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986 replies

MaryAnnSingleton · 22/03/2011 23:00

Starts here !

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SparkleRainbow · 10/05/2011 18:14

Sorry I am lost...what have you googled?

eyes in the post Grin 100 legs would actually need Wine Wine and Wine rather than Brew

LJ I am glad you have posted, and that you are holding up, just about. I love the sound of the waterfall walks!

Little boy sparkle hurt his neck on saturday, but we didn't go to hospital until Monday early, as I was trying to manage at home, plus I wanted to wait for a gp referral as it is much faster to get help. So he wasn't in too long, I am just back to managing it at home. Tis a bu**er though!

MaryAnnSingleton · 10/05/2011 19:35

dear little sparkle boy
I have to go back for an ultrasound on my other breast,following my mammogram - naturally I have googled such things !

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smee · 10/05/2011 19:40

Step away from the Google, MAS. You'd tell me the same thing, am sure. Smile

Bugger sounds about right, Sparkle. I think you're the one who needs the Wine

MaryAnnSingleton · 10/05/2011 19:45

I won't google any more smee,promise !

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smee · 10/05/2011 20:06
Smile
LittleGreenFr0g · 10/05/2011 21:02

Pink - sorry you are having a rough time. I too was advised to take the anti sickness before food and then the steroids with food. I find it tough in the morning, when trying to get the family ready, remembering to eat so I can take steroids...:)

LJ - good to see you posting :) The cottage in Wales and waterfalls sound lovely. Ulcers are not :(

I have chemobrain for the past few days...cannot concentrate, focus or make any decisions. God knows how I got through work yesterday. Luckily my colleagues are very supportive.

pinkstarlight · 10/05/2011 23:34

kurrie..i hoped the steroids just helped with sickness i hate the dreaded things.

amber ..i did try ginger beer but i really cant tolerate it.

mas...your work is brilliant and your cat is adorable.

sparkle...oh no your poor boy sound horrible,i hope he gets better soon.

lj...i know that feeling of dreading FEC i only had to have 3 i change to tax next. i hope you get your ulcers sorted out sounds very painfull thats about the one thing i havent had,i did start to get a bit of a sore mouth in my first cycle so was prescribed difflam oral mothwash and thats kept it at bay.

smee...thanks for your advice mornings are also my worst time,i did manage to keep my 2pm steroids down thank goodness.

after a sickly start to my day i went back to sleep for a couple of hours hours i always get really sleepy when im not well,managed to take my 2pm steriods and a small bowl of soup first. had a few more sicky moments but they have passed with the help of eating a plain morrisons thin sessame crackers and i can still taste them.had a small dinner tonight had to throw loads of chilli powder on it to take the foul taste away and eat a couple of crackers at the same time but it means ive managed to eat some meat.i didnt eat much on my last cycle im determined to do better this time,im on my 3rd bottle of lucozade im sure its not a good idea but its the only thing i can drink water just makes me throw up and the lucozade has that kick to cleanse my mouth.

smee · 11/05/2011 09:33

pink, drink whatever feels okay - I couldn't drink water either. I never drink fizzy drinks, but on chemo drank litres. Even IronBru, which let's face it is yuk. Hope you climb out of it soon.

LGF, feeling foggy's tough, but you're doing amazingly to get the kids out the door and go to work too. Are you working full time? I can't remember..

I'm going to see a Psychologist this morning to talk about preventative mastectomy. I've mostly decided to go for it, swung by the fact that I have to have an operation anyway, so think I may as well. Interesting you have to be psychologically assessed before they'll consent. Must remember not to dribble. Grin

Kurri, did the eye's arrive?! Smile

  • MAS, keep busy..

Hope LJ, Amber, Figgy and Lilruthie are all okay. Waving to all though. Smile

KurriKurri · 11/05/2011 09:40

Pink - apple lucozade was my tipple - it was the only thing I could stomach.

Good luck at the psychologist Smee, - my oncologist wouldn't entertain the idea of PM for me - but if I could I would have one. I hope you get a good chance to talk it all through.

MAS - no googling, you will only panic yourself - anyone can write stuff on the internet - there's no way of telling whether its sensible info or not.

My eyes have not arrived (I am expecting blue and brown Grin), but post is very late these days (new postie)

love to all xx

cakesandale · 11/05/2011 10:17

Hi all

I am ultra busy and have my check up this afternoon so no time to post much - but have read all, am sending love to all, and positively WILLING you not to google, MAS!

xx

cakesandale · 11/05/2011 10:18

If any of you can hear an angelic choir singing the Alleluyah Chorus it is because I have actually lost some weight Grin

KurriKurri · 11/05/2011 10:32

Ooh well done Cakes (I hear that choir Grin)and am also Envy -

Good Luck with your check up this afternoon - I'm sure all will be fine Smile

My eyes have arrived Grin - they are brilliant - big and sparkly, I'm very chuffed (easily pleased emoticon)

MaryAnnSingleton · 11/05/2011 11:07

good luck with check-up cakes -look forward to hearing the choir Grin
Hooray for arrival of sparkly eyes KK Smile
and hope all goes well with the psychologist smee x

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SparkleRainbow · 11/05/2011 12:10

MAS we are watching you........cyber posse strikes again.....no googling for you. I do hope you haven't scared yourself! When are you going for the ultra sound? Hope you aren't having to live in limbo for too long!

Smee, good luck with your appointment, no talking to yourself or examining palms of hands for hairs, nervous head ticks also out. Grin

Heh Cakes I can hear a choir singing......well done you! Smile I offer you a Brew with no Biscuit for encouragement. Good luck in your check up.

Kurri I am glad the eyes are good. I have spent the morning creating decorated boxes with my dd1, but even with my creative juices flowing, I can not compare!

Thinking of you amber, pink, figgy, LJ, LGF and lilruthie xx

amberlight · 11/05/2011 12:14

KK, your eyes have arrived??! Shock Ah, for the project! Phew!

Bloomin digestive grr today. Taken various potions. Think that should sort it. Or I could take up permanent residence in the facilities Grin

But bc nurse has confirmed last set of info about how my treatment is going and it's going well so I'm pleased anyway.

Hello everyone - have a Brew

SparkleRainbow · 11/05/2011 12:15

Thank you I will have another Smile

SparkleRainbow · 11/05/2011 13:51

In case you don't spot it, here is a link to someone who may need our support, all you wonderful women.
www.mumsnet.com/Talk/general_health/1212274-Breast-Clinic-Appointment

topsyturner · 11/05/2011 14:00

Afetrnoon ladies , sparklerainbow sent me over here to talk .

I had a mammogram , ultrasound and biopsies this morning .
And as its a "one stop" breast clinic , they gave me my initial results straight away .
I have breast cancer .
And it is showing up in my armpit nodes aswell .

I meet with the consultant next week on Thursday to get the results of the core biopsy (only got the needle biopsy results today) and to discuss treatment .

Phew , that is hard to type .

smee · 11/05/2011 14:07

Topsy, you beat me over here! I've just posted on your other thread. Really sorry you're here. You must be in shock. I know I was when it was me. Ask any and all questions you want to. We've all been through various versions of this bl**dy disease. Have you got a Breast Care Nurse yet? I found mine ever so helpful, especially at diagnosis stage.

smee · 11/05/2011 14:12

Amber, grrr indeed. What have they given you? The potions makes me think of a witches brew, but hopefully it's a mite more scientific than that. Grin

Sparkle, hope your boy's on the mend. Am assuming you have him still at home with you. Decorating boxes sounds rather lovely. Was there much glitter?!

Cakes, hope appointment wasn't too uncomfortable. How long do you have to wait for results? Is it the whole two weeks? HOORAY for weight loss though. Must be all that juicing. Smile

Smile for eyes through the post, Kurri. They sound gorgeous.

Am just back from Psychologist. Liked her a lot, and I remembered not to bite or growl, so she deemed me sane. Grin

amberlight · 11/05/2011 14:30

Smee, the usual anti-racing-to-the-facilities stuff Grin. It's worked. Hooray.

Topsy, welcome from me! Arrgh and grr and all sorts of other emotions re your instant diagnosis. It's a bit like being run over with a truck, I found.
If it's any consolation at all, modern treatments are bloomin' good and work very well for most people, even if it's been naughty and tried to sneak out of the breast. Lovely people here who know what it's like...
I was diagnosed in Jan/Feb with a grade 3 (most rudely behaved) 2.3cm ductal sort so having all the usual chemo and then surgery and then wonderdrug stuff.
Have a Brew Or a Wine depending on what you feel you need...or a hug. Or all of them.

Smee, glad your psychologist found you sane. Mine's not sure about me Grin but it keeps her entertained for hours.

MaryAnnSingleton · 11/05/2011 14:45

smee- glad psycho was nice Smile
topsy- welcome and I am sorry- you must be in shock - we are here though and will hold your hand through this.

ultrasound tomorrow btw.

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KurriKurri · 11/05/2011 15:03

Welcome Topsy, but of course I'm very sorry you find yourself here.
Same day results make it all a bit more shocking I imagine, - and I'm sure you are feeling pretty shaken up and fragile at the moment.

You did really well writing your post - it is hard to talk about, even saying the word cancer was a struggle for me initially. Taking a few days just to get your head around things before you start making decisions about who to tell, and how to arrange appointments etc. can help.

I also found crying and swearing quite handy coping tools Smile

But Amber speaks good sense, - modern treatments are good, lots of us on here have had spread to lymph nodes, so hopefully we can support you through this. I was DX nearly 3 years ago, but there are quite a few ladies going through their treatment atm, so they will have lots of up to date tips for coping with it all.

Take care xx

Amber I like your description of your grade 3 as 'most rudely behaved' - mine was grade 3 too, - I now have a phrase to put it in it's place Grin Hope the tummy troubles settle down soon.

Smee - it's a relief to know you have been pronounced sane - some of us were having a few doubts we all knew you would be Wink Grin

SparkleRainbow · 11/05/2011 18:32

Welcome topsy, am so glad you came over here, they are a lovely bunch of wonderfully supportive women, who can help you get through this.

amber Grin at most rudely behaved
smee [relief emoticon] of course you were recognised as sane, never any doubts! There was so much glitter involved in decorating boxes.....glitter, sequins, sparkles, jewels, glue, tissue paper and slightly frazzled mum trying to keep dd2 away from the action!

MAS all my best thoughts and hugs are winging their way to you for tomorrows scan.........Brew and Wine for later too!

Ds is still at home, really hoped to get him to school this week, with his one to one support, his collar on fully medicated etc...but don't think it will happen at this rate.

MaryAnnSingleton · 11/05/2011 19:32

thanks sparkle - and do hope that ds gets to school xx

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