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Update on Rindercella's DH

1000 replies

Rindercella · 09/02/2011 12:21

Apologies for putting my name in the thread title - it seems so self important but I don't mean it to be. So many of you offered so much help, support and fantastic advice, I just wanted to let you know where we are at. Previous threads here and here.

DH was diagnosed with advanced metastatic prostate cancer with secondary lymph node cancer in May last year, when our DD2 was just 5 weeks old. 9 months on and things are very far from well. DH's health has unfortunately really deteriorated since then. Particularly since Christmas he is suffering so much more pain and discomfort. He can now barely eat and is just so, so weak.

He saw his oncologist yesterday and he is to start a course of chemotherapy starting next Wednesday. He also needs a blood transfusion next week (and thank you to everyone who gives blood, what a brilliant thing you do).

He is a very, very ill man. It is so bloody hard to see the man I love so very much waste away. There is no prognosis. I know he is going to die from this fucking awful disease. I just don't know when.

I am getting counselling, which is definitely helping me. And my SIL is now more or less living with us which is so fanastic I cannot tell you - her being here helps us all so much, and it helps her and it helps the rest of their family, knowing that she is here. I actually don't know how I coped for the last couple of months before her arrival. I am still manically busy, and that's with an extra person helping me. I think DD1 feels it very much too and is especially clingy to me and she really hates me leaving her (eg when I drop her off at preschool).

Mostly this seems so surreal. Like I am not really typing these words. Cancer. Chemo. Only pallative. My darling husband. Those things just shouldn't be joined together. But they are and it is very, very painful.

I hope that the chemo does make DH feel better (I understand that he is likely to have bad days following the treatment). The worst pain for him is in his bones. He sometimes screams out with the pain. Just heartbreaking.

Does anyone have andy advice on how best to help him through his chemo?

OP posts:
Hassled · 21/03/2011 21:19

I wish I knew what to say and there's just nothing that comes close, except that we're thinking of you. Enjoy the birthday, then deal with the next thing - hope he gets stronger in the next few days.

sunshineandshowers13 · 21/03/2011 21:22

one day at a time, who knows what tomorrow may bring.xxx

saltyseadog · 21/03/2011 21:22

Thinking of you all x

BCBG · 21/03/2011 21:28

I am so, so Sad for you.... i wish so much that there was something that could be done to ease both your suffering.....

Arcadie · 21/03/2011 22:17

Rinders - sorry to hear they won't even do chemo atm. Second PDs comment about the silver lining. Hoping you get a good night and that tomorrow brings some good news for you and the beautiful girls.

TigerFeet · 21/03/2011 22:20

THinking of you RIndercella x

scooby26 · 21/03/2011 23:31

Wishing your DH and you a better night and a brighter tomorrow- PD speaks wise words as always- DD2 birthday should be fab ;-)) x

sharbie · 21/03/2011 23:32

sending best wishes xx

PollyLogos · 22/03/2011 10:12

Positive thoughts coming over to you all from sunny but cold and windy greece. Hope dh is feeling a bit stronger this morning. x

MummyElk · 22/03/2011 11:08

Rinders, quick one because I'm at work. There is a silver lining and it's that you don't want to further weaken body with chemo, much better to spend some time getting rest and gaining strength. I'm sure he's looking forward to the birthday as well.
Thinking of you all

treedelivery · 22/03/2011 12:53

Sorry about the chemo news Rinders, I really hope your dh is able to relax at the hospice and enjoy the sunshine streaming in the windows.

Try to eat and drink something very tiny every few hours - to keep your strength up and banish headaches and nausea. The adrenaline rush you are living drains you so. All strength to all of you.

2plus2more · 22/03/2011 16:16

read your threads before but never posted. Thinking of you all and praying peace into your home and hearts.

MrsDmamee · 22/03/2011 16:18

thinking of you all today(here in Albuquerque) Rinders ,DH &DD'S.

So sorry to hear your DH has unnessecary sores/pains aswell as battling this awful disease. I can understand your angry over the dressing.

I had the same thing happen last sumer after my em-cs when nurse removed my dressing 24 hours post op it ripped a layer of skin off too and if I wasnt already in enough pain...its so unfair and especially so unfair on your dear husband to have any extra pain to deal with!!!

I hope you all have a wonderful time at dd'2 big day and fingers and toes and anything else i can cross for your DH that he can gain some strength for next tuesday/chemo.

Look after yourself and I hope you get a few more hours sleep soon.

Pinkjenny · 22/03/2011 16:42

Thinking of you, Rinders.

Woodlands · 22/03/2011 19:23

Thinking of you - hoping your DH regains some strength very soon.

thinbridewaitingtogetout · 23/03/2011 11:20

Thinking of you and your family and hope your DH finds some streanghth soon .

ChippingInMistressSteamMop · 23/03/2011 11:25

Rinders - it is a lovely sunny day here (all be it with a strong wind!) I hope you have sunshine where you are, it's so good for lifting your spirits and making you feel stronger. I hope Richard has gained some strength in the last couple of days.

Please try to keep nibbling on something - you need to keep your strength up x

IngridBergmann · 23/03/2011 11:35

I'm sorry sweetheart. We're with you, if you need us. Lots of love xxx

Buda · 23/03/2011 12:01

Still thinking of you and hoping the news gets better.

heathcliffthe2nd · 23/03/2011 12:25

I have never posted before but came across this thread and just wanted to say that although I don't know you, I am thinking of you and sending you love and praying for you, your husband and your children. x

Northernlurker · 23/03/2011 18:39

Thinking of you

Portofino · 23/03/2011 21:03

How are things today Rinders? You all remain in my thoughts. x

onlyjoking9329 · 23/03/2011 21:08

Thinking of you all
Oj.

treedelivery · 24/03/2011 10:00

Thinking of you and checking for updates. Hope all is ok.

maddiemostmerry · 24/03/2011 10:36

Thinking of you all. x

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