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Elderly parents

DM (81)'s house uninhabitable and she's in denial - HELP!!!

123 replies

TheMadGardener · 03/03/2018 22:14

Cross-posting between here and 30 days as I’m hoping to get more help.

Lots of background here, please bear with me as this will be VERY VERY LONG…My mother has always been “difficult” and with a massive tendency to deny or ignore anything awkward/unpleasant in the hope that if she does nothing, someone else will sort it out. Probably why, when her marriage broke down, she took herself home to live with my DGPs and dumped me and my DSis on them – DGPs did all the hard work of parenting, DM just lived in the same house but did her own thing. No matter how elderly DGPs got, they were always responsible for household bills and maintenance, DM not interested in responsibility.

Time went by. DGPs died 20 years ago and DM just went on living in their house. Technically the ownership of the house is still in dispute (they died intestate, DM has one brother she hasn’t spoken to in 40 years, he sent a few legal letters about house, DM ignored letters, he let things go as he is well off, she just went on living there.) House became dilapidated and now is getting to be a ruin. No central heating, for example, only electric heaters. DM only has pension but never did anything pro-active about getting help with house. Discouraged DSis and I from visiting. Only comes to see us if really pushed into it. Makes excuses why no one should visit her. Never phones us, we always have to phone her if we want contact. DM is now 81. Still drives (badly) but this is essential as ruinous house is in remote village with no shop.

DSis lives about 20 mins from her. DSis is single, lives in a tiny one-bedroomed flat, works in a high-pressure but not very well paid job in the NHS and is also studying for a degree in her spare time. DSis has done an awful lot for DM over the years, taking her out, doing shopping for her, helping her in lots of ways. Is allowed to pick DM up and drop her off from house but not go in.

I used to live 6/7 hours away from DM but now have moved only 90 minutes away. I am married with two DDs at secondary school and DH is undergoing treatment for Stage 4 bowel cancer which is incurable. Since we moved nearer I have also made efforts to see DM more and take her for days out but have not been allowed in house. She came to us for Christmas and I tried to get her to stay longer with us because I knew her house must be freezing in winter (I grew up there, so I know!) but she insisted on going home after 1 day. We constantly worried about the state of her house but she refused to engage in any discussion about moving house or the future.

Last week DM had a fall – Dsis had rung earlier to check that she had food, etc during the snowstorm and told her not to risk going out, but she typically decided to go out for a walk, fell and broke her ankle. DSis had to drive through a snowstorm to get her to A and E. Since then DM has been sleeping on sofa bed in DSis’s tiny flat insisting she wanted to get home although unable to do stairs and we know her house is freezing.

Today DM’s neighbour rang to say she could hear water gushing noises in the house. DSis went over and found a frozen pipe had burst and the whole of downstairs was at least an inch deep in water. Also on looking round found that the ceilings have collapsed in two of the upstairs rooms and there are big holes in the roof at the back so wet upstairs too. A window at the back of the house has fallen out and DM has put a sheet of plastic over it. DM now admits that the window and the ceilings happened ages ago but she didn’t mention it because she was “coping fine”. Of course she has no buildings or contents insurance!

DSis got a plumber friend to come round and turn the water off (no one could find the ancient stop cock) and rang me in tears saying she just couldn’t cope. DM is still insisting she will be able to go back and live there when her ankle is better. The house is completely uninhabitable and she has no money to fix it.Neither DSis or I have thousands spare to fix it. We both feel like everyone will think we are shit daughters for letting things get like this, but honestly she totally denies there is a problem and refuses to discuss any possible solutions. This is the first time anyone has been allowed in her house for years!

I am going to get her tomorrow to stay with me as DSis is at the end of her tether – DM has been very difficult during the week she has been staying with her. I have room in my house but lots of steep stairs and no bath/shower downstairs although I can temporarily fix her up a camp bed downstairs and there is a downstairs toilet. DH has just had a bit of a cancer relapse so this couldn’t have happened at a worse time.

Of course it is Saturday evening and no agencies are open till Monday now. I was thinking of ringing our local branch of Age UK for advice, and the council adult social care and housing lines. I don’t know how these things work, but who do I need to talk to? Ideally we want to find her somewhere to live. She can’t live in that house, it would be condemned. If we can agree with her NC brother to sell it, it will only be sold as a derelict fixer-upper (although it is in a prime tourist Second Homes area). She has other health problems as well as the broken ankle (some incontinence which she denies, a heart problem which she denies). She can’t drive at the moment. She can’t live permanently with either me or DSis as our homes are not suitable. She has no savings to pay for care. The worst thing is that she refuses to admit that there are any problems. What we need is someone (not me or DSis) who will just TELL her that she has to move somewhere else, accept health care. Apart from the total denial syndrome, she presents as having capacity. What do we do???? Help!!!

OP posts:
Pannacott · 08/05/2018 10:43

Oh fantastic news. I'm so pleased you have your home back to yourselves. And that is good news that your mum has a flat she's happy with (and I say that through gritted teeth as I've been very cross with her on your behalf!)

stayathomegardener · 29/05/2018 18:30

Great news, what a relief!

thesandwich · 30/05/2018 17:47

So pleased to hear your update- sorry about your dh. Please take some time for you.

PaigetheRepahite · 30/05/2018 18:18

Brilliant news! Well done for keeping on, keeping on.

Wallywobbles · 30/05/2018 20:03

You are all saints. Has she met your solicitor and might they be able to make an impression on her?

Lavalamped · 30/05/2018 21:05

Just spotted this thread and wanted to say that it sounds like you're doing a great job in very difficult circumstances Flowers

TheMadGardener · 06/08/2018 19:29

Me again, just realised I hadn't updated for a long time.

Update: Well, DM is now all settled in her council retirement flat. DSis and I are trying to stop her from building up her hoarding habit again in the new flat as it is only a little one bedroomed flat. Every time I go round there it looks more cluttered! We arranged to clean and transport the few pieces of furniture she wanted from the house of horrors - fairly new fridge freezer, chest of drawers, coffee table, etc. We have also sorted out her finances as we found she had signed up to ridiculous tariffs for things like car insurance, electricity which we have been able to cut massively.

My lovely solicitors have been very efficient and I have now been granted the replacement letters of administration and can sell the house of horrors whenever I like. I am almost ready to do this but there's a slight delay as DSis and I have still been spending hours driving over to the house and doing more sorting/emptying whenever we can. We've now got to the point when we think we've managed to pick out anything sentimental or valuable which isn't ruined by damp or that someone in the family might want to keep. We've been trying very hard to discourage DM from taking crap to fill up her new flat. Just so random the stuff from 50 years of hoarding we've been finding - everything from Blue Peter annuals to old car radios to sewing machines to unbelievable amounts of cutlery - cutlery in the kitchen, cutlery in the bedroom drawers, cutlery in the wardrobes - sadly none of it priceless antiques or solid silver! The dust and the mould are awful - every time I go there I suffer from gritty throat/eyes/nose afterwards. I wouldn't let my DDs come and help more than once because of this. I am now going to send in a house clearance company now we've found all the personal stuff and then get the property up for auction before the winter. This long hot summer has been a godsend as there has been no rain pouring through the holes in the roof to make things worse!

Looking forward to getting rid of the property altogether and also to meeting up with long lost "evil cousins" who are very keen to get together, without telling DM obviously.

The irony is that just as I am about to finish working at sorting through piles of filthy junk in the house of horrors, my lovely MIL with dementia has agreed it's time to leave her bungalow and her carers and go into full time residential care. I'm happy about this decision but can now foresee I will soon be moving on to helping to empty all the stuff out of her house too! At least she's not a hoarder and her house is clean and dry!

Thanks for all the support during this family crisis, it's really helped and hopefully if anyone else finds themselves in a similar situation it may offer some advice. Sadly my DH is still very poorly (about to start trying some radiotherapy instead of chemo) so maybe I'll start a thread about him in Life-limiting illnesses as I do appreciate the support.

OP posts:
stayathomegardener · 06/08/2018 19:38

Thanks for the update, fantastic about the new flat and resolutions for the sale of the house.

Thanks for your DH.

thesandwich · 06/08/2018 19:44

Many congratulations on the progress with your dm- and my deepest sympathy to you and your dh.
You have done an amazing job. Put yourself and your dh/ dc first. Outsource all you can. 🌺🌺🌺🌺🌺

Nottheduchessofcambridge · 06/08/2018 20:12

Aw things are moving along now. Fingers crossed the house won’t take long to sell and that’ll be one less thing for you to worry about.

Fortysix · 06/08/2018 21:21

Mammoth amount of work. You and your sis sound amazing daughters. Sending everyone especially your DH lots of energy and good wishes

MaryPeary · 12/08/2018 09:14

Thanks so much for the update - was following this earlier in the year. My parents are, thankfully, fit and well but are hoarders and have low standards of housekeeping, so we know there are likely to be issues later on. It's been helpful to get an idea of what can be done. You have done a great job in a really difficult situation.

Chickencellar · 18/08/2018 13:19

Amazing you have got so far with all the other things going on in your life.

Lavalamped · 18/08/2018 17:40

I thought of you today. There's a bit of a house of horrors that's gone up for sale down my road, I presume it's an elderly persons house and there is signs of hoarding from the photos. It doesn't look terrible but it definitely needs a lot of love. It's on with a regular estate agents and from driving past a couple of times today there has been a lot of interest. If you'd like the Right move link let me know as it may be possible to sell via an agents rather than auction?

TheMadGardener · 30/08/2018 16:09

So, DSis and I have been continuing to have sessions excavating piles of damp, mouldy, dusty junk and dodging bits of falling ceiling plaster. We've found all sorts of interesting stuff (nothing valuable though!) including family photos and documents from way back (sadly a lot has been ruined by damp but some still OK) and even a bunch of letters between our parents which told us a LOT of juicy stuff we didn't know about our births and their acrimonious breakup and family politics and my DM's nutty behaviour. (Yes, we read our DM's private correspondence behind her back and we don't feel guilty!) Also more bags of legal letters from 20 years ago with solicitors making lots of money sending nasty letters between my DM and her "evil" brother and letters where she got her legal aid taken away because she just stopped replying to any letters from her solicitor and they got fed up...

Unfortunately DM's new council retirement flat, which we painted and made all nice for her, is already starting to look like a hoarder's paradise after only a few months as she piles up junk there. We've pretty much agreed to leave her to it as it's useless arguing with her and we've done so much for her already to make sure she has a roof over her head.

A few weeks ago there was a massive row where DM turned on DSis and accused her of losing and throwing away her stuff while clearing out the house. In particular some photo albums which DSis had found at the house and packed in a box and given to DM at the new flat. DSis was very very upset but it is typical DM. I stepped in to referee and pointed out to DM that DSis would NOT have thrown stuff away unless it was absolutely ruined (a lot of stuff has been thrown away and was ruined). Also that DSis doesn't get much time off from her stressful NHS job and has been spending most of her days off sorting through wet mouldy junk on DM's behalf. DM has since found the photo albums in her new flat exactly where DSis said they were, but has not apologised of course as she never does, or says thank you either!

Anyway, the house of horrors goes on the market next week! Apparently loads of people are interested in buying it as a fixer-upper and are going to be doing Open House days in hard hats and signing disclaimers about the roof falling on them! Fingers crossed that it sells for loads of money and fairly soon so I can stop paying council tax on it!

OP posts:
stayathomegardener · 16/09/2018 21:57

Good news and bad then.

Do check to see if you might have a council tax exemption on ether the basis that the property is empty or uninhabitable.

Hattieboomboom · 13/10/2018 08:49

Only just found your thread OP - have really enjoyed reading it and found it inspiring how well you coped with such a difficult set of circumstances. You and your sis sound lovely and your DM doesn't deserve everything you've done for her. How refreshing the way your extended family have been so nice throughout. Sure the good relationship will as you're all obviously very decent people.

Hope the house of horrors sells (has sold?) for a good price too and your DH is ok. You are obviously a very strong person to have dealt with all this. All the best to you and your family.

TheMadGardener · 13/10/2018 16:59

Thank you. There was a delay about the house going on the market as my uncle's solicitors, who had had custody of the deeds for 20 years since he got the first letters of administration, were asked by my solicitor to send the deeds to them...and they could not find them. I could not sell the house until they were found. But happily, they have now miraculously turned up, so the house really is going on the market next week! Unfortunately we're having terrible storms at the moment, I dread to think how much rain is pouring through the roof of the house of horrors this weekend but I'm going there again on Monday so will have a look and empty all the buckets...

My lovely MIL, who has dementia, is now happily settled in an excellent nursing home round the corner from us, so we don't have to keep trekking to her house any more, which is a relief. Although we now have to sell her house as well.

OP posts:
RandomMess · 13/10/2018 17:26

I have just read the thread from the start. Glad you are finally able to sell up.

You and your family and DSIS deserve medals for not rehoming your Mum under a patio somewhere...

Is the sale of house going to be enough to buy your Mum something where she wants to be?

Lougle · 13/10/2018 17:48

Wow, I'm full of admiration for you. I hope it all goes well Flowers

AJPTaylor · 13/10/2018 18:01

Excellent news all round. At least you will have a fund should she need care or extra input in the future!

BlessThisMess · 14/10/2018 12:16

Good news! And how is your DH?

TheMadGardener · 25/10/2018 00:14

You and your family and DSIS deserve medals for not rehoming your Mum under a patio somewhere...

Grin Grin Grin
How true. Relations are pretty strained between her and DSis at the moment. DSis is the most local to her and has done so much for her and DM has been thoroughly unpleasant to her lately. If I was DSis I would disengage from her and stop checking she is OK but DSis has a lot of FOG going on and never achieved the distance from DM's nonsense which I did by moving hundreds of miles away for years.

Estate agents seem to have things well in hand re house of horrors. DH really struggling on new course of different chemo. Spending most of day on sofa just exhausted. DDs managing to enjoy half term though.

OP posts:
brighton19 · 25/10/2018 01:03

I've just read your thread from start to finish op, after an evening feeling somewhat sorry for myself following a stressful day on my own with two under twos whilst worrying about one relatively small legal problem. Thanks for the reality check that there could be so many more things on my plate! I really hope things progress well with the sale of the house of horrors. Did you ever manage to meet up with your new relations? You deserve a medal for keeping it all together.

SusieQ5604 · 25/10/2018 01:32

Invite a social worker or whoever to take a tour of her house if she insists it's fine. They can have it condemned if it needs to be.

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