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**TAMOXIFEN 35**the all dancing,fat boy snacking and drugs thread

999 replies

MaryAnnSingleton · 26/04/2013 16:15

yoo hoo - over here- bring the trolley...

OP posts:
MaryAnnSingleton · 07/05/2013 15:33

that all sounds v good. Lumpectomies are just as effective as mastectomies. My scar has faded nicely though there's a dent in that breast -it all depends where the lump is really.The underarm scar is a crescent shape and has also faded- it will feel quite sore there afterwards as it naturally gets rubbed and is quite swollen- it bothered me much more than lumpectomy scar. I think chemo is generally given for your dx whether or not there's node invasion if you are under a certain age,which I guess depends on the hospital/surgeon/onc.

OP posts:
topsyturner · 07/05/2013 15:36

Malt that's great news .
All very do-able !
Yippee for nice surgeons Smile

Went out for lunch with HND
We sat outside a riverside cafe in the sunshine .
Bliss !

amberlight · 07/05/2013 16:10

Malt, hurrah! That narrows it down to a 94% chance of it being a straightforward 'cure' and only a 6% chance of it being anything needing a second course of treatment.
If in doubt, have chemo. Best advice I can give you, though of course I'm not a doctor. Just someone who sees the background papers from the specialists on this stuff. Chemo is Not Fun but knowing you've zapped every possible cell of the thing is a reassurance for many.
Hi all. Been for diagnostic stuff with ds this morning. All as expected re formalised autism update. Brain v fried. Thanks for yesterday's kind words.

KurriKurri · 07/05/2013 17:51

Evening all - sorry to have been awol - on tombola duty yesterday, and today I went housework crazy - have zapped the bathroom, scrubbed skirting boards, polished furniture etc - feel quite good, think I needed to work off some angry energy!

Malt - well done on getting through your appointment - I now they are bloody scary, so understand how horrid it must have been for you. And it sounds like there is a good plan in place for your treatment and recovery - because now you are on the road to getting better Smile

I am catching up on all your posts - so apologies for not mentioning everyone, but hugs for Asho - hope they can get you more comfortable asap, and more hugs for amber - hope you are feeling a bit better today my lovely.

Will post again later - love to all xx

Gigondas · 07/05/2013 18:02

Wine For all? Kurri- good to hear from you , how is old lady dog?
malt- good you have treatment plan. How you feeling now?

Off to big gig parents evening shortly -when very tired and could do without it. Still chocolate and apprentice on after.

trice · 07/05/2013 18:06

Amber I hope the diagnosis of your ds is going to be helpful.

Malt, congratulations on a manageable diagnosis. I hope it all goes smoothly.

I am feeling a bit anticlimactic tbh. I was all geared up to start my first cycle of capecitabene but they want me to do two weeks of steroids first. And I can't even start those until tomorrow morning. So I am feeling tired and petulant. Oncologist was very careful in not getting my hopes up, so I am convinced he is expecting the worst. Many tears, but not in front of the kids. It is a very hard road.

amberlight · 07/05/2013 18:36

Trice, oncs have professional liability insurance and medical councils to consider, so cannot say anything useful for those reasons. It's not because you're a gonner. It's a very hard road, yes, but blimey stuff is good now.
What have they said about surgery?

MaryAnnSingleton · 07/05/2013 18:52

a hug for trice and one for frazzled amber xxxx

OP posts:
coorong · 07/05/2013 20:07

trice so frustrating when you gear yourself up for one thing .. then they pull drugs out from under you ... hopefully the steroids will work their magic ... I send you the Biscuit of happiness Earth hope you're alright - haven't heard from you for a while ....

greetings to all others .. have been teaching BTEC students .... oh dear ... the darlings .... Wink

coorong · 07/05/2013 20:10

oh and malt you must be relieved to have more information and a plan - I hope it all goes more smoothly adn that you can relax a bit more ...

smee · 07/05/2013 20:13

G'ah Trice. They should have told you that. It's horrid when you're all geared up and they change it. Petulance more than allowed!

Amber is that good for DS? Am imagining it helps with uni? Hope so anyway. Smile

malteserzz · 07/05/2013 20:24

Evening all
Trice I'm sorry you're going through this, Sending you a big hug

Thanks for all of your thoughts today, I feel better than I did yesterday as the news was more positive than I thought. Then it hits me that actually I'm only at the start of the journey and I haven't experienced any of the bad bits yet
Really want to go back to work until my op on June 4th.i think it would stop me brooding at home but then I'm not sure I'm ready
Love to all x

amberlight · 07/05/2013 20:36

Those newer to our lives might not know how splendid our DS is. He's made his way past dyslexia, dyspraxia, eye surgery on both eyes and short-term-memory differences, hurdled past DH's brain haemorrhage and my cancer stuff, come out of it with a brace of good grades at GCSE and good enough A level results to get to Uni...played rugby at national level, been Prefect of his school, has lovely friends...and done all of that whilst also firmly and without doubt on the autism spectrum. He is also such a caring and lovely young man. Couldn't be more proud of him. So yes, I reckon the formal diagnosis will help him get through Uni as well. He's been struggling for the whole year so far and finally 'ran out of steam' recently. Not that surprising, really.

Malt, yup, work is good. If you have a supportive team who are going to be practical rather than faint or sob or some other weird set of reactions you don't want to deal with.

Gigondas · 07/05/2013 20:45

Ds sounds lovely amber- hope that gets the diagnosis is forthcoming.

Trice-agree with amber that they have to be cautious. Cancer protocols based on this and it is bloody horrible when geared up. However steroids should help manage chemo side effects whic is a good thing.

Mas-bio oil is greasy .can you bear to wear gloves as that you wear for 20 minutes to help cream sink. I used it with coconut oil on chemo to help. This soaked I fast .

Malt-glad plan brings some relief. You will be surprised how quickly it goes.

Sparkle-pleased move seems to be good and hope settle in soon.

Ash- how you doing?

Hugs and waves to everyone. Am knackered after mini gig nocturnal antics , have had day of teething/cold. Mashed to see acupuncturist which will hopefully help sleep. Just need to keep awake for the apprentice.

Candies lit for ned and topsy tomorrow.

topsyturner · 07/05/2013 21:06

It's thursday Gig , not tomorrow .
halfwit Wink

Trice it's awful when you get yourself geared up for treatment and then it doesn't happen isn't it ?
I don't think "normal" people realise how much it takes to psych yourself up for some of this !

Amber you should be proud of that boy . He's achieved so much in his life already , and that's in no small part to the start you and DH have given him !!!

Apprentice !!!
DH thinks one of the blokes is a cross dresser .
And so it starts ..... Grin

Glass of wine anyone ?

Gigondas · 07/05/2013 21:31

Hangs head and blames drugs/children for Brain rot .

Where do they find them? GrinShock

amberlight · 07/05/2013 21:40

Diagnosis given. Wine drunk.

sparklesunshine · 07/05/2013 21:42

Amber, amazing son you have there!

Does anyone have an opinion on ports? (the ones under your skin).. They gave me the option to have one put in as they're more standard here and I'd be able to bath, swim, go to lakes etc. Also, they'd need less care and I'm having trouble sorting out enough with my kids as it is... I think it would make me feel more contained as well.

sparklesunshine · 07/05/2013 21:43

(cross posted amberlight) hope all went according to plan?

amberlight · 07/05/2013 21:48

Aye it did.
I had a portacath. It was brilliant.

Gigondas · 07/05/2013 21:52

Cousin has had hers in for years with no issues.

topsyturner · 07/05/2013 22:03

Go for it Sparkles , it will make having your chemo so much easier .

DH (who is not anti gay at all btw) spent the entire Apprentice episode calling that unfortunate Welsh lad with the eyebrows , The Only Gay In The Village !

Oooh my skin is soooo prickly right now . Blinking sunshine !
That's gonna keep me awake all night unless I drink lots more wine

KurriKurri · 07/05/2013 22:10

sparkle - if I'd had the option of a portacath instead of them poking around for a vein each time I'd have leapt at the chance (well - stood up very slowly at least Grin)

amber - your DS always sound like such a great lad, good luck to him, and I hope the DX helps and makes things easier.

Apprentice - yaaaaaaaaaaay. You can practically smell the arrogance through the screen Grin

trice - (hugs) - horrid when you are geared up to be knocked back, but steroids will help with s/e's hopefully.

If I had been team leader, I would have sold the lucky cats with a complimentary bag of cat litter Grin

AshokanFarewell · 07/05/2013 22:19

Spent most of the evening in the bathroom and then had a big old cry about it. Very cathartic! I'm shattered so will read and post properly tomorrow. Hope everyone's had a good evening :) love and good thoughts to all those who need them.

jchocchip · 07/05/2013 22:27

Aw trice sounds a wearing day, time for chocolate and Wine.

Malt that doesn't sound so bad, sentinel node and lumpectomy was what I had. I had grade 2 and didn't have chemo but as the ladies on here will say it is all doable. The way I look at it is that I was lucky to find it. Not lucky to have cancer, but lucky to find it while it was treatable. Better to whip it out now than continue in blisful ignorance for another year or two.
Amber - your ds seems to be doing well- hope he gets tge support he needs.
Sorry not good at posting on phone. Another long day waits tomorrow so nighty night. Waves to kk and mas and smee and topsy and ned and gig and sparkle and ash and coorong...