TAMOXIFEN**33**

[MaryAnnSingleton]

new thread - bring the trolley over here....

And tea/cake for ned too- you are clearly to strong for normal meds so will need to tweak. Don't panic tho as will get it right.

And thanks for vote of confidence. Was feeling very low and fed up as still at home resting up but have telephoned physio to get appt and will see dr teddy bear next week. Was meant to be dropping some painkillers I was taking for my shoulder as that was getting better but now this.

But all those who said it likely baby related probably right- had something similar now i think on it with big gig who was no where near as sumo muscular as mini gig.

Piling more magazines and fbs onto the trolley to sneak into Pen. Hope you're okay in there. xx

Amber, it will be fine but still it's another marker. I always get teary after my appointments - surprises me, but always happens. You need treats woman!

Ned, first chemo stopped my periods, so I haven't had one since and am now officially post menopausal. I do remember my Onc saying not to panic if my periods came back on Tamoxifen, as it happens to a lot of women, though they did say to let them know if they did. It's bound to need some fine tuning for lots of us. That's all it is, don't stress xx

Glad you're feeling a bit lighter, Gig. I held a friend's baby this morning for five minutes and my back ached. Had quite forgotten how physical it all is.

Nowt happening here. Working away, for anyone who wants one.

Ooo yes please for

ned try not to fret- I still had periods on and off while on tamoxifen.
Am sure the Drs lovely will sort out a solution. Meanwhile I am having the longest one ever - curiously mine have returned to normal in terms of roughly every 28 days or so despite the chemo, but this one is lingering in an annoying way.

Waving to MAS. How's the no chocolate going?

Amber, what time's your appointment? Pours

waving back to smee ! no choc is going ok, boring as anything though
Lots of good luck to amber xxx

I don't think of myself as a great chocoholic, but I'd struggle I'm sure. How long before Lent's over? It's next week isn't it?

All ok. Phew.

That is great amber.

Yay!! Great news, Amber.

Great news amber.

I am doing ok. Enjoying the rest tbh as I have felt dreadful trying to keep going at home for the last couple of weeks.

Home tomorrow after my scan and starting to get back to normal from Saturday.
Another scan/ diagnostics in 6 months so I won't know till then if I need a repeat treatment. I won't feel like it is over until that scan is clear. This cancer lark is the long haul.

hooray amber !!!
pen that all sounds good -the getting home bit anyway..
Lent ends on Easter Sunday,so 2 weeks,just under....

Afternoon lovelies

OK, stress over. Spoke to BCN and she said that it was reasonably common to have some periods on Tamoxifen, but not worth stressing about for now, as I am seeing the oncologist at the beginning of May (is it me or has that come round really fast?!) and to mention it to him and he might put me on Zoladex injections, which would give me a proper full on chemical menopause and shut down my ovaries altogether.

Spoke to a friend (fellow mum from DSs school) who is a gynaecologist and she said it was reasonably common too, and that the GPs were just being cautious, as I am possibly the only one they have on their books that this is happening to, so just playing it by the book. BCN not at all worried.

Thanks for lovely messages. Feel a bit to have made such a fuss. . .

good news on getting him tomorrow. When can you start the thyroxine again? Hopefully that will make you feel a bit better. Sending lots of hugs x x x

amber YAY for "all OK" - that sounds excellent to me!

Waves to all. DS demanding food like some kind of ravenous tiger. . . Will return later on x xx

That's good will be home after tomorrow pen and that you have a signal.

Ned- am glad you are reassured and it is good they are being cautious. That is quick for your next check up.

Can someone park their arse on box for me and light a candle? Have MRI on my neck and shoulder on Friday- oncologist rang as had seen couple of letters from physio dr about my issues.

She was nice and Didnt sound very cconcerned but said it had been a year since had done an MRI and the very top of my neck isn't in my ct scan. She wanted to check esp to see what is causing pins and needles pain (she did remember that has been an issue for a while on and off).

Whilst I am pleased that are doing something and i think it is unlikely it is sarcoma back , never say never so am bit scared and I hate mris. But suppose it will help Get an answer (worked ok when did one on my leg).

Will be very wobbly on Friday tho.

Gig - sitting firmly on the box for you, - it is good they are checking up, and hopefully can do something to help with the pain.

amber - hooray fr everything OK

ned - glad BCN and school mum have reassured you don't be , far better to be aware of things and ask about them, and as you say, GP's will often query things because they aren't specialists. Mine was always writing to my onc, asking about my treatment, and it's good to know they are taking care of you.

Off to a committee meeting tonight for my art club, I suspect lady who is hosting will have nice cakes, - I must try to resist as I have been quite good today eating wise and have done a few miles on the exercise bike (somehow in my head I think that if you eat something at someone else's house it doesn't count.) Am also going to friends for lunch on thursday and she will have nice things which I will scoff, so I need to get back on the wagon.

MAS - do you have a large egg lined up for Easter

kk no egg yet !! but definitely lots of chocolate for sure
Am v glad that you are reassured ned - hooray !
gig I'll hop on the box and am sending special kind thoughts your way for Friday.

ned I'm still having 'orrible periods. So much so that I have two lots of tablets to deal with them. Gp doesn't seem that worried. Hoping they will slow down soon...
Well done amber :)
Will dig put candle for gig for friday.
mas I've gone off chocolate I think. Dd had the chocolate fountain going on Saturday and I didn't fancy it. However, I'm sure I will be tempted by something a bit darker...

hello! sorry that i seem to keep dropping in and out. i'm still getting my head around it all, and then caught my daughter's flu for the weekend. hopefully that's the last of the bugs for a long long time!

thanks for reassuring me about the PICC, i'm happy to know it's not actually a direct line to my heart. plus, painless sounds great. i'm a big fan of painless. i really don't like the bruises from all my puncture wounds so far, so don't even want to imagine what chemo would do to my veins.

i'm also really happy to hear that most people have been able to avoid infections even when they're living with kids. they're going through so much already, i have no intention of avoiding them even if they're full of snot. becoming a hand washing fascist, yes, but snuggling up all the same.

anyone heard from pen? such a long process, hopefully it's almost done now.

also, as someone who worked in contraception before dropping it all for cancer treatment, hormones are funny things. they make people react in all sorts of good and bad ways. i'm happy the bcn wasn't worried about periods, but they may be able to tweak dosage a bit if you're still hurting? i would personally consider the lack of periods one of the few bonuses of that process.

i get my full results tomorrow. i'm assuming (actually blindly praying although I'm not particularly religious) there's nothing extra in there and we can start killing this cancer on friday.

thinking of you all, hope your cells are reproducing at the standard, healthy rate. (such a strange strange disease)

lots of good thoughts to you sparkle for today xx

Tons of luck today sparkle.

- really bad night with aches and pains. I have choice of sore hip or sore shoulder (which is fine but now more sore as lieing awkwardly cos of hip). I bloody hope MRI and dr visit on Monday brings some answers as fed up. Had to reschedule everything today so can stay home as dont really want to be out and about when In pain.

Morning all.

I have parked my extra large posterior on the box for you gigs. I ended up with a really bad back caused by carrying/nursing DD. She was a very cuddly baby and I ended up nursing/carrying her a lot. The funny thing was I had relatively no or very little neck pain but horrendous nerve pain down one arm into my hand and pins and needles. I had my first MRI about 7 years ago which showed I had degenerative disc disease with bulging discs and this was pinging a nerve causing the pins and needles and pain. My physio told me my job (i.e., sitting at a desk all day) was making it worse and tbh physio actually made it worse for me. Will be thinking of you and your MRI.

ned Glad your bcn calmed you. I spoke to my onc about this and he said it would be the chemo which stopped my periods not necessarily the Tamoxifen and not to be concerned if they come back.

mas I will stock the fbs with lots of chocolaty goodies for Easter Monday for you. Hope you are keeping well.

pen not too long until you are home. Hang in there.

Excellent news amber relief all round.

I feel bad not being around so much and I miss catching up but I seem to be rushing from one school thing to another at the moment and I am spending a stupid amount of time playing topsys game . I see she has brought a couple of you over to the dark side

Right off to hoover as mutley is casting and it is like fur city here. Waves to smee, kurri, jchoc, sparkle* and anyone else I missed.

Sorry meant to say good luck today sparkle - will be thinking of you.

Loads of good vibes for today sparkle - am thinking of you xx

Gig so sorry you had another bad night - constant pain is so debilitating, I hope they can get this sorted out for you asap. xx

waving to gracie, - lovely to see you - young topsy has a lot to answer for

Went to yoga this morning, so feel nice and relaxed.
Last night's committee meeting for my art group when on and on - because one woman is a real chatterbox and says 'oh I'm wittering on, just tell me to shut up' -but you can't really say 'shut up' to someone.
She's actually a very nice woman, but I like committee meetings for things to be over and down with as quickly as poss. and then I can go home. Host lady kept plying me with lovely biscuits, which I was completely unable struggled to resist.

thanks again, i've got an almost all clear. nothing in the 3 lymph nodes they removed (yay!) and liver, bones, etc all good. strangely, a couple of the lymph nodes in the middle of my chest showed on the large side for the ct scan, but I had a flu so that could well explain it. they will retest in a few months to check.

Now just PICC line tomorrow and chemo on Friday.

i'm looking forward to being up to yoga again kurrikurri, sounds great.
hope the pain eases for you gigondas

sparkle that sounds like a very good result so lad you have that appointment out of the way and can concentrate on getting on with your treatment and getting better xx