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Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc part 5

999 replies

Piplysmelie · 10/07/2012 09:23

This is thread 3 of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

Here are the previous threads:
Thread 1
Thread 2
Thread 3
Thread 5

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
surewoman · 24/07/2012 08:30

Misery - has anyone medical suggested you might have an enterocele? I had terrible trouble having BM's with that - absolutely no way I could get anything out even with copious amounts of laxatives x

MiseryArse · 24/07/2012 08:50

Nobody medical has been able to find anything on examination surewoman. I've had colonoscopy and x-ray and both were normal. Manual exam shows a mild cystocele and a slight rectocele but they felt that the strength of my pelvic floor was an issue for examination. Hence the defecating proctogram as they suspect the problem will only show up in an 'action shot'. I am being taken seriously though and they do believe me, unlike my GP!

Enterocle is high on my list of probabilities according to Dr Google though

surewoman · 24/07/2012 09:41

Misery - sounds like you have done too many PF exercises and now have muscles of iron!!! LOL! Grin .. on a serious note, you must be feeling really fed up with it all and I hope you find the cause of all your problems soon as it is so demoralising and depressing having this hanging over you all the time xxx (GP's should be forbidden for commenting on these situations and should refer us straight away to the correct man for the job - it's like asking an electrician to fix your plumbing problems!)

PostBellumBugsy · 24/07/2012 10:02

Glad all went well Livelong - hope you have a good recovery. Getting very nervous now, as my op is a week today.
Any tips for things that are worth taking into hospital - beyond the obvious nightie & washbag?

Piplysmelie · 24/07/2012 12:06

Live long glad you got the op you wanted - good wishes for the healing.

OP posts:
Gailjen5 · 24/07/2012 16:05

Lifelong - glad all went well, time to chill & relax now
I went back to My consultant today, she tells me I dont have a cystocele but a urethral prolapse (well not a prolapse but it's just a different shape?) this is because of the rectocyle repair ive recently had, she says there isn't a specific Op (need to google this next) & they are not going to do anything about it, I've agreed to keep double voiding & suggests I take a half sachet of laxido as my consistency on BM isn't quite right :( yet. Also started having hot flushes this week Blush so that's another issue to deal with....back to see her again in 3 mths..

Livelongandprosper · 24/07/2012 16:06

Thanks all for the healing wishes.
Keep them coming, i can use them. I've been bleeding heavily all day and am likely to be going back into surgery this evening for a re stitch.
Bugsy - ear plugs might be useful

PostBellumBugsy · 24/07/2012 16:33

Good luck this evening Livelong - hope they get you sorted. Thanks for the ear plugs tip.

wouldratherbeskiing · 24/07/2012 16:56

Livelong - pleased that they did both as only one lot of recovery but sorry to hear about bleeding. Good luck - hope it suddenly stops and no further darning necessary.

PostBellum - Baby wipes and/face wipes within reach are great as when you can't get out of bed at least you can freshen up - also I had my toothbrush and paste separate from wash bag so I could clean my teeth while in bed. Good to bear in mind that anything you think you might need, like mobile phone, magazines, hairbrush etc should be within easy reach as it is difficult to get things out the bedside locker when you're cathetarised and stitched.

Gail - I'm not quite sure what to say as know nothing about what they have diagnosed - it's difficult when they don't come up with any solutions. Do you think this could settle down as the rectocele repair fully heals?

surewoman · 24/07/2012 17:39

Livelong - sorry to hear about the bleeding. Hope it gets sorted soon xxx

Gailjen5 · 24/07/2012 17:41

wouldrather, that's what I'm hoping, I can put up with the look down there as long as its working & I'm not got any discomfort.

roseanna1 · 24/07/2012 20:00

Thinking of you livelong, and am sure they'll sort out any problems quickly.

Good luck Bugsy, would also recommend on top of the practical things to take in something that just makes you feel a little.more human, like maybe a nice handcream, body lotion, perfume or similar. I had full make up on within an hour or so of surgery just coz it made me feel better. :D Oh...dry shampoo is a must have item too ... I sound like such a princess and I am perhaps the most unglamorous person I know :o

Gail - sorry to hear there's another problem for you and hope it gets worked out somehow c

Livelongandprosper · 24/07/2012 21:01

Hello
Just back from surgery again. The bleeding didn't stop despite a second lot of packing so he has put some more stitches in .
I haven't been able to investigate my new hamster-sized vagina yet but will report back when i have had a look.
Bestest wishes to all who have had or are awaiting surgery. The dry shampoo is a great idea by the way

fengirl1 · 24/07/2012 21:50

Livelong - glad you're back safely but sorry you had to go back to theatre. Please bear in mind if you do look its not going to be the finished result! I wasn't brave enough until six days after.... Smile

surewoman · 24/07/2012 23:40

Long live your hamster vagina GrinGrinWine - Lol, you really make me laugh Livelong!

On a serious note, I really hope it is all sorted now - ouch for more packing, I hope you were out for the count when they re-packed you!!!

Don't be too alarmed when you do have a peak as it will look like you don't have a vagina at all anymore. Mine is only starting to re-appear now, 4 weeks post op!!! xxx (still pretty hamster-like)

Bugsy - try and keep busy pre-op and get stuck into a good book (or similar) if you can, to take you mind off it, or you might find you go demented with anxiety/worry/nerves XXX

PostBellumBugsy · 25/07/2012 09:44

surewoman, I shall be working right up until the last minute. Fortunately, I am really, really busy and I think that is the only thing keeping me sane. If I think about the op for more than 5 secs, I start to get very neurotic!!!!

Thank you all for the tips on things to take - they are great & I wouldn't have thought of most of them.

Livelong - hope you are feeling better this morning & have stopped leaking the red stuff.

OhNoMyFanjo · 25/07/2012 12:20

Livelong hope you are more comfortable now.

Sure woman you are so right, maybe we should be suggesting a mn campaign or at least a webchat???

Livelongandprosper · 25/07/2012 17:07

I'm home. It's all as it's should be now. Thank you for the good wishes.
Bugsy , the waiting for the op was scarier than the op itself so I feel for you and agree that keeping busy till the last moment is the best thing.
Actually the second lot of packing was the worst thing but I was just unlucky to have that . My roomate had the same op and went home yesterdaylunchtime

fengirl1 · 25/07/2012 18:31

Livelong, you must feel relieved! Now comes the bit where you MUST take it easy! Don't know if I'm repeating what someone else has already said (but worth saying anyway) is to stay in pj's for first two weeks. And repeat after me 'I can't do it'!!! Smile Take care.

roseanna1 · 25/07/2012 21:36

Glad you're home and back to your own bed livelong...take it easy x

shattered00 · 25/07/2012 22:53

Hey all, been following but can no longer access or post from my phone so just been lurking. Good luck Livelong with your recovery - the worst is now over & Good luck to Bellum for your forthcoming op Am now 3 weeks post op (anterior & posterior repair plus perineum) with 9 long weeks more to go of not lifting my baby girl or her older sister. Am feeling ok physically but have an overwhelming sense of fear that at my follow up appointment with consultant she is going to say that I am not fixed or that there are complications of some kind. Did anyone else feel like this? I am trying to resist the urge to feel around down there in case i feel the dreaded bladder bulge. However, tonight I had a little bit of a feel around in the shower and sort of scared myself more as I can feel what feels like masses of wirey/thread like stitches on the front wall and a bit of a bulge(although nothing like as bad as it was)... could this just still be swelling? How long does it take for the stitches to dissolve...I would have thought by 3 weeks that I would not feel like a badly sewn patchwork? Also, anyone who had had a perineum re-build - did you get a ridge of scar tissue and how long does this take to go? Please can one(or more) of you kind post op ladies help put my mind at rest? I feel I have so much riding on this as I cannot possibly ask my friends/family to help me with baby & toddler for another 12 weeks if this op is not successful....

fengirl1 · 25/07/2012 23:01

Shattered - try not to worry! There will still be a huge amount of swelling. From my experience and the info the hospital gave me, stitches can hang around for 6-7 weeks. I haven't had a perineum rebuild (next on the list plus the rectocele repair they didn't do but should have). Scar tissue can take a long time to settle. Wait and see how it is when you go back for your check up. Hopefully you're worrying over nothing. It really is early days yet. Smile

wouldratherbeskiing · 26/07/2012 08:35

Oh Shattered - from my experience what you are feeling is perfectly normal. You've had a lot of work done there and it takes a lot of time to heal. I only had a rectocele repair and it feels really good now. Fen's already said that the surface stitches can take 6-7 weeks - quite a shock when they start appearing! Plus 12 weeks for the deep, internal ones. I would think at weeks there's still quite a bit of swelling. Periods and stitches coming out can also flair things up and set off further worries of the op not working. Try to relax and please take it easy. As you start to feel better the temptation is to do too much - DON'T - it will be worth it in the end. I can remember thinking 'I've turned a corner' only to crash out and take to the sofa again the following day. Your body needs time and please try not to worry too much - most ops are successful - it is only a few of us that have needed or need further work - that's the nature of the forum. Best of luck and keep posting any concerns.

ZumbaZara · 26/07/2012 08:49

I had a posterior wall repair and a perineum rebuild. I am now at 6 weeks post op. Yes I felt/feel anxiety about whether this has been the right thing to do, if it has been worth all the effort on the part of my family and friends whether the operation has worked, whether the repair will holdup to a normal life and whether I can return to all my hobbbies/actcivities......

At 3 weeks I was quite swollen and I did take ibroprofen again. What about looking with a mirrior rather than poking too much. I also became swollen when I got my first period which was about 3/4 weeks.

At 6 weeks I am still not carrying anything heavy exercising,working,vacuuming or ironing. I am driving walking normally and enjoying a great sex life. Most of my stitches fell out during week 5 but there are still some left. My perineum does feel different and a bit sore and granual but not ridgy.

Let me know if you can think of any other stuff because it does help to listen to those people are few weeks/months ahead I have found it invaluable.

PostBellumBugsy · 26/07/2012 14:12

Thank you all for reassurance & it is really helpful to hear how people are doing post op too.

I'm hoping to be back at work after 1 month. Is that unrealistic? (Having posterior repair - with some strengthening of the perineum - whatever that means.)

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