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**TAMOXIFEN 35**the all dancing,fat boy snacking and drugs thread

999 replies

MaryAnnSingleton · 26/04/2013 16:15

yoo hoo - over here- bring the trolley...

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MaryAnnSingleton · 07/05/2013 07:59

loads of good thoughts today for malt

Waves to SR Grin !!
And hooray APPRENTICE DAY (and tomorrow) !

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topsyturner · 07/05/2013 08:18

Just popping on to hold Malts hand for today .
Be back later ladies x

trice · 07/05/2013 08:35

Good luck Malt. Hope you get enough information for you to feel more in control.

I am starting on chemotherapy again today. That pill one. I hope it works.

NedSchneebly · 07/05/2013 08:37

Everything crossed for malt today - thinking of you lovely x x

Must get DS to school. Laters lovelies x x

topsyturner · 07/05/2013 08:52

I'm back .
Just me and pig/dog left in the house
Yippee !!!

DD was running late today .
She was just about to head out the door when I noticed she still had bright turquoise nail varnish on !!!

Trice hope your chemo is kind to you . Is it the same stuff our Mas is on ? (Capicet wot sit I think ?)

I keep forgetting I have my CT on Thursday .
Getting blasé about them these days , that'll be the one with bad news then Grin

Who's on breakfast duty today ?
I've woken with a Gigs like steroid hunger ...

AshokanFarewell · 07/05/2013 08:55

Morning all,

I'm somewhat zombie like this morning after another grim night so have emailed my bowel nurse to complain about it all. Not sure what she can do but at least she knows I'm grumpy Grin

malt thinking of you, I hope the appointment goes well.

amber I hope you are feeling better this morning

trice good luck with the chemo :)

sparkle glad your first chemo in Canada went well, hopefully you'll be feeling better soon. All the groups sound fab, definitely worth joining you can always leave if they aren't right for you :) fingers crossed for your scan and smear. I'm firmly in the it's not fair camp today as well!

Waves to everyone else :)

AshokanFarewell · 07/05/2013 08:56

Morning topsy cross posted. I'm waiting for today's slave to bring me a cheese toastie for breakfast if you fancy one?

Gigondas · 07/05/2013 09:01

Throws brioche and chocolate brioche at topsy.

I have spent hours debating the if you worry its ok v. are relaxed its not scan thing topsy. Tbh I give up as no link in my mind (aside from if dh there never seem to get bad news but that might be unlucky that times been without him was sprung on me). Am trying up cling now to the scan being they see= they help idea but doesn't always work!

Ash- sorry you had tough night , bad enough feeling rubbish without bad sleep.

Trice- sending good chemo vibes.

Sparkle - good that chemo in Canada started and have plan. You seem happier since made the move or am I misreading things?

Going to be another hot day here I think - so ought to get up and enjoy it rather than look out the window.

Gigondas · 07/05/2013 09:02

And smee I blame you for order for american apparel I made ( thanks fit tip as looks good and comfy).

smee · 07/05/2013 09:37

Yay for American Apparel, Gig. Weird shop, but I love it. Every time I go in I feel like a fraud as it all seems to be stuff for young trendy dancer types... Good that you're getting some movement back, but lack of sleep can't be helping.

Topsy, will be on the box on Thurs for you, but you're clearly a freak, so I reckon you'll be fine. Grin

Hope the nurse gets back to you, Ash. Could you call them too??

Trice how long do you have to take the tablets for? Does sound like MAS's treatment. Been v.effective for her. Smile

I had FEC and the nurse sits and syringes it slowly in here too, Sparkle. Took an hour for the hugest syringe I have ever seen. Still remember the smell.. Hope the MUGA goes well and shows no problems. How are the children? Are they still settling in well?

I think this is the time for Malt's appointment. Thinking of you, Malt. Sending every good strong possible vibe I can. xx Smile

are you okay lovely? Is today a bit easier? xx Smile

Right, better get on. Waving to all who I've missed as ever. Be back in from time to time.

MaryAnnSingleton · 07/05/2013 10:17

capecitabine - is that yours too trice ?
sparkle glad your chemo has got underway and hope all goes well with it.
Window cleaner is here so feel a bit overlooked ! Cat doesn't like the squeaking on the glass.
topsy fingers crossed for your scan- it's an irksome time, isn't it.

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AshokanFarewell · 07/05/2013 10:34

Nurse replied and I'm seeing Dr W tomorrow :) I can never get hold of her on the phone but she is usually good at replying to emails.

trice I've had three cycles of capecitabine tablets only and only mild side effects so if you are on that hopefully it'll be the same :)

Chocolate digestives for the trolley, am having mine in bed.

smee · 07/05/2013 11:19

Ooh that's good, Ash. Hope he's got something sensible to help. Smile

MAS, where are you on your cycle and how are the hands? Is the sun helping?

AshokanFarewell · 07/05/2013 11:33

Thanks smee :) how is your morning going?

MaryAnnSingleton · 07/05/2013 11:34

hope Dr W has sensible stuff to tell you ash
I think I'm on cycle number nine or ten- am going in on Friday for the next lot - hands still not normal but stable-think this is their default mode from now on-so it's tolerable but I think they look horrible.
Lovely decorator has just called to work out quotes for repainting dining room and utility which are in desperate need- he is a sweetie and was painting our hall and landing when I was first diagnosed so have told him about this new bit,which he is v sorry about,poor man-felt bad about telling him,but I feel he sort of went through the first bit with me (in fact he was one of the first people I told ) He is great to chat to and absolutely no trouble to have about when working on stuff (and am always anxious about work people usually)

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smee · 07/05/2013 11:45

Morning's good thanks, Ash. I have a headache (pathetic I know in comparison to you!) and just realised it's probably hayfever. Always surprises me even though I get it every year. Will take anti-histhamine and see if I'm right.

MAS, good that things are stable, but you are allowed to moan about hands you know. it's not even the weather for gloves! We need our windows cleaning and decorating's long over-due. You're putting me to shame.. Smile

AshokanFarewell · 07/05/2013 11:56

smee not pathetic at all! I'm the same, every year I wonder why my nose keeps running when I go outside Hmm then remember it's hayfever! I hope the antihistamine helps ASAP :)

MAS glad you've got a nice decorator, it can be weird having someone in the house so good that you get on. What will the colour scheme be? I can't remember if I said but I've been using Bio oil for my scar and it's so nice I've been using it all over, it has helped a bit with my hands which are kind of scaly from over washing and chemo.

malteserzz · 07/05/2013 11:58

Just quickly while dh is phoning his mum and dad, it's a 3cm lump grade 2. Ductal. Plan is for lumpectomy on June 4th then probably radiotherapy and will discuss chemo but likely because of my age.
I do feel better now I have a plan you were all right :)
I'll catch up with you all later but thanks for your support in this horrific week I know this is only the start x

smee · 07/05/2013 12:21

Yay Malt, grade 2's not so bad and lumpectomy means they're confident of being able to get clear margins. Tell us more later, but it sounds like confident it's gettable. Take whatever they suggest then life's on the other side. xx Smile

AshokanFarewell · 07/05/2013 12:28

All sounds positive malt, sounds like a good plan :)

Gigondas · 07/05/2013 12:50

Agree with smee- that all sounds positive and like you have a plan.

Any idea on op timing?

sparklesunshine · 07/05/2013 13:33

Yay for small and mid growing lump Malt. Sounds very normal, hope it all goes well.

Good luck also to trice, hope the chemo works for you too. And happy to hear MAS is getting on with her workmen, it must be strange continuity to have the same friendly one as when you were first diagnosed!

Gigs - I do feel happier here. It's just such a pressure off. No more court, for one gigantic thing! Also, I've got family people here who can step in and help. The girls can play outside much easier and it doesn't take us hours to get around. They're settling in alright, there's another little girl at big's school who moved here from the uk the week after we arrived and we're making friends with neighbourhood kids too. They've never had friends down the street living in London. Still lots of questions, still very / extra cuddly but that's really not a bad thing. I like my hugs. Sleep could be better for us all and my mom and I are working out our roles, but it's ok. Good even, considering.

MaryAnnSingleton · 07/05/2013 14:06

malt that sounds very good -and hooray that there's a plan. Did they say anything about a sentinel node biopsy (they'd do that the same time as lumpectomy) ?

Bio oil- is it sticky ash ? I can't really have any greasy hands as it'll get on my work, but my hands certainly feel as if they need nourishing Grin
Hope headache improves smee - dh is already dosing himself with hayfever tablets.

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notJenkins · 07/05/2013 15:00

Good news malt seems your cancer is entirely treatable and you don't have too long to wait for surgery.

I had a weird morning at work. I stood there and felt all detached and like I was not part of it there any more. Since dx my job is really not as important to me and I really felt it today. I guess I have changed and it will take awhile to slot into real life again. I still want to hide at home but that is not realistic when I need to earn a living !

I am still behind with the thread need to go and catch up.

malteserzz · 07/05/2013 15:13

My consultant is lovely he talked about the sentinel biopsy being done at the same time. He said there was no evidence that a mastectomy offered any more protection for the future than the lumpectomy. He'd talked about scars etc but I really dont care about that
If there are any cancer cells in the nodes it will be chemo, if not he will go through all the risks with us and we will decide together, probably will be though
He didn't just say go away theres nothing we can do Wink
Still scared but better than I was

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