23rd **TAMOXIFEN** thread

[MaryAnnSingleton]

oh my !

Am watching grandmas house - it is brilliant . The look on dh face is magic.

it's getting darker though (G's house)
Sunny here !

Have arranged for everyone to have doughnuts on T's birthday in NY - think we've worked out the $$ he'll need !
Love to all today xx

Morning all! Last morning in Rabat, so may not manage to post if I don't find an internet connection :) Have loads more pics to post, but cousin's computer playing up.

Hope you all had a good night sleep. Nearly packed, off to buy cakes and then catch the train soon.

and pancakes anyone?

Morning All

How was your night 1st step ? Listen to Ambers stats , she is very knowledgable !

How's gig and gracie this morning ?

Travel safely jane and enjoy your last day

I am determined to do some housework today . I have been putting it off big time . We now have pig/dog fur tumbleweeds blowing across the floor ...

I have my pre chemo apt on Monday . If I don't need a pic line , I will start chemo on Wednesday . If I need a picc it will be the following week .
This is definitely the right course of action for me , but I am starting to feel a little nervous . Mainly because it's a different chemo for me (tax) and I don't know how I will react to it and herceptin .

Can you all give me the highs and lows of tax please ?

Morning all - here . 1step and gracie how are you?

Feeling bit brighter but very nauseous - wondering if sleeping tabs make it worse as its a listed side effect. Off to see nurse and therapist so hope to be better armed for my depression.

topsy sympathy about nerves - I have no idea what a picc is even so am no use on advice.

I hope your cleaning doesn't give pig dog the opportunity to get up to anything while you are busy.

Enjoy rabat j

Oh and without meaning to be morose, can we light candles/say happy birthday to my little boy who would have been 5 today.

Happy 5th Birthday to Gigs special boy x

Oh gig big hugs for you on your sons birthday. Thinking of you all x x x Hope you have a reasonable day today.

onestepyou must be reeling from all that information. They will absolutely do what they think is the best for you, even if it seems really daunting. Stick with us and listen to Amber and her stats. Sending you massive hugs x x x

topsy only done one tax, and it clearly disagreed with me , so watch your temperature like a hawk, as infection can clearly take hold much earlier in the cycle. If you have the bone marrow jabs, don't worry, they're easy to do, but make sure you get docs to give you good pain killers as they can give you bone pain. On the plus side, i have had no trouble with nausea or sickness at all, and i suffered pretty badly with that side of it on theFEC. I am sure others will have good wisdom.

Morning everyone, had a very restless night, would fall asleep for a while but kept waking up. Waiting for bcn to return my call, will let you know what she advises.

Mas - that's a really thoughtful thing to organise for T's birthday, hope he enjoys the trip, does he go soon?

Gig - wishing your special son a Happy 5th Birthday and sending hugs on what must be a difficult day for you.

Happy 5th birthday, Gig's little boy. x

1step - hard news for you yesterday, what a shock. Amber's stats are right though - the situation isn't as good as you hoped, but I'll bet it won't be as bad as you fear. They'll throw stuff at it, it will be a long and not pleasant road, but it'll be do-able.

Topsy - step away from the vacuum cleaner. Can't advise you on tax as I only had FEC. There are plenty on here who can help, I think. Lots and lots of positive vibes for it all. x

MAS - what a lovely, generous idea about the doughnuts.

More trauma from class bully here, I fear. Is it wrong of me to say I really, really REALLY hate the sight of that child? I fear it is, but I still do, she is vile.

Topsy - I havent found the herceptin and tax too bad so far. As Ned says there is more of a risk of infection so you need to watch your temperature particularly between days 5-10. Although I got away lightly compared to Ned I did end up in hospital during the first cycle but now they haave reduced the dose and I've been OK since. Other than that it does make me feel tired (go to bed tired in the middle of the day kind of tired) and a bit achy mid-cycle - you are allowed to take pain-killers if the aches are bad. My mouth was bad again in the first cycle but have been given an anti-fungal prescription and has again been better since.

Ned - glad you are OK now. Try not to worry it will happen again as they are likely to reduce the dose a bit to make sure your neutrophils don't fall so low again.

Firststep - hope you found someone to talk to today. It is very scary but hope you will feel better psychologically anyway when the treatment is underway.

Gig - candle lit and happy birthday wishes for your son.

Sometimes - grrrr at class bully. Is the school at all helpful in dealing with it?

Sometimes - I too hate bullies, hope you manage to get the problem sorted.

Have spoken to bcn and called the bcc helpline. Next hurdle is to get the scans over, just spoke to the hospital and they referred to them as metastatic screening - thanks for that, makes me feel so much better, not! Until yesterday I was able to do the 'one step at a time' thing, but now I can't seem to stop my mind racing ahead, grrrr.

Well, we'll see, One in Eight. It has been going on for many years, now, on and off. Apparently a 'word' was had with dd and bully yesterday: they aren't fooled. Yesterday bully told a tale on dd because she feared dd was going to tell on her for shoving her hard into her peg (again ! ) - but bully ended up getting the stick, because she has so much previous. But they don't really come down hard enough, there are no consequences and so nothing changes. Plus her Mum is a rottweiler who has been known to phone the school and accuse the head of bullying her dd. Says it all, really

Cross post, 1step - sorry.

I am glad you are getting some action, however unwelcome

But I promise you the waiting for tests and results is the hard part. When you know what is there, and what the treatment plan is, I think you will feel more positive and be able to take it a bit more at a time. The mind always races ahead trying to fill uncertainties: it usually comes up with a disaster scenario. It doesn't help that they are so blunt with their terminology either Honestly, 1Step - you'll cope. x

Happy 5th birthday to little gig and a hug to gig xxxx
topsy will be sending vibes for a smooth and easy first dose next week
and 1step hope bcn calls soon- a plan will make things seem more in control. Ds goes on 5th June - there was the option of a cake for 35 but it was horrendously expensive (in the Hard Rock Cafe) so Dunkin'Donuts it is !
Safe journey home jane- really looking forward to pictures ?
sometimes grrr and about class bully- can I hate her on junior sometime's behalf ?

You absolutely can, yes!

How fab to be going to NY, and so soon, now! I wonder if kids know how lucky they are? I suppose they probably don't, really. We went on a geography field trip to the Mendips when I was his age, but it's not really in the same league, is it?

good- sending unpleasant vibes to nasty child. I am hugely excited about the NY trip - they are sooo lucky. We had a day trip to Le Touquet and were lucky enough to have an educational cruise around the Med. Schools seem to offer loads of opportunities for going away -there'll be Sorrento for him in October for geography and Berlin next year.
jane - didn't mean to put a ? - should have been a !

ooh yes, our school offered the Med trip too. Didn't go though - worried too much about missing me Mum

Topsy - sending positive vibes to you for next week. x

aw ! We went with 2 nuns and lots of the bolder girls got drunk on ouzo. I came home with scarlet fever.

Hi all- thanks for birthday wishes. Had nice chat with nurse and have some tranquillisers . There are few upsides to this but access to hard drugs is one. Seeing therapist now so hopefully can do weekend ok.

1step Agree wording and anticipation are the worst but it may not be as bad as you fear.

topsy you must be due a fbs now.

Sending fight club vibes to bully - also isn't it always partly related to parents?

I went on a med cruise and trip to Italy. Cruise was on boat that sank about 10 years ago. Must say am not keen on idea of cruises but my mother loves them.

Oh Gig. Happy Birthday to your boy and a huge hug for you from me. Have lit a candle. It's dancing for him.

1step, scans are impossible. Not sure this will help, but I found them the worst part of the lot. The fear and uncertainty of whether its spread or not is terrifying, but the odds are still strongly that it hasn't spread yet - no denying it's on the march. Mine was too, but my scans were clear and I'd bet yours will be too. Believe me if that's the news you get, you will suddenly feel like you can cope with any and all of it.

Ned, glad you're feeling a bit perkier. So nice to have you back.

Hope Jane comes back with lots of Moroccan treats for us.

Sometimes, I'll hate her too.

MAS doughnuts are a fab idea. Am jealous of him going. Definitely a birthday he'll remember.

Topsy, the main thing I struggled with on Tax was the bone aches and the mouth problems. Both are over pretty quick though, so once you get into the cycles, you can tick off the days with them. I liked it better than FEC as the nausea was so much less. You might find it hits you less too. Hope so.

Had a v.anarchic Summer Fair meeting this morning at school. New Head Teacher did a lot of nervous giggling..

I do think you are a stalwart for sticking with the PTA treasurer thing, Smee. Still feel slight guilts about giving up, but they are fading fast But from memory, your events sound way more fun than ours

Thanks for the support on the bully. I am sitting here obsessing abut her a bit. Not healthy.

it has just started bloody raining here. Again!!!!!

I'm doing my best to tunnel dig, Sometimes.. Thing is our PTA was non-existent until last year, so we've built it up from nothing. Think that means it's less cliquey and more fun in some ways.

Get your wellies out and go dance in the rain.

Smee you are good on PTA. I played the ill health card to get out of mine tomorrow (you get conscripted to do shifts).

Talk of ouzo makes me feel unwell again