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21st TAMOXIFEN !!

994 replies

MaryAnnSingleton · 15/03/2012 17:41

here we are- how did that happen ?

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NedSchneebly · 29/03/2012 21:36

Good work little smee on the positive reports at parents evening. We had a similarly positive conversation with LittleNed's teacher a couple of weeks. Veery satisfying and proud- making!

mrsmcnulty rubbish about your friend. I was diagnosed early this year and am currently in the throes of chemo. I have 2 friends who have all but dropped me, one, who I worked with for 8 years, is currently on maternity leave, bass made some plans to meet, and then backs out at the last minute, with excuses about how busy life is with a baby. I have given up on her, as I do not have space in my brain to worry about her. Stick with us here, my love x

kurri what are you LIKE? HANDSTANDS? Glad to hear horse pills working their magic. Will attend to my responsibilities as catering manager with care and diligence. . .

gracie how you feeling today? You'll feel better once tomorrow is over and you have a definite plan. Thinking of you lots x x

gig Grin at your dodgy vicar story. Gave me a chuckle! How's your drain going? How long have you got to have it? Hope it's doing it's job x x x

Should I be buying petrol? Mad queues at all the petrol stations round here. . . Feel like I'm missing out!

MaryAnnSingleton · 29/03/2012 22:29

oh yes,lots of good thoughts for tomorrow with onc gracie -as ned says having a plan will make things feel much better,at least you'll know where you are.
ned I filled my car up on Monday- there were horrendous queues today,snaking for a long way out of the petrol station.

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MaryAnnSingleton · 29/03/2012 22:30

waving to kk - glad you're feeling better,keep taking the fluids ! xxx

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smee · 29/03/2012 22:57

Handstands deserves applause. Excellent Kurri. Grin

Good to hear you're feeling a bit better too. Listen to Dr MAS and keep drinking those fluids. Smile

nappymaestro · 29/03/2012 23:15

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nappymaestro · 29/03/2012 23:18

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KurriKurri · 30/03/2012 00:05

Hello nappymaestro - sorry to hear that your DMIL has had breast cancer, I hope she's making a good recovery.

I think after ten days, it might be a little early to know what her side effects will be - just because some things you get with a new drug are very short term until you get used to the drug. But longer term, the side effects that I have had (I've been on tamox. for nearly 3 years) were firstly menopausal symptoms, hot flushes, night sweats that sort of thing. I don't know how old your MIL is, - if she has already been through the menopause, then I presume she'll avoid those S/E's, (but I not certain - I'm not an expert!).
The other side effect I've had is aching limbs and joints, that seems to have got a bit worse the longer I've been on the drug.
I've also at certain times had swollen ankles as a side effect.

I'm sure other ladies on here will be able to tell you how they have been affected.

Tamoxifen is a hormonal drug - so if your MIL is on it, it means her BC is affected by oestrogen. It's a very good drug, but if she finds it doesn't suit (and I think some people can get things like bad headaches, dizziness and other things) there are several other equally effective drugs that she will be offered instead.

Of course I don't know anything about your MIL's DX, but by your description of her treatment, it sounds as if she is doing well, and that her cancer was caught in good time. (I base this on the fact that she didn't have chemo, - I did because my cancer had spread to my lymph nodes).

It is often difficult for people to discuss their experience of breast cancer, especially if they are by nature a reserved person. You and your DH sound like very caring people, and I'm sure she feels very supported by you.

She will have a breast care nurse, and that is someone who can offer her a lot of support and information if she feels she needs it. Also it might be helpful for her, and for you and your DH to have a look at the Breast Cancer Care website - they have a lot of information and leaflets you can send for about all aspects of the disease, aimed at patients and their families. Smile

Gracie - lots of luck for tomorrow, I hope all goes well for you, I'll be thinking of you. xx

Well done to DS Smee, - sounds as if he's doing really well Smile

I am drinking lots (including some rather disgusting dandelion tea made for me by a friend who claimed it was good for 'wee problems')

Ned - petrol stations gone mad round here too, most are closed at the moment because fuel sold out, - bonkers!

night night all x

jchocchip · 30/03/2012 06:45

Morning all. I'll put a Brew on. Sorry I've been neglecting you. Computer system was down at work yesterday so I took the opportunity to go out on site visits in the sunshine. Done most of them now which is good, but I will have to get my head down today and write reports.

Tried to read and catch up but I'm not going to comment on all 'cos it would take all day. Good vibes to gracie

MaryAnnSingleton · 30/03/2012 07:34

nappymaestro I think that kurri has covered everything there very well !
I think you just need to be there in an unobtrusive way so she knows there's support if needed - breast care nurses are generally wonderful and always there to answer questions and give support. I've been on tamoxifen for 2 and half years and no really bad side effects. Do ask here though if anything is worrying you -am sure we can help if we can Smile

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MaryAnnSingleton · 30/03/2012 07:36

uh,up a bit later- complicated dream (a version of one I have from time to time) and ned featured- I was trying to photocopy two books for her while doing a million other things and getting in a real mess,also looking after friend with dementia who kept tearing up things in the house. ned missed her tube home and there was lots of panic.

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topsyturner · 30/03/2012 07:48

Lol mas , wonder if poor ned ever made it home ? Grin

Hello nappymaestro , not on tamoxifen so don't have any wise words for you . Just wanted to wave hello .

Was just popping in to wish gracie good luck for today . What time is your appointment ?

NedSchneebly · 30/03/2012 07:56

MAS Rest assured I am safely at home. . . Hope I didn't cause you too much distress?!

nappymaestro I'm not on tamoxifen yet, but hope you can get some useful information from the lovely ladies here.

gracie thoughts with you today, my lovely. Sending you strength and positivity vibes x x

Morning jchoc site visits in the sunshine sounds good. Writing them up less so, but needs must, I guess! Take it easy.

Morning topsy Any nice plans for today?

NedSchneebly · 30/03/2012 07:57

What were the books you were photocopying for me MAS ?

MaryAnnSingleton · 30/03/2012 08:23

I knew what they were at the time but can't quite remember now (big books though with lots of pages !)

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nappymaestro · 30/03/2012 08:57

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Gigondas · 30/03/2012 09:12

Lots of vibes for gracie
jchoc hope you get work done.

mas that is a strange dream. I can rarely remember what I dream about.

Feeling completely done in today- think infection and ga taking their toll. It's also making me feel a bit down and scared. For some reason (and I should know better) I was reading online papers. 1. I should know better than to read the daily fail anyway 2. It's bloody obsessed with grim cancer stories. Sad

Going to hoick my fears into paranoia box and try to enjoy some FBs , rest and sunshine today.

On plus side mini gig seems to be doing brilliantly well at night - 10.30/11 -6.30/7. Realise this may be famous last words but it's a real bonus

Gigondas · 30/03/2012 09:13

Kurri glad you are on mend. And I cannot believe how mad people have gone re petrol- were queuing here on weds night .

smee · 30/03/2012 09:46

nappy this might be just me, but Tamoxifen to me is the easiest bit. Far harder is the emotional side - so your MIL has finished her intensive treatment and now has to get used to moving on. Very, very hard to do, as she has time now to process what she's been through and will also find it very hard to trust her body - every ache from now on will be a worry. It's a whole new mindset and takes some living with. So I'd say get your DH to try and acknowledge that to her. Your DH doesn't have to make it personal, he could just say he's heard lots of women find the time after treatment hard and see if she starts talking back. Tricky, am sure. Come back anytime you want to. Smile

Only really rushed in to send Gracie the biggest and best hug I have for today.

Ned in MAS's dream.. ? Grin

Gig, get out for a walk if you can. I'll stuff paranoia into a box and sit on it for you while you stroll. Smile

Waving to Jane and all others too. Smile

DS's school closes at 2pm for holidays. Gaah...

1stepatatime · 30/03/2012 09:59

Gracie - good luck for your appointment today, sending positive vibes your way.

Gig - I'm not surprised you're feeling done in, you've been through a lot, then on top of that you're looking after young children, not to mention the general stress that comes along for the ride. Some R&R is definitely called for, so put your feet up and enjoy as many fbs as you like - you deserve it.

Kurri - completely in awe of your handstands, don't think I've attempted one since primary school!

Ned - op is on 10th April, so getting scarily closer. Will be so glad when that bit is over and done with.

Hi to everyone else and welcome to the newcomers xx

Sometimesiwonder · 30/03/2012 10:41

oo-er, loads more posts!

Sorry, can't catch up - but a big welcome to new posters, loads of support winging its way to Gracie and others with appointments, and random waves to everyone else.
MAS - was it the wee/toilet dream again? Had it myself earlier on the week Hmm

KK - I'm still on the for the raid...

Smee - good for ds! I think the being nice side of it is really the most rewarding part (nice though it is to have a smarty pants who might be able to keep you in disgraceful old age Grin )

Off to write a website. Anyone know anything about the rag trade? No, me neither

topsyturner · 30/03/2012 10:50

One of my good friends is holding a charity dinner tomorrow night , so will be spending most of today (once she gets home from work) and tomorrow being her sou chef Grin

It's a curry evening , and she makes bloody fantastic Indian food , so should be good !

DS breaks up for Easter hols today , but DD doesn't break up till next week on Thursday (cue big sibling fight)

MaryAnnSingleton · 30/03/2012 10:58

ds breaks up today - but his joy will be tempered by my taking him for a hair cut ! I have promised a cake reward/incentive
nappy yes,agree with smee about the emotional toll- just after radiotherapy ends -I was very very emotionally churned afterwards-very odd and horrible. The bcns should be able to reassure MIL if this is something she encounters.

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MaryAnnSingleton · 30/03/2012 11:00

sometimes no weeing-but panic about my houser falling apart,pipes leaking and the strange recurring thing where there's a separate house above my own (my childhood home) which has been left as it was abandoned..but there were people in it this time. I'm thinking this is all about responsibility as I feel I have to check the whole house over..bit of an ocd dream.

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Sometimesiwonder · 30/03/2012 11:01

YY for emotional churning. I thought I was going a bit mad, tbh. It does get better though Smile

Dd breaks up next Thursday, but we have a year assembly to survive first Hmm

Enjoy the curry, Topsy - if you glean any good tips while helping, do share...

topsyturner · 30/03/2012 11:03

My curry tips are more likely to be of the eating kind Grin

Feckin enormouse bumble has taken root on my electric toothbrush handle !
What shall I do ?
Dislodge bumble or leave my teeth for a while and hope it takes off ???