Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

Elderly parents

Responsibility for Elderly Parents? Support thread right here!

997 replies

Needmoresleep · 01/09/2014 09:08

Several of us are on the same journey. Some more difficult than others, some longer than others, but none easy. Feel free to share tears, rants or laughter with others who will understand.

OP posts:
PeterParkerSays · 05/06/2015 09:19

Can I join please? MIL lives 80 miles away, has advanced Parkinsons and is now in a care home which was a huge culture shock for her. She is now having blood tests for dementia having spent last weekend in hospital with a UTI that made her hallucinate. She's a lovely lady but visiting her and getting her out and about is hugely hard work because of the muscle freezing and incontinence and we have a 5 year old, our own home and one FT and one PT job to chuck into this mix of 2.5 hour car journeys at weekends.

Nearly finished the power of attorney forms for her so that will make the banks less of a hurdle. I just see other people of MN moaning about inlaws sticking their beak in over childraising or giving their GC too many biscuits when they care for them, and I'd give my right arm to swap with them. MIL is only 75, she's so much younger than the other residents of her care home and it's horrible to see her visibly deteriorating. We'll soon get to the point where my SIL can't take her out by herself as she won't be able to get her into the car. DH has to lift his mum to get her into / out of the front seat as it is.

Sorry to offload but my friends all have inlaws of the "provide child care" kind of age so have no understanding of all the issues we're dealing with about care homes, incontinence assessments, fee payments etc, I end up chatting to a lady at work who cared at home for her ILs (I take my hat off to her) and who worked as a carer. and breathe

twentyten · 05/06/2015 09:55

Hello all- welcome Peter to the club no one wants to be in where we all understand and can say the unsayable......
Peter it is so hard- especially where those around do not understand and can appreciate the pressure. And the complexity- dealing with all the financial issues, practical issues and feeling that it isn't fair- for your mil ,your dc,or your dh and you. Loads of wisdom and experience on here and people who understand.
BrewBrewBrew And ThanksThanks for you.
Cmot- I really feel for you- when you see a little precious window of time for yourself and the weather is good and it gets cruelly taken away- you must have known when the phone went what it would mean. Look after yourself. Hope your dm is ok. BrewBrew
Here balancing ferrying ds to school for a2 exams, taking dm to pain clinic daily this week- I found myself about to apologise to her for not taking her out this week- but stopped myself as I have nothing to apologise for.
Dh is off taking 70 girls on a d of e training trip....so I have abandoned plans to work on assignments and just doing core work without seeking more until things move on... And mn in a coffee shop before sorting out internment for mil's ashes and then prom shoes....

twentyten · 05/06/2015 09:57

P&p there are a number of aids for getting into cars- Halfords do some?

Needmoresleep · 05/06/2015 11:44

Oh CMOT. Time for yourself and for your family is so important. It is much easier if you can add elderly parents to one of the things you juggle rather than be overwhelmed with problems to which there is no easy solution.

And Peter, welcome. Your poor MIL. I understand the hallucinations are terrifying. It must be sad for her as well if she wanted to be a hands on grandmother. My mother was adamant she had done her childrearing, albeit by paying boarding school fees, and had no intention of being involved with grandchildren. Her interests were golf, cruises and bridge. We used to send them to stay when I was working full time, mainly because my dad would book them on sailing courses, but the price was a daily report on how badly behaved they were. The sad thing is that now, when her world is closing in, she has no history or emotional connection with her grandchildren. They are nice teenagers and willing to visit, but she has not invested enough and so gets no return. The emotional links last longest, so if your 5 year old is willing, try to ensure they can develop a relationship, ideally away from the care home.

I'm not posting as much, in part because things are fairly constant, and so other things have taken priority. With a nod to 2010, "we" have one AS level left, and then, though there are a few more weeks of school, summer will have started. DS took his first year University exams a couple of weeks back. He has not returned from University (which admittedly is only 15 minutes by Boris Bike) so goodness knows what he is up to.

A couple of good things:

  1. Our holiday flat near my mum's is proving a great sucess. We have reserved 10 days in June, and my in laws will go down for a week. Good for them as well, as they are now too old for trips overseas. We and DD will go down the first weekend, and DS and some University friends will go down the second. Thus DC will get to see all their grandparents, something they mean to do, but with everyone being at least two hours away, does not happen as much as it should. And the flat is booked for the rest of the month so we cover our mortgage. I find it makes a lot of difference being able to "just call round" to my mum's. The dementia means that she has little to give, so a visit that involves a 5 hours round trip is unrewarding. (If anyone else needs to make regular visits to a south coast town with a good beach and a decent football team and an elderly population and wants somewhere to stay PM me!)
  1. I have employed a former carer to take my mum out twice a week. They have a good rapport and she is happy to be paid to take my mum and sometimes one of her grandchildren for an outing. My mum loves a change of scenery and and a chance to see the world go by. The really wonderful thing is that this lovely lady takes a level of responsibility. She knows that it is difficult for carers to get my mum into the shower etc, but that she can. Essentially she is doing what I do during visits, taking my mum out but also checking basic things like whether there is any toothpaste or are there any dirty clothes in the linen bin. I still get down theere once a month but it is great to have someone else "being me" coming in more regularly.

Other than that the dementia is slowly encroaching, and my mother's time clock is becoming increasingly awry. Though things are stable at the moment I suspect she only has about 18 months in her current "extra shletered" setting, and that will involve increasing support for someone who regularly sends carers away. She will hate being in a home.

I wondered if there were any appetiite for a meet up in London before the end of term. I live very centrally and so happy to organise, say a lunch, somewhere close. I recognise that others are frantically juggling parents and children and jobs, and that it is a bit arrogant to assume the world comes to London. However if there were interest, I am happy to organise. I met a couple of wonderful MNetters when things were at their worst, and it was amazing to find so much in common and, importantly to laugh.

OP posts:
CMOTDibbler · 05/06/2015 15:02

NMS, its great that things have settled for you.
I would love to meet up in London

I phoned A&E earlier (knowing all the numbers now is an advantage) and they don't think a stroke, but were giving her IV fluids, had had x rays, blood tests etc. But she was still non responsive 5 hours after it had started which is a bit longer than usual.

I still went out for a cycle - I just need the headspace.

PeterParker - I know just what you mean. The blithe statements about using gps for holiday care are a bit of a stab - my mum is younger than your MIL, and so wanted to be a grandmother, but she only got a year of enjoyment and doesn't even know who ds is.

PeterParkerSays · 05/06/2015 16:24

Thank you for the suggestions about aids for the car, we've looked at a lifting belt, and a turntable to help her get in, or to slide her across from her wheelchair but they're so expensive together, and there's a bit of me that resents paying for things that she'll only get a few months' use out of before she can no longer get out. Is that mean? Her muscles just lock and she panics and you're left trying to prop her up.

CMOT (great name!) I know about the sudden A&E phone calls. I thought, once she went into a care home, we'd got past the stage of always having to have half a tank of fuel in the car at all times and a change of clothes in the boot in case MIL landed in A&E again, but it seems not quite. It just has such an impact on your day, kind of "Oh, so that's what we're going to be doing today then?".

CMOTDibbler · 05/06/2015 16:57

Would it be easier to just book a wheelchair taxi to take her out? I've seen quite a few round here with proper lifts (I think because they take children to SN school), but even a black cab is wheelchair accessible using the ramps.

For me, the impact of A&E is down to 'is this it' questions - will this be the time mum can't go home so I need to get a respite place, or will her brain just forget to breathe now. And as my dad (vvvv frail) is her carer, when he gets admitted, its the same sort of worries as to whether I'm going to have to be evil daughter and put mum into respite because he's staying in.
And of course I feel bad because I don't run the 80miles to the hospital every time either.

Anyway, crisis averted, mum has been sent home, dads cystoscopy didn't show anything so back to normal. We'll see what mum has lost this time though - every time she has one of these episodes she gets markedly worse

StepAwayFromTheEcclesCakes · 05/06/2015 17:03

Peter is there a hospital rehab type place that could loan out the equipment to you? worth looking into.
ss visited Mum, she told me they didn't ask her much and was very huffy about them I had to drill her in accepting that they were there to help so to 'play nice' she is a stubborn mare at times and I can imagine her sat there all stroppy when she can be so lovely. think she is just suspicious of strangers, said she had no idea who they were Sad she says she's missing my dad who died 3 years ago, and that she can't remember where her home is anymore Sad I told her off a bit and said she needs to get her fighting spirit back if she wants to get home, she agreed and says the hospital is not the place she should be.... which is why the bloody social workers were there to talk about moving her!!! she is not doing herself any favours and I am torn between sobbing for the loss of her independance and shaking her to see that she needs to help herself here a bit too.

twentyten · 06/06/2015 20:09

Hi all. Eccles- it is so frustrating when they do not help themselves. SympathyThanksThanks.
I'd be up for a London meet up SmileSmileSmile!! Travel from here( Midlands) is easySmileby train. It would be great!
Calm here- dm is loving the attention from the " young man"- sixty is at the physio- worth it for that! Took dd to the Cold War museum for a variation on history revision- excellent but how come stuff from our lifetime is in a museum and history syllabus?????
Belin wall fell on dh's 30th birthdayWink
Good luck to those with exams still and enjoy the sunshine.

bigTillyMint · 06/06/2015 20:21

Just remembered this thread after watching Dementia ville - did anyone else see it? Very touching. I thought it was a good way of making the residents more contented.

Needmoresleep, I think you are right about the emotional links lasting longest - the DC will come to visit DM (5hours each way) but there's not really any points of contact, whereas they dearly love PIL who have always been great with them and shown how much they love them.

Stepaway, DM can be exactly like that with new people and is very cross that people keep coming to asses/question her abilities. But she has always been a bit like that!

whataboutbob · 06/06/2015 20:25

Hi all. No exams here but I would love a meet up. The more the merrier!

whataboutbob · 06/06/2015 20:32

CMOT glad the crisis is over. With frail or demented parents I think one learns that these " crises" often settle. I learnt a while back not to drop everything each time the phone rang and it was the carers/ dementia team/ transport police informing me of his latest misdemeanour.

StepAwayFromTheEcclesCakes · 06/06/2015 21:59

twenty and Big tilly oh boy yes, bloody frustrating... anyway fingers crossed control freak elder DB1 is about to be thwarted as BD2 is visiting mum this weekend and think I may have persuaded him to take mum to see the two homes with spaces for her tomorrow! he agreed with me that she should have some say in it and I laid on the whole ' well when you think about all she has done for us....' so he has said he will try to sort it hopefully her hospital will be happy to let her go out and the homes will be happy to let her visit so could be a step in the right direction .
bigtilly couldn't bring myself to watch to be honest... too sensitive right now, but getting tougher with mum about saying what she feels instead of just agreeing with the last person she spoke too

twentyten · 06/06/2015 22:35

Fingers crossed Eccles. Hope it works out

StepAwayFromTheEcclesCakes · 06/06/2015 22:37

thanks twentyten

gorgeousone · 07/06/2015 17:14

I haven't been on here in a while, but whoever it was who said the memory clinic is a shock is not wrong. A psychiatrist who had missed the module on breaking bad news with empathy, blurted out 'well you clearly have alzheimer's' to my 91 yr old mum at the end of the session. We were all upset. My mother is still refusing all help apart from a cleaner x2 per week, is clearly not eating and drinking much and I feel permanently GUILTY for not being with her. How is everyone else coping with the guilt?

twentyten · 07/06/2015 17:38

Hi gorgeous one. Sorry to hear about the memory clinic- sounds awful. It is really hard- and the guilt is something we all carry that we should or could do more. But if she is refusing help- it is very hard. Is poa in place? What you can do is be her champion and facilitate care- but you have your life too. Others with more experience will come along- but sympathy and look after yourselfThanks

bigTillyMint · 07/06/2015 18:51

Oh dear gorgeousone, that sounds upsetting for you allFlowers. It sounds a lot like my DM (Memory Clinic coming up in a couple of weeks)

My DM is very angry about the "help" I have set up because I am the only one and I live 5 hours away, and can't just come at the drop of a hat. She is also not eating and drinking much. Is that common in older people? It isn't because she is forgetting to eat, she just eats very small portions.
She said today that she would rather be left alone and die when she can't manage any more. Unfortunately that's not how it works.

twentyten · 07/06/2015 22:16

Hi Tilly. Sorry you are having a rough time. Certainly my em started eating and drinking very little- tasty mini meals from marks help but it is almost as if she was disappearing. Don't feel guilty. We just do what we can.Thanks

PeterParkerSays · 08/06/2015 09:20

Tilly, it's hard being so far away from them, isn't it? We found ice lollies helped to keep MIL hydrated rather than big drinks, and the sweetness made them a little more appealing. At least she is eating, rather than telling carers she's already eaten or that sort of thing.

bigTillyMint · 08/06/2015 14:06

Thanks. One of the carers is taking her down to M&S in the car to get stuff. She has lost weight, but is not wasting away ATM. I think she might be not drinking much to avoid toilet trips up and down stairs although she can still get up and down OK.

CMOTDibbler · 08/06/2015 15:22

Mum went through a period where she was losing weight very rapidly - she didn't recognise food properly, so didn't enjoy eating as it never tasted right - and it was hard work co-ordinating chewing/swallowing etc.
Dad now gives her ice cream (naice, clotted cream type) everyday which she likes and obv goes down very easily, and her weight has stabilised

bigTillyMint · 08/06/2015 19:54

God it gets worse. Rang her a couple of times earlier and it was very difficult to understand/get through to her. She is very angry about carers (twice a week ffs) and panic button and going to the Memory Clinic. Then my friends mum rang to say she went round and couldn't get make any sense of what she was saying for an hour or so. And that she's not taking her stroke pills regularly.
She is saying that she would rather be left to manage on her own and die. A lot. I fear the Memory Clinic will not be a happy experience!

SugarPlumTree · 09/06/2015 12:01

Oh Tilly, really feel for you Flowers

Mum did the whole not drinking so didn't need to go to the toilet thing which inevitably led to UTIs and her going a bit loopy.

Is it an idea to ring her GP and explain what happened yesterday, the phone call from her Friemd to let them know what is happening ? So very hard at the best of times but when you have distance and GCSE's as well, it is a hell of a lot to cope with.

With Mum there was one Nurse from the Surgery who she liked and would listen to. Do you know if there is anyone at her Surgery she might listen more too?

bigTillyMint · 09/06/2015 13:26

That's a good idea SugarPlum. I am going to call her later and will see how the land lies today.

DH said that I should tell her that we are going to the Memory Clinic to see how they feel she is and if they say she is OK, then we can get rid of the alarm button/carers. And if not... then the GP will know "how bad it is" and we can have a conversation about my concerns.

Swipe left for the next trending thread