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******The 36th TAMOXIFEN thread******

999 replies

NedSchneebly · 10/05/2013 20:02

You all out there? Pop this way!

OP posts:
Gigondas · 24/05/2013 21:16

Glad you survived smee.

Have beer and Indian takeaway whilst watching rugby on tv (pretty Jonny wilkinson) in my posh cashmere pyjamas. Life is on the up Grin.

Hope everyone having nice evening. Am Envy about Amber's pud from fb pic.

topsyturner · 24/05/2013 21:24

Samosas - check
Zinghara fritters - check
Potato rissoles - check
Naan breads - check
Tomato chutney - check
Curry gravy x 4 - check
Tikka masala - check

Kitchen wrecked - check

Entire bottle (each) of wine drunk - check !

2 chicken curries (madras and makahni) , lamb shaslik , quorn makahni , veggie madras , all being completed tomorrow .

Who's booking flights ???

malteserzz · 24/05/2013 21:32

Topsy can I come sounds lovely
I have pimms and watching here comes honey boo boo, I'm so classy ! Gigs your evening sounds much more refined Grin

MaryAnnSingleton · 24/05/2013 22:30

we stuffed ourselves with Chinese takeaway and prosecco and birthday cake.
Indian feast sounds totally amazing topsy and hnd
Am off to bed shortly,when my supper's gone down a bit.

jchocchip · 24/05/2013 22:39

Hugs lovelies. Bugger about news of secondaries. Bastard disease. Fingers crossed the treatment kicks them into touch.
topsy should we all come to see pig/dog for healing licks (and whip some curry while we're there)
I'm really stiff today. Shoulders, arms, thighs. Could convince myself something is wrong, but more likely yesterdays weight training Grin

topsyturner · 24/05/2013 23:10

Night Night All .
Wishing you all the sleep of the blessed tonight x

malteserzz · 24/05/2013 23:16

Night x
If I'm maudlin tomorrow remind me that alcohol is not a good idea Grin

smee · 24/05/2013 23:43

Flight booked. Grin

Cashmere pj's, Gig? Mine are from Muji. Big men's ones. Incredibly unsexy comfy. Smile

MAS, your evening sounds lovely. Happy Birthday to your lovely dad. Smile

Night all. Malt, wishing you blue skies and happy dreams. x

EarthMotherImNot · 25/05/2013 06:03

I just slept for 4 hoursShock. I can't remember the last time I slept for that long.

The family arrived for tea and Dh and I waffled on to keep them off the C subject until they were all in and settled, dogs calmed and our grandson settled with a new game thingy upstairs. (he's 14 but I want his mum to decide what and when he knows)

After about an hour of hugs, tears, questions etc we ordered fish'n'chips and had a lovely meal together. We decided between us that we'd leave the subject til GS went upstairs for the night and we then carried on chatting.

We laughed and cried in equal measure I'd say, but what came out clearly is that Dh and I mustn't be allowed to see docs without a minutes taker cos we're useless at remembering to ask questions or write stuff downBiscuit

They are great children and we consider ourselves blessed. I worry for GS but he will have mountains of any support we can get him.

(Thanks in part to my MacMillan nurse we managed to get him the school place he needs this week)

They are DD1 37 DS1 34 and DD2 30. They are not, thank goodness, too young to understand.

I then went off to do the phone calls to my siblings, friends etcSad

It has been an awful day in some ways but at the same time I feel cleanly drained this morning. Like an enema for my brainWink

I just wanted to pop in to thank everyone for every hug and kind word, and say "keep em coming" xxx

jchocchip · 25/05/2013 06:04

I didn't sleep very well - cat was in room then dh was is snoring! I know I shouldn't go on mn in bed but hey ho. Looks sunny already, hope I don't get rained on at parkrun Grin
Busy weekend - have to prepare junior church for tomorrow then pack for Wales. Going to stay with my brother. Not been for ages and really looking forward to it. Have week booked off work, but brought some home must do that before Wednesday when boss back at work... Anyone got plans for today?

jchocchip · 25/05/2013 06:11

Sorry earth spectacular xpost. Glad the fish and chips / telling family went well. They sound lovely your children - minute taker :)

Gigondas · 25/05/2013 06:31

Glad you got some sleep earth - the minute taking idea sounds a good plan.

Jchoc- week off sounds lovely. Don't work too hard.

Smee- cashmere pjs definitely luxury over my normal ones but are lovely and warm .

Feast sounds yum hnd/topsy.

Am aching today (one of my hips where I had radio and one knee which hope isn't more mets ). Got some packing for tomorrow then wedding party tonight. Need to work out what to wear as dont think can go in pyjamas.

trice · 25/05/2013 06:48

Sorry to hear your news Emin. Stupid cancer cells, they are so pointless.

I am envious of your park run jchoc. The local group gallop past the garden every Saturday morning and they always look like they are having fun. I did c25k last year but I never quite got to join them. I know why now. Stupid lungs.

I am feeling quite sick at the moment on the capecitabene. I have been taking domperidone but it is only just keeping a lid on things. And of course now it is a bank holiday. Fish and chip talk quite challenging.

I am on my own all day today as Dh is on a course. Which means I don't have to eat as there is no one to stand over me! I know I should be a bit more mature about these things but I feel about three.

malteserzz · 25/05/2013 08:25

Morning all
Earth your evening sounds like it went well and family sound supportive which is good. Glad you slept too
Jchoc hope you have a lovely time with your brother
Gigs good luck finding something to wear never easy if you're like me !
Trice sorry to hear youre feeling sick guess you should try and eat little bits of what you fancy ?
Waves to everyone else

My 2 have got swimming lessons this morning then later were heading down to dhs parents, they're lovely but not seen them since dx so dreading that part. We're leaving the children there tonight and staying in a hotel nearby for a nice meal and bit of time just for dh and I. We did wonder of we ll just be miserable with no one to put a brave face on for but hoping not Smile then were joining the kids at the inlaws till wed
I will still be on here moaning no doubt !
Love to all

MaryAnnSingleton · 25/05/2013 09:33

well done to EMIN for doing all that- it sounds quite cathartic -am so glad your family are so lovely and supportive.
Sort of sunny here (dh in shorts !!) am going to wash the floor I think and return to yawn-making tax things.

MaryAnnSingleton · 25/05/2013 09:34

malt have a lovely time away and enjoy the time alone with dh.
gig be sure to take Paris pics for my inspiration...

amberlight · 25/05/2013 12:30

Earth, two and a half years ago a friend of mine was told she had three weeks to live. They found cancer everywhere inside her. Er, she's still alive and well and running half the committees in her area plus tending a third of an acre of garden. She still has cancer everywhere. She has regular chemo boosts to keep things stable, and thus far it appears to be working fine. Just one example, but definitely showing that statistics are meaningless. Some aren't lucky. Others find that their bodies are able to do a pretty good job of keeping it level, with medical help. Just in case that helps. (And she is on the potions I recommend, too (lactoferrin, Vit D, curcumin, omega 3, good multivit and mineral supplements). Plus her attitude is that it's no big deal and she has a huge circle of social contacts. All seems to add up to a better chance of being a lucky one).

KurriKurri · 25/05/2013 12:34

Afternoon all,

Earth - I'm glad you managed to get some sleep, and also that you were able to have a good talk with your DC - I think the family talks are one of the hardest things to do, so its good you have that done and out of the way. I think the idea of a minute taker is a very good one - it is so hard to remember everything that is said. You're family sound like lovely people Smile

malt - have a nice break at ILs, and enjoy your meal out Smile

MAS - happy birthday to your lovely dad for yesterday, hope you T and G have nice half term xx

trice - sick feeling is horrible, and it's tempting not to eat anything if there's no one there to boss you about! - I'd try to have bit of something, just because an empty stomach can make nausea worse, - maybe something very plain like a couple of rich tea biscuits, or oatcakes? Could you stomach a smoothie? I went to a dietician talk when I was on chemo and they seem to advocate smoothies as a good way of getting a few vitamins and you can just sip it slowly. Also worth a thought if you are struggling to eat - those fortified shakes and juices you can get from the chemist (they have about 400 calories in so if you can keep one down that is a reasonble chunk of nourishment)

Gig have a lovely time in French France and at the wedding tonight, remember to bring us back some smelly cheese (from France not from the wedding!)

Jchoc- enjoy your run, and have alovley time at you DB's - you deserve a nice break - don't spend all your time working in your week off.

Smee - have a great half term holiday xx

I have done ironing, and gardening this morning - weather is Okish not raining at least) but stupid finger makes things awkward atm.

Old lady dog was very interested in an old pillow I was going to throw out, so I have put it in her basket and she is curled up asleep on it, very pleased with herself Grin

Have a good BH everyone Smile

EarthMotherImNot · 25/05/2013 14:24

amberlight She sounds amazing Shock

DD2 has sadly this morning done something we are all in shock, and, not a little angry about. Something to do with her work is organizing a long charity based overseas stay. She has painstakingly organized this for 3 years and this year she was asked (a great honor apparently) to be one of the ones chosen to go.

We were absolutely delighted for her, she's had her injections, trip is a few weeks away and she has emailed her boss and turned down his offer on the grounds of what might happen while she was away.

I cannot get through to her, she has her thin line lips on and I now feel so bloody guilty for being ill.

GoodbyeRubyTuesday · 25/05/2013 15:36

Oh EMIN :( I suppose DD has to do what feels right for her but such a shame after all the preparation! Has anyone replied to her email yet? Perhaps there will be room for some discussion, she could go but not for as long or perhaps more flexibility in visiting home during the trip?

You have nothing to feel guilty about, it's not your fault you're ill but I know it's hard not to feel that way.

amber very positive about your friend, glad to hear she is doing so well. As soon as chemo is over I shall be dosing myself up on all your recommended supplements! :)

I'm having a very lazy day today, still in bed. I didn't sleep well overnight but then slept in until 10. I just can't really be bothered to get out of bed at the mo :)

KK aww at old lady dog and her pillow :)

gigs enjoy the wedding

malt have a good time with DH's parents and enjoy your night together, even if you're sad it'll be good to have some space just for the two of you I'm sure :)

jchoc hope you didn't get rained on!

trice hope the nausea has calmed down, do try and eat a little if you able to. I get nausea with the capecitabine too. I take domperidone regularly and then also have cyclizine, prochlorperazine and ondansetron as needed - the prochlorperazine is icky but others are good.

Waves to all I've missed, have a lovely day :)

KurriKurri · 25/05/2013 17:13

Earth - that is a shame about DD2, is there anyway she could just delay the decision until she's had time to talk and think it all through a bit more?
I do understand how she feels (my DD was all for cancelling going to Uni when I was DX), we found that what helped was being very organised in terms of contact (I know your DD's work is abroad so maybe more complicated) but having skype set up so you can talk frequently etc etc., knowing how easily she can get home if she feels the need that sort of thing.

Don't feel guilty though, I'm sure she'd hate to think she'd caused that - ultimately she is an adult and makes her decisions based on what she feels she wants or needs to do, - it's no one's fault, - just life being shitty.

amber - I x-posted with you earlier and only just seen your post. Good news that your friend is doing so well Smile How are you feeling today?

Ruby - if you can't have a duvet day at bank holiday when can you? - hope you are nice and cosy Smile

I have been to the library and got myself five murder mysteries to read, and bought some bits for tea in Waitrose (we are having quorn sausages in buns with salads and potato wedges) and I have some Daim sweeties to share when we watch the Voice Grin

amberlight · 25/05/2013 17:48

I'm alright thanks. Just back from the holiday. Really needed that. Got DS from Uni with about 15 suitcases of stuff (I exaggerate not). Done shopping. Usual mad rushing about Grin

I took all those supplements during chemo, and my onc (who happens by sheer coincidence to be the top one in the country) said jolly good to me and thoroughly approved. For what it's worth.

KurriKurri · 25/05/2013 17:51

Ha - I remember the 15 suitcases of stuff days form when DD was at Uni Grin - and then you have to try to fit it all into your house somehow for the holidays!

Feet up and Brew?

amberlight · 25/05/2013 18:53

Oh yes

MaryAnnSingleton · 25/05/2013 20:07

maybe dd needs a bit of time to get things in perspective ? what a shame if she doesn't go on her trip- can see both sides -horrible for you all...and you certainly mustn't feel guilty about being ill.

Capecitabine has made me feel a bit nauseous this time round but domperidone helps a little.

gig is off on her outing to wedding party I see...hope hnd and tipsy are having a fab time.
We went to West Green House gardens this afternoon- in Hartley Wintney- very lovely place - had a nice walk in the sunshine.