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**the 7th Tamoxifen Thread **

931 replies

MaryAnnSingleton · 20/12/2010 18:09

here we are...

OP posts:
Cakesandale · 27/01/2011 12:38

smee Grin apparently I always lower the tone Hmm

a flexi bar is a long metal bar with a sort of bobble at either end, and a grip in the middle. You have to hold it in various positions and just vibrate it rapidly back and forth, or up and down - it's meant to get all the little muscles working and exercising. Probably a load of old tosh but we do it sometimes as a break from the usual stretching and toning stuff.

LimeJellyforBrains · 27/01/2011 12:39

Oh and at my first results meeting, I got given a plastic 'pack' - how I hate those wastful things! - but it did contain a spiral-bound info/notebook for filling in just such information. Maybe I should actually use it - thanks for that tip.

Also, it's blue and not pink or purple!

Cakesandale · 27/01/2011 12:40

This reply has been deleted

Message withdrawn at poster's request.

LimeJellyforBrains · 27/01/2011 12:45

Yes actually I am going to report that post - don't really want that up here - and too identifiable to anyone local.

LimeJellyforBrains · 27/01/2011 12:52

Asked MNHQ to delete a post, here it is without the TMI:

Smee - yes have very useful sense of humour and quite ridiculous ability to put postitive slant on things - I am after all having a free reduction for my huge boobs, remember, good for my backache

Also very glad to report have lovely, lovely RL friends who I know will gladly walk into/out of school with me to help deflect pitying looks. The lovely messages, calls and offers of help (and swearing!) they have given me since yesterday for a start Smile

Cakesandale · 27/01/2011 12:52

Ooh it's gone already. Well done!

Cakesandale · 27/01/2011 12:54

I've asked for my response to be removed too.

SparkleRainbow · 27/01/2011 12:56

Oo well done mnhq that was fast. Smile

LimeJellyforBrains · 27/01/2011 12:56

Phew, and thanks Cakes

LimeJellyforBrains · 27/01/2011 12:59

Oh no! Have been on here all morning! Have even missed having lunch cunningly timed to coincide with Bargain Hunt! Blush

SparkleRainbow · 27/01/2011 13:08

Yep me too, have managed not to change any of baby's nappies too, but sent her to dh who is working from home......well they said to avoid domestic appliances, I think the nappy bin counts! Grin

Cakesandale · 27/01/2011 13:16

Oh yes, I got out of cleaning out the rabbits for quite some time post-surgery. You have to learn how to milk it....

Well I think you are a pair of wastrels. I have been writing and proofreading various client newsletters, dontchaknow (though possibly not that efficiently)

LimeJellyforBrains · 27/01/2011 13:20

Sorry Miss Blush Will go and do something useful now like...er...get dressed Blush

SparkleRainbow · 27/01/2011 13:26

Sorry Miss, will go and......well am dressed already so....will go and make myself a cup of tea.Grin

MaryAnnSingleton · 27/01/2011 14:59

huh ! I was doing very dull cleaning- am now drawing !

OP posts:
sandripples · 27/01/2011 16:35

Hi Sparkles- just wanted to say I'm sorry about the lymph nodes news. This sounds similar to my experience last year. I had 3 lymph nodes which showed as cancerous when the sample was taken. I therefore had chemo. I had bone and CT sacn and those were no problem apart from drinking the large amount of strange white liquid.

My onc said it was important to get going with the chemo - ie that was the priority ahead of removing rest of lymph nodes, as the chemo was more critical in terms of cure.

So then I had to wait about 5 weeks for my infection to clear up, then started chemo, then after 2 cycles of chemo (I think it was 2) I had the rest of my nodes removed. I thought this would be diabolical, but managed to get through OK! And no further cancer was found.

The 2nd op for the lymph gland removal was not as bad (for me) as the first. After the first I had nasty stinging pain under my arm and along it, for 3-5 weeks, (possibly partly due to the infection) but after 2nd op I bounced back quickly without anything like the pain level. Took no pain-killers 2nd time.

Then resumed chemo and slogged on through to the end!

Just thought you might want to know how it was for me, as you might have a similar journey. Its tough but doable and here I am, back at work full time. There are good tips re chemo on the BCC site but don't let that site scare you too much. I terrified myslef somewhat = about how chemo would be, and it wasn't as awful as I'd feared. It does vary from one individual to another and if you do have it you'd be closely monitored and we'd be here for support. You'll prob have lots of questions in due course, but we can help!

SparkleRainbow · 27/01/2011 16:36

All cleaning is very dull, well it would be if I could remember how to do it! Now drawing sounds much more interesting, just wish I could do it!

Time for another cup of tea.

LimeJellyforBrains · 27/01/2011 17:33

Sandripples - thanks so much for all that brilliant info, and very interesting what your onc said re the chemo. If you had not had infection, would the op have been done before the chemo as 'usual'?

smee · 27/01/2011 17:47

LJ blue's a good colour - my notebook is bright red. Grin

Cakesandale · 28/01/2011 09:27

LJ - can't speak for Sandripples, but I had my second node op before chemo, so am guessing you are right - it was about 2.5 weeks after - would have been sooner but I had a holiday booked and they said to go and have some fun.

smee · 28/01/2011 10:09

LJ, I think they tend to do the op first if they can, then chemo starts 2/3 weeks later. That's what happened with me, though I was a bit different as I knew right from the start it was in my nodes so had a mastectomy and nodal clearance all in one op. Hope you're okay today.

Sparkles, how's the wound today?? Any easier? Hard to be cheerful on such a grey, cold day, so if you're still feeling down maybe just give into it for once. Hope the chickens aren't suffering with this cold. Smile

Trivial memory, though it wasn't at the time. All this talk of surgery's made me remember. My mastectomy was scheduled for Easter last year, but we had a short break booked in Spain, so the surgeon said we should still go and she timetabled the op for as soon as we were back. So we get to rain and it's raining and cold and then that volcano fiasco hit, so we were stuck. I don't think I have ever felt more sorry for myself. Sad

Hope everyone's warm today. Hooray for hot water bottles. It's okay, I work at home so am not looking insane in an office somewhere. Grin

Cakesandale · 28/01/2011 10:23

Sunshiney here! Still bloody cold though.

Funny what sticks in your mind about treatment, smee. What I remember most is a woman who goes to the same sports and social club as us (we meet friends there for a drink every Friday night) - she just used to sit on the far side of the room staring at me. It was very unnerving. It happened week after week but, as my hair returned, her interest waned, thank God. The sod off t-shirt would have been very useful, wish I'd had one.

We went for a curry last night and now I am starving. Maybe if I get a hot water bottle it'll stop the hunger pangs as well as keeping me warm.

smee · 28/01/2011 10:36

Cakes, you'd have been within your rights to at least swear at her. When I was in hospital, woman in next bed kept repeating, 'You are so brave' - I really wanted to hit her. Nice nurse said she'd turn a blind eye if the urge got too much. Grin

smee · 28/01/2011 10:37
  • why'd you have to say curry?? I want one now. Surely that's not normal at 10.36 on a Friday.. Confused
Cakesandale · 28/01/2011 10:49

I'd better not say mini chocolate swiss rolls then, had I? Ooops, too late! Grin

I hate the ones who call you brave as well. Particularly in my case, as 'in denial' was rather more accurate.

Apparently, more than one person told my DH I was 'an inspiration'. Bleurgh.

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