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Quetaiapine help

245 replies

Cmblue · 27/03/2018 10:14

Iv been put on quetaipine for resistant depression and anxiety among other mental health issues, iv been on it for a week and am getting terrible side effects, I feel sick, weak, dizzy more anxious. Has anyone taken this medication and had side effects or found it effective?

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Babettesidsefreyaallthescandi · 12/04/2018 14:26

I'm back.I was in there nearly 2 hours. I did feel that I was listened to which is good especially how devastated I feel having developed these problems later in life. I am now going to be tapering off quetiapine and starting on olanzapine and fluoxetine.I am really scared that I might get even worse and I already feel at rock bottom. I start tonight. I wish it didn't have to be such trial and error and I imagine that you know that better than me as you have tried a lot of different meds. Still can't believe I am going through all of this. They didn't seem to take on board the UTI issue.

Cmblue · 12/04/2018 15:03

Did they mention you could get worse before you get better? Hopefully the antidepressant will boost you, personally I found the olanzapine had a lot less side effects than quietiapine it also made me sleep better. When will they next see you again? Fingers crossed this is the right combination for you. My friend is on the same combo and she recovered from a mental breakdown a lot quicker than I am.

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Mammysin · 12/04/2018 15:06

Quetiapine has been the silver bullet for me. Was prescribed it just before Xmas and I feel more "stable" now I guess...

Babettesidsefreyaallthescandi · 12/04/2018 15:20

Yes they did say I could get worse before I get better which is a huge worry, Good to know that your friend is doing well on this combo. Why did you come off olanzapine?I am being seen next Friday by the CPN and in five weeks by the doctor.Did you get this kind of care when you first became ill? How are you doing today?

Cmblue · 12/04/2018 15:56

I came off olanzapine because it wasn't doing anything for me, but I found it less intense than quietiapine, have you got enough food, a tidy house etc just to be prepared incase you do get worse, I found a duvet and shutting the world out was the only way to deal with side effects from antidepressants. I was first under crisis team and they rung me every day because I was suicidal but I discharged myself after a month or so. I'm doing OK its just my anxiety that is still very high. It's good you are seeing the CPN next Friday.

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Babettesidsefreyaallthescandi · 12/04/2018 16:49

Were you on olanzapine at the same as an antidepressant? My DP and son are doing all the food side of things at the moment anyway but I dread getting any worse. My son is going back to uni next week and I will miss him. Seeing his face and getting a hug is about the only thing that gives me any pleasure. Is your mum still in hospital?

Cmblue · 12/04/2018 16:56

Ye I was on it the same time as mirtazapine, do you have to start taking them tonight or wait until you've weaned off quietiapine? Awww I know what you mean about the comfort of your son, they remind you you've got a purpose to keep going. Yes she's still there unfortunately.

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Babettesidsefreyaallthescandi · 13/04/2018 12:32

Well I had my first night on the new meds. I hadn't realised that they had swapped the quetiapine around from instant release to extended so I think I panicked when I still wasn't asleep at 11 so I took a sleeping pill. I will try to take the q and olanzapine earlier in the evening to see if I get a sedating effect. I am now on 100mg of q and 2.5mg of O. Feel very sedated today though. Hope I haven't done the wrong thing changing my meds. How are you today?

Cmblue · 13/04/2018 12:40

What dose of olanzapine will you eventually go upto? Have you started taking the fluoxetine yet? Ye I take mine at 8.30. You do have a lot going on weaning off q and onto O I'm not surprised you feel sedated. I'm ok, I'm going to try and push for a walk today. I'm supposed to be pushing myself it's just hard.

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Babettesidsefreyaallthescandi · 13/04/2018 13:18

Hope you get out for a walk, it doesn't feel quite as cold as yesterday. I am going to be on 5mg by week 2 and then I don't know. I did start the fluoxetine today so yes, I have a lot going on. I don't want to jinx anything but my UTI is slightly better which is such a relief. It is hard to push yourself but do you ever feel better for it? I can't motivate myself to do any housework. I don't like doing it when I am well. Every time I get up, I try to do one small thing, put some washing away or clean the loo. Wish I had the money for a cleaning firm to come and blitz it.

Babettesidsefreyaallthescandi · 13/04/2018 13:50

Hi cmblu, can I just ask ( if it's not too personal) did you put on weight when taking olanzapine?

Cmblue · 13/04/2018 15:01

I put on a stone with olanzapine yes. I'm struggling with the housework but I get up and do it first thing then I lie down again and watch a bit of telly. I really hope your Uti is clearing up. Doing one small job at a time is a good idea tho, that's how I try to break up my day.

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Babettesidsefreyaallthescandi · 13/04/2018 16:42

I'm really impressed that you do the housework first thing. I think that I might have spoken too soon re UTI - been getting some twinges again. I treated myself to some tea for breakfast as I had missed it so much... tea is not good for UTI. I hope that it's not coming back properly.Did you get out for your walk?

Cmblue · 13/04/2018 17:17

If I don't do it first thing it plays on my mind and makes me anxious otherwise I sit in my room and ignore it. Ye caffeine is a diuretic, you've done well not drinking it, I love my tea since iv had to give coffee. Hopefully coming off the quitiapine will help, I do worry about the impact of our kidneys with all these meds. Yes I walked to the hospital, my anxiety is still causing wobbly legs tho. Have you had any side effects from the antidepressant?

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Babettesidsefreyaallthescandi · 13/04/2018 17:53

well done for walking to the hospital. Any sign that your mum may be coming out soon? I don't know if I have had side effects of fluoxetine but my mood has been lower than yesterday. It will be hard to tell which drug is the problem as I have started on two together. I wish I had a little bit more motivation to do housework. It doesn't make me anxious if I don't do it, it just makes me feel miserable looking at the state of the place.

Cmblue · 14/04/2018 09:27

She got discharged yesterday she's just still in a lot of pain.
How are you getting on with the new medication?? How is your sleep?
How is your UTI??

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Babettesidsefreyaallthescandi · 14/04/2018 09:53

Morning, Good news that your mum is out. I had a terrible night- I think that I probably slept an hour because I remember a dream. I think the olanzapine is at too low dose, 2.5, to help with sleep. Today is going to be a right off.I can't believe that my life is like this now. Hope you are ok?

Cmblue · 14/04/2018 10:15

Aw that's awful Babette, 2.5 is a low dose, I was at 10mg, I guess they want to ease you off the Q. you've also got to deal with the antidepressant which can be a stimulant and your body withdrawing from the Q, it's a lot for the brain. I really feel for you it's something you wouldn't wish on your worst enemy isn't it. I'm going to try to make the effort to do some mindfulness today.

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Babettesidsefreyaallthescandi · 14/04/2018 10:47

Thank you cmblue. You sound like you are doing a bit better. I was able to do mindfulness a few weeks ago but it would be impossible now. If you are able to do it, that is a good sign. I was hoping to get a bit better before my son goes back to uni next week but I think that is unlikely. At least when he is here I don't have to worry about him.

Cmblue · 14/04/2018 14:25

I'm going to try really hard to do it everyday because I'm rubbish at it. Hopefully when you increase the olanzapine you will sleep better, did you get up last night? Do you worry about your son a lot when he's not home? I think it will be a couple of weeks before you start feeling the effects of the meds it's just an awful waiting game.

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Babettesidsefreyaallthescandi · 14/04/2018 17:07

I think that you are right about waiting at least a couple of weeks to see if this combination of meds work. I think I would be much better if I could just sleep. Mindfulness does get easier the more you do it so keep going. My son has exams when he goes back. Normally, I would be there to support him through that but I won't be able to this time. He says that seeing me like this hasn't affected him but I am sure that it must have. Have a good evening.

Babettesidsefreyaallthescandi · 15/04/2018 16:55

How are you today cmblue? I resorted to taking a sleeping pill last night as my UTI was playing up and I just needed to sleep. I am thinking of upping my olanzapine to mg tonight(after 4 days instead of 7) to see if that helps. What do you think? My mood is a little better today and have done bits and pieces around the house.

Cmblue · 15/04/2018 17:46

I'm struggling today, it's knocked me back a bit. How is your UTI today? Yes you could try upping it tonight I think the 5mg will help. Well done for doing some bits around the house, fingers crossed this antidepressant is kicking in.

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Babettesidsefreyaallthescandi · 15/04/2018 18:39

So sorry that you are struggling. Let's hope tomorrow is a better day. My son has booked his train ticket back, sad.

Cmblue · 15/04/2018 18:55

Yes I hope so, aww when is he returning back? Will your DP be home with you when he's gone back?

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