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***Tamoxifen 32***

989 replies

MaryAnnSingleton · 15/01/2013 07:27

step this way dear ones...the trolley will be here in a sec...

OP posts:
digerd · 31/01/2013 08:55

COP
Yes, I too had the Cervical Insitu - but now called CIN111, I have been told, by MN members, and mine was 30 years ago.
DDs calcified cells in one breast were not malignant, thank goodness, and all is benign, so needs no op. Now I have learned of this, it does seem appropriate to reduce the minimum age for mammograms even further, as can only be detected on one as there is no lump to feel.

PenisColada · 31/01/2013 09:41

Good news for your daughter digred

I am feeling all a bit sorry for myself today. I want to post on those threads where people are moaning about having a cold but it is not fair on them so I have managed not to. Good job I am off alcohol at the moment.

Physically I am ok just a horrible tight feeling in my throat.

Gigondas · 31/01/2013 09:52

Oh pen I know that temptation -equally with some of dopier relationship threads. I was so happy when I read a "what don't you like on mumsnet" thread and someone said they would leave half the posters in relationships too. Made me feel less mean .

Can't better what has been said by topsy- I think you have to go with feeling shit and do whatever makes it easier to cope- moan here, eat,drink, watch tv, take ads etc . Eventually you do adapt to the new normal- although I will admit the book on good things about having cancer is bloody slim (smee posted an excellent article on being balanced about the positive thinking shit people talk about).

I am officially back to work as of next week but on light duties and alternating days in office/at home. I start at 2 hours a day and build up from there . And If it doesn't work I review it. It will get me focused again so will use working hours mainly to do more ou then work around that. Will see how it goes.

Massage shortly then off out later to work retirement do. Will help me hone the "oh you have cancer " responses . I think it may become "yes and fuck off if you can't talk to me about something else ". Grin

Need massage as shoulder killing me- looks at mini gig meaningfully and wants to remind her that mama is not for scrum practice.

HerNextDoorAt21 · 31/01/2013 09:52

digerd I have just had a mastectomy and reconstruction following discovery of a 10cm length of malignant DCIS. Mine was only discovered as there is a charity in Northern Ireland that dies early mammograms or people aged 40-49 and I chose to attend as three of my under 50 friends had all had breast cancer. So glad your DD had a better outcome than me.

MAS great that your DS has a college place

My surgeon was happy with progress of the wounds but still very leaky and have three drainage bags again .... Can't WAIT for the end of this !!!!!

Thanks MAS fr your donation ...... I am having a bit of fun and raising money for the local Action Cancer charity by getting people to guess the weight of my boob that was removed. Anyone who wants to donate, I have a just giving page ..... www.justgiving.com/Lisa-Hutchings1/?utm_source=Sharethis
Otherwise have a guess for a laugh anyway !!

Hi to everyone else, I will answer properly when I get my laptop out.

smee · 31/01/2013 10:40

digerd, it's such good news that your daughter's DCIS was found early. I had 'extensive' low and intermediate grade DCIS, but unfortunately mine had started to mutate, so they found a 1.7cm highly aggressive lump in the middle of it all. I wish I'd found mine earlier!

Pen, impossible to tell you not to anxt, but I think cancer docs are honest and usually right too, so the odds are that what you've been told is right. Go post on those threads. Cancer allows you to behave badly! Grin

HND, 3 drainage bags? Shock Blimey that must be so annoying. Good surgeon thinks it's looking okay though. I will head over to your page and have a guess. I did similar with mine, as had a wake for my breast, replete with breast themed party games, once of which was 'Guess the weight'. Friend made a breast shaped blancmange the same weight for people to hold and guess from. Grin

Did you sleep well, Copt?? Hope you did. Smile

Topsy, does that mean your DH will be at home one day a week, or just both days at the weekend from now. Sounds hopeful if his boss has been so straight in the past. Bugger though, as you might have to cut back on essentials like fbs. Sad

Didn't realise you were heading back to work, Gig. Shock Can imagine that's a bit daunting to say the least. Hope you get a massage for the shoulder. I'd bet thought of going back to work's not helping.

Hope the Japanese work's flowing now, MAS. Will you post some pics once you're happy with them? Smile

Does anyone know anything about Invasive Lobular Cancer. Friend's just been diagnosed. Sad

Lonecatwithkitten · 31/01/2013 11:21

Please ladies could I ask for your experiences.
I found a lump in my right breast 8 weeks ago went to the GP who referred me to the breast clinic I had a fine needle aspirate, mammogram and ultrasound all in one evening at the hospital. Ultrasound and Mammogram suggested normal breast tissue, consultant said if aspirate is clear he would do another one in 6 weeks if that was clear no need to worry.

Got a phone call next week aspirate appears to be bengin mammary hypertrophy come back in 6 weeks. That was last week, consultant said yes lump still there yes a bit bigger aspirate again may need to do core biopsy, but if second aspirate clear he would do a third aspirate in 6 weeks time before he was happy.
I have had a call today from a secretary calling me for a core biopsy ASAP.
First I will fess up to being a vet so I have a lot of medical knowledge 9more than is probably good). Comparing my consultant to myself this check, double check, triple check makes me there is something about aspirate clear leave it that he doesn't feel comfortable with (some sort of gut feeling).
Did all of you get a straight diagnosis at the first aspirate? Has anyone been through these multiple aspirates biopsies? I know the core biopsy needs local anaesthetic, but exactly how much do they take?
I am also a single parent with a total Shit of an ExH who left last July took straight up with OW in very complicated scenario involving her still being with her husband some of the time (he knows and accepts all of this) OW having a DD in my DD's class who bullies her. DD finding all of this very upsetting. So I have very few people to talk to, have horrible nasty divorce (not on my part he seems to be determined to drag it out as much as possible), probably going to need to have it out over DD's contact with him reducing it so it is less, but better quality (solicitor's advice). Oh and I run my own business employing 17 people and as I am a vet that includes 24/7 cover.
Sorry that last bit just poured out with no real sentences.
Thank you for taking the time to read my post.

smee · 31/01/2013 12:02

God Lone you have got a heck of a lot to contend with. Do you have a date for core biopsy yet? Sounds like you need an honest chat with your Consultant to find out what's made him push for one.

Personally mine was blindingly obvious from mammo/ ultrasound. I had a fine needle biopsy straight away, was told cancer same day too. Went back 2 days later for core biopsy - not sure how much they take, but clearly enough for a more detailed analysis - then went back a week later for full results. All of which makes me logically think if you have something going on, then it's very small, which is good.

Let's face it, you won't rest until you know, so push for appointments. Stick around and ask us anything you want. We know how terrifying it is. We have had several people come on here and it all turns out to be benign. No reason you won't be one of them. Really hope you are. Smile

Lonecatwithkitten · 31/01/2013 12:12

Thank you Smee. It will be next week, but its is complicated by the fact that the consultant works at several hospitals the secretary who phoned me is no the one I usually deal with as I can never make appointments at that hospital. So she now needs to pass it to the the secretary at the hospital I normally go to.
It is a reasonable size 3cm by 5cm and occupies around 1/5th of that breast.

HerNextDoorAt21 · 31/01/2013 12:19

copt the goon dog scene sounds pretty serious with all that water Glad you were both OK.
lone it does sound like you have a lot to contend with at the moment. I had 8 small core biopsies taken and the whole wound was covered with a plaster, it wasn't painful for me at least. Also sorry about your home situation, my current husband and I had a nightmare with his ex and the kids etc
pen hang in there and take each day as it comes
gig without me scrolling back, what do you do for a living .... good that you are going back graduaklly, thuis was something that was mentioned to me for when i go back and i think i will take them up on it when the time comes
jchoc Pringles cure everything
topsy I have my lovely boots on !

smee · 31/01/2013 12:27

Mine was about that size, but as I said in post above to digerd, it was largely low grade/ benign, but annoyingly there was a highly malignant bit in the midst of it all. Looking back now (nearly 3 years) I almost (!) feel lucky, as at least I found it in time to treat. Stick around. If it's bad news (which it really could v.well not be), there's a lot to be said for talking to others who've been through it. Has definitely kept me sane.

MaryAnnSingleton · 31/01/2013 13:25

Lonecat agree with what smee has said. I didn't have any aspirtations just the core biopsy (about 3 bits taken - small cut made under local and device goes in and nips the bits of tissue-it does make a sudden jolt,which I wasn't warned about -tsk) It was completely painless btw. I suspect consultant is just being very careful about checking it out absolutely - and the chances are that it'll be nothing bad, but I know you'll worry until you get some answers. Horrid for you,especially as you have so much to deal with.
Do stick around as we are good hand holders.
If I like the Japanese thing I might post some pictures on fb Grin
Bagel with marmite anyone ?

OP posts:
Gigondas · 31/01/2013 13:38

Lonecat sorry to Hear how much you have on your plate. I had a galactaceole which didn't go for 2 years post dd (not same i know). But every time it was aspirated (about once a month til I was operated on to get rid of it), they tested fluid. They were sure it was milk etc but still did test every time.

I agree about pushing for something more conclusive as even if is ok, it is clearly stressful.

smee · 31/01/2013 13:40

MAS, I will demand pictures. Always love seeing what you're up to. Bagel with marmite has to have hard boiled egg too. mmm.. Smile

Copthallresident · 31/01/2013 14:00

Lone My lump was very thin, 1.7cm by 0.5 cm and had only just become palpable, but my Consultant also strongly suspected from the mammogram / ultrasound it was nasty, even more so after the aspiration. There was a lot of blood. Nevertheless he did tell me that even with bloody aspirations only 4 out of 20 will turn out to be Cancer nothing like lying awake all night telling myself to stop thinking the worst for remembering statistics So as smee says chances are it will be something that is easy to deal with, if anything at all. It sounds like your Consultant is making sure. I am assuming you are premenopausal? I think that the dense breast tissue can make it difficult to distinguish different sorts of tissue and to be sure. It did turn out I had patches of DCIS across my breast but they were not apparent until surgery. However I have a friend who kept finding lumps and kept having clear aspirations right from when we first met when she was 30, once she went through menopause it stopped happening. What they take in the core biopsy is about the size of a grain of rice.

You and your poor DD though. OW and DD sound like despicable witches.

hnd My tit really was a pound of flesh!! I found it all a bit tmi but then in Hong Kong you wake up to a picture of it Shock and if you want you can have it back in a jar after they have finished the histology of the tumour [even more shocked and a little bit sick] for a decent burial Apparently it is expected that the doctors will proudly provide this evidence of what a good job they have done, all part of making sure you got value for money!

So give us a clue? what bra and cup size? Could I extrapolate? Is there a formula?

gigs and pen Yup behave badly, go for it. How is the hair gigs? Are you ready for the endless entertainment teasing the well meaning when they are telling you how gorgeous it is? "Why don't you have it cut this way?"

smee sleep patterns still all over the place. Went straight to sleep last night but still woke several times and took an hour or more to get to sleep plus very weird dreams (one where DH had bought house with one bedroom and garage for 5 cars Grin). I do have some sleeping pills but by the time I am desperate enough to take them I worry I am not going to not be able to get up. So annoying. It is weird because I have always been a lazy layabout loved my sleep.

OOO summons from DD to meet for lunch (on student time, this happens in the afternoon) Grin Grin must dash

smee · 31/01/2013 14:04

Copt, I reckon it's the hormones, as my sleep patterns sound v.similar atm. I wake up 5 or 6 times a night. Mostly due to hot flushes. Have weird dreams too. Last night dreamt the cat brought a fully grown goat in through the cat flap. Confused

Gigondas · 31/01/2013 14:16

Yep I also have similar sleep issues- go to sleep ok then wake up boiling hot and can't get to sleep properly after-it isn't just the shoulder either.

Will use that response about the hair Grin

PenisColada · 31/01/2013 14:36

Well my anger has been directed today - I have emailed the council about parking and phoned Tesco to complain.

Cancer is turning me into Victor Meldrew.

Gigondas · 31/01/2013 15:29

Grin It does that!

KurriKurri · 31/01/2013 15:53

Hi all, - just dashing in really to say hello - haven't quite read through all your posts yet, so bear with me!

Lone - hi there and welcome to the thread - it does sound as if you have an awful lot on your plate at the moment, - and this health worry can't be helping. I think being in the medical profession (whether a people or animal doctor) probably does make things a bit more difficult - sometimes ignorance is bliss! - But I wouldn't necessarily panic, - try to see it as a positive that they are seeing you quickly, IME they tend to be uber cautious with all thing breast related, and we have had ladies on here who have had to go back several times for checks on something which turned out to be benign.

Regarding the biopsy (again I didn't have aspirates) My tumour was large and my nipple very distorted so pretty obvious that something was amiss - my consultant said it was almost certainly cancer after examination and he arranged mammo, ultra sound and core biopsy on that day. The core biopsy was under local, and they took three samples - each one a punch and a tug, but not terribly painful, - you'll feel a bit bruised afterwards though.

Smee - sorry about your friend Sad - I don't know anything about that kind of BC unfortunately, - I'm sure someone on here had invasive lobular though - I can't remember who it was.

MAS - would love to see Japanese pics when they are done - you know I am big fan Smile And well done T on his college place - good for him Smile

Gig - good luck with return to work, phased return sounds excellent idea to get you back in the swing of things.

love to pen and HND - hope you are both feeling a bit better today. Pen - the urge to shout 'get a grip' to people with minor worries can get overwhelming at times - much better to shout at the council and Tesco Grin

My-Name-Is-Not-Linda didn't come for coffee in the end (am sure I invited her today Confused - maybe she doesn't like me Grin) anyway I don't have her phone number to find out what happened, -(and even if I did I'd have to ring and say 'is that 'not-Linda'?) Am thinking now she may be called Janet (but I have 2 other friends called Janet so may be getting confused) oh well!

Our car is still not mended Sad - which means I have missed all my activities this week - not helpful when I'm desperately trying to shed pounds.

jchocchip · 31/01/2013 19:28

Hi to lone it is so stressful waiting for tests/ results so hang around for hand holding.
Grin at not-Linda surely someone must know her name! :( about car.
Bit stressed about changing jobs, I think I will enjoy it once I settle in but until then it is scarey. Finishing all my old files over the next few days. Will be sad to leave.

KurriKurri · 31/01/2013 19:35

It is a big step jchoc - you are bound to feel a bit wobbly, but once you get started and settled you'll be fine Smile - are you having a leaving do at your old work place?

amberlight · 31/01/2013 19:45

Agree re the change in jobs - bound to feel eek to start with.
Hi Lone - welcome from me too Smile Have a Brew or Wine
And plenty for everyone else too.

NedSchneebly · 31/01/2013 21:01

Evening all Smile

Sorry not been around much this week - manic few days, been on hard course today, all about teaching phonics. I didn't realise there is so much I have to learn. . .

Tough counselling session on Tuesday - therapist says I cannot completely write off the person that I was last year, with all the baggage of 2012, even though that is what it feels like I want to do. He says I have to engage with my 2012 self and use "her" to build the person that I want to be. Not sure I know how, really Sad

Sorry, not up to date at all. Promise to do better tomorrow. Will have a proper read back and catch up on everyone's news.

Love to you all x x x x x x

jchocchip · 31/01/2013 21:18

Will go for a few drinks next Friday- I'm not really leaving just changing departments!

Hi ned sounds like you have been busy.
Just went for a quick swim (you know where, copt) now watching silent witness...

jchocchip · 31/01/2013 21:20

Will go for a few drinks next Friday- I'm not really leaving just changing departments!

Hi ned sounds like you have been busy.
Just went for a quick swim (you know where, copt) now watching silent witness...