in a new job (promotion).
Hope all those who have just had surgery are feeling better each day. Lazy day for me as I had chemo on Thursday but feeling not too bad this time probably as I am drinking as much water as possible thanks investing in a new Bobble water bottle and jug.

EcoRI · 01/09/2013 10:41

Oh lily what a crap time for you all. Hope you've got loads of live around you Flowers
But on trivial note, do let me know how the bobble jug turns out, they look awesome!
I am ok this morning despite getting stuck in bed again this morning Hmm. I'm in my mid 30s FFS!!!
betsy I fully expect to be a mx pro by then so tap away!!

EcoRI · 01/09/2013 10:42

I mean love not live Hmm

kitkat1967 · 01/09/2013 10:46

malt - good news that your hair has stopped falling out. On my thin (bald) bits the nurse puts gauze over it to protect it when doing the cold cap - I expect you can have the same on any very thin bits.

malteserzz · 01/09/2013 11:27

Thanks Kitkat am imagining it will feel very cold this time now I've not got so much hair as insulation ! I've ordered some fast shampoo and conditioner from amazon to use when it does start growing back

kitkat1967 · 01/09/2013 12:43

Heading home soon - with drain for company.

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