Rectocele & Repairs continued....

[CAZ1958]

Rectocele & Repairs...continuation

Hiya Ladies...
Don't know if this will work, above is the Subject Title
Don't want to lose my friends.
Will come back with a link if poss !!!
Fingers crossed
ZZZ

Your experience sounds terrible Sure

I am still in hospital. Staying in until tomorrow now as had some dizzy and sick spells yesterday. Also felt swollen in my face and hands. Has gone down now and can take my rings off.

Ben10 sorry to hear you had a bad day yesterday - hope things improve for you.
Sure, how are you doing? You've been very quiet and from what little you've said I think you are busy plotting.... Good luck if so. I got my neurotrac and had a go today - I can't see how I could possibly exercise in the same way without it which must be good. It certainly reaches the parts pfe's don't!
I'm ok ATM, just poodling along and trying to do some jobs I left but now will drive me mad if I CAN'T do them iyswim. Can't say I will be as calm tomorrow night tho.... Scan on fri but all going well they have no more excuses.

Just a bit of info for you all..... Have been poking around on Internet as you do and found out kegel8 ultra is the same machine as neurotrac pelvitone but £60 more!!!!

Fengirl1, do you know if the pelvictone machines really work? I have just bought some egg type things which you can put weights in, and they fell out of me, I am mortified lol.

Tink - felt quite confident in getting this as it can be prescribed. (Google embarrassing bodies - its on there.) Know what you mean about falling out - I had a stout pair of knickers on to keep it where it should be! Should also add I figured it was worth the investment to try and make sure I'm not in this situation again....

HaHa ladies - u get used to things falling out....... been losing tampons for years lol ... but on a positive note managed to use them for first time post op and hey presto !!! didnt budge. Will have to go down a size though lol super plus are too big now!!!, TMI alert!!! have actually had to use 2 in the past . Funny the things that float your boat,
So glad to hear your news Fen- hope things move quickly now :)
All the post op ladies hope you are feeling good xx
Nannasylv - hope you are feeling ok ?? xxxx sending some love xxx

Hi Happy [waves]. It's all the little things (and some not so little ) that we get used to and learn to accept as normal when they're not. I'm interested to see which of my (possibly hypochondriachal sp?) symptoms go away as I recover.

Hi all

I'm still in as my lovely consultant wants me to stay till tomorrow at 6pm when he will come and see me again - so 3 nights/4 days. DS is being assessed for being on the Autistic Spectrum so that is fine by me .

Got very swollen belly but he listened to my bowel with a stethoscope (who knew that it was a use for it!) and said it is doing fine. Urine flow is very slow still but I guess everything is v swollen down there.

Woohoo Happy

Does anyone know if you can use the Mooncup after a repair? I was going to buy one pre-op but didn't get round to it.

Fen That machine actually does the exercises for you when you are watching Eastenders?!

Ben10 - glad for you that you are still in hospital as you know for sure that you are progressing well and are getting some rest!
How did the results go for DS and ASD? (I work with kids with ASD so just curious).

Ha, Happy - I have finally used a tampon today for the first time in a year and it didn't fall out or end up upside down. Amazing thing was that I didn't 'leak' today either as it must have kept my cystocele 'up' so I think that possibly having the anterior repair done might mean I don't have to have the TVT (here's hoping???) so I'm going to keep asking... My cystocele has definately got bigger since the posterior repair (plus I have had a cough, which doesn't help).

Fengirl - how many settings are there on your machine? Mine has three programmes; stress, urge and tone and you can turn the intensity up to 99 (whatever that means, lol, but it then fizzes like mad, so I stick to about 50-65 max). Only trouble I find is that I can't seem to exercises both sides of my pf at the same time, either left or right, depending on how I position it, IYSWIM!!! Lol!

Hugs to all - what's happened to Nannasylv??

Hi Sure

DS has been going through the system since Oct 2010. So far we have a dyspraxia, sensory processing disorder, auditory processing disorder dx. We've had all of the assessments for ASD and the SLT told us that she had assessed him as meeting all 3 of the criteria (which we knew anyway). They had the panel meeting on 15th March and we are just waiting to be told whether they have given a dx or not. It will be AS or HFA if they do. Our council do a fantastic support package inc holiday club time and respite but obviously it can only be if he gets the dx.

Still having sickness where I burp and then am almost sick up into my throat (TMI sorry). Got woken by it at 4 so rocking out to music and MNing while trying to wait patiently for the meds to kick in

HELP! What do I do? I've got the paperwork from the hospital today and before my op and on the last day I have to be in the treatment centre. I REALLY don't want to go there (for reasons I don't want to talk about - lets just say a very bad experience). I don't want to lose my op.

Fen - First, calm down!!! It's normal to panic when you see it all in black and white print - suddenly makes it all seem so real. Didn't quite understand your last message though - op/treatment centre/hospital????

Second - Maybe talk about your very bad experience with someone to clear your head a bit?

Third - Don't lose the op, just accept it and go and get it done asap, then fit everything in around that?

XXXXXX big hugs XXXX

Fen - I had exactly the same problem. When the spinal was being put in it was in exactly the same room as I had a nightmarish experience in in September. It was very scarey - but then I realised that nothing bad was going to happen and this is a routine procedure that they do all day long. It has been very healing for me. I have written about it on here on a few threads. I talked to the nurses at pre-op, at admission and to the anaethetist - it has been very good for me. I no longer have those thoughts going round and round in my head about the bad experience.

Wish I could exorcise my bad experience!!!

Ben10 - hope you are feeling better and you get the dx and support you are after for your DS. Thanks for all your help re my issues.

Fen - keep strong and calm xxx Can it be any worse this time? Think of the positives only xxx

Hi Sure and Ben10. The hospital has a treatment centre attached which afaik used to be used for day cases only. I suppose it's some kind of cost-cutting measure. I can't understand why I can't be admitted to the ward and discharged from there. I will have to wait in the waiting room for a bed and won't be taken to the ward until after theatre. I will also have to be there on the day of discharge, presumably in the waiting room again which I do not relish the thought of. Thinking about it makes me shake. I have no particular gripe about the care there (although I was alone in a 'cabin' for a total of 6 hours if you add before and after together) a nurse looked in once. The issue I have was that I was lied to about a policy and made to feel like scum. I swore I would never go back there again and could have complained but didn't because I wanted to try and forget about it. I'm not worried as such about the op ( I am scared about the pain and how I will cope the week after when my mum goes home and I'm alone in a village with no shop and no real friends but I can live with that.) I'm frightened that this will put me back in a bad place which it took me about a year to resolve in my head. I will ask about it at my pre-op but know I will have policies quoted at me and they will lack in any understanding of my situation. If all else fails I am going to have to ask if I can have something to keep me calm as I'm terrified I won't be able to go in or will freak out. I'm actually having palpitations and want to cry as I'm writing this.
Sorry about the essay.

Fen

That sounds a horrid set up esp that you were only looked into once :(

I guess one option is to get referred to a different hospital but your location sounds liek that wouldn't be easy and obv then you'd be back on the list. Maybe it would be worth getting something from the doctor now to help you to keep calm if you are feeling like you are losing some control.

After the operation you can have online shopping and have lots of pre-cooked meals in the freezer. Are you a church goer? The church community is apparently very helpful for things like this. The hospital should do an assessment of you and your homelife for discharge to ensure that you are safe. When you are in hospital they can give you lots of drugs so you don't have pain and will discharge you with painkillers.

(((hugs))) Sorry you're struggling today

(((0))) fengirl .... soooo sorry you have had a bad experience in hospital .... and its understandable that at a time when we are vulnerable we dont feel we can trust "the system".... or those that administer it .

I think its common to be admitted these days straight to the daycase / surgical admissions unit...... that is where I am going tomorrow. Its rare these day to go into the ward pre surgery , only when you are actualy ill I think.

Maybe the staff this time WILL appreciate where you are coming from ....... if you explain how you feel ........... and if you go in with an open mind then you are far more likely to hear what they are actually saying without negative contexts.

re the week after mum leaves............. form a purely practical point of view can you ignore housework and stock up on ready meals etc ........... and take advantage of the big supermarkets shopping on line service..

Positive thinking and deep breathing ((((0)))

Maybe speak to PALS Fengirl before you go for your pre-op

Thanks for the words of support Sure, Ben10 and Tazzle. I'm still a bit wobbly about it today but a bit more rational. I'm going to take Ben10's advice and see PALS today to get the real party line on admissions direct to the ward. (I'm there anyway for a scan and think if I go in person they can at least SEE how this is affecting me and why I need their help.) I shall probably end up in tears though!!! I don't think I need anything now to help me (I have been depressed in the past and know how that feels), and I know I will be very nervous on the day anyway - I'm not even saying I won't be able to cope, but it's the not knowing if I will on top of the natural worry about the op that terrifies me. I was treated as a nuisance at the time and don't want to cause a huge scene (which I'm worried I might) and then be judged on that for the rest of the time I'm there..... I'll come back on later and let you know what happens.

good luck xx

Hope it went ok Sure x

Fen - that was to you, not to me from me!!! Lol

I'm HOME!

Oh bum - just wrote a whole post and the page timed out!
You seem somewhat pleased to be home, Ben10!!! Thank you SO much for the advice . Turns out there is now a ward in the treatment centre which is where I'll be. A lovely lady listened to me bawl and took me to have a look. I don't have to go anywhere near where I was and can stay on the ward til I'm discharged.
The scan went fine (besides not quite dancing but definitely tapping my feet before I went in!)
So that's all my worries out of the way. Would have posted earlier but had to have a sleep as I had a terrible night and was shattered.
I'm glad I had you ladies to tell as there is no-one else beside my mum and she's ill and I didn't want to worry her.
Phew!