new thread - bring the trolley over here....
Please or to access all these features
Please
or
to access all these features
Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.
General health
Copthallresident ·
28/03/2013 22:46
Have Reuben's Hot Cross Buns, will put some on trolley if you are nice to me < tries to be manipulative > Oh, can't be bothered, throws them on trolley!
gigs glad your nurse turned up, holidays are always shit for wobbles. Please lay out your wobbles for us over the holidays and we will sit on them,
Just went to Book Club at local Gothic pile, Wuthering Heights, as Jchoc knows we have been there done that. But when you feel better, might be something you'd enjoy? All ages, all types, brilliant!
mas I am getting the vibes that you have same stripy top obsession 
kk goondog sends Old lady dog reinvigorating vibes
jchocchip ·
29/03/2013 09:01
Morning all. Hands must be annoying, pen - hope your thyroid is balanced out soon.
I should go out for a walk today -will see how I feel when I get up... heavy period again, meds are kicking in but leaves me feeling washed out and wanting to stay close to home. Time for a 
jchocchip ·
29/03/2013 09:40
ginger don't feel like a gatecrasher, you are very welcome! Although sorry to hear that the diagnosis was as you feared. Hang around for hand holding and the best snack trolley on mn.
Two weeks mas! That is annoying. Mine are better now I have taxenemic acid and metaformic acid cocktail to take. The cycle lengthened and I thought they were trailing off but then had very heavy episode and had to get pills in order to be able to leave the house! I blame it on the tamoxifen and the hairy chin too 
jchocchip ·
29/03/2013 09:44
Xpost topsy stashes chocolate for end of lent- thanks. No bacon but dh just fetching me another and bread and marmalade
KurriKurri ·
29/03/2013 10:01
Morning all
Pen - hands sound very sore, but I think it is very likely to be thyroid - my skin totally peeled off when I was very underactive after the RI. The GP should be able to give you something to help ( I had various things during the course of my problems - dermol 500, hydrocortisone, - I washed my hands with e45 or oilatum handwash too)
Gingerroots - not a gatecrasher at all - just jump, there is absolutely no obligation to try to keep up with all the posts, we move very fast, and i talk largely jibberish so you can skip most of mine 
(except this one obv )
So sorry to hear you have had this DX, - but at least you know now and you have a treatment plan.
I went on a chemo trial - I mulled it over for a while, and decided in the end that the trials never mean you are going to get lesser treatment, only something extra.
Also they tend to give you more check up appointments (trial ones and normal oncy ones) - so I felt as a hospital phobic it would force me to get used to going into the hospital and give me an extra chance to talk over any concerns.
I had a trials nurse (and am sure you would too) and she was lovely - an extra ear to bend if I needed it.
The only thing I had to 'do' apart form actually taking the drugs, and having more appointments, was fill in a booklet every so often with health questions - nothing hard, I used to do it while I waited for chemo.
So - that is my experience. It is a hard decision and totally individual. I was uncertain but once I had made the decision to go ahead, I knew it was the right one for me because I felt almost relieved. But there is no obligation to do these things, and if you have any worries, talk them over with the trials nurse. I also garnered opinions from my family, and their only question really was 'as long as you get the best treatment...'
I didn't have avastin - but I think someone on here did (I htink it might have been Sand Ripples, and she sometimes pops in over holidays to say hello, so might be able to help you more)
Its only fair to give you the downside too - I was on an accelerated chemo trial (which meant I had different drugs from my hospitals standard, to fit in with the trial as a whole), I had more cycles than normal and closer together with a white blood cell booster in between. (That was the category I was randomized to - it could have been any one of four different regimes, - think I got the short straw in terms of amount of treatment!) I did get pretty ill on chemo, and was hopitalised, but that was because of the intensity of the treatment I was having, and would not be the same for you trial. And who is to say I wouldn't have been ill on chemo anyway? -
So - I don't know if that has helped at all. Personally if the circumstances re occur and I was offered another trial, I would take it. But it is entirely what makes you feel secure and happy in your treatment, there are no rights or wrongs here.
Just waving - as this post has got rather long.
Old lady dog a bit perkier today - she's been out to sniff the daffodils in the garden
KurriKurri ·
29/03/2013 10:09
jane - sorry you are feeling washed out, - I used to have terrible periods, because I had fibroids, - fortunately all pre cancer and I'd had a hysterectomy by then, so I sympathise greatly. I had a pill cocktail to take too, and it did help a bit, but as you say, not always.
I imagine it is the delightful tamoxifen, but obviously I'm not affected in that way, but yes to hairy chin' Anyone else growing their own fluffy sideburns too?
I'd go with the hot water bottle and cuddling up in a duvet regime of treatment
gingeroots ·
29/03/2013 10:33
Thank you all for your responses .
I don't think I have much time to decide ,was told on Wednesday and return on Tuesday to agree to chemo ( though having deleted ansaphone message re appointment in a panic ,I'm not sure which hospital my Tuesday appt is at ! ).
I have a leaflet which I need to reread . It suggests that the trial drug ( if I get it of course as it's a randomised trial ,sorry forgot to say that ) starves the cancer cells of oxygen .
But how will it know which are the cancer cells ....won't it starve others ?
The registrar told me verbally ( tho not mentioned in leaflet ) that if you are on the trial you follow a stricter schedule which doesn't allow for the 4th cycle of chemo they sometimes opt for . Which sounds good to me .
Just had big row on phone with one of my brothers regarding speed at which we need to organise our mothers care - I'm her main carer .
And I only told her yesterday afternoon.
smee ·
29/03/2013 11:03
Ginger, sorry you're here at all really, but you are most definitely not a gate crasher. Stick around and let us help you through it all. I didn't have to debate my chemo, as it was the gold standard at that time for my type, so I didn't quibble. Wasn't offered a trial.
Gig, glad nurse called. Stay in bed while little Gigs in the park. Hope you can do some nice distracting things with them later. xx
Jane, curl up and watch Easter films with the cat. Sounds like you need a bit of tlc.
Hope hands don't crack, Pen. Sound very sore. Have you any E45? That usually works.
Kurri, can I have one of those buns?? Sound mmm...
And I agree with the others, MAS. You always look so together in pics and photos. I do get the clothes thing though, as am similar. Very hard to break from the norm in this house
Off for brunch with a gaggle of lovely friends. I have been promised Brick Lane Beigels and bucks fizz. DS in a huff as they're veggies, so no bacon. Have a lovely day all.
Don’t want to miss threads like this?
Weekly
Sign up to our weekly round up and get all the best threads sent straight to your inbox!
Log in to update your newsletter preferences.
You've subscribed!
Please create an account
To comment on this thread you need to create a Mumsnet account.