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Long Term Anti depressant users .... 12 years for me now and counting

140 replies

kizzie · 25/07/2011 11:29

Hi everyone - this is a semi regular question from me but just wanted to catch up with others.

(Not that Im boring or anything ! Blush)

I was given ad's 12 years ago for PND. Ive never managed to come off them completely since although have had long periods on quite lowish doses. (Equivalent of 10mg and below of something like prozac/citalopram)

Im on a similar dose to that now (although its an older tricyclic) after having a big crash again last year. Things not completely smooth (still some break through anxiety and lows - 'blips') but had some good weeks so hoping that at some stage will back to complete stability again.

IF that happens (fingers crossed) then planning to stay on lowish dose for some time to come as dont want to risk another major dip.

Im also taking fish oils. And really (really this time) trying to do all the relaxation exercises etc.

Anyway I just wondered:

  • how do you feel re. taking long terms ad's
  • are you worried about long term impacts
  • have partic medications worked better longer term than others etc etc
  • anything really, just interested to hear from others in same position. I just cant quite believe that at 29 I had no previous mental health issues. Now at 41 Ive been on ad's for soooo long.
OP posts:
TheOriginalFAB · 05/08/2011 21:53

My youngest was 1 when I got PND again and it can be a shock when it comes on that late.

I have had a broken heart for an embarrassingly long time and today I have made steps to try and move on.

rumpleteaser · 05/08/2011 22:30

I know, I thought I was safe a year on. D'oh.
fab that's a big step and if it needs to be done then congrats.

TheOriginalFAB · 05/08/2011 22:31

It so needs to be done. I wish the people who knew I was still in love with him had told me Hmm.

strawberry17 · 06/08/2011 09:27

Hi OriginalFAB I know you've had a huge load to deal with, I've remember some of your posts because your name is so memorable, glad you've had a breakthrough and hope all will be well with you.

TheOriginalFAB · 06/08/2011 09:32

Thank you Smile.

orangeflutie · 06/08/2011 14:31

Hi FAB glad you're feeling a bit more positive today.

scarecrow22 · 06/08/2011 18:58

Firstly long term ADs rock if you need them. I spent years ignoring advice to take them - parlptlybreinforced by massive opposition from my mum, my husband and one of my best friends. After at least 20 years of on and off depression and anxiety, nearly losing my job, my marriage and the chance to have children, I finally agreed to try two years ago and my life is transformed. I was worried I would lose track of myself in a chemical fug - instead after a couple of rejected options I have found one that works brilliantly. For me it is Venlafaxine, but obviously it differs. I have been told I am probably on them for life and I am totally happy with that. Obviously not everybody needs them long term, and I know some who have successfully come off, but if I need them frankly I've done my time in dark places. I'm lucky I have found mess which allow me to feel joy and sadness but in a "normal" way; I don't know if this is possible for all but would encourage people concerned by the effects of their ADs to talk to specialists - including asking the GP for a referral to the local mental health consultants, in case a better AD or dose for you can be found. I should add that I had about six to eight months of CBT as well, and that helped hugely, especially return to work; I honestly believe I needed both to get where I am. I still use the CBT skills to help when I have dips and though they are so upsetting at the time I just keep repeating the mantra that they will pass, which they do, thanks to the mess. I should say to those struggling with dips that you might need to up the dose, at least in the short term, and definitely ask the GP for support including some talking therapy. However I have also found through trial and error that my dips are almost always triggered by taking the meds at the wrong time, not in the morning, pref immediately after breakfast. If you do not have such a routine, maybe set one up and see if it helps.

Rockin - once I was stable I wanted to TTC so went to a private expert for advice. I saw Jeannie Spears (I think is spelling!) at Priory, Roehampton. She told me that Venlaxfaxine was on list of less safe ADs because there was less evidence it was safe as newer. She checked with a centre of expertise which records info on women and ADs, based in Newcastle, and based on their data there is no unnecessary risk yet suggested by the evidence. As she cheerfully pointed out my age (40) was a much greater risk!! The happy ending is we have a very happy smiley baby girl. It is probably too late to have the five DCs I now wish I had had, but we feel very blessed. I don't know how you can check: maybe MIND can help?

Brighter - I actually came on the forum for the first time to ask the same question. My god daughter recently asked a couple of questions, to which the most honest answer would have been about the depression, but I avoided it (she is nine). It got me wondering when I should be more open with nephews and nieces to whom I'm very close (aged nearly six to 2 3/4), and later DD. Any advice or experience very welcome.

FAB - do look after yourself. Sorry you are having a tough time now. Really feel for you and hope you have support. Had something more specific I wanted to say, but forgotten... Will return when I remember.

Great thread. First time I have shared experiences. Like others I'm keen to start being more honest to break the stigma, though I find most people hugely understanding, and often have had or been close to similar issues.

kickassangel · 07/08/2011 01:55

i have to admit, i haven't told anyone that i'm on ads - i'm not in the lieast embarrassed, but how people think of you & respond to you is affected by knowing things like that. i want people just to treat me as 'normal'.

strawberry17 · 07/08/2011 08:59

Great story scarecrow22, so glad things have worked out for you and you now have a beautiful daughter!

Re the telling people, for years I never told anyone, I felt so ashamed, now I've gone to the other end of the scale and really don't give a damn who knows, if they have a problem with it it's their problem not mine.

TheOriginalFAB · 07/08/2011 09:06

I was dropped like a hot potato by lots of people once they knew I had depression/was on drugs and even people who talk to me now if I say anything about the happy pills just ignore it and move on after giving a nervous look.

strawberry17 · 07/08/2011 09:10

I think that's terrible TheoriginalFAB, I've not had too much of that. My family years ago were very unsupportive but that's a long story. Generally people are ok with it I find.

scarecrow22 · 07/08/2011 19:02

I find most people ignore it, but I don't feel like I'm being avoided. I worried for ages people would not trust me around children- whom I adore - but my sisters trust m so that is enough.
Kizzie - how do you feel now about longer term meds. My general feeling is if you not feeling safely robust you might get advice about altering dose or meds but don't add to stress by thinking of coming off them yet. Be kind to yourself Wink

somewherebecomingrain · 09/08/2011 09:51

I went on ADs a year ago - I realise I needed them much earlier. I will be on them for life. As well as balancing my mood they are like a smart drug for me - they make my brain work better. I don't want to tell anyone because I don't want everyone else in the world who I am now finally on a level playing field with to go on them! (Unless they need them, of course - I would tell someone who needed them. It was someone I really respected telling me she'd taken them that finally gave me the push.) I think they're brilliant and have no qualms except that I'm now TTC and agonizing over what to do if I am lucky enough to conceive again.
x

orangeflutie · 10/08/2011 18:55

I went to see my doctor yesterday as arranged and actually smiled and laughed a bit. Not been like that for a while:) I've felt much brighter over the last week and after a chat will be staying on my usual AD dose. I'm still walking most mornings as she suggested and don't know why I feel so much better, but I'm enjoying the feeling and hope it lasts. It's so scary when you have a 'wobble' or 'blip' because you end up thinking you're always going to feel low. I'm glad it's passed for now, but I'm aware that I'm more 'fragile' than I thought I was so won't be adjusting dose for a long while.

moggiek · 10/08/2011 20:13

In answer to the OP, 36 years and counting ...

strawberry17 · 10/08/2011 21:51

Hi orangeflutie, nice to hear you are feeling so well. I so recognise that panic about a wobble or blip meaning you are always going to feel low.

orangeflutie · 10/08/2011 22:27

Thanks strawberry17 :)

moggiek wow 36 years! How are things going for you now?

moggiek · 11/08/2011 19:37

I'm well, orangeflutie, thank you. It became abundantly clear when I was in my twenties and needed the maximum course of ECT to keep me this side up, that I'd need long term treatment. Like everyone here I have my 'blips', but I have a lifetime's experience of dealing with them Smile.

francesrivis · 11/08/2011 20:11

I am overwhelmed by this thread - for years and years I have thought I was the only one (sounds stupid I know, but have never spoken to anyone in rl about it). I am so grateful that you have all shared your experiences. I have ordered the book you recommended Strawberry (I think we spoke on another thread, hello!) - not sure that I'm ready to start coming off at the moment, but it would be brilliant to find out more about the options.

I'm currently on 75mg dothiepin but trying to get up the courage to change to 15mg mirtazapine due to the effect of dothiepin on my libido. Just wondering, in case this doesn't work, has anyone found an ad that doesn't affect your sex life?

strawberry17 · 11/08/2011 21:21

Hi francesrivis, it's shocking how many people there are out there in the same boat, but mostly people don't talk about it.
Sadly, I haven't found one antidepressant that didn't mess with my libidoSad , I tried a fair few in my quest, which is why I'm glad to be tapering off now.

francesrivis · 12/08/2011 09:36

Best of luck with your tapering. It will be really interesting to read the book you recommended and hopefully be able to make some informed decisions. Also interesting to read what people have said on here about whether/when to tell their dcs - mine are only little at the moment but it is something I have thought about. I want to be honest with them, but at the same time am not comfortable with anyone else in rl knowing - but I can't say "mum takes this medication and it's nothing to be ashamed of - but it's a big secret and don't tell anyone"!!

racingheart · 15/08/2011 22:53

I took seroxat for years. It didn't suit me. Stopped me feeling depressed and all other feelings too. been on and off citalopram for about five years. I think it's wonderful, and would stay on it but am sick of the weight gain. I'm huge now with no ability to diet. My appetite and craving for sugar is through the roof, and I'm crawled up from slightly overweight to medically very overweight, so have to do something about it.

I've had depression since the age of 14, undiagnosed for most of my life. Lived with it so long I just thought it was normal. Got help at very low times when suicidal and them once I'd been put on citalopram suddenly worked out how every one else must feel day to day - just general low grade contentment and relaxed ability to cope instead of the opposite. It felt like getting a life after years of wilderness. So... I'm very nervous about trying to come off them and will probably cop out of it. I'm just so keen to lose weight and get back to my normal body for a while.

Toffeefudgecake · 16/08/2011 00:27

Racing - I am on Citalopram and it has worked wonders for me. However, I have also put on lots of weight whilst on it. Fortunately for me I was underweight to start with so I could afford to put a bit on, but now I'm starting to think about dieting for the first time in my life. I have tried to diet recently, but I get so hungry and, like you, crave sugar, so I haven't done very well. I'm thinking of halving the dose I'm on - maybe, combined with dieting, that would work. Could you reduce your dose, rather than coming off Citalopram entirely?

kizzie · 16/08/2011 14:22

Hi everyone - glad to see everyone still chatting :)
Im back from a few days by the seaside.

And it was blip free Shock Smile.

It was such a relief after a difficult summer holiday last year. (Not that you'd be able to see from last years holiday photos - Ive got this manic fear the children looking back at photos in years to come and being able to 'see' that something was wrong in my eyes. In every one one of last years photos I look like Ive just won the lottery with the best fake smile youve ever seen. !!)

Anyway - hope you are all ok. Im taking fish oils daily alongside ads as this seems to have have helped a bit in the past too x

OP posts:
kizzie · 16/08/2011 14:32

Scarecrow - just reading back ... I also saw Jeanie Spears a few years ago

OP posts: