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TAMOXIFEN**33**

996 replies

MaryAnnSingleton · 19/02/2013 14:04

new thread - bring the trolley over here....

OP posts:
KurriKurri · 20/03/2013 15:12

lad??? - glad !

smee · 20/03/2013 15:59

Ooh, well done, Sparkle. That does sound good. Just got to hurtle through the treatment now. Not easy, but you can do it. Smile

Is Pen out yet? Hope so and safely home. Smile

Ned, so pleased you got some reassurance from BCN. Can totally get why you were so worried. Doesn't take much to tip any of us over the edge, does it. x

Gracie lovely to see you. How are you feeling these days? Hopefully a heck of a lot better?? x

Am shuffling onto the box for you, Gig. I had awful back problems after DS was born. Back to back labour bent my spine, then all the lifting meant it never recovered. I had pins and needles too due to nerve compression. Horrid, but definitely not cancer, so take heart. Babies should be fitted with lifting gear! Grin

Waving to Kurri, MAS, Jane, Amber and anyone else who's lurking. Freezing again here. Where's spring?! Hmm

Spero · 20/03/2013 16:12

Good luck sparkle - my first chemo was horrible, but I think that was again more to do with the newness of it all. Just had number 4 and it gets progressively 'better' because you know what to expect. I have been at work today! The steroids kicked in about noon and I felt great. I think it effects people very differently but it definitely hasn't been as bad as I feared.

Sadly, I have had many compliments on my wig - never got ANY compliments on my real hair...

Gigondas · 20/03/2013 16:42

Agree with spero- chemo does become routine as you get into it.

Thanks for sympathy and box sitting. I was feeling pretty low when couldn't sleep this morning but bit better now. I luff you lot Grin.

Kurri- Grin At talkative women. I have now remembered how one of my bosses makes me stabby when he yips on. Also you missed an aibu about going to see a medium this morning.

Gracie and smee- thanks for pointing out the obvious about effect of kids. The nerve pain is exactly as you describe gracie (it is sore at times but it is a sort of itchy tingling in my forearm and finger/thumb that is most persistent). Groin strain is am sure related.

Also mini gig probably less likely to want a Carry now as I have put a child lock on the DVD cupboard. She isn't happy about this development and has squawked and wagged her finger at both the nanny and me.

As we haven't seen topsy in a while I have laid some bait - here topsy topsy orange men in leopard print

Topsy just loves a man with a tan esp. Tom jones. I believe kurri is partial to dale winton for anyone who hasn't seen this oddness obsession before.

Off to listen to a technical speech on the budget- that thing you may see flying past your window is likely to be my will to live.

tiredteddy · 20/03/2013 17:05

Hi ladies I hope that you don't mind me asking a couple of questions, if I'm in the wrong place tell me and I'll leave you all alone.

I had a thread about 18months ago about the BRCA1 gene and my surgery (mastectomy and reconstruction). Someone from here was very kind and supportive when I developed a rash in reaction to the strattice they used.

My mum has had a mastectomy and reconstruction last October. One wound has taken ages to heal. She had an oedema? On the top part of the breast so they didn't want to aspirate it. They have left it until now with regular dressing changes assuring us that it will heal and her body will absorb the fluid.

Now she's developed an infection. She's gone back to her surgeon today and he's decided to remove the implant. They are keeping her in and I think doing it on Friday.

I just feel sick with worry. I have no one to talk to as she is very private and doesn't want everyone knowing. I don't know what they will do. If she have an empty breast or if they'll take the skin away too. I don't know how to help or support her. Or what to say.

I'm not even sure what I'm asking you.

amberlight · 20/03/2013 17:10

Hi Tiredteddy. Oh eck, yes, that's plenty for you and your Mum to be coping with. I'd hope that the ward staff could talk you through the basics of what they plan. But I don't know enough about it myself to comment, alas.

Gigs, arrgh re the pain etc.

Sparkle, hurrah!!!

Tired after yesterday and doing too much again. But I've only myself to blame for that.

smee · 20/03/2013 17:59

Ooh, the return of the Orange Men. Top idea, Gig. Love mini-gig's finger wagging. Grin

Waving to Spero. Good to hear you're high on steroids. Hope they let you sleep though... Hmm

tired, I asked about infection with my implants as it can happen. I've avoided it but it's not uncommon. I know one woman who had hers removed quite quickly, then the surgeon waited for her body to calm down before re-placing with another implant. That one was fine, so possibly that's what your mum's team are thinking. Maybe someone else on here will have more ideas. Stick around though and ask us whatever you want to.

Amber, do we need to break out the duct tape? Smile

MaryAnnSingleton · 20/03/2013 19:00

hello tired -afraid I've nothing to add as no experience of this.
Back from support group which was quite busy -i have a headache now Smile
Sort of wondering about my hip (the one which i think is arthritis- it has been aching again and noticeable at night when I lie on that side) It couldn't be bone mets though surely ? I'm thinking my scan wouldn't go down that far -don't want to start fussing about it though as it's most probably arthritis.
Sorry to be self centered and just write about me

OP posts:
smee · 20/03/2013 19:05

Sounds very unlikely to me, MAS. Could you call BCN to ask. Might be reassuring. Hope headache goes. x Smile

Gigondas · 20/03/2013 19:05

More likely arthritis or just lieing on it . Also my lovely nurse said chemo can make you much weaker and more susceptible to muscular or other physical aches and pains.

Yes in theory it could be bone mets but I think it takes time to get to point you feel them and given have checked for other things that would probably have been spotted. Mention it to Bcn as no point suffering (coming from me I know it is a bit rich).

Have a nice relaxing wine Wine to help.

MaryAnnSingleton · 20/03/2013 19:22

ah thanks you two Smile Think it's a reaction to being among the other secondary ladies maybe !

OP posts:
Gigondas · 20/03/2013 19:53

Look mas this will cure you king of cool

graciesmall09 · 20/03/2013 19:55

smee thank you for asking but I'm feeling generally quite well. Back to work in 2 weeks so I shall see how that goes.

mas agree with gigs as chemo seemed to cause lots of aches and pains with me but no harm in getting it checked out.

tiredteddy sorry no experience of infections, sounds nasty. Hopefully topsy will be along soon as she had a huge infection after her reduction so she may be more helpful.

I have left some '99' cupcakes on the trolley for you all.

MaryAnnSingleton · 20/03/2013 21:31

thanks gracie Smile think you're right.
gig oh my !! Jason King - arfsome.

OP posts:
tiredteddy · 20/03/2013 22:00

Thanks Smee for your advice. And everyone for their kind words. I've managed to speak to my folks now. Mums wound had not fully healed and on Sunday started weeping bad stuff. It's developed into a hole with the implant visible. It's got to come out. Then they will give her some strong antibiotics until the infection had cleared. It apparently looked very nasty. She will then have to have a few months to heal recover before they try a new implant. I worried how she will feel. She will be left with an empty breast during that time which will be hard for her.

smee · 20/03/2013 22:35

oh your poor Mum, teddy. That wound sounds horrendous. Good that they'll re-do the op down the line if that's what she wants to do.

Back to work, Gracie. That sounds like a big thing to mark. Do you like what you do? Would imagine that'd help! Grin

Jason King, Gig. Cwooorr...!! Grin

topsyturner · 21/03/2013 00:48

GrinGrinGrin

Evening all

Been a busy girl .
DDs 10th birthday tomorrow (eeeeek my baby in double digits !)
Been planning her climbing wall birthday party (to be held this Saturday) and cake and stuff .

Oh who am I kidding ?
My name is Topsy , and I am a Candy Crush addict ......

PenPerson · 21/03/2013 06:32

Happy birthday Topsygirl, climbing wall party sounds fab !

I am at my parents which is very odd. Feel ok but very miserable. Guess that is the hypothyroid state I am in. Sore throat from the treatment now anxious re scan results but aware I have ages and ages to wait.

Tomorrow I can take my meds and hopefully feel normal again soon.

Not going home till Sunday as I can't be closer that a metre to the dc. I want to hug and kiss my babies ! It is hard staying away. My ds looks all sad and is face timing me a lot and I miss them.

I am going home today though to spend the day on the sofa with the giant hooligan puppy and his mum whilst the dc are at school so I will get some hound time.

MaryAnnSingleton · 21/03/2013 07:33

happy birthday to junior topsy ! I will not look a candy crush stuff because I know I'll be sucked in... I remember the cafe game which was exhaustingly addictive.
pen hope that doggie cuddling is therapeutic - not too long until Sunday.

OP posts:
topsyturner · 21/03/2013 08:57

Pen doggy cuddling , as well as being therapeutic , is probably highly advisable . Given how damn cold it is today !!!!

Had a lovely friend call round yesterday .
She lives at a farm/stables , and had been out chopping wood and kindling for herself .
So she brought me a load over , and built me a fire !
She definitely gets good karma !

Who is doing what today ?
I am staying under my blankie .
Got another blankie crochet under way , and the coffee is percolating .
HND will be round after her school run . She's a bit down as her wound is playing major silly buggers Hmm

Who is in charge of breakfast today ?

topsyturner · 21/03/2013 08:59

Oh and Mini Topsy is having a great day so far !
She left for school with her school bag , lunch box , large bag of haribo (birthday treat for classmates) , a large pink plastic bowl , and a full Viking woman costume !!!!!
That'll keep you guessing for a while Grin

smee · 21/03/2013 09:30

Pot of porridge on the stove, Topsy. Does keep the cold away though. Bugger about HND's wound. That's been a bit of an epic one. Hope not infected. Give her a gentle hug from me. And your DD's 10?! Will you be abseiling with the cake? In leopard skin, of course. Grin

MAS, hope hip not too ouchy today. Gig you too. Are the horse pills working? I do hope so.

Pen, have a lovely cuddle with the hounds. Not long to go before you're back home properly. the worst's over you know. I know the wait for results tough, but they're good at giving treatment which works these days. Smile

Desk full of work here. Better get on. Brew anyone? Smile

Gigondas · 21/03/2013 09:35

Brew For me As working too. Had better night and does seen bit better but does anyone else get to point with pain that they are so worn down and used to it it's harder to tell if better/worse.

Happy birthday mini topsy-love the outfit. Hug hnd and send her love as wound issues are the devil

Copthallresident · 21/03/2013 09:36

gigs You called? Tell all.... I love a good story of school lunacy.....

Sorry I have not been around, managed to hide the thread and then all life was taken over with DDs AS English Lit coursework now in, my blood pressure is just coming back down again...... DD very sweet this morning, Thank you so much, I'm sorry I was so horrible, but it is just part of my creative process Shock Though those of you with dyslexic children, this is your future........she has all these great thoughts and ideas whizzing around her brain but just finds it so hard to get it on to paper in the right words and with any sort of structure.

gigs Sorry to hear you have been in pain and not sleeping. I also hate MRIs but at least hopefully you can put your mind at rest and it is a step to getting the right treatment. I remember my physio after my surgery saying that when you have surgery it is as if someone has taken the surrounding muscles and sort of screwed and tightened them up and then that causes all the muscles and tendons that are connected up to get tight as well so that surgery that affects your shoulder actually can end up affecting your hamstrings, hip joints etc. especially if you are weightlifting carrying around a sturdy toddler. How is your course going?

Ned I used to have periods whilst I was on Tamoxifen, about one every 18 months, very heavy too. geekdoctor used to refer me for a blood test and vaginal ultrasound (but I think that was because my history of cervical cancer put me at more risk of endometrial cancer) Everything was OK and the blood tests confirmed that the Tamoxifen was just keeping me perimenopausal, short of full menopause. My tumour was very highly Estrogen positive so I used to worry a bit but he pointed out that part of the effectiveness of Tamoxifen is that it mimics Estrogen, binding to the Estrogen receptors to stop any other Estrogens doing so. The amount of Estrogen in my body was not a threat, or rather in geek doctor language there are no statistics to show that that level of estrogen could trigger recurrence. As he pointed out my breast remained soft whereas before I was diagnosed they were always like a bag of marbles with razors attached...... I have had no periods since I came off the Tamoxifen and it was then the night sweats and sleeplessness that have been my symptoms of menopause started. Of course given the timing of the freaky periods, usually on holiday, especially the riding holiday when we spent four hours at a time in the saddle Blush, I couldn't help thinking sod's law was involved Hmm.

pen Sorry you are feeling so rough, sounds a tough treatment but the end is in sight.

sparkle I hope your first treatment goes well. I didn't get a line and I have the burnt out veins to prove it, a real pain when it comes to blood tests etc. I did catch an infection in my first cycle but I stupidly went along to a dinner with a group of families in the week I was most vulnerable and didn't run a mile when one of the boys complained of a sore throat. After that I was more careful and cuddled my DDs throughout the rest of the treatment without any problems.

Waves to everyone, hope everyone is well Flowers Biscuit

Copthallresident · 21/03/2013 09:48

For those in need of breakfast, puts some of gigs and I's new Italian "artisan" baker's (because we are dead posh and do not have ignores the massive Greggs factory up the road just any old bakers) gorgeous croissants, and Ciabattia, and Brioche, and fruit loaf, on the trolley for breakfast, and as it is nearly elevensies, chocolate brownies. You can tell he is Itallian and artisan because he looks a bit mad, wears stripey T shirts and has a website www.rubensbakehouse.com/pages/about-us