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Original poster

Spoons! Support for those with chronic pain & fatiguing illnesses

931 replies

Grockle · 03/04/2013 13:48

Spoon Theory here

OP posts:
fuzzpig · 08/05/2013 09:31

Lisa are you moving very far? Moving is really stressful as it is, I hope you can get some support x

Original poster
Grockle · 08/05/2013 21:45

My school trip was lovely, actually. Really chilled out, so it was perfect for me. Fuzz, they had llamas & they reminded me of you Smile Please don't blame yourself about DH.

So sorry you couldn't sleep, Belle. Do you have zopiclone every night? My GP will only give me 7 days worth on very rare occasions. When I take it, I have a half-hour window where I feel fine but won't recall anything I did or said when I wake the next day. It is really scary! Doesn't happen with Ami though.

How's the packing, Lisa?

I am preparing for the tribunal. I got some paperwork from CAB today which I need to read through.

OP posts:
gallifrey · 09/05/2013 09:21

Morning everyone, how are you all today?

I feel quite light headed and a bit funny, have been given some tramadol for my back.

fuzzpig · 09/05/2013 12:00

Hi gallifrey. Is the lightheadedness because of the tramadol do you think? I know it's quite strong, although have never taken it myself (DH did)

I am in a lot of pain today. Yesterday was really awful. DH gave me a massage when I got in (thankfully a kind colleague drove me home or I would've been in tears before the bus arrived I think!) which helped but today I just feel awful again. My neck and shoulders, elbows, knees, hands and ankles are screaming. Dreading work tomorrow, due to the BH our hours are changed slightly (we reduce hours by 20% but have to shift it around a bit) and I have to do 5 hours instead of 4. I get 2 breaks instead of one though so that's good.

Grockle I'm so glad your trip went well! :)

fuzzpig · 09/05/2013 13:59

BTW I have been thinking/reading about 'superfoods' (probably that term is a bit passe now) and getting more nutrients from food and started a thread here if anyone wants to come along :)

belleshell · 09/05/2013 14:34

i think im going to stop my ami and see how i get on!! i slept well last night but then poor DD was ill so we were both up at 2 am drinking tea!!

gallifrey · 09/05/2013 14:50

I had a horrible night's sleep despite taking tramadol and amitriptyline, I woke up a couple of times absolutely dripping in sweat :(

fuzzpig · 09/05/2013 18:05

will be back later (to whinge a lot! you have been warned!) but I just added these to my wish list, somebody mentioned this kind of product at the CFS group, wondered if anyone had tried similar?

arthritis gloves

belleshell · 09/05/2013 18:49

Oh Gall, i was the same, once i had gone back to bed started with the sweats.... so another bed change ive even had to buy new pillows today, cos mine are ruined....and i hate new pillows!!

buildingmycorestrength · 09/05/2013 20:40

Was it neri who was asking about hand stuff? Think so.

fuzzpig · 09/05/2013 21:17

Just coming back to rant... In so much pain today, even worse than earlier. Can hardly stand, stairs are agony.

Forced myself to have a salt bath but while it is effective at the time it soon wears off.

I am so scared and angry, why do I feel like this again, it's worse than it has been for ages.

I actually went to bed earlier, I virtually never do that in the day because I know it is a bad idea for sleep patterns but I feel desperate, I hurt so much.

Freaking out about the next two days.

buildingmycorestrength · 09/05/2013 21:42

Oh, fuzz you poor thing. Awful.

Original poster
Grockle · 09/05/2013 22:00

Sorry you are struggling., Fuzz.

I've been in trouble for having more time off work (last Thurs when I was in hospital)

OP posts:
buildingmycorestrength · 09/05/2013 22:16

Grockle how are you? Have been thinking of you and really hope you find some support in going to tribunal Having that sorted would make all the difference in the long run.

Weegiemum · 09/05/2013 22:29

I don't want to make anyone feel bad but I've had a good week!

We went away Sun-Mon-Tues to the Highlands. Went up the Cairngorm funicular railway (one of the things I hate about this is that I'll never go up a mountain again - but I did!), saw nesting Ospreys, went to the Highland Wildlife Park, ate out etc. Was lovely!! On 2 occasions over the weekend I walked half a mile (with walking poles) and I'm SO proud of myself!!! I'm really tired but my legs do feel much looser and today I went to work today without my stick!

Yesterday dh had an interview for a job. He's been working (he's a GP) part time in a few surgeries, doing locums etc. the main place he worked is a small rural practice, 1 main doctor plus pt assistant. The Principal retired 6 weeks ago - an dh got the job!! So we finally have some security, that's been lacking for the last few years. Even if I have a relapse, he can get locums and be there for me.

Biggest issue is my neuro pain. On my consultants advice I cut down my amitryptaline and my feet have been agony. Gone back up to previous dose tonight.

lisad123everybodydancenow · 09/05/2013 23:12

This reply has been deleted

Message withdrawn at poster's request.

Original poster
Grockle · 10/05/2013 03:01

That's great news, Weegie.

Lisa, your post made me Grin. Sorry! I thought I was the only person to fall put of doors! Hope you are ok. X

OP posts:
Solo · 10/05/2013 10:10

Hello all. I;m sorry, but I can't back read all your posts, but wanted to say hello.

I'm exhausted. Yesterday I had a 14 1/2 hour day at work. I left home at 6am and got home at 11pm. I'm sitting up in bed right now in pain and tired out but unable to sleep...I'm in the bit of the sleep cycle that has me awake on and off all night. I'm also having night sweats and flushes which don't help and I'm up between 2 and 7 times a night to wee!! so not much sleep happening and I'm really feeling ill with fatigue. Can't go sick as they are getting rid of anyone who is off sick, so I'm having to keep pushing on.

Original poster
Grockle · 10/05/2013 11:55

Oh Solo Sad

OP posts:
fuzzpig · 10/05/2013 15:08

Made it through work just about, then on the bus home got a text (why the hell my dad sent a text instead of phoning I don't know) saying my nan has been taken to hospital and they've found what seems to be a tumour. Last words of text: it's not looking good.

It's not fucking fair :( got home to an empty house and have no idea what to do.

Original poster
Grockle · 10/05/2013 16:43

Oh Fuzz. Is your nan nearby? Can you give your dad a ring? Maybe he couldn't call because he was on a ward or something? So sorry Sad

OP posts:
neriberi · 10/05/2013 16:53

I can't keep with the pace of this thread! yes it was me asking about hands. Have a good weekend all Grin

fuzzpig · 10/05/2013 17:00

Thanks grockle I have spoken to him now. He had texted and then left his phone in the flat while visiting - not that I was in a fit state to talk anyway.

Nan and my parents all live in my hometown, which is under an hour by car or a couple of hours by train/bus. I did ask if I should go down there, he reckons not. No results from MRI yet. So I will just be working tomorrow and keeping a check on my phone, DSD babysitting again and I will be glad of the extra company when I get home as DH will be working all day.

Feel a bit lost and restless which is not a pleasant combination with joint/muscle pain Hmm

In other news I suggested the possibility of a further reduction in hours. I think what I really need is to not have to work more than one day in a row - it's the consecutive days that make me ill. Something to bear in mind anyway.

NeedsTherapy · 10/05/2013 17:42

I'm just comin here to complain, please ignore me.

I'm shattered. My dad had a colenoscapy (I wish I knew how to spell) and they told him he had thread worm. My mum mentioned this to my sister who said, oh yea we had this 6 months ago and were all treated The dau after MY GIRLS WERE ON A SLEEP OVER. She didn't think to mention it. Angry I've spoken to the dr and have got myself, dh an dc treated too. I used to have really bad OCD and this has bought it all back :( I've spent the entire day cleaning and have only just finished upstairs. I still need to clean and tidy down stairs. I'm so tired I don't have the energy but the thought of worms and eggs being anywhere in my house is making my skin crawl. I've not started dinner yet either and it's already 5.30. Bed time soon and thankfully dh is home tonight.
I'm so angry and annoyed and all I want to do is sleep, but I need to keep cleaning. There are live bugs, un hatched eggs and germs all over my home. I can't even let the girls upstairs until down stairs is finished or they'll contaminate it and I'll need to start again.

I think I have a problem :(

gallifrey · 10/05/2013 18:10

oh you poor thing, that sounds awful, I would be the same too about cleaning. Even though I have a really bad back I was cleaning the carpet yesterday, have no idea why. Was in so much pain I was crying while I was doing it :(

I have been given tramadol to help my back pain and it's making me feel very drowsy and a bit odd. I have a part time job at asda and I've just phoned and told them I can't go in tomorrow and couldn't even speak properly to say my name.