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What happened to the mental health support village?

226 replies

sadandanxious · 22/02/2017 15:01

I'm sure a while ago there was a thread running for mental health support - a sort of supportive village where we could all come and talk about our mental health worries or just general life and feel safe and supportive. I posted under a different name back then and can't seem to find it any more.

Does anyone else remember it or have I just imagined it? Either way, would anyone else be up for it? Perhaps a yurt would be a safer, more comfortable place than a village?

OP posts:
Joto369 · 26/03/2017 20:33

Glad everyone seems in a safe yurt like place today😊 I went to the seaside and sat in the sun. Bliss as I forgot about being anxious and panicky 😊😊

Ohfucks · 27/03/2017 19:09

Hi guys, hows everyone?

Had my first visit with the weekday CHMT team. Got very upset in today's session, I am SURE she said she thought I didn't need the CHMT stepped up care and wanted to refer me back to the GP and to talking therapies like CBT through IAPT (I don't think CBT IS for me - have tried it through charities before, and have been turned away for being too complex)

I got really upset about this as it seemed to be the route of my problem-- that my masks are so good no one ever thinks I need help, no one can see me screaming. That I was being abandoned and left to cope on my own with no help. I said she should come back at night and see me then. I told her about the urge to self harm, after the last session. I said I felt a bit abandoned by the service.

The thing that confuses me, is that she then seemed to massively backtrack, and said she only said about GP to avoid waiting times for the psychiatrist/psychologist... she kept talking about how long the waiting lists are for all the services, kept talking about all the far off clinics are I'd have to go to... she was trying to put me off the plan that had been made on Friday, saying it was only a referral - it wasn't a plan. It just seemed so negative, so confusing. There doesn't seem to be any hope then? I thought i'd get to see a psychiatrist about possible medication/diagnosis? A psychologist to help me learn new behaviours? Visits daily to help me keep myself safe, and to guide my recovery?

She thinks I should go to the GP and ask for Sertraline - The nurse who assessed me does not think I have depression, I agree. I do get anxiety.I said i'm very nervous about asking for medication without a diagnosis, because anxiety is not my biggest/only issue. I'm worried about taking something which takes a long time to start working, has side effects and then getting diagnosed with something at a later date, and realising i'm on the wrong medicine? It just seems really illogical. My GP doesn't have a free appointment till end of April anyway.

I got upset because she kept mentioning psychiatrists, psychologists, psychotherapists and various therapy styles and clinics without explaining what each of them does. - i don't know what they do, i've never been here before! I don't know what I need - other than fridays referral plan. I just don't trust myself to do this on my own.

She's going to come back on Wednesday, because I asked/cried that I didn't trust myself and felt hopeless. but she doesn't want to do more regular visits (or at all). She said these visits are mostly for people with psychosis. I just feel so alone and lost again. I don't know what the plan is, I don't know how to stay safe, I don't know how to get better and I don't feel like CMHT want to help me, and i'm not sure I have the energy to fight.

I cried for about an hour in that appointment. She said she could see her mentioning the IAPT service changed my mood. I really wanted someone there to help me communicate, I just don't think she understood how i'm feeling, or why I was scared/upset by her suggestions.

Positives are... everyone i've spoken to so far has mentioned UEPD/BPD, which I would agree with. So have some reading to do, and I now have two pet bunny rabbits hopping around my house :) In fact one was hopping in and out of the visit this afternoon...

erinaceus · 27/03/2017 19:24

(((hugs))) Ohfucks

Good news about the bunnies.

Ohfucks · 27/03/2017 19:38

Gosh I just needed to vent!

AnxiousMunchkin · 28/03/2017 20:41

Ohfucks that all sounds so frustrating. How can the plan/advice be so different?!? Hope today has been ok.

I've really crashed these last few days. Brain feeling very slow and feel like I'm not really on the ball at any point. I'm sure I'm messing up at work all the time. DP has gone to get Chinese food for dinner, if it was just me I'd probably just sleep to be honest.

Joto369 · 29/03/2017 05:44

Morning yurtees. It's my first wedding anniversary today and it's not going to be an easy day so I've come to have a fluffy hug before i go to work. End of last year I found hubby on dating sites. Of course he wasn't going to do anything but add a car crash just after i found out and a subsequent fall into low mood and increased anxiety (including a return of my trying to control the world symptoms not literally just anything that stops the panics). I think I may have just blocked everything about it to cope with me. The accident I've dealt with and I'm back to driving ok but I'm so angry with him yet it's like nothing happened. We are in marriage counselling but this is not how I saw my first year. Most of the time I'm ok but today ok just isn't good enough. My sister once said if you get rid of him I bet you're anxiety will start shifting. I do wonder. Anyway I hope you all have a lovely day - shame about the rain after such a gorgeous weekend. Xxx

Ohfucks · 29/03/2017 05:49

Yes - the weather does seem to have shifted our moods.

I just slept for 7 hours. It's the first time i'be had more than 2/3 hours sleep in weeks. Still woke up feeling tired though!

Hand holds for all our battles

AnxiousMunchkin · 29/03/2017 06:03

Morning joto and ohfucks and everyone else too.

I just feel very very low and like I'm swimming through treacle all the time and can't get on top of anything. Intrusive thoughts are quite persistent. I've decided I'm going to have to use caffeine pills today to try and battle it a bit (I don't usually have any caffeine at all, never have, so I'm quite sensitive to it). I have no money left either, this month feels very long and won't get paid till Friday. Getting daily texts from the bank about my overdraft which are not helpful and already borrowed a significant amount from DP who isn't in a much better position than me. Not going to starve but it just doesn't help anxiety levels etc!

Keep on keeping on everyone. We're not alone Flowers

erinaceus · 29/03/2017 11:31

Morning yurtees.

Jojo that sounds so, so hard. Sending fluffy hugs today.

I'm sleeping much, much better these past two nights than I have in the past...weeks...months I suppose. I've started to feel safe here on the ward which tells me that I need to start going out on my own a bit. So far I've only left the ward with someone else, and even then it's not easy and I feel overwhelmed easily and a sense of relief when I get back here. I am due to see the consultant today so I will talk about next steps with him then. Been doing a lot of art which is lovely to have the time for. Have visitors today and the two following days. Still worried about the future but feeling more positive than I have in a while. Sometimes the positive feeling goes away and I feel utterly hopeless. It is a bit of a rollercoaster Confused

Ohfucks · 29/03/2017 11:36

AnxiousMunchkin - I know all about the daily overdraft texts! I've been living like that for months, without any money for 5 days of the week - Which although not the reason for my crisis, certainly hasn't helped! we really couldn't even afford food, but luckily DD had lunch and dinner at after school club.The thing is I worked constantly and although was making a good enough living, it always got sucked up by debt. Last couple of weeks have been SO much better, as finally contacted Stepchange and got a debt plan written up - so if this is a longer term issue i really recommend contacting them.

My CMHT meeting was so much better today, they have taken me off stepped up care and home visits, which makes me nervous as I'm not sure I can keep myself safe, but they've kept me on the books so I can still call them in crisis etc. The positive is that she came armed with a plan - obviously understanding my communication needs a bit more! managed to book me in for an appointment with the psychiatrist in three weeks time, and then from there I can be referred to whatever service I need Psychology/DBT etc. She apologised about the GP/CBT thing and said she didn't fully understand my situation, and can see that short term counselling is not what I need. She thinks I should wait for the psychiatrist appointment to ask about medication.

I still feel anxious about not having any coping mechanisms or medication or support for the next three weeks, but at least I have a phone number, and the mind website. Feels so hard to get help, three weeks of staying safe is a big ask.

Ohfucks · 29/03/2017 11:40

erinacious - I have a similar feeling of relief when I get home, or in particular when i get to my particular corner of the sofa, and anxiety OUT THERE. I think a certain amount of that feeling is healthy? I mean the rabbits do it... Just everything is always in too high a dose.

erinaceus · 29/03/2017 11:53

Yes. I agree. I used to have the same feeling with my sofa/flat/bed. But the ward is not a long term safe place. So I need to start taking steps bit by bit.

Ohfucks · 29/03/2017 12:17

Absolutely :)

Joto369 · 29/03/2017 18:23

Soooo today was ok after all. Good counselling session unravelling a lot and came away feeling positive. Applying for a job nearer home too so that is good 😁😁😁 hope everyone else is ok xxxx

erinaceus · 30/03/2017 13:45

Overwhelmed today.

AnxiousMunchkin · 30/03/2017 15:26

Hi erinaceous

Anything happened or 'just' same old? You're in a safe place, and we're here to give you a space to rant if you don't want to talk to the people there.

I've just been for an assessment for my knee... they think I might have to have an op Sad and are sending me for an MRI Shock (apparently i might be allowed diazepam for that, so that's something)

Anyway am around this afternoon will keep checking in if you want to talk

erinaceus · 30/03/2017 17:58

Hi Anxious

Nothing specific. Think I am getting to the point where being in the hospital is doing more harm than good. My home situation is far from ideal but I think it might be better for me than being here. Will discuss with the Consultant. You mentioned talking to the people here. The staff are massively overstretched and I am not someone to make a fuss so it is well-nigh impossible to find someone to talk to.

Thanks for being there. I hope that the MRI goes okay.

TinyMacBar4 · 30/03/2017 18:15

Hi.
I almost made it to the drs today, I really need to go and get contraception (5 weeks post section) and talk about what I'm feeling. But I chickened out.
I cried all the way home about chickening out but then I realised, I just really hate my life and I wish I never had children. I don't think there's a pill equivalent for that
So back to square one it is

AnxiousMunchkin · 30/03/2017 18:29

TinyMac I'm not a parent but I have read here before that almost everyone has had thoughts along those lines in the first few months post partum, although most don't admit it out loud. You're definitely not alone.

When you say you chickened out, did you have an appointment that you didn't make it to?

In my area you can get contraception at a walk-in sexual health clinic, perhaps that might be easier. I think pills/injections/patches etc you can just turn up and ask for, implants/coils you either book for or can only be done at certain times when the appropriately trained staff are there.

erinaceous hold on in there lovely. It sounds like you've got pretty good insight into how you're feeling and why you're feeling that way, for me at least that's usually half the battle.

MRI will be in a few weeks I think...need to wait for an appointment that hopefully I don't have to miss work for and DP is free to come for support as well.

erinaceus · 31/03/2017 00:19

Thanks Anxious

AnxiousMunchkin · 31/03/2017 02:26

Anyone still awake? I'm buzzing and not in the least bit tired at all. Have had a massive rush of creativity tonight and planning all sorts of eclectic arty colourful stuff for the garden and house. Furiously researching fern species and how to make mosaic stepping stones. Thoughts are racing out of control in all sorts of different directions and they're all exciting. Have filled up my amazon basket with crafty/DIY/garden aiopliws - don't actually have any money till tomorrow. But then I keep forgetting what I was doing and losing my train of thought. It's most frustrating. DP is on night shift. Have been narrating my ideas to the cat, he seems interested

Really should sleep before work though.

Going to put on a YouTube sleep video.

Don't want to but know I should.

AnxiousMunchkin · 31/03/2017 02:40

Ha just took me 10 minutes to choose a video. Doesn't feel like 10 minutes. Feeling a little disoriented now.

Gone with the heart chakra.

erinaceus · 31/03/2017 15:35

Did the heart chakra help AnxiousMunchkin ?

One of the nursing team told me that they will put in a referral to a crisis house today. I've made a lot of progress since I've been here, so that's a positive next step. I hope it will not take long for a bed to become available there.

AnxiousMunchkin · 02/04/2017 08:11

Hi folks

Sorry I went off on one a bit on Thursday night. I was hypo, sleep deprived, hadn't eaten, stressed, I started to have auditory/visual/somatic hallucinations but I wasn't distressed by them more fascinated, I was aware that they weren't 'real', and then fell down a rabbit hole of philosophising what is really real, experiencing derealisation big time. Didn't sleep at all for over 40 hours, and then that was only due to a sleeping pill on Friday night.
Last night I became so overwhelmingly fatigued that it was like I was drunk, unsteady on my feet, nauseous.

Somehow in the midst of all that I did a full day of work on Friday, and was shit hot, on my game, problem solving, full of new ideas etc. And I got paid - so of course have already spent a chunk on random stuff I hadn't planned to. Garden is going to look cool but bank balance not so much.

This morning I feel exhausted although I slept a lot last night. Don't have any obligations today so will try to have a nurturing self-care day. Trying to decide whether to go to a yin yoga class tonight, or to the OCD support group. I can't do both due to timings. I think the yoga will be better for me more immediately but the support group better for a long term view.

How is everyone else doing this weekend?

Joto369 · 02/04/2017 20:55

Would you believe I was herding sheep???? Id like ti say it was loads of fun but the first hour was then he next two we just sat waiting for the rest to be driven from the high hills. That was just bloody cold! I am due my period so have been low and crying a lot with a side order of anxiety and panic attacks. CBT tomorrow though xxx