Thanks Christmas that's very useful perspective. I feel much more positive about getting the test results, and about the school referral now.
Looking around at our family, I think that many things would have been easier if we had known about this before, even for the older generations. So yes I do think that there is impact on daily life, and a diagnosis would be helpful.
The really odd thing is that in my family, the men use ASD traits to their advantage. It gets them on in their career and they are just considered to be a bit hard-nosed, and very focussed. It's definitely not holding them back at work, but just with personal relationships. It's odd that.
I think as more people get diagnoses and society comes to understand this condition, we may find ourselves rethinking the idea that asd is necessarily a disabiity. In my family it definitely isn't, not in all cases at least.
The other thing that puzzles me is that in the fast-paced English school system it is a problem. But in the slower-paced Irish and Scottish systems, it would be much easier for people to slip under the radar and just develop in their own time, which in many ways might be kinder.
It's a lot to think about really. Thanks for all the helpful discussions. This forum really is a Godsend.