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Novavax vaccine trial part 4 - STILL waiting for approval

357 replies

Frazzled2207 · 01/10/2021 10:33

Here we are again

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Frazzled2207 · 25/11/2021 13:36

@Sarahschild
Hi I definitely wouldn’t be holding out for novavax if you need a vaccine. I had zero side effects and pretty mild ones with Moderna.
Parents had zero side effects with Pfizer and husband had mild side effects with AZ so Novavax not a clear winner in that respect and even if it gets approved I don’t imagine there is a timescale for actually having it wildly available in Oz is there? It may never happen.

@dollywoodlooksgood
In all honesty I wouldn’t go near this trial. You can believe that within the UK it will broadly be ok but there is no guarantee at all that the booster would count in Europe. We were told several times in good faith that there work not be any issues for us and it turned out to be complete rubbish

(I started this thread and had two doses of novavax last year but bailed out this summer and got Moderna shots)

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Monkeygirl68 · 26/11/2021 18:26

Has anybody logged into their NHS app lately and found that their vaccines are all over the place? Mine are registered under both immunisations and medicines and neither are correct and don’t relate to one another……plus I still don’t have the domestic app pass (only the travel)….makes me look like I’ve been a model for a voodoo doll, fir the amount of needles that have apparently been stuck in me!!! 🤦🏼‍♀️

Bearsbearsbears40 · 27/11/2021 13:33

I was unblinded from the Novavax trial this week and had a “first” Pfizer vaccine yesterday. Today I really feel unwell, as does DH who had the same. I had hardly any side effects with Novavax (on the crossover trial so definitely had it). Hoping the symptoms don’t last long! 🤞

Dreamer1989 · 27/11/2021 17:20

Has anyone been able to just get a Pfizer booster? I am 31, pretty sure next week under 40’s will be able to get one and I want one asap.

Dreamer1989 · 27/11/2021 18:38

By this I mean booking or walking into a centre, not pretending we havent had Novavax (no judgement at all, I would have done the same were I in the age category).

Monkeygirl68 · 27/11/2021 19:33

@Dreamer1989

By this I mean booking or walking into a centre, not pretending we havent had Novavax (no judgement at all, I would have done the same were I in the age category).
I went to my walk in centre with all my paperwork. I had reached the 6 month + 1 week stage and had become eligible, so went. I had phoned my trial centre to speak to a doctor, but nobody was available so I made the decision to go for my booster at my local walk in. They were super nice, checked my paperwork and didn’t question anything. The only thing they made sure of was that I was getting the Pfizer and not the Moderna.
Dreamer1989 · 27/11/2021 19:41

Oh fantastic to hear, thank you @Monkeygirl68

KeepingOnKeepingUp · 01/12/2021 15:11

Has anyone successfully got hold of a second Pfizer dose yet?

I am now 9 weeks on from my first Pfizer dose. I had Novavax in Oct/Nov last year, was unblinded and given a letter by my trial site allowing me to get two doses of Pfizer 8 weeks apart. I was slightly ahead of the JCVI guidance as my lead doctor was happy to approve two doses of Pfizer before the guidance changed so that I could travel. First one was no big problem – I went to the vaccination centre at the hospital, got my dose, and it appeared on the app a few days later.

Fast forward, and I turned up this morning for a walk in appointment as I don’t seem to be able to book online. That should have been a warning – I was told by the trial site I could go either to the centre attached to the trial site or to the other big teaching hospital locally that they are working very closely with, but not to go to any other vaccination centre as they wouldn’t know how to make arrangements for trial participants. The trial site centre isn’t as convenient as the other teaching hospital so I turned up there this morning, queued for 45 minutes, registered and got as far as the booth, with my sleeve rolled up. The nurse tried to call up my details and enter the vaccination details, and hit a problem. Lots of waiting ensued while various people came in to try and sort it out, before eventually the lead doctor appeared and said that actually, my first Pfizer dose is treated by the system as my second (because I had Novovax, and those two trial doses are effectively now the first vaccine dose on their system) and that therefore I need to wait three months for my second dose, which will be treated as a booster. That’s another month away.

I’m not particularly concerned about antibodies at this point – I work in an academic setting where I’m exposed to people all day, I am sure I had Covid in May last year, and have had three jabs of various types, so I think I’m good for protection. But the lack of joined up thinking is really frustrating. I know there are other things to worry about but I spent two hours wasting everyone’s time, including holding up the queue for boosters this morning.

I don’t particularly mind if my next jab is marked as a booster or not – I suppose at least it means that while the world and his dog is getting boosted, I will at least be showing as having had a booster when they finally get round to it, as I was a bit worried about 2 x Pfizer taking me back to square one in that regard.

I’ve already turned down two work trips this year which would have helped my career because of this stupid vaccine situation, so this is really frustrating. On the other hand, I am really glad I didn’t go ahead and book a holiday for February on the promise from the trial site that I’d have had two doses of Pfizer by now – I was about to do it just as the Omicron news hit, so decided to hold off a little and see.

ItsSnowJokes · 01/12/2021 16:47

@KeepingOnKeepingUp our trial site called us yesterday to say our 2nd dose will be on the 8th Jan which will be 9 weeks after 1st Pfizer. I am still undecided whether to have it but she said I can cancel anytime. Call your trial site and tell them the problems you are having. Keep on and on at them.

KeepingOnKeepingUp · 01/12/2021 16:58

I have emailed them but no response. I think it's probably just a case of "computer says no" and if I go to the trial site rather than an affiliated site it will all work out but I'm not making the trip over there to stand in an hour long queue to be turned away again!

ItsSnowJokes · 01/12/2021 17:03

You need to call them. It seems all trial sites are terrible at checking emails.

KeepingOnKeepingUp · 01/12/2021 17:48

Mine have typically been really good but I wonder if that will change as there can't be many (any) people left in the trial.

Dreamer1989 · 01/12/2021 18:54

Does anyone have the Norwich trial site phone number?

gazzaconns · 01/12/2021 19:08

It could be this 01603 647326

Dreamer1989 · 01/12/2021 20:50

Thanks @gazzaconns

CardinalCat · 05/12/2021 22:31

And so the circus trundles on....

This week I had my final appointment at my trial site, where they took bloods and details of recent GP visits etc. I remain blinded and nobody knew when I might be unblinded (other than I can request this if I wish.)

I had given up waiting for novavax approval back in early October and went for a "first dose" of a deployed vaccine, with a letter from my trial centre head. I was given Moderna. I was summoned for my appointment for vaccine "2" and attended the vaccination centr on Saturday only to be told they only had Pfizer and wouldn't be getting any more moderna for ages, but that it was ok to have Pfizer was #2 so long as #1 was another mRNA like moderna. I queried this and the nurse checked with the chief vaccinator and they insisted it was fine. Having queued for nearly two hours (including an hour outdoors in snow) I decided to go with the flow but I'm now fretting that my elusive vaccine passport remains scuppered (for what it's worth anyway, now that we're heading back towards travel restrictions.) I'll email my trial centre tomorrow to let them know and ask for advice.
So, I'm a real old cocktail of covid vaccines at the moment! Wonder what on Earth I'll be offered for my March booster (#3)- possibly novavax, I suppose!

CardinalCat · 05/12/2021 22:34

Just to say- I had an absolutely horrid reaction to moderna back in October/ really nasty 24 hours of flu like feverish symptoms and a couple of days after that if not quite feeling right. After this Pfizer I'm fine- very tired but no major reaction like I had with moderna. So, that's something at least!

Woventabby · 06/12/2021 09:50

Thanks everyone for the updates. I am due for the second pfizer next week. I thought I might try our local walk-in vaccination centre, but it appears that I had better go back to the one attached to the trial centre. My Covid Travel pass shows a pfizer and a Novavax with a wrong date and the bach number 12345. I am beginning to doubt these issues will be rectified...
@CardinalCat With that cocktail of vaccines, let's hope that you have got the best possible protection anyone can dream of!

KeepingOnKeepingUp · 06/12/2021 13:23

WovenTabby definitely go to your trial center if at all possible. We are being told we need to, in fact. I went to an affiliated site and they managed to give me what seems now to be incorrect information and refused to vaccinate me, so the trial team have told me to go back to their site so they are on hand if there is a problem.

Woventabby · 06/12/2021 13:56

@KeepingOnKeepingUp Thank you. Will do so!

MMAMPWGHAP · 06/12/2021 17:43

I had a Pfizer jab yesterday morning. Had Novavax in April/May. Is currrently on my record as a 3rd jab but have been told that they will try and tweak it to be the first of two Pfizers if Novavax is not approved in the next few months.

After reading on here was very concerned over side effects. Had a heavy arm last night but nothing more. Absolutely no shivers, headaches etc. Thought I’d post for others worried re side effects.

gazzaconns · 06/12/2021 20:41

Guys, right now my NHS App is showing all four of my vaccines, 2 Moderna and 2 Novavax. I have downloaded the pdf copy valid for one month and ordered a postal copy in case it disappears as quickly as it appeared.

Dreamer1989 · 07/12/2021 17:52

I spoke to my site today, I have said I do now want the Booster - when I had my final appt, it was only over 40’s, obviously now the rules have/are changing. They are going to contact me with how to get it.

Frazzled2207 · 07/12/2021 19:46

@gazzaconns

Guys, right now my NHS App is showing all four of my vaccines, 2 Moderna and 2 Novavax. I have downloaded the pdf copy valid for one month and ordered a postal copy in case it disappears as quickly as it appeared.
Yea I gather the app is now fixed for most people- at least for now- which is great news.
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