TAMOXIFEN**33**

[MaryAnnSingleton]

new thread - bring the trolley over here....

Spero - it is very common, - I think it has happened to quite a few of us on here, and you really don't want to be having it if your neutrophils are low as you could end up in hospital with neutropenia.

So postponement is a necessary evil I'm afraid - but sympathies, it is extremely frustrating and annoying when you are all geared up for your next cycle.

Duvet and cat solution to the cold sounds like an excellent one

Reassured to hear it is common - they went ahead when I was .94 but I can see that .7 is low. The alternative does sound worse so I will enjoy my duvet and stop moaning.

Spero, it is ridiculously common. I never had low neutrophiles but I had chemo postponed for all sorts of silly reasons (usually 'Oh dear, you coughed once. You must be ill, we'll talk to the doctor and see what she says').

I remember one memorable day stuck in the chemo unit when one drug had been incorrectly refrigerated and had crystallised, so the nurses sent out for another batch. The cytotoxic pharmacy was in a different hospital so we had to wait ages for it to be taxied over - and then the taxi got into a minor car accident, so they had to get another taxi to pick up the drugs! Fun and games.

I don't know if you remember, but further up the thread I was talking about having to go for basic blood tests to see if there was an explanation for my fatigue, other than 'cancer-related fatigue'. All the blood tests came back normal. I was actually gutted, I was hoping for anaemia or something so I could pop an iron tablet or two and make it all go away. No such luck.

It's Ok - moan away, it is very annoying - I hated having my appointments postponed - screws up all you plans. But honestly I had pretty bad neutropenia and multiple infections and it was truly horrible - it's better they err on the side of caution, even though you feel well in yourself.
I'd say huge treats are in order to cheer yourself up

User error, that sounds horrible, I am so glad I am having chemo at home as even if there is a screw up at least I have my cat, dog and ipad to hand in comfort of own home.

I thought they were being specially nice to me but nurse said it is much cheaper as they don't pay VAT for home treatments...

I hope your fatigue gets better - I am fine by day but come 8pm its like being hit on the head with sand bag. I wonder what causes it if blood tests are all good?

Just sitting here, watching the snow fall( quite pretty but I'm sick of winter ) and WAITING for the bloody phone to ring. I rang the breast unit yesterday and the rang back saying I should hear yesterday or today and that the ultrasound appointment could be as soon as Thursday. She said if a biopsy is needed it will be done there and then.

When The breast consultant was examining me the other day he had me in all sorts of positions and also spent ages on my armpit I didn't ask why. I've only got the courage to have a feel this morning and I can feel a small lump/ gland? On the bad booby side and not on the other. It's at the bottom of where the hair grows ( gross, sorry!) near where my boob starts and is a biggish baked bean size.
So now I have diagnosed myself with lobular bc and node involvement.
It's not even funny. I know I'm torchering myself but can't stop.

Hope you're all warm and cosy today.
Hugs to those dealing with cancelled chemo, dodgy thyroids, fatigue and feeling shitty ( whatever the reason). Also to old lady dogs in purple.

I had mine delayed due to neutrophils, Spero. Really annoying. My Onc told me to try and think of it as a good sign as it meant the chemo drugs were clearly having a massive effect.

l4k, you could have a swollen lymph gland due to a cold or some other low level infection. Can't tell you not to worry as that would be pointless, but honestly it could be nothing at all to do with cancer.

User, how long ago is it since you had treatment?? Took me a couple of years before I got my energy back and never found an explanation.

What's up, Topsy?? Hope nothing much.

Smee, I finished radiotherapy last May. It was October 2011 - April 2012 for chemo and radiotherapy started just after my last infusion. I had it for three weeks instead of five (this will likely 'out' me) as I was part of a trial that gave me the higher boost dose at the same time. I also had a higher boost dose than normal as part of the trial.

L4K, I'd tell you to try not to worry but I know that would be pointless.

do you know,I was warmer outside than indoors- madness.
My jaws are aching -is this a side effect ?? Mybe it's tension..am slightly anxious about work and running out of it,maybe that's it
Ds back to normal grumpy after school self- didn't even say thanks for nice doughnut I bought him.

actually it's really,really painful- dentist ? doctor ? (dentist closed all day wednesday) Am off to have some ibuprofen..

Oh MAS - poor you, I don't know if that is a s/e or not, a lot of achiness can be s/e' - but I never had it in my jaw. Tension does sound like a possibility, I would go to the doctor's - then if it's a dentist job he can give you something to tide you over and refer you on, but I wouldn't wait until thursday if you have a lot of pain.

thanks kk - it came on today, though both sides of upper jaw have had sensitive teeth for a while. This is just pain rather than that horrid electrical shock tingle. There are 2 bits of filling missing from my teeth on that side but they've been fine (ie no pain in them before now)

Oh dear mas hope the ibruprofen helps.

Been to Manchester today - very tired.

kk glad old lady dog has been modelling her purple coat today, it sounds just the thing.

User, I'd say it's just fatigue from chemo/ rads. It's not even a year yet, so that makes sense. Try not to get too frustrated, as you will climb out of it am sure. I even went for a run yesterday. chemo must have affected me more than I thought

MAS, I vote for dentist. Try taking ibuprofen and paracetemol. You can leap frog the doses, so every two hours you're taking something. That might at least let you sleep.

Jane was Manchester for work? Hope you can have a more relaxing day tomorrow.

Nowt to tell here. What did everyone think of that Shetland thing. Watched it on iPlayer last night. I got bored, so fell asleep half way through, then woke up to see another body. Was it me or was it a bit slow...

Quick update- had phone call from breast clinics about 4:30. Appointment is on Friday at 2 pm. Couldn't ask anymore as had 3 out of the 4 kids listening. Dd2 asked me where I'm going friday and I said "oh, just for a check up". I'll mention the fact it's my boob on Friday I think.
MAS, I hope the pain has lessened. I think it sounds like dentists department. Is there no way you can get seen tomorrow?

+ve vibes for Friday then 14k

Candles lit for Friday i4k.

Mas could you be teeth grinding? I do that. And I have two commissions for you mas .

Love to all- am doing ok but very busy as it is my office day. Have also done essay no1. Copthall where are you?

_14k lots of good vibes for Friday
Are you ok dear topsy ?
Jaw is really really painful- have probed with toothbrush and am certain it's the missing filling tooth- makes sense really...will ring and ask dentist to fit me in somewhere. What if there's and infection ? And will he be able to do anything too invasive ?
Gig you are lovely keeping me employed ( and it'll help with dental bill )

Will be thinking of you with everything crossed on Friday, l4k. Waiting must be horrid, so am glad it's before the weekend.

MAS, chemo affects the gums so maybe it's related as you're more prone to infection. Hope you get some sleep.

Night all. zzzz (hopefully!)

14k didn't mean to do an envy face (was on iPad in bed)...

teeth feel better this morning, but I guess I should ring and see if I can get an appointment.

Yes manchester was work related - nice train ride but a long day. Oh and I went on the tram which saved me a long walk. Popped in the art gallery too.

Glad your teeth are feeling better this morning mas

Having a bit of a lie in today but I suppose I better get up soon :)

thanks jane -yes,feeling better ! Hope you've had a nice rest after your trip

Ha ha, Mas.!!! I assumed you was giving the lump an evil stare for me!!! I liked it. Made me giggle.

at MAS's use of the envy face! - glad the jaw is a bit better today MAS, it does sound like the tooth, - chemo played havoc with my already delicate teeth. I think the dentist will do whatever he has to, to keep you comfortable, - if there is infection he'll dose you up with a/b's - but it might be worthwhile letting your oncy unit know if you have an infection.

Will be thinking of you on Friday l4k - glad that you have a date now xx

went to yoga this morning, and I'm contemplating going out this evening to a talk on reconstruction surgery. i don't really want to go because they've changed the speaker from someone I very much wanted to hear, to someone who's talk I have already been to (original speaker unwell). But I told someone I was going, so feel slightly obliged, but sort of can't be arsed as well

hope you enjoyed your lie in jane,

love to all x