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Quetaiapine help

245 replies

Cmblue · 27/03/2018 10:14

Iv been put on quetaipine for resistant depression and anxiety among other mental health issues, iv been on it for a week and am getting terrible side effects, I feel sick, weak, dizzy more anxious. Has anyone taken this medication and had side effects or found it effective?

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Babettesidsefreyaallthescandi · 16/04/2018 10:27

He is going back on Thursday. My DP will be here as he is also off work with depression but he is not as bad as me. All in all we are in a mess, could lose our house if he doesn;t get back to work. I took another sleeping pill last night to see if I could get my sleep pattern back on track but really just delaying the inevitable of not sleeping. The olanzapine made me relaxed but didn't get me off to sleep. How are you? Is your son back to school today?

Cmblue · 16/04/2018 13:23

Has your partner had ongoing depression or is mental health new to him too? Did you take 5mg of the olanzapine? How is your UTI? I'm ok better than yesterday it took me a couple of hours, I always feel most down in the morning, yes he's back to school, I'm hoping the routine will help me.

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Babettesidsefreyaallthescandi · 16/04/2018 14:11

It is new to him. We have had bad news today as he has received a letter saying that he will be moved on to half pay at the end of April- we thought that he had 6 months on full pay so it is a shock. He is going to ring the union later. He needs to be off longer for him but also for me. I did take the 5mg but it made no difference so I took a sleeping pill - running out of options now and all this job stuff will make things worse.I will have to find a way of keeping calm.Still have burning sensation.

NooNooHead1981 · 16/04/2018 14:26

Bugger - I just posted a very long post to tell you my story of hope and then my stupid phone died!

Anyway, just to say Babette that you will get through this and things WILL improve mentally and physically. I had a horrendous breakdown two years ago, and didn't sleep literally for about 2 weeks after an awful time following a head injury, post concussion syndrome and other horrible cognitive problems.

I was given a first gen antipsychotic on top of lots of other psychotropic meds to calm me down, and eventually Citalopram got me sleeping and sane again. The antipsychotic did mess me up though and I ended up with tardive dyskinesia from it after only a week on it (and being told that it wasn't possible to get TD from it after such a short duration, and low dose). I saw five neurologists before one agreed with my self-diagnosis that I had TD.

My story could be a lot more detailed if you want but I will spare you all of it - my point is, I did recover from such a horrendous time and know just how debilitating sleep deprivation can be. I spent nearly 2 weeks with no sleep at all and was literally crawling up the stairs because I was so weak. One friend said she had wondered where I was for ages as she hadn't seen me on the school run and thought I was going through a mid-life crisis! Haha, that would have been much more preferable!

I'm not 100% back to normal and my stupid TD is still here, but I AM in a happier place and am expecting DC2 in June, so am looking to the future with lots of hope (and also hoping that the sleep deprivation doesn't send me down the same spiral again..!)

Best of luck to you, please let me know if you want to hear any more of my story. I can totally empathise and know exactly what you are going through. Stay strong - you can do this.

Cmblue · 16/04/2018 15:09

Money issues on top of everything is just dreadful, could he claim ESA if he's paid enough national insurance. Is he also on medication? It's just another worry isn't it. Maybe you could ask to increase the olanzapine on Friday, have you got on better with it than the quietiapine??

Noonoo it would be good to hear more of your story seen as tho your doing so well, what have you found helped?

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Babettesidsefreyaallthescandi · 16/04/2018 16:15

ESA will not cover our mortgage and bills, nowhere near. Thank you for your encouragement Noo. It is very difficult to see a light at the end of the tunnel.I was really hoping that DP would get 6 months as that is company policy so we can't understand why they are doing this after him being off for just over 3. He has practically been my carer over the last two weeks, I am worried that I won't be able to cope at all if/when he goes back. That sounds selfish I know. I am also worried that he isn't well enough to go back.
I don't think that they will increase the Olanzapine while I am still tapering the Quetiapine.

Cmblue · 16/04/2018 16:34

Esa topped up my pay when I was on half pay, has he been working at his workplace long enough to receive full pay for 6 months? How long does it take to tamper off quietiapine? How has it been on the antidepressant?

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Babettesidsefreyaallthescandi · 16/04/2018 17:02

Yes , he has been in this job 30 years. He got 6 months off about 4 years ago when he had a heart attack. I should be tapering off the Q over 3 weeks. If it wasn't for my UTI and the shock about the job, I have been better today - drove to Aldi which is the first time that I have driven in ages. Hope you are doing fine. Thanks for your support.

Babettesidsefreyaallthescandi · 18/04/2018 10:19

How are you doing cmblue? Are you starting to feel any better on the Q ?I will be down to 50mg of Q tomorrow. I am now really regretting going on to olanzapine after reading about people who put on so much weight on it. That would be the last thing I need.

Cmblue · 18/04/2018 11:20

To be honest now the Q side effects have gone, it's not really doing anything for my anxiety, my mood is lifted for about an hour in the day then I drop again. How are you getting on with your new meds? Olanzapine does give you sugar cravings, have you had any increased appetite on it?

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Babettesidsefreyaallthescandi · 18/04/2018 11:50

Glad the side effects have gone but a shame it isn't touching your anxiety. I am feeling very lethargic so even more difficult to motivate myself to do chores. I haven't got a sweet tooth luckily and I am trying to be careful with what I eat but I have read that Olanzapine puts weight on even if you don't overeat. Feel a bit cross that the doc and CPN didn't tell me about the weight gain.Feel like I should get outdoors today as the weather is so lovely but probably won't.

Cmblue · 18/04/2018 12:29

Ye iv read it slows down your metabolism, but I think it's more a case of overeating, and not moving around. I can't believe they didn't mention it, it's the main side effect but I suppose they are more concerned about your mental well-being. Yes the weather is nice here iv got so much gardening to do but I'm struggling with chores too. Could you not sit in the garden with a cup of tea? How's your uti?

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Babettesidsefreyaallthescandi · 18/04/2018 13:07

Sadly can't drink tea because of the UTI which had settled yesterday but is back a little today. It is great that you are going to do the garden. I might go and buy some hair dye and then sit in the garden. Tbh, I am not sure that I am fit to drive as I feel a bit spaced out.

Babettesidsefreyaallthescandi · 18/04/2018 15:43

Cmblue, did you get any side effects on fluoxetine? I was writing a list and noticed a tremor and I have probably done the wrong thing by googling it as it seems to be a common side effect.My mouth feels a bit numb too. Really annoyed that we have to take these powerful medications.

Cmblue · 18/04/2018 15:54

I was allergic to fluoxetine, I didn't respond to it very well at all, it was one of the first antidepressants I tried, I came out in a rash. I have definitely had the numb mouth and tremor also muscle spasms, teeth grinding when I was on venlaflaxine, I also had it on the anti psychotics, it does ease after a couple of weeks, it is shocking the array and bizarre side effects we suffer at these meds but the brain is a complex organ I suppose there effecting.

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Babettesidsefreyaallthescandi · 18/04/2018 16:16

You really have been through the mill haven't you. I am meeting my cpn on Friday so I will mention it but I will probably have to stick it out unless it gets worse. I have done a little gardening too(did you get yours done) which I certainly wouldn't have been able to do a week ago so maybe that is a sign of it working.

Cmblue · 18/04/2018 16:31

Hopefully it will ease with time, I know how frustrating it is tho. No I haven't started on the garden I did inside tho. That's brilliant you've done yours, fingers crossed you've found the right combination

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Babettesidsefreyaallthescandi · 19/04/2018 12:57

Hi cmblue, how are you? I was just wondering what dose of olanzapine you were on? I don't really want to go above 5mg. Still getting the side effects from the fluoxetine but it is making me slightly more motivated which is good. Have just dropped my son off at the station - will miss him a lot.

Cmblue · 19/04/2018 13:46

I went too 10mg but that was over a period of weeks. Do you think they will increase the dose of fluoxetine before they increase the olanzapine? If that's improving your motivation? But I agree the side effects are hard to live with. Aw that must of been sad waving your son off, I bet it will feel empty without him, is he back in the summer holidays now?

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Babettesidsefreyaallthescandi · 19/04/2018 15:13

I don't really want to increase either olanzapine or fluoxetine, I would like to be on the lowest possible dose. My son will be home in the summer hols. Hope you are having a good day, what have you been up to?

Cmblue · 19/04/2018 16:13

Have you managed to sleep? When do you come off the quietiapine, iv potted some plants, I can't tolerate the heat like I use to it gives me awful migraines, iv read that some medication you have to be careful in the sun aswell. Have you managed to do much?

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Babettesidsefreyaallthescandi · 19/04/2018 16:38

Yes I was thinking of potting some plants too although I don't think I can be bothered this year. I am sleeping but not as much as I would like. I will be off the Q this time next week. I have done bits and pieces around the house - this time last week I was barely able to do anything. I have only ever had a migraine once and it was awful so you have my sympathies.

Babettesidsefreyaallthescandi · 20/04/2018 11:48

Morning cmblue, how are you? I have a meeting with my CPN today and I am not sure what I am feeling about these new tablets. On the one hand, I have slightly more motivation but I am also getting lots of side effects, especially in the morning, shaky, numb mouth and just not feeling right. I am sleeping but I don't feel rested when I wake. I suppose I have to just stick with it.

Cmblue · 20/04/2018 13:33

Hiya Babette, have you had your meeting? Did you mention the side effects? I know how hard it is trying to outweigh the side effects from the benefits of these medication, and I totally get what you mean not feeling right, I'd give anything to just feel right, is your cpn helpful?

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Babettesidsefreyaallthescandi · 20/04/2018 15:45

Hi, my CPN is helpful and she is going to talk to the doctor about the side effects. It is strange how the side effects lessen towards the end of the day so I think that it is definitely the Fluoxetine. It is difficult to explain 'not feeling right' isn't it, do you ever feel better even for just a short time?