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Tamoxigang - 41 and counting

994 replies

KurriKurri · 20/08/2013 09:55

Morning all, new thread, croissants on trolley, and I'll put a brew on.

OP posts:
BetsyBoop · 30/08/2013 06:19

And no icky feelings this morning either kitkat so fingers xd that continues :)

malteserzz · 30/08/2013 07:00

Morning
Foo foo good that you have a date now and you know what's happening, I've been fine on fec hopefully you will be the same
Betsy glad you slept ok and are feeling ok so far
Kitkat enjoy your breakfast and best of luck for today x will you be able to update us from your hospital bed ? If not let us know when you are safely home.

Hate getting up at this time ! Going to see a friend for coffee this morning and going out for a meal tonight Smile

kitkat1967 · 30/08/2013 07:18

HI Malt - how are you finding things now the kids are back at school? Mine are back Tues/Weds next week and am not looking forward to it as i have enjoyed having them home. I found it quite lonely before the summer hols - they go to school really early so it is a very long day on my own.

Betsy - glad you have no sicky feelings - what a difference to FEC.

I will have wi-fi in the hospital so will probably be on with updates this evening. Am all organised - got some work to do this morning then heading off around 10:30 i think.

Gigondas · 30/08/2013 07:26

Brew? Up at daft o clock with mini (steroid amnesia not too bad).

Kitkat- sending you love and quick heal vibes for today.

Waiting on plan and shock means post dx is the worst time. To add to questions I would add what are relative risks of infection, needing further op .i say this as I found wound infections have been issue for me (know I am not bc tho) so I would wAnt to weigh that up.

Jotting down what say and after pros/cons of both on bit of paper as that helps weigh it up .

Had nice day cooking yesterday(chocolate cake for trolley ) - this is big deal as am able to stand to it and manage with my dodgy left hand.

Also had long chat with specialist nurse about best way to drop pain meds. We have a plan as cant do it too quickly as still need to manage pain in arm(which is worse as they were rough with it in surgery ) than back which is improving.

Early start probably means lazy day today but may go for leisurely walk to coffee shop. I need pigeons back so can have natter with her.

Meals out plans all sound good.

notJenkins · 30/08/2013 07:29

Good morning from me. Sorry I am really behind with the thread.

Well it looks like we have sold our house ! Grin we are putting an offer in on a house we like today so wish us luck. The process has been really stressful already and we are only at the start.

I changed my meds a few days ago in preparation for my scan and I feel really tired already. I was not expecting that. The paranoia is coming back too but the house business is helping to keep my mind off it.

We are off out for a long dog walk / football for the children today with cousins then it is my birthday at the weekend so busy time for me.

What are we all up to ?

kitkat1967 · 30/08/2013 07:33

Hi Gig - I saw you had an early start this morning - busy playing with the little gigs (or was it just mini?). Think you'll have to fit a nap in later on - does mini sleep in the afternoon?

Gigondas · 30/08/2013 08:00

Yay re house Nj but sorry about tiredness. Fresh air might help. I will sit on paranoia box for you- do you have a scan date?

Kitkat she does sleep and I am very lucky as I have nanny here to help so can sneak a break in.

It was just mini up- I think it was to check mr gig was here and hadn't gone back to the us. She is a bit of a daddy's girl ! She is also obsessed with her new toy pushchair (it was in our room as wanted to take it in her cot) so wanted to play with that.

notJenkins · 30/08/2013 08:05

My dd was obsessed with her toy pushchair too. It cost me £2 in a sale and she played with it for years. The early waking is hard.

My dd's have decided that lie ins are the norm just in time for going back to school. I am not looking forward to the morning battles next week.

Scan on 24/ 25 th sept. I have to go in for bloods and for radioactive injection 24 hours before the scan and it seems I am having 2 scans and ultrasound. Results hopefully at my clinic appt mid October.

At least when we move we could afford the drop to half pay that will happen if I need more treatment.

MaryAnnSingleton · 30/08/2013 08:12

good luck kitkat and well done for house sale nj
T had a push chair for his babies Smile
Am planning to draw a bit and we're swimming later.
Have a lovely day everyone

Gigondas · 30/08/2013 08:27

Ooh swimming sounds nice -I am desperate for my leg wound to heal so I can go mas. Also when does t start college?

Least you can count days til scan assume can go back on normal meds Nj. Also if new house eases issue of going to work that's good- have fingers crossed that your offer ok.

malteserzz · 30/08/2013 08:54

Not j good luck with the house, it's exciting moving but stressful too

Kitkat I like the kids being back at school but I do miss them, especially dd who I've spent a lot of time with over the summer and has given me confidence to go out in my wig. She enjoyed her first day at a new school yesterday. I miss ds too but it's nice not having his friends in and out all day

MaryAnnSingleton · 30/08/2013 10:15

wish you could go swimming gig - am sure it's doing me good.
T starts next Friday -an induction day. I think he'll be around a lot more than he was at school though.

Gigondas · 30/08/2013 10:20

Me too mas but leg wound well omits way so hopefully soon- want to use local heated open air pool.

Gigondas · 30/08/2013 11:24

Still not dressed, just been scoffing cake and watching tv -a good way to spend the morning. Anyone else like strictly- it starts next weekend?

malteserzz · 30/08/2013 13:00

Hope you enjoy the swimming Mas
Gigs I dont watch strictly but im looking forward to x factor tomorrow night

kitkat1967 · 30/08/2013 13:11

Just seem surgeon and he said he discussed my lymph nodes with onc and they both think it is unnecessary but he will have a look and if any look enlarged he will take the block out - feel more comfortable with that approach.
Wrong size implant ordered so just waiting for the correct one - as do not want 1 super sized boob!!

kitkat1967 · 30/08/2013 13:19

malt - how come your dd is at a new school - I thought she was 14? Do you have middle schools or has she just moved schools?

BetsyBoop · 30/08/2013 13:26

that sounds like a great compromise kitkat :)

enjoy swimming MAS hope you can get back in the pool soon *gigs)

notj I hope the house move goes smoothly with minimum stress, although I suppose it's a good distraction at the moment?

My kids don't go back to school until next Thurs, which seems ages away yet, although the school I work at goes back on Tues.

Well so far so good, no SEs other that general drugged up spaciness, which is a pleasant change from nausea and vomiting! Just waiting to see if I get the hit-by-a-bus feeling. Also forgot to mention I asked onc why both boobs have shrunk (tumour boob has shrunk more) and are softer. He says chemo has shut my ovaries down = no oestrogen, which is what has caused it - a sign that my boobs are very oestrogen sensitive so a positive indicator that tamoxifen could work well for me. :)

malteserzz · 30/08/2013 13:28

Best of luck Kitkat sounds a good plan with the lymph nodes
Here they change schools after year 9,I suppose they are middle schools, so the next school is for gcse and hopefully A levels. I did the same. Old school was 5 minutes walk this one is 20 mins on a bus so big change.

MaryAnnSingleton · 30/08/2013 14:16

yes,good plan for lymph nodes...
Glad there's no nausea betsy

Gigondas · 30/08/2013 15:53

Thinking of kitkat.

Betsey that's good about no nausea. One of things I noticed about nausea was how very much worse it was when I was tired. A couple of times I ended up having chemo really late as got delayed and I had the worst sickness on days that followed as was so tired.

After lazy morning, I have been into town for a walk ( after train trip to see how uncomfy it was but was fine) and a potter round shops. I may have bought new jamie Oliver book Blush and then had to make more cake when I got in as are rest of one I made yesterday it was the weekend.

reallyreallyworried · 30/08/2013 16:26

So I saw the surgeon, and had a good chat with my BCN. Slight change of plan, my surgery is now on Wednesday next week. Just as I had prepared myself for Tuesday. But that's life.

My options were to have just the lump removed. Which involved one small incision.

Or

Have a Y shaped incision under the breast, and have the lump removed and the breast reduced and reshaped. Then have my other breast operated on at some point in the future, so they would match!

I decided on option one. It's a quicker and easier surgery. The surgeon said worse case scenario was that I might be left with a dented breast. But in all honesty, I think that is better than putting myself through more surgery later on. I feel I chose what was right for me.

So I am feeling a little bit more in control today. Thanks to having more information and thanks to you all listening and telling me it was okay to feel the way I was feeling. Thanks

Wishing KitKat all the best. I hope your surgery went well. Xx

Shootingatpigeons · 30/08/2013 16:32

Thinking of Kitkat I'm sure it will be a great relief to get rid of the lump.

Betsy Good news about the shrinking boobage, we ER+s are definitely better off without Estrogen.

MAS loving all your swim updates.

gigs Looking forward to meeting up. Perhaps we should be pulled along in manner of old lady flying through the air hanging on to a cheetah by the lead walk goondog

malt I see that you have reached the soapoperaitus Spanish flu episode of Downton, I really did laugh hysterically at the end, and only a week after the weepfest that was the ending to Spooks, so it can't be that I am cold and cynical with a terribly black sense of humour even if I am

There was some talk of supplements a fair few posts back. I am more or less on the same regime as gigs a high dose multivitamin, plus 1000 mg Vit C, Co enzyme Q10 (there was a Danish study that showed 200mg per day significantly cut the chance of recurrence for Breast Cancer patients), Milk Thistle, Omega 3,6,9 capsules, but most importantly for me Calcium. I was thrown into menopause by chemo which was good because I was so strongly ER+ but even with the bone protective properties of Tamoxifen I already have Osteopenia(next stop osteoporosis) as a result so I would strongly advocate taking added Calcium if your periods do pack up. I am sure I would be in a worse position if I had not taken it.

Well we are safely home, though Mexico City was far more dangerous than I realised. I should have cottoned on to the lawlessness when the pilot had to threaten to land at Dallas to mass arrest all the smokers to stop them all grabbing a quick fag in the loo. However we managed to recruit a bodyguard nice taxi driver and basically had Frida Kahlos House, the mansion of an amazing art collector called Delores and the World's best anthropological museum to ourselves. Strangely enough there didn't seem too many tourists stupid enough interested to go there...... Needed the lovely four days of all inclusive gluttony relaxation to recover from being on edge all the time. Whilst we were there two teenagers were kidnapped from outside a bar in a street where we eat, the police did nothing and their bodies were found in a mass grave with several other kidnap victims the police had not even realised were missing so you can see why I was a bit on edge when it was just me and Little pigeons. Even the 5* hotel bar was a hotbed of upmarket prostitution. Quite amusing, though they did look at Little pigeons and I with utter contempt what with the lack of cleavage, caked on make up, and vertiginous heels, and that was just the Avon Ladies there for a conference!!

Shootingatpigeons · 30/08/2013 16:37

RR Sounds like a wise decision. I have never had reconstruction simply because I didn't want to put myself through more surgery. I hope you are feeling better now you have your plan.

Waves to everyone . I have tried to catch up but brain isn't working at all. We have two weddings tomorrow and one is in the garden next door and they have been playing thin lizzy all day testing the sound system which certainly doesn't help. They are lovely and we have offered lots of help, opened our garden and bathrooms etc. to their guests but feel there may be a spot of the Bridezillas creeping in.....

Gigondas · 30/08/2013 16:59

Welcome back pigeons. The mind boggles as to how you fit thin Lizzy and bridezilla together.